Stoke! I've been exercising for 7 weeks and other changes. I make one small change every Monday and then must continue with it. I have lost 1 1/4 stone. Some of my changes have been add another exercise, increase each one by 2, no soda before noon, must get out of chair once per hour, drink 6 cups of liquid (1/2 must be water). My change this past week was the water. This past week I also decided to get strict for a week. Breakfast and lunch were to be uniform every day, dinner was back to basics! Breakfast was yogurt every day, lunch was a salad, grapes, and 2 oz of cheddar cheese. Dinner was a small portion of meat, lots of veggies, a startch. No snacks and no seconds allowed. Practicing get away from the table. It was rough because hubby made a home made cake! It is in a long cake pan with a slide on metal lid. I can't see the cake and told myself don't even open that lid! I haven't even had a crumb. All this paid off because I lost 5 lbs so far this week. Trying to come up with a change for next week. I feel stronger all over. Also when J started I couldn't do one sit up. I am up to 15!!
Dear Sharon, this is especially for you!!! Sing it any time whne you are down,, that is the song which is encouraging me. Hope that such type of links can be posted in this forum.
Sharon, just wanted to echo what the others have said. You have been through so much lately maybe you have to give it more time. I have had a chemo break enforced on me and i have to say i feel so much better than i did..i dont know though whetherbnits de to that or the fact that i had been so ill previous to that. We are all behind you whatever your decision. Much love. xxx
Sharon, just wanted to echo what the others have said. You have been through so much lately maybe you have to give it more time. I have had a chemo break enforced on me and i have to say i feel so much better than i did..i dont know though whetherbnits de to that or the fact that i had been so ill previous to that. We are all behind you whatever your decision. Much love. xx
Hi Sharon, so sorry to hear you are struggling at the moment, you really have been through the mill lately, and it's no surprise that you are down! Stay strong, all your "cyber friends" are behind you holding your hand.
Hugs (((()))) Janette xxxx
Sharon, Some times it can take a few doses before you learn how to counter act all the side effects.It would be good to talk with the professionals for advice. Be careful not to throw in the towel too soon, maybe it can be sorted. Only you know how you feel, all we can do is encourage you! Hang in there! Hugs and hoping you can get turned around! FF
So sorry to hear you are feeling so down I do hope you get some satisfaction at the hospital tomorrow. The Macmillian nurse is insensitive surely she could have given you an appointment on the phone.
Sending you loads of (((((hugs))))) xxx
Sharon, glad to hear you are now at home. look after yourself.
Debbie, its great news to hear you are a stable Mabel...long may it continue.
FF..a bit late posting but was going to urge you to bring your appointment forward when i saw you had already done it. Glad to hear it was good news.
Andrea, sorry to hear you have been having such a rough time but you have managed to remain 'upbeat'..good for you.
Best wishes to everyone. x
Hi I was diagnosed with invasive lobular breast cancer in February with extensive skeletal mets. I had 6 cycles of FEC chemo and am about to start localised radiotherapy. I am on tamoxifen as is Hormone receptor positive. I am waiting with interest NiCE recommendations re : palbociclib due in June 2017.although they don't have a good record for licensing breast cancer drugs ! Just wondered if anyone was aware of any UK trials or patients getting it ?
Thanks Avrelia! I knew in my heart I needed to go! I don't know why I wanted to be stubborn! I hope you can convince your boss that you are doing fine! As long as you two get the job done they shouldn't care who does what! FF
FF, so glad that you went to see your oncologist. To my mind things should go this way, better inform them ASAP about something and let them worry if that is the case, rather than worry yourself.
Sharon, yes, you are damn right that I worry about work because it is tied with my living arrangements, there is something else as well, my partner's English is awful, so that is why that type of job is perfect for us, I do the speaking, he does the physical stuff....What is left is to convince our boss that we are doing it just as good as we had before I was diagnosed....
Thank you very much for being here ladies, although none of us would like to be at that place in particular....
Carolyn, I bet that your hair is not as thin as mine, I have got some only on the top of my head and I do look like a partly shaved hedgehog, if you know what I mean, I shaved it when it started to fall down, but that string at the top came to grew back again in a strange shape:)
Sharon hoping for an easy day for you! Janette, welcome back!
Ok, called cancer center and onc said to come in NOW! I then asked how about later she said NO, NOW! Left work and went to see her. She did blood work land platelets were fine, so was white count. It is petechiea but she thinks it is a drug interaction or from the sun. Glad I went!
Sharon, glad that you feel better, hope that your treatment will work well and blood will be not as bad as you worry it might.
Andrea, so sorry about the things you have to go through....I cannot immagine what my reaction would be, if I was at your place, hopefullly not, but you never know with cancer. We have to be gentle to ourselves and live every single day as if it is our last one. Yes, that might sound awful, but may be that is how it should be. Although this does not work for me, I try to live as if cancer is not existing. I get up same time every day, I work, I have an afternoon nap, then cook and wath TV. Our job with my partner is that we work in a hotel and we live here as well. On weekdays, we can go out but either one by one, or someone has to cover us if we both go out. Boring....you may say, may be, but it is our job at the moment and I cannot think of making any changes at all...
Anyway, I do not know why I am sharing that with you, may be because I have had the feeling recently that my boss is worried that I might not be coping well and she might not even want me here anymore, but thanks God for the time being I feel ok, just tired a bit, probably because og Chemoterapy....Would love to keep on working, as I have been doing it every sigle day of my adult life and that is what makes me feel alive, when I feel that I am useful....
As for my tretament, waiting for my firs Zometa with my fourth cycle of EC chemoterapy. Getting my wig this Wednesday, although I do not think I am going to wear it, but who knows....
Have not told my relatives yet, as I live in UK, and they live abroad, I see them only once a year. Do not intnend to tell them at all, unless it NEEDS to, i mean if I cannot hide it anymore...
I got lost with my own thoughts....
Anyway take care you all
Hi ladies, back from my hols now, had a fab time! Weather gorgeous sooo warm. Did my party trick on the first day though and passed out! Just didn't realise how hot it was, we got up after lying in the sun for a few hours to get a drink and everything just went black next thing I knew I had bags of ice all over me! I'm a dozy sod, the same thing happened a few years ago in the canaries, I think as I'm getting older I just can't tolarate the heat the same.
I have tried to catch up with the thread but there's sooo many posts so I gave up, did see that you've had a rough time of it though Sharon, hope you're feeling better soon. Hope everyone else is doing okay.
Hugs Janette xxxx
I agree Sharon,
would be nice, but not as effective I fear
But hey ho, if it does the job. Drink loads of fluids...I now have a miso soup the day before and on the day as it seems to help...found the tip on the chemo thread on bcc.
but maybe you shouldnt have too much salt with your tummy prob, ..eg might retain flud..need to check it out with the ' oncle' firstxx
Yes, hope so Sharon, any news re filgrastim, or did you decide not to ask? I find my bloods come up really well with it...my other bloods, eg my liver functions are usually higher than the norm, but the lovely
'oncle' said for me not to worry, mine apparently react that way all the time to drugs...just hope the jolly old liver holds up!
we have to trust and go with the flow...dont we? thinking of you and hoping for great results...but on the off chance you needed a change, theyd likely find something 'new' for you to tryxxx
Love and hugs
Hi Andrea carts, so sorry to hear your bad news....there are a lot of us here with liver mets. Its quite a blow to get so many bits of bad newws together, especially as you feel so very well. capecitabine worked really well for my liver mets for almost two years. Barton has been on it for a longer period. Have pasted in the link for the thread where Cape ladies hang out.
I do hope you find the best treatment and it sounds as if the bones are responding? I also have bone mets in the spine and am on Zometa, love and hugs
Hi Funnyface, I agree with andrea carts.....as you are going to worry anyway. Sounds like you are referring to Petechae, which can also be caused by a variety of minor illnesses, such as an allergy( see mayo Website) but you wont feel able to rest till its seen, we have GPs here ( family doctors) so if the onc wasnt able to see me, id go and see my gp, but not sure about your health system.
fingers, toes and legs crossed that its only an allergy
love and hugs, Moijanxx