Carolyn, Glad the teeth feel better!
Just got a call from the onc I don't like! He said some areas improved, some stayed the same, and looks like there is a new area. He said he feels my regular onc would say stay on ibrance, so he is calling in the new orders. He considers me stable, but keep a close watch. He said scan in 3 months. This is when I miss my old onc who retired he would have walked over to the hospital and looked at the scan himself to see what they are talking about. I asked what he meant by new areas he said something might be new. I have a new appointment to see her on the 19th if she is back. I figure one more round til I see her won't be too bad. He suggests scan in 3 months. He was vert vague, she explains better. I definitely still want to talk to her, when I can! FF
Clue is sort of in the name, sheperds pie is made with lamb and cottage pie is made with beef.
I have just finished sweets given to me on Boxing Day. A big box of coconut covered balls, possibly made out of white chocolate, filled with coconut cream and a whole almond. Generally, I hate cream filled sweets but these reminded me of a sweet I loved when young called Almond Joy. Maybe they are still around? (My) resistance was futile.
Not ending and starting the New Year on a good foot!! Greeter just got a call cancelling my Jan 5th appt. My oncologist had to fly to India for an emergency with her dad. I'm sorry her dad isnt well but this makes a mess for me. We did my scan at 3 months instead of 6 bc something showed up on my scan that they couldn't tell what it was. This appointment was to decide if I could continue on ibrance. Secondly I'm out of refills and needed her to out in orders for more if I'm going to continue with it. There is another oncologist, but I don't like him. He will walk right past me and not even say hello unless I say it first. I'm going to have to speak with him. They are having him call me today. I might have to make choices of a new plan with him. Not happy about this. Hoping Ibrance is working and I won't need to make a choice. Grrrrr! FF
i saw my dentist over a worry about two weeks ago and mentioned a froend was worried about jaw necrosis...he said that usually it doesnt hurt( his was the first patient in the country to have itwhilst on Zometa)
he also said its extraction's that are best avoided and fillings should be ok.
oh, the other thing is...the lady who did have onj, after she came off zometa,her jaw grew back again. My dentist has been practicing a very long time and is well respected.
i hope that helps a bit?
Racer I hope your temp has settled and treatment went ahead.
Carolyn the work you had done should be ok so maybe it's a nerve thing going on? The other alternatives are Zometa (Zolendronic Acid) by infusion,also Pamidronate by infusion or there is Ibandronic Acid (Bondronate), and Clodronate, both of which are oral but need to be taken sitting up or standing and on empty stomache with time after before eating/drinking. The preferred treatments at the mo seem to b Denosumab and Zometa. Unfortunately all of the available treatments seem to pose the threat of ONJ.
Thanks for reply Caroline and Stillhere, feeling slightly better this afternoon, I was the same as you do I rub it or not! Nobody said not so have massaged a bit as as very lumpy! The side effects I have had are very similiar to their hormone therapies hot flushes , joint aches etc!
As I had primary 11 years ago and recurrence 5 years ago I have had all oral hormones, arimidex, letrozole and examestane, so have had too move on to the jabs! Oncologists hope this will hold it at bay for a while before I move on to other treatments! Scan on 11th, hoping for a positive result!!!
Hallo everyone, it's a beautiful sunny but frosty morning here, hoping it's the same where you are.
Bel, I had faslodex injections for a few months earlier this year, I think it's the skill of the nurses in giving them that counts! I always lay on my side so was relaxed, and made sure they were given very slowly as the liquid is apparently quite thick and viscous. Also I massaged my injection site afterwards which helped but I later read that it might disperse it too quickly. Who knows?! Hope you are soon feeling less painful. I loved my few months on hormone treatment, no side effects, bliss!!
Hope everyone enjoyed Christmas festivities, it's hard sometimes to put this awful disease out of your head and enjoy yourself but I'm sure that most of us tried our hardest! We enjoyed our first Christmas in our new home on a farm, lots of walking outside in fairly cold weather but sadly no snow! (Don't suppose that will ever happen as we also are on the south coast!! )
Yesterday had my 5th faslodex injections, all previous went well, but yesterday's has left me with two large painful lumps at the injection sights, both sides are really painful and legs are aching! Has anyone else experienced this, not sure whether it's just a build up or what?
Other than that Happy New Year and thank you for welcoming me to this thread! Bel xx
Janette, I'm sorry you would have rather been home instead of vacationing. I know I wouldn't like going away for the holidays. I can't even convince myself not to cook and go to a restaurant. I enjoy all our traditions too much. I'm also a bit of a homebody. Lately I don't enjoy going away with how I feel. FF
Oh dear, that was a roten experiee but you've done it now and no need to repeat - the Lake District will be lovely and next Christmas will be even better because you'll appreciate that deep down you dolike our hectic Christmas traditions. Enjoy your mini holiday xx
Hi everyone, am just back from church. And sippng my boiled milk.
have a wonderful day.....all of you. And some of us will be spending it alone...much love to you, chip in and let us know how you are getting on.xx
Happy Christmas, everyone, and wishes for a better New Year to everyone! May new treatments come (and be approved by NICE!), and prove successful for all cancers, not just ours.
Wishing everyone on the forum a comfortable enjoyable Christmas, may you have peace and happiness and hoping for a postive New Year.
Love and blessings everyone xx
Merry Christmas all! Enjoy the festivities! Especially enjoy those you are with, and those you love that are far! Peace to you! FF
Hallo All I have been offline for a while taking a break but I wanted to wish everyone a very HAPPY CHRISTMAS! It's a poignant time of year for us but hopefully an excess of favourite tipples.....Prosecco in my case.... and chocolate will see us through!!! Love to all. Stillhere xxxxx
Thank you Carolyn, I do hope they have some comfort over xmasxxx
did post that I was pleased you sorted your teeth...on some other thread, not sure even who I am at present!
anyway, have a great xmas and will be checking inxx
hi Nicky and also Chocolates.....be very careful with a name like that...Carolyn is quite obsessed with chokky, you might find she sneaks up and bites an ear off, just to taste!
love and hugs to all
Morning all mets ladies (including Chocolates 😊), just wanted to wish everyone a Happy Christmas and hope you all have a wonderful time with your families. Thinking, of course, of those who are no longer with us and their families.
Hello ladies. I've not been on for ages. Just taking a break. However, wanted to come on and wish you all a happy Christmas and a peaceful new year. You are always in my thoughts and I think of you all every day.
lots of love xxxx
Carolyn so happy you found a dentist who could help you! A toothache for Christmas would have been bad!
Oh gosh Carolyne, the thought of Christmas without chocolate!!
Glad you got it sorted, yes watch out for toffees.
Injections and fillings should be ok, it's extractions that are the big worry.
Hope you have a good Christmas. xx
Good evening everyone. So pleased that you found a dentist Carolyn.
Hope that you are all as ready as you need to be for Christmas.
Our son and his partner are arriving tomorrow and bringing everything they will need to do our Christmas meal, including starter, pudding and pans (he prefers his own). They live in a small one bed apartment so he's looking forward to having a larger kitchen. They insist they're doing everything including setting the table so I will have a lazy day, hubby always washes up on Christmas Day.
Looks like I will have to open the sherry at about 10.00am.
Hope you all have a good Christmas and keep as well as you can
So glad you are sorted, Carolyn - nothing worse than the prospect of not being able to eat properly at Christmas! Horror of horrors - the possibility of no chocolate!