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Bone mets - please join in

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Re: Bone mets - please join in

Sharon thinking of you hope you get sorted and back home soon sending positive vibes and hugs julie x x x
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Re: Bone mets - please join in

Sharon, I  just wanted to add my love to the others. Sorry you are struggling and you are probably a little worried about the hospice but I  know lots of women who have gone in for a few days and the hospice has got them back on track, meds sorted and back home. Sending you positive energy and strength xx

 

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Re: Bone mets - please join in

Hi Sharon sending hugs and positive thoughts xxx

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Hi Sharon, thank you for keeping us dated. Thinking of you and holding your hand.
Sending you a huge cyber hug (((((())))))
Janette xxxxxx
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Hi lovely Sharon,

 

yes, the hospices are excellent..often better at sorting out pain relief and other bits, than the hospital.and they are good at listening!

 

thank you for getting back to us, we all check in daily to see how things are going.please keep us posted. Much Love,xxx

 

Moijan 💜💝💜💜💝💜

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Re: Bone mets - please join in

Dear Sharon

I can only say I agree with Carolyn she has put it so nicley. So many have found the hospices so helpful at least they have your interest at heart.

 

Sending loads of cyber ((((((((((((((hugs)))))))))))))) and love xxx

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Re: Bone mets - please join in

Hiya Sharon.
It's good to hear from you but sorry that you are struggling. The hospice will help and I'm sure you will be in safe hands for the very best care .
Please keep in touch with us as we love to hear from you ...we are all holding hands for you and sending big hugs and cyber cuddles .
Xxx💜💜💜
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Hi all things aren't too good ..got myself an appt at hosp today .theyre putting me in hospice for a few days to try to help me..im sad but feel like Il be in good hands.x❤ sharon
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Thank you all! I'm not currently having chemo, I was just worried re the massage with it being in my bones and your right I had complimentary therapy at the hospital during chemo xxx
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Hi Bernie,

I  agree with Carolyn. I can't see a problem. As Carolyn says keep an eye for breaks in skin etc and ensure you use TCP Savon or similar if necessary. As for the massage I think that as it's your legs it should be ok, sometimes we're advised not to have massage on our operated side but thats upper body so....enjoy! xx

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Ps ...on the subject of night time tinkles ..I didn't do the wine last night but had my usual small glass of tonic water and did seven tinkle free hours !! didn't sleep well though but at least stayed in bed !!
Think I will do the A to Z tonight of chocolate names ..by the time I get to c wi'll probably have to get out for some munchies !!
Carolyn xx
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Hiya Bernie
I'm no medical expert but that doesn't sound a problem ..you get massages as part of the alternative therapy at some hospitals ..just b careful that they don't break the skin when u get the pedicure if you are having chemo though ..infection etc.
Enjoy some pampering and relax.
Carolyn xxx
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Hi ladies thank you for all the support and advice. CT scan tomorrow 🙀. Can I just ask if you know if I am ok to have a pedicure that includes a massage to my lower legs? x
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Yes Sharon, how is it going? Hopefully you have been doing some lovely things and that is why we havent heard from you? We are all thinking about you and batting your corner.

 

Moijanxx

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Hi Bonariensis, sorry to burst your friends bubble...am sure she felt very comforted thinking that, but alcohol is a diuretic! i love alcohol, but....as I keep getting ? Uti's I am avoiding alcohol as it and caffiene irritate the bladder, as well as being diuretics.

 

as for not drinking after 6 pm, that may hold some merit, but on chemo I have to keep my fluids up, so im always drinking water etc, late in the day.

 

oh, and one more tip ladies..look this up if you dont believe me....the brain shrinks, so we need water to ensure it doesnt shrink too much..can feel dizzy etc.  when im bell ringing, I drink extra water to give my chemo brain a chance to function better.

 

spect ive P'd you all off now😦

 

moijanxxx

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Re: Bone mets - please join in

Hiya Sharon
How r u ..we are all thinking of you and hoping you are getting a bit stronger .
I think the nurse told me that they had changed the flu jab ingredients this year ..asked me if I was allergic to eggs???? Which I thought was a strange question but to be honest ..I've had no problems and if anyone is going to get se of anything its usually me !!!
Like the wine idea though ...bonariensis ..anything to stop the three hourly tinkles during the night!!
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Hi all  I was told by a friend who said she had a glass of wine at lunchtime if she'd got meetings all afternoon that  having a glass of wine STOPPED you peeing so much and my experience has been (although it might just be wishful thinking) that this might be true. xx

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Evening ladies, I'm also a night time pidller!! And I don't drink after 6 either, it drives me potty! 

 I'm jumping on the flu jab wagon, not with the trots though, I'm starting with ANOTHER cold, I've not been right since I had it done around 5 weeks ago. I've had tons of vitamin C today and have started taking echinacea too. It's my birthday next week and we are off to the Lake District at the weekend, if this cold hasn't gone I'll be sooooo mad! 😡😡😡

Hope your all okay. Sending a shout out to Sharon  (((())))

Hugs Janette xxxx 

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Good advice Stress head
Hic ..larger glass of red wine tonight then.
Warning :
Any new ladies reading the thread ...please do not take my new health regime seriously ..I'm a complete idiot !!
Xxxx
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Carolyn, if not drinking after 6pm doesnt help with the nightime visits you may as well have another glass of wine.....and a bit more chocolate. I love your new healthy regime!! x

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Oh Stacey .
Poor you ..don't know the medical reason why we need to wee so much in the night.I don't drink anything after 6pm ..yet still have to get out ..sure I have a second secret bladder tucked away to keep me awake !!!
Carolyn xxx
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It's BANG BANG in my neighborhood until at least a week after New Year.   Hate it.  Thankfully neither of my two dogs are afraid.  One does not like them but tolerates the noise. The other barks like a madman (maddog?) at every loud bang.  

 

Tired all the time now because the Anastrazole makes me get up at least six or seven times a night to wee.  If I didn't I'd literally wet the bed ... not very nice.  Letrozole did it to me too ... but with the added SE of heart palpitations.  I'll just have to live with it ... but combined with getting up to wee and my dog barking at ever blast I'm not likely to get much sleep until mid January!

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Only bought Kojak lollipops as I don't like them !! Why so many fireworks though ? The weekend here has been bang bang and my son's poor dog almost jumped out of his fur every time . Hate them ..it's a man thing isn't it ??
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Hiya my stomach is ok today been eating all the trick or treat sweets the kids better hurry up and get them haha. Hope your hubby is ok Carolyn have a good night tonight no doubt my the dog will be going wild with knocks on the door. Thanks moijan hope your ok love Julie x x x
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Jultz
Hope your tum is better today ..hubbys is even after sprouts and parsnips with his roast yesterday ..it could well have been the flu jab !!
Well I'm all healthy today with my 2pm choc .had choc raisins so surely they count as at least two of my five a day ??
And my evening pizza is a Hawaiin so the pineapple is another of my five a day.
My glass of red wine ..with grapes ..surely makes up my five today ?? impressed or what with the new healthy me...haha .
Carolyn xxxx
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Re: Bone mets - please join in

Oh Jultz sorry about the tum. i must admit the flu jab makes me feel ill when ive had it, so I dont tend to bother,

 

scrambled eggs, stewed apple can help with diarhoea.  (I would avoid chocolate)I do hope you feel better soonxx

 

love Moijanxx

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Re: Bone mets - please join in

Hi Carolyn I had my flu jab last week I've had an upset stomach too today has been my best day I've also been loaded with cold I think it was the flu jab but I know there are a few sickness bugs going around x x
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The Bone man is an athopedic surgeon and has full details of my scan - yikes!
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I must admit we bought one tub of sweets and we have eaten them so had to buy more . Fireworks have started in our area. I am hoping to go out with my youngest tomorrow night if I am up to it. It will keep him happy .
Watching GP race and settling to watch Poldark later. My guilty pleasure lol xx

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Hello racer
Yes I did a bit of online shopping yesterday too ..Xmas is a good distraction from hosp and scans etc.
Well this Halloween lark seems to b going on for days ...got lollipops ready for treat or trickers ..yum hope they don't call and then I can have them myself !! always buy things I don't like though as it would break my heart to part with choc.!!
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Thanks everyone xxxx Hubby is worrying especially if I feel tired . My youngest had us up in the night with a tummy bug so been disinfecting everything . Ordered my Christmas groceries and going to do some Christmas shopping to distract me. Will order
some things online and try not to go into overdrive lol!
Sounds a good idea with the chocolate Swiss roll . I seem to be craving sweet things at mo and stopped slimming world until I know what is happening xxx

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Carolyn, sorry to read hubby is bad again - he's being put through the mill lately! Hope he is better soon.

 

Hugs. Barton.x

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Yes, bonariensis, the CT scan appointment arrived in the post yesterday. If it hadn't come I was going to ring my Oncs secretary on Monday. As it happens, I will still ring her to ask for a copy of the report from my last Onc appointment. She is supposed to send me a copy every time, but she usually forgets. It's so annoying as I have to ring each time. The CT scan is for Friday, 11th Nov, so still some time, but it means I will have to wait ages for thevresults again, I expect.

 

Re.the fire - will check out Arty Stuff thread!

 

Hugs. Barton.x

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Good morning ladies
This day seems endless as sons dog didnt understand the clocks changing so I was up at silly o clock.
Hubby has the trots ..blaming the flu injection and I'm worried about my water bill for the amount of time he has flushed the loo!
In fine but on my 2nd chocolate swiss roll already with the coffee.....oink oink .
Xxx
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Hi Racer Waiting seems to be a big part of all of this whether at the clinic or for results. How can i say try not to worry. All i can say is distract yourself with as many good things as you can and take each day, each hour at a time. B xx

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Barton Have you got a scan appt yet? I wanted to continue the architectural thread but have done so on 'arty stuff'

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Hi Racer, you poor thing. I hope everything works out.

 

sounds as if you are very brave too, my word!

 

yes i think honesty with the kids is best, they can cope with it generally.

 

lots of love

 

Moijanxx

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Hi everyone, just to update you I went for bone marrow assessment yesterday. We had to wait a while and I was getting nervous . Had not been told after an hour that they were running an hour and a half on top of that . Just so busy and terrible to see how many unwell people there are at the clinic.
I had both tests and it was a bit uncomfortable when taking samples but said I did well. I was just thinking about the other people waiting and to get it done quickly . One of my tests they could not withdraw any fluid and said should have results in two weeks . Heamotology were concerned about my platelets as they had been 50 and should have been 150 prior to transfusion . Will need a top up with blood . Feeling tired today and a little sore . Just trying to rest. Trying not to worry and taking a day at a time .

Since I was diagnosed in 2010 we have always been straight with our three children who are now 16,13 and 8 . The youngest was very unwelll when he was a baby and we were always advised to be straight but obviously putting it in words that they could understand . It has meant that they are supportive and advised their Schools so they can have support from friends etc . Hope this helps .
Kids want to go and get Halloween costume so hoping I can put my feet up for Strictly later . Have a good weekend everyone xxx

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We were so lucky to be spared the Cathedral and the close during the war. Not for want of trying, though! We also lost so much the the planners that could have been saved - Bedford Circus was supposed to have been lovely. Apparently it could easily have been saved as it wasn't that badly damaged. City planners have so much to answer for, although Exeter didn't suffer quite so much as Plymouth - so ugly now (in my opinion - hope I don't offend any Plymothians on here!).

 

Hugs to all. Barton.x

 

Ps - sorry to turn this into a news/architectural thread!

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Yes it's sad. The cathedral close is the heart of Exeter, particularly as so much of the old city disappeared in WW2.

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Yes, Carolyn - so sad about The Royal Clarence! I think they recently did it up, too! The insurance claim is going to be horrendous! The shape of Exeter city centre has now changed forever - even if they rebuild to the same look out front, everyone will know it's fake. Was going up town this morning, but someone told me all the buses are stopping near the parcel office - too long a walk in each direction for me, so have postponed visit. Nothing urgent wanted, luckily.

 

Hugs. Barton.x

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Hello ladies
Sharon So good to see you posting on the other thread ..poor Moijan is feeling like Billy no mates now with erubicin as both you and Helen have deserted her.
Well I expect you have seen the news ..our lovely royal Clarence hotel has been virtually burnt to the ground ..it's still smoking ...but that's 300 years of history just gone like that and so sad ...and other olde world shops involved as well.
Nothing's guaranteed to be forever.
Love to everyone xxx
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Re: Bone mets - please join in

Hi Bernie,

 

hope things feel brighter and you have a peaceful werkend.

 

suskak, Natalie has a point..I used to come away from the dr thinking ooh, forgot to ask that! Now i note stuff on the ipad and just hand it over...my writing is very poor!

 

Waffles....am still not that oh fey with the meanings of. The two types of mets, but lovely onc. Said it was good that more were now sclerotic. So I have to trust him on thatxxx

 

fortunately, 

I dont get a lot of bone pain, apart from my ribs, one  apparently has a fracture which might be due to metastases or radiation...anyway they can be painful and catch me out. My knees are both past their sell by date, but thats not new!

 

hugs,

 

Moijanxx

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Thank you everyone x
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Bernie, sorry to hear about yor scan results but keeping everything crossed that your clear everywhere else.

cant really add to what the others have said.....we are all here for you. x

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Sorry Suskak auto correct decided you were known as Susan xxx
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Hi Susan, your treatment sounds promising. Do you have a different oncologist for your bone treatment? Re the 'bone man' I like that! x
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Hi Bernie, Sorry that you have to be here but you'll have seen that you are not on your own and that there is a lot to hope for. My children are older but it was still hard telling them, particularly my daughter who suffers with depression from time to time. But she was supportive, did a lot of googling and told me things I ought to know. Around the time of diagnosis there was only so much googling I could cope with at once. We manage to look after each other. I hope you have finished with bad news for the time being. Enjoy tomorrow with your daughter. B xx

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Hi Bernie, just a quick one, any questions/worries that come to mind before you see your onc/Macmillan write them down and take them with you. Sometimes your head is spinning with all that's going on and you totally forget to ask things.
Hugs Janette xxx
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Hi Moijan,
I'm a bit confused. I saw the registrar this week and I caught a glimpse of a recent x ray report and I saw the word lytic mentioned. So it sounds like my mets are mixed rather than sclerotic only as I thought. Registrar said the sclerotic areas were healing mets but my onc had said they were sclerotic from start. Who knows! I really don't want to read my scan reports myself as it would freak me out too much.
JulieD, very good explanation of different types of bone mets.
Best wishes xxx