Bone mets - please join in

[funnyface]

Carolyn, Close one!

[Carolyn52]

Well FF ..I will be thinking about it from now on ..lucky it didn't come back into the house but I had a smell in kitchen sink all week and kept cleaning !! Another week and it could have been worst .it was disgusting !!
Carolyn xxxx

[funnyface]

Carolyn, You are lucky it didn't back up into your house! We have a septic system and drainage field bc we live in the country side. You can not out any type of wipes, feminine products, or baby products down the toilet! We have had a clog twice now in the pipe that exits the house. First one was a major back up and ruined the whole family room. It was a big insurance claim and clean up. Walls cut, carpet ruined, etc.Second one was a mess but we were able to clean it up ourselves! Thankful we put down a ceramic tile floor! We had to rent a power auger to clean out the pipe. Luckily hubby is handy. Hubby doesn't know it, but I flush all the toilets now 4x in a row 3x a day. I'm hoping putting just clean water through helps keep the pipe cleaned out! I really want him to rent the auger twice a year and run it through for prevention. He thinks I'm crazy! FF

[Carolyn52]

Hello ladies
This isn't cancer related but a warning ..our drain outside has been smelly ...hubby and son lifted it ..jammed solid with wet wipes and panty liners ...never thought much about it before but it could be a costly bill for some of you ...
Drain rods purchased and saved the day .
Carolyn xxx

[funnyface]

Thanks for all the tips! FF

[Babsy]

We've had a dry fryer for about three years now, basically for the same reason as you Carolyn trying to keep hubby healthy. Found it really good. I use a tiny bit of coconut oil ( one with no taste) and it makes great healthy chips. If you use sweet potatoes keep the skin on or else they fall apart. 

[Carolyn52]

I used frozen chips and they were lovely but the instruction book says if they are homemade ones ..best results if u spray them with a tiny bit of oil first.
Xxxx

[JulieD]

We hardly ever fry anything but I  love chips and would love homemade chips, I'll be interested to hear if the chips tast as good as 'real' chips

[Carolyn52]

Hiya FF
Well actually I had a little test run earlier and did some chips ..very nice and tasty and crisp . It's called an air fryer ..it's by swan and cost £45.99 . Highly recommended and no fat or cooking oil needed. little steps to healthy living maybe !!
🍟🍟🍟xxx

[funnyface]

Carolyn, I have  deep fryer, but I'm very interested in this dry fryer. I've never heard of it. Let me know how you like it. FF

[Carolyn52]

FF
We have a deep fat fryer for chips and sausages etc but its so unhealthy ....so I have bought a dry fryer ..looks the same but uses no cooking oil and dry frys every thing ..haven't used it yet but it looks very posh sat on my kitchen work top !!!
Probably another gadget that sits gathering dust but the old fryer has now gone to fryer heaven ( dustbin) . Looking out for hubbys arteries !! Probably too late after 68 years of living on unhealthy fried foods .
Xxxxx

[rosie53]

Oh FF that's a date! If we do decide to come your way would love to catch up with you. We've done the Grand Canyon when my husband was 40, we went to Vegas which was good, we stayed in the Balagio (the one with all the dancing fountains)
I really fancy New Orleans, think I've got some research to do!!!
Hugs Janette xxx

[funnyface]

Avrelia, I hope you can have your choice! Sometimes I think the worst part of this journey is the battles we have to fight over what we want! Then add in everyday battles paying bills, things  breaking, colds, flu etc. It is all exhausting!  This could lead you to be an alcoholic! 

Carolyn, Your post sounds like you have perked up a bit! What is this fryer that you are talking about? 

Snow amounts were not what they called for! There is a nice slab of ice with about 2 inches of wet heavy snow on top! I was bummed we didn't get the 10! I like one big snow, but only one! We are supposed to have winds of 35mph and gust up to 50mph starting soon. It's supposed to go down to 15°. A drop of 50° since yesterday. 

[Carolyn52]

Oh FF. .your making me rest less now for some travelling !! My son is coming to los Vegas in May to redo his wedding vows although he's only been married six years ..it's very romantic though!! (He got married in a castle here!! probably lv will be a lot more tacky !!)
Hope u r ready for the snow and we want a photo of a snowman !!
Carolyn xxx

[funnyface]

Janette, I'm not a city girl! I haven't been to NYC since I was in high school. It is only about 2 1/2 hrs to there. I have always wanted to go at Christmas time, but can't handle the walking now. I did go to San Francisco and loved it!  New Orleans and Nashville are fun too. The New England States are beautiful in Autumn, but November would be too late. I would suggest seeing Bryce Cannon, Yellow Stone, Yosemite, Grand Canyon. If you come  this year and are within a few hours of me, I would be willing to drive where you are and meet up. That is if you would like. FF

[Carolyn52]

Hello avrelia
Nice to c u posting again. I didn't reply to your threads as I think surgery or not is going to be a hard decision. It's difficult being dx with primary and secondary in one hit ...especially as you are still recovering from chemo and will feel quite tired from it all.
Anyway ..we are all holding your hand with support.
Xxxxx

[Barton]

Glad you are feeling better, Carolyn.

Everyone stay safe and warm in the cold weather (be careful in the snow and ice, ff).

Avrelia - I can't help you with your decision, but just want to say that it is your decision - don't let people try to make you do something you don't want. You have all my sympathy.

Hugs to all. Barton.x

[Carolyn52]

Hello ladies
Yes ..the cold has moved onto some other poor victim now !!
Wow isn't weather strange ...we have had some nice sunny days here in Devon ..cold but fresh.
Jeanette ..I'm back to 2pm choc again. Bought the Brigitte Jones DVD yesterday so got to find the DVD player so I can watch it.
Actually , enjoyed some retail therapy yesterday ..both microwave and toaster went pop .so got nice new shiny ones now !! Also one of those dry fat fryers in the hope of getting hubby more healthy !!
Carolyn xxx

[avrelia]

Thank you Babsy, and yes, I know it has spread...That is why I want to make sure I am not helping IT get over, rather do my best to slow everything down. If a surgery is an option, I would opt for it. Is Carolyn "absent" because of the cold? If so, please recover soon dear, I myself was in a really bad condition from Christmas on, until the mid of January, but it was "only" a cold. I felt like s..t though!....

[rosie53]

Carolyn, hope your feeling a bit better lovely, missing my chocolate/letrozole buddy! 😆😆
Hugs Janette xxx

[rosie53]

Morning ladies.
FF, your weather is crazy isn't it! I remember one year going to New York in November, the first couple of days it was sooo cold then 2 days later we were in jeans and tee shirts! It's my 50th birthday in November and we are planning on going to new York again we love that city so much but we have been 4 times now so maybe we should try somewhere else!! There are so many parts of America i want to visit, we have friends who we met on our honeymoon 12 years ago who live in Michigan and would love to see them again, but also got San Francisco, Chicago and somewhere deep south I would like to see too!.....sorry ladies I've rambled on about stuff nothing to do with the C word!
Hugs Janette xxx

[Babsy]

Hi Avrelia, to be honest as you have secondaries the cancer has already spread. I like you have read that removing the primary does help ease the bodies load.  Many Of the ladies on here use an American website called Inspire to get links to research. Good luck with your decision xx 

[funnyface]

Strange weather here! Today it was in the low 60's. Running around without a coat. The temperature is dropping and by 1AM we are supposed to see snow starting. We are in the area for possibly 10+ inches. It is supposed to snow at 1 to 2 inches an hour and is going to be a heavy wet snow! We will  probably lose power on this one! Kerosene  heaters, generator and camping equipment ready!  Lots of food and wine! FF

[avrelia]

Thank you very much guys, that is how I am planning to decide, may be some intuition, combined with doctors opinion. I thrust my oncologist, do not know why, but she is a good person, hopefully a good doctor as well, haha I still remember the day, and I will probably always do, when she told me about my secondaries, because it was explicable that I asked her the question-HOW long do I have, then she told me that it is tooo early to tell-some women live 5, others,10 years,others even 20 years, so she cannot tell me for sure. The only thing she could tell me that I am never going to be an OLD lady, whatever this may mean....Creepey, isn't it? 

Still, I am scared, I am scared if I choose to have the surgery, of course if I have the option to choose, will this be better or not. Have read somewhere that by reducing the tumors inside your body you are making it less toxic or something. But if this makes it worse like, letting these cells invade some other parts of my body somehow....

On the other hand, an intervention is an intervention after all, andeverything is risky....But why is the surgery then A MUST for primaries. That should mean something, they are eliminating the breast tumor, and basically the difference between secondaries and primaries is that the former have some more....Any way sorry for my chaotic and moaning post, but my mood has been like that since my chemo is over. I have to organize myself and just enjoy life, let it happen...

Thanks you all of you for the time spent reading me and replyiing

[funnyface]

Avrelia, I'm not in the same boat with you.I didn't have a double whammy dx like you. I have heard some women keep the breast and feel they can monitor their treatment results by watching or feeling the breast tumor, others want it gone. I think research gives you both sides if the coin too. Seeking other ladies opinions and looking at research is a good idea, so you can form your own opinion. Whatever you decide you are comfortable with is what you need to do. Going into the oncologist office with your decision would probably be best! Good luck with YOUR choice!  FF

[JulieD]

Hi Avrelia,

My history is different, I had primary back in 1999 and secondaries in 2010 so I  can't talk from personal experience. However over the years there have been many women in a similar situation to you.

It seems that generally the medics don't like/want to operate on secondary women at least until they have shown a period of stability. Even then thee are different attitudes. However, if you feel you want it done and would feel emotionally and mentally better to have the cancer surgically removed then I  think you should continue to press for it. You can get second opinions, you can change teams, you can even change hospitals.

Over recent years there does seem to have been a slight change in opinion with some now thinking that operating to remove the original cancer may increase length of survival by lessening the cacer load in the body, though therr is no actual proof of that.

As I  said, I  think it's down to the individual and how they/you feel. Some don't want anymore invasive treatments than necessary and don't want surgery others want shot of the sight/reminder of the disease. I wish you luck whatever you decide.

[London1]

Avrelia, I was diagnosed primary Dec 13 and secondaries to liver and spine soon after. I had EC chemo too then tamoxifen and denosumab. At that time I sought surgery but was denied it, then seeking a second opinion had more scans which showed progression so I had docetaxol chemo. After that I had letrozole, and that keeps me stable. I sought surgery again and had a mastectomy July last year. The scar is horrid but less horrid than seeing a diseased breast. I'm monitored with blood tests and the last ones showed an increase in liver enzymes. Last Monday in the bath I suddenly saw a huge red rash like area over the scar and thought the worst, but later found out that it was just bruising even though nothing had happened to cause a bruise.

But despite all I'm very fit and healthy and the surgery was simple with no muscle taken no nodes taken and no need for radiotherapy, so I've had minimal side effects from surgery. Long story but I'm happy I had surgery But in looking through posts beforehand surgery is not often given to people like us who get primaries and secondaries found at the same time. Good luck in whatever you decide!

PS onc seems happy that although a scan coming up may show progression in the liver as otherwise I still have very good liver function I will most likely stay with another type of hormone treatment.

[avrelia]

Hi all, just wondering how many of you are in the same situation as me, I have been diagnozed July 2016 with primary and secondary at almost the same time, had 6 cycles of EC chemo, now on Tamoxifen and Zometa. I have had no surgery yet, and my oncologist is still thinking about that. Haveyou had surgeries, and what are the pros and cons of having one, what do you think. I know it may sound stupid, and we are not doctors and everyone's cancer is unique, but I do really need to listen to your experiences/opinions. Thanks

[stresshead]

Janette...so pleased to hear your news.

Carolyn..hope you are feeling better today and hitting the chocolate as normal. xx

[Carolyn52]

Hello ladies
Drippy nose not too bad today . Yikes horror but I didn't get up to mid day ..not like me !!
No Rudolph nose either so pound shop toilet rolls must be soft !!
Hope everyone else is feeling tickity boo ..i promise no more moaning about my cold here as most of you ladies have more serious problems to deal with !!
Hugs all xxxxx

[Barton]

Yep, you are definitely sick, Carolyn - not fancying chocolate!!!!!! Oh the horror!!! Terrys choc oranges will go out of business without you to support them! Hugs, and get well soon. Send hubby over for some more soft paper handkies - toilet paper is no good - you can't have a decent sneeze or nose blow with that! Sorry, probably TMI!

Hugs. Barton.x

[funnyface]

Carolyn, You sure know how to party!! I truly don't want to join you though! I see a glow is that Rudoph?!?! No, it's Carolyn's nose! Feel better soon! FF

[Carolyn52]

I know I'm poorly ..haven't eaten any choc for two days ..and I've got a good supply too !
Just crumpets with thick Cornish butter ..yum . Probably have a heart attack now with the extra fat !!
Off to bed now with lemsip, cough lozenges and toilet roll ....what more could anyone wish for ..ha ha.
Carolyn xxx

[bonariensis]

Hi Carolyn Sorry you are poorly. Keep warm, don't exert yourself and eat chocolate oranges?? you never know, they might have have something beneficial in them. Virtual germ free hugs B xx

[Moijan]

Carolyn, so sorry....I know what you mean about bring aftaid to sneeze! I have hairlne rib fractures and we never know do we?

hope you feel better soon. Hugs

Moijanxx

[funnyface]

Achoo!!! Feel better soon!

[Carolyn52]

Hiya ff
I used up a box of the posh tissues a few days ago ..so using toilet roll now! I blame my son as he had a stinker cold ..didn't come into the house ..but delivered his dog and I bet the dog was carrying the germs somewhere !!
I tempted fate by saying to my sister last week ..I take vit c everyday and have been cold free for years !!
Aagh tissue !!
Xxxx

[funnyface]

Feel better soon Carolyn!  I hope you have some extra soft tissues! I like the ones with lotion!  Curl up with a blanket and a bag of chocolates! I've been lucky too, no cold in four years! I don't ever remember missing even a year without a cold! I don't know how I've gone this long without one. I work in a germ factory and hubby is always getting nasty ones. I'm not bragging though..don't want to wish it on myself!

[Carolyn52]

Thanks Barton.
I haved texted you but I'm just being a wuss and its nothing to what the other ladies are going through here with their treatments.
I need to pull on my big girl pants and grow up !!
Carolyn xxx

[Barton]

Carolyn, you poor lamb! Have txted you. Please get well soon - we need another coffee meeting! Stay warm.

Hugs. Barton.x

[rosie53]

Hi Carolyn, aww sorry to hear you have the dreaded lurgy! You keep cosy on the sofa with the "poorly blanket" hey and you know what they say.....feed a cold starve a fever, so every cloud 😆😆
Hey FF, I'm always up for a pub lunch!
Hugs Janette xx

[Carolyn52]

Hello ladies
Hope everyone is enjoying a nice lazy Sunday morning ...I've not been on for a few days as I have a cold ..first one in three years so guess it was my turn to get one !!
Eating like a gremlin ..but afraid to sneeze to much as I might break a rib or something !
Lemsip and a toilet roll are my best friends at moment !!
Xx☺☺

[funnyface]

Jeanette, Maybe you, Chris and Ladybird could have a hospital and pub meet up!  FF

[funnyface]

Chris and Ladybird, Sounds like a calm visit with no surprises! Going to lunch is always a wonderful treat. My hubby and I both work and are off Tues. and Thurs. We enjoy going out for a treat on those days instead of during the busy weekends! Good luck with the scan and results. Try not to suffer too much with the notorious scanxiety. It gets us all! FF

[rosie53]

Hi Chris, glad to hear all went well at the Christie, I cannot fault this hospital and all the staff they are wonderful arn't they! I had my CT there 2 wks ago and everything went like clockwork. (Didn't get whisked off for lunch afterwards though! 😀  good luck with results, please let us know how she gets on. 

Hugs Janette x

[Ladybird]

Hi Ladies
Chris checking back in for Ladybird.
Visit to Christies Salford yesterday went quite smoothly. Onc asked if any pain and reckoned her leg pain was due to sciatica.
Blood sample taken and ct scan booked....what more can you ask!
Whisked her away for a nice pub lunch in Cheshire.
Good to hear the good news from others.
Thanks for the comfort.
Xx

[JulieD]

woo hoo! Great news Jeanette!

[funnyface]

Getting my horn out for  Janette! Toot, toot, toot!! I want chocolate too!! FF

[Barton]

Janette - such good news! Brilliant - so pleased for you! Good news is always welcome.

Hugs. Barton.x