this one comes up every now and then on the forum, the moderators dont like it because
here its an'illegal substance' but for what its worth, there seems to be some anecdotal evidence that it helps with pain. I think gps can prescribe it...but dont seem to like prescribing it!
Do be careful to check the source Maldives, some people have bought it online and found it wasnt what it should have been....or its contaminated xx
Hi Carolyn52, on zoladex and letrozole. Had mri, ct and bone scan for the spine and ruled out compression or fractures. I'm thinking that it's the letrazole as didn't have any pains before I started this... 😩
It just sucks... sorry... feeling sorry for myself today...
Hi girls - agree with Carolyn and hope everyone is getting some chocs ❤️❤️🌹🌹
on a more serious note, i'm on letrazole and last weekend ended up with an accute bwck spasm that meant 3 days in hospital until i could move on my own again. Doc seems to think that it is due to some met on my spine but have also read that muscle pain could be a side effect of the letrozole. Anyone else experienced the same?
Hello Maldives, no, I'm afraid I haven't had the metallic taste, but that doesn't mean you are a weirdo! It just means you are having different se's to me! I do notice (and sorry for TMI), however, that my wee smells horrid! We are all different. Glad you are feeling more or less ok on it though - long may it continue.
Ff, Barton and Carolyn....apparently they found half a motor bike down there once...reckoned that the person must have had to put it down a manhole, !honestly..im not fibbing
ff, yes thank you am far too coldxx
Hello Carolyn, I think they say that you aren't supposed to put anything other than toilet paper down the toilet (apart from the original reason for needing it, of course!). They had pics on the Daily Mail app on my tablet the other day - apparently some people dispose of clothing (! Yikes!) down the loo and cause the most horrendous build-ups!
So glad you found it in time - could have been really nasty - like ff's build-up! You have my sympathy, ff!
Moijan, Hope you get yiur warmer days! We are supposed to have 2 very windy days followed with some milder days! We have been very lucky this year, it has been above average temperatures most days. We had to wacky days where it was close to 70° and then dropped to around 20° and snowed. Really can't complain! I'm ready for Spring! I don't do well in extreme temperatures. Cold or hot!
Hi Carolyn, seem to recall youve not been that long in your house...could they be the previous occupants panty liners and wet wipes?? Not a helpful comment tho...sorryxx
Carolyn, You are lucky it didn't back up into your house! We have a septic system and drainage field bc we live in the country side. You can not out any type of wipes, feminine products, or baby products down the toilet! We have had a clog twice now in the pipe that exits the house. First one was a major back up and ruined the whole family room. It was a big insurance claim and clean up. Walls cut, carpet ruined, etc.Second one was a mess but we were able to clean it up ourselves! Thankful we put down a ceramic tile floor! We had to rent a power auger to clean out the pipe. Luckily hubby is handy. Hubby doesn't know it, but I flush all the toilets now 4x in a row 3x a day. I'm hoping putting just clean water through helps keep the pipe cleaned out! I really want him to rent the auger twice a year and run it through for prevention. He thinks I'm crazy! FF
We've had a dry fryer for about three years now, basically for the same reason as you Carolyn trying to keep hubby healthy. Found it really good. I use a tiny bit of coconut oil ( one with no taste) and it makes great healthy chips. If you use sweet potatoes keep the skin on or else they fall apart.
We hardly ever fry anything but I love chips and would love homemade chips, I'll be interested to hear if the chips tast as good as 'real' chips
Carolyn, I have deep fryer, but I'm very interested in this dry fryer. I've never heard of it. Let me know how you like it. FF
Avrelia, I hope you can have your choice! Sometimes I think the worst part of this journey is the battles we have to fight over what we want! Then add in everyday battles paying bills, things breaking, colds, flu etc. It is all exhausting! This could lead you to be an alcoholic!
Carolyn, Your post sounds like you have perked up a bit! What is this fryer that you are talking about?
Snow amounts were not what they called for! There is a nice slab of ice with about 2 inches of wet heavy snow on top! I was bummed we didn't get the 10! I like one big snow, but only one! We are supposed to have winds of 35mph and gust up to 50mph starting soon. It's supposed to go down to 15°. A drop of 50° since yesterday.
Janette, I'm not a city girl! I haven't been to NYC since I was in high school. It is only about 2 1/2 hrs to there. I have always wanted to go at Christmas time, but can't handle the walking now. I did go to San Francisco and loved it! New Orleans and Nashville are fun too. The New England States are beautiful in Autumn, but November would be too late. I would suggest seeing Bryce Cannon, Yellow Stone, Yosemite, Grand Canyon. If you come this year and are within a few hours of me, I would be willing to drive where you are and meet up. That is if you would like. FF
Glad you are feeling better, Carolyn.
Everyone stay safe and warm in the cold weather (be careful in the snow and ice, ff).
Avrelia - I can't help you with your decision, but just want to say that it is your decision - don't let people try to make you do something you don't want. You have all my sympathy.
Hugs to all. Barton.x
Thank you Babsy, and yes, I know it has spread...That is why I want to make sure I am not helping IT get over, rather do my best to slow everything down. If a surgery is an option, I would opt for it. Is Carolyn "absent" because of the cold? If so, please recover soon dear, I myself was in a really bad condition from Christmas on, until the mid of January, but it was "only" a cold. I felt like s..t though!....
Hi Avrelia, to be honest as you have secondaries the cancer has already spread. I like you have read that removing the primary does help ease the bodies load. Many Of the ladies on here use an American website called Inspire to get links to research. Good luck with your decision xx
Strange weather here! Today it was in the low 60's. Running around without a coat. The temperature is dropping and by 1AM we are supposed to see snow starting. We are in the area for possibly 10+ inches. It is supposed to snow at 1 to 2 inches an hour and is going to be a heavy wet snow! We will probably lose power on this one! Kerosene heaters, generator and camping equipment ready! Lots of food and wine! FF
Thank you very much guys, that is how I am planning to decide, may be some intuition, combined with doctors opinion. I thrust my oncologist, do not know why, but she is a good person, hopefully a good doctor as well, haha I still remember the day, and I will probably always do, when she told me about my secondaries, because it was explicable that I asked her the question-HOW long do I have, then she told me that it is tooo early to tell-some women live 5, others,10 years,others even 20 years, so she cannot tell me for sure. The only thing she could tell me that I am never going to be an OLD lady, whatever this may mean....Creepey, isn't it?
Still, I am scared, I am scared if I choose to have the surgery, of course if I have the option to choose, will this be better or not. Have read somewhere that by reducing the tumors inside your body you are making it less toxic or something. But if this makes it worse like, letting these cells invade some other parts of my body somehow....
On the other hand, an intervention is an intervention after all, andeverything is risky....But why is the surgery then A MUST for primaries. That should mean something, they are eliminating the breast tumor, and basically the difference between secondaries and primaries is that the former have some more....Any way sorry for my chaotic and moaning post, but my mood has been like that since my chemo is over. I have to organize myself and just enjoy life, let it happen...
Thanks you all of you for the time spent reading me and replyiing
Avrelia, I'm not in the same boat with you.I didn't have a double whammy dx like you. I have heard some women keep the breast and feel they can monitor their treatment results by watching or feeling the breast tumor, others want it gone. I think research gives you both sides if the coin too. Seeking other ladies opinions and looking at research is a good idea, so you can form your own opinion. Whatever you decide you are comfortable with is what you need to do. Going into the oncologist office with your decision would probably be best! Good luck with YOUR choice! FF