Yes Sharon, how is it going? Hopefully you have been doing some lovely things and that is why we havent heard from you? We are all thinking about you and batting your corner.
Hi Bonariensis, sorry to burst your friends bubble...am sure she felt very comforted thinking that, but alcohol is a diuretic! i love alcohol, but....as I keep getting ? Uti's I am avoiding alcohol as it and caffiene irritate the bladder, as well as being diuretics.
as for not drinking after 6 pm, that may hold some merit, but on chemo I have to keep my fluids up, so im always drinking water etc, late in the day.
oh, and one more tip ladies..look this up if you dont believe me....the brain shrinks, so we need water to ensure it doesnt shrink too much..can feel dizzy etc. when im bell ringing, I drink extra water to give my chemo brain a chance to function better.
spect ive P'd you all off now😦
Hi all I was told by a friend who said she had a glass of wine at lunchtime if she'd got meetings all afternoon that having a glass of wine STOPPED you peeing so much and my experience has been (although it might just be wishful thinking) that this might be true. xx
Evening ladies, I'm also a night time pidller!! And I don't drink after 6 either, it drives me potty!
I'm jumping on the flu jab wagon, not with the trots though, I'm starting with ANOTHER cold, I've not been right since I had it done around 5 weeks ago. I've had tons of vitamin C today and have started taking echinacea too. It's my birthday next week and we are off to the Lake District at the weekend, if this cold hasn't gone I'll be sooooo mad! 😡😡😡
Hope your all okay. Sending a shout out to Sharon (((())))
Hugs Janette xxxx
Carolyn, if not drinking after 6pm doesnt help with the nightime visits you may as well have another glass of wine.....and a bit more chocolate. I love your new healthy regime!! x
It's BANG BANG in my neighborhood until at least a week after New Year. Hate it. Thankfully neither of my two dogs are afraid. One does not like them but tolerates the noise. The other barks like a madman (maddog?) at every loud bang.
Tired all the time now because the Anastrazole makes me get up at least six or seven times a night to wee. If I didn't I'd literally wet the bed ... not very nice. Letrozole did it to me too ... but with the added SE of heart palpitations. I'll just have to live with it ... but combined with getting up to wee and my dog barking at ever blast I'm not likely to get much sleep until mid January!
Oh Jultz sorry about the tum. i must admit the flu jab makes me feel ill when ive had it, so I dont tend to bother,
scrambled eggs, stewed apple can help with diarhoea. (I would avoid chocolate)I do hope you feel better soonxx
Carolyn, sorry to read hubby is bad again - he's being put through the mill lately! Hope he is better soon.
Yes, bonariensis, the CT scan appointment arrived in the post yesterday. If it hadn't come I was going to ring my Oncs secretary on Monday. As it happens, I will still ring her to ask for a copy of the report from my last Onc appointment. She is supposed to send me a copy every time, but she usually forgets. It's so annoying as I have to ring each time. The CT scan is for Friday, 11th Nov, so still some time, but it means I will have to wait ages for thevresults again, I expect.
Re.the fire - will check out Arty Stuff thread!
Hi Racer Waiting seems to be a big part of all of this whether at the clinic or for results. How can i say try not to worry. All i can say is distract yourself with as many good things as you can and take each day, each hour at a time. B xx
Hi Racer, you poor thing. I hope everything works out.
sounds as if you are very brave too, my word!
yes i think honesty with the kids is best, they can cope with it generally.
lots of love
We were so lucky to be spared the Cathedral and the close during the war. Not for want of trying, though! We also lost so much the the planners that could have been saved - Bedford Circus was supposed to have been lovely. Apparently it could easily have been saved as it wasn't that badly damaged. City planners have so much to answer for, although Exeter didn't suffer quite so much as Plymouth - so ugly now (in my opinion - hope I don't offend any Plymothians on here!).
Hugs to all. Barton.x
Ps - sorry to turn this into a news/architectural thread!
Yes it's sad. The cathedral close is the heart of Exeter, particularly as so much of the old city disappeared in WW2.
Yes, Carolyn - so sad about The Royal Clarence! I think they recently did it up, too! The insurance claim is going to be horrendous! The shape of Exeter city centre has now changed forever - even if they rebuild to the same look out front, everyone will know it's fake. Was going up town this morning, but someone told me all the buses are stopping near the parcel office - too long a walk in each direction for me, so have postponed visit. Nothing urgent wanted, luckily.
hope things feel brighter and you have a peaceful werkend.
suskak, Natalie has a point..I used to come away from the dr thinking ooh, forgot to ask that! Now i note stuff on the ipad and just hand it over...my writing is very poor!
Waffles....am still not that oh fey with the meanings of. The two types of mets, but lovely onc. Said it was good that more were now sclerotic. So I have to trust him on thatxxx
I dont get a lot of bone pain, apart from my ribs, one apparently has a fracture which might be due to metastases or radiation...anyway they can be painful and catch me out. My knees are both past their sell by date, but thats not new!
Bernie, sorry to hear about yor scan results but keeping everything crossed that your clear everywhere else.
cant really add to what the others have said.....we are all here for you. x
Hi Bernie, Sorry that you have to be here but you'll have seen that you are not on your own and that there is a lot to hope for. My children are older but it was still hard telling them, particularly my daughter who suffers with depression from time to time. But she was supportive, did a lot of googling and told me things I ought to know. Around the time of diagnosis there was only so much googling I could cope with at once. We manage to look after each other. I hope you have finished with bad news for the time being. Enjoy tomorrow with your daughter. B xx
Yes Bernie and Jule, my onc said they were initially lytic but now sclerotic. He says sclerotic better as bones stronger.l an apparent improvement whilst on zo eta!
i promised Waffles. Id ask.. And the onc went off to look at my last ct. which apparently showed the change.
he initially was thrown at my question, but i told him we were all ganging up on the oncs and wanted to know. He was fine about it...I like my onc very much.
well done Waffles!
Bernie, im not a mum, but I do know from others that children hate having info kept from them, so maybe we worry too much about protecting them? Recently the converse happened, a friends daughter didnt tell him she was expecting her second child, when he was dying....she now regrets he didnt know he was going to be a grabddad again...maybe tne communication between parent and child has value xx
Bernie, just adding my welcome to everyone elses. Sorry you have had to join us, but you seem to have found the right thread! Everyone here is very welcoming, and you can come here to rant at any time, and someone will be along shortly with tea and bisciuts (virtual, I'm afraid), and plenty of sympathy and good advice. There are many very wise and knowledgeable ladies here.
Good luck, and best wishes.
Hello Janette. Re the flavoured drink before a CT scan - I have only had this once, just before my first CT scan, I think. All other times I just get the IV iodine (the one that makes everything feel abnormally warm as it goes in and makes you wonder if you have wet yourself!). There was once when I didn't have the IV iodine, and that was because I had high levels of something in my blood (bilirubin? Createnine?). They just did the scan without any contrast then. I have to say, I really didn't enjoy the drink, so not sad I haven't had it any more..
Hi Bernie, welcome to the forum, sorry you have had to join us but we are a friendly bunch and are always on hand to help / advice.
My most effected area is also my hip, I have mets in hips and ribs also. I was on tamoxifen initially after dx in 2014 but was switched to letrozole Oct last year, I have responded really well on this and lead a relatively "normal" life. We all understand the need to protect our sons/daughters from the worry of this disease but once you tell them it's surprising how understanding and strong they are about it, just tell her in your own time when you feel ready.
Thanks for the info on different types of mets, I've wrote them down for my Q & A next week when I see her for my CT results......I always go armed with questions for her!
Stresshead, I also have the canular injection for contrast as well as the drink......my organs must be glowing in that CT!!!!
Hugs Janette xxxx
Sorry you are having to join us but welcome. I hope you hear from your BCN early thisafternoon, the waiting is horrid isn't it. I would imagine that they will change your hormonal (Tamoxifen) to a different one maybe Letrozole, depending on if you are post menopausal. I hope you have lovely time with your daughter for her birthday and am sure you'll manage your brave smiley face. I think you are right to wait till she is home and you have more information and have had time to get a bit more used to the idea. You will be better placed to talk about it then - good luck!
Maria Louise, try not to worry too much, Oncs know that treatments sometimes take a while to kick in and they look at blood results, how you are feeling etc in addition to scans, I think it unnlikely they would change your treatment after the first scan. Hope the liver is just a random pain. Keep us up to date won't you.
Carolyne. once I'd been stable for a bit my Onc started to see me and scan me less frequently, so you could see it as a good sign. I'm every six months. My Onc has suggested I go to yearly! I didn't like the idea so at the moment am staying six monthly.
Re the different types of bone mets, I think lytic is where the cancer leads to a breakdown of bone without new bone being made so a kind of lacy/hole effect whic weakens the bone.Sclerotic is new bone being made without the breakdown of old bone first, which makes the bones become abnormally hard but weak. After radiotherapy and other treatments lytic bones can look more sclerotic as the healing/building process has made more bone calcifaction form. Simplictically that's how I understand it but others may have a better answer.
Hello to Bernie and Maria Louise...sorry you have had to join us but you are very welcome. Bernie, i know what you mean about teling your daughter. I think for all of us that is the worst agony. I have always had a policy that i never lie to my daughter and if she asks something she is always told the truth (although i do try be be lighthearted about it all). It will be a great strain on you not to tell her for a while but you will manage it. I didnt tell my daughter that i had had a scan this time round so she wasnt aware i had a results appointment. When i told her she said 'why didnt you tell me you were having your scan'? i think sometimes we try to protect them so much we dont actually reaslise how strong they are.
Re: type of bone mets...i have checked back on my letters and 'sclerotic' is mentioned so i assume thats what i've got??
Also very interested to hear about the aniseedy drink instead of iv contrast...or have i got that wrong?
If there is an alternative to having to have a cannula i'm all for it.
I know when i first had scans i had to drink water with iodine in it but now its just plain water. seems they discovered it was making no difference??
Love to all. xx
Hi Julie, Thank you for your response, my worry is that when I have my first scan since starting Zometa/Tamoxifen it won't have had enough time to kick and start working properly and that they may decide to change treatment straight away. The pain in liver area is more of an ache really so fingers crossed xx
Carolyn - Thank you for being there whilst you can't always answer the questions a quick response for you is always good, its shows that someone is always there and cares 🙂
Janette - Thank you for your reply ie, Tattoo, I have in mind a small one that i would like doing and I wasn't sure how to go about it but it seems like it should be ok to go ahead.
Hope everyone else is ok this morning, it feels very crisp here today, a hot chocolate day :). xx