Janette, I can see your glowing face all the way across the big pond!! Now you can plan lots of holiday fun!! FF
Hi, Stable Mable checking in! 😆😆😆 finally got home from appt, scan fine "stable", markers 25. I asked if my mets were sclerotic or lytic and she said they are sclerotic, she asked why I was asking and I said that there had been a discussion on the forum about it, she did say though that it doesn't really make any difference which they are??
Now then, I have one slight worry, she said she wants to change my denosumab to every 8 weeks instead of 4 weekly as I am ok with pain at the moment, does anyone else have them this far apart?? I'm just a bit scared of my pain increasing again however she did say that if that happens she would swap back to 4 weekly again.
Hugs Janette xxxx
Janette, Hope your wait isn't too long! I find waiting rooms difficult.......can't concentrate. Is there someone with you? Take care & let us know,
Hi Sharon I'm sorry that things are not going so well right now. The hospice will give you the best care whenever you need it and you won't have the stress of constantly having to chase after it. Hope you get sorted and back home soon. Keep in touch, lots of gentle hugs B xxx
Sharon, Sending my love too, along with the others, and to say I agree with them that hospices today have such a wide ranging role. They can get people sorted out, and have much more experience and knowledge than docs and hospitals. Hence your referral. When you get a chance let us know what you're up to! We all drop in here regularly and will be wondering how you are.
Sharon, I'm not sure how hospice works there, but I know here you can go to a facility or have it at home. I did hear years ago from one lady over there that hospice had a lot of nice programs like art classes. I hope hospice can get you sorted and maybe you can enjoy some of their complimentary services. Tons of hugs! FF
Sharon, I just wanted to add my love to the others. Sorry you are struggling and you are probably a little worried about the hospice but I know lots of women who have gone in for a few days and the hospice has got them back on track, meds sorted and back home. Sending you positive energy and strength xx
Hi lovely Sharon,
yes, the hospices are excellent..often better at sorting out pain relief and other bits, than the hospital.and they are good at listening!
thank you for getting back to us, we all check in daily to see how things are going.please keep us posted. Much Love,xxx
I can only say I agree with Carolyn she has put it so nicley. So many have found the hospices so helpful at least they have your interest at heart.
Sending loads of cyber ((((((((((((((hugs)))))))))))))) and love xxx
I agree with Carolyn. I can't see a problem. As Carolyn says keep an eye for breaks in skin etc and ensure you use TCP Savon or similar if necessary. As for the massage I think that as it's your legs it should be ok, sometimes we're advised not to have massage on our operated side but thats upper body so....enjoy! xx
Yes Sharon, how is it going? Hopefully you have been doing some lovely things and that is why we havent heard from you? We are all thinking about you and batting your corner.
Hi Bonariensis, sorry to burst your friends bubble...am sure she felt very comforted thinking that, but alcohol is a diuretic! i love alcohol, but....as I keep getting ? Uti's I am avoiding alcohol as it and caffiene irritate the bladder, as well as being diuretics.
as for not drinking after 6 pm, that may hold some merit, but on chemo I have to keep my fluids up, so im always drinking water etc, late in the day.
oh, and one more tip ladies..look this up if you dont believe me....the brain shrinks, so we need water to ensure it doesnt shrink too much..can feel dizzy etc. when im bell ringing, I drink extra water to give my chemo brain a chance to function better.
spect ive P'd you all off now😦
Hi all I was told by a friend who said she had a glass of wine at lunchtime if she'd got meetings all afternoon that having a glass of wine STOPPED you peeing so much and my experience has been (although it might just be wishful thinking) that this might be true. xx
Evening ladies, I'm also a night time pidller!! And I don't drink after 6 either, it drives me potty!
I'm jumping on the flu jab wagon, not with the trots though, I'm starting with ANOTHER cold, I've not been right since I had it done around 5 weeks ago. I've had tons of vitamin C today and have started taking echinacea too. It's my birthday next week and we are off to the Lake District at the weekend, if this cold hasn't gone I'll be sooooo mad! 😡😡😡
Hope your all okay. Sending a shout out to Sharon (((())))
Hugs Janette xxxx
Carolyn, if not drinking after 6pm doesnt help with the nightime visits you may as well have another glass of wine.....and a bit more chocolate. I love your new healthy regime!! x
It's BANG BANG in my neighborhood until at least a week after New Year. Hate it. Thankfully neither of my two dogs are afraid. One does not like them but tolerates the noise. The other barks like a madman (maddog?) at every loud bang.
Tired all the time now because the Anastrazole makes me get up at least six or seven times a night to wee. If I didn't I'd literally wet the bed ... not very nice. Letrozole did it to me too ... but with the added SE of heart palpitations. I'll just have to live with it ... but combined with getting up to wee and my dog barking at ever blast I'm not likely to get much sleep until mid January!
Oh Jultz sorry about the tum. i must admit the flu jab makes me feel ill when ive had it, so I dont tend to bother,
scrambled eggs, stewed apple can help with diarhoea. (I would avoid chocolate)I do hope you feel better soonxx
Carolyn, sorry to read hubby is bad again - he's being put through the mill lately! Hope he is better soon.
Yes, bonariensis, the CT scan appointment arrived in the post yesterday. If it hadn't come I was going to ring my Oncs secretary on Monday. As it happens, I will still ring her to ask for a copy of the report from my last Onc appointment. She is supposed to send me a copy every time, but she usually forgets. It's so annoying as I have to ring each time. The CT scan is for Friday, 11th Nov, so still some time, but it means I will have to wait ages for thevresults again, I expect.
Re.the fire - will check out Arty Stuff thread!
Hi Racer Waiting seems to be a big part of all of this whether at the clinic or for results. How can i say try not to worry. All i can say is distract yourself with as many good things as you can and take each day, each hour at a time. B xx
Hi Racer, you poor thing. I hope everything works out.
sounds as if you are very brave too, my word!
yes i think honesty with the kids is best, they can cope with it generally.
lots of love