The Spongebobs are those of us on eribulin - it is made from sea sponges. Our thread in Treatments section is called
😂 😂 😂 Carolyn, you are hilarious, nearly choked on my tea laughing! Saw my first swallow last Sunday, spring is here...even with one less ladybird!
Janette, I cringe when I see people in the chemo ward going through the hide and seek game with their veins! I was having a C-section with my daughter and the hospital was extremely busy and falling behind schedule, so my OB decided he would help out and IV me. I can't even tell you how many jabs, twist and turns, etc. I finally asked to lay down because it was making me sick. He said, "I'm really hurting you aren't I ?" I'm like yes! He says, "Maybe I should get someone else, I haven't done this in 8 years!!" I looked at him and said, You are definitely DONE!!" I feel people's pain when they are going through it!!! FF
Hooray Carolyn, a Stable Mabel! Go out and celebrate - oh, I see you have done that already 😉
Avriela - sorry to hear that all was not quite so stable for you but at least your oncologist is on top of things and changing your current treatment. Keep in touch with all of us, we are here for support as well as a place to have a rant and let off steam when you need to.
Corey that's,a long wait!! You will, need a huge supply of wine, chocolate, candles, and bubble bath! FF
Just come back after a break, so pleased for you, Carolyn! Wishing you sunshine and chocolate!! Maybe not together....a gooey mess. Just shows that the hormonals can be so effective on their own. Not sure about the 2 scan types, I've never had a PET scan ( well, several ON my pets but think they were CTs...🐶🐶🐴🐴 ) I think that PET scans are more expensive so we only get the cheap stuff here! Someone better informed will be here soon, I'm sure.
To everyone going through a treatment change, thinking of you and (((((hugs)))) xx
Hahaha I liked the way you expalin things Carolyn, especially when you mentioned donkey as a pet. And I am sure that CT stands for CaT:) Poor animals they do not need that:) Love you all, thank yoy for your comments after I bursted out. I know that it is not easy for none of us, but you are so helpful. I am not that strong.
FF, how many rounds of Chemo you had as a whole. I had only one, and it last cycle was last year 10.11. I do not feel like having another one so soon. Not that the previous was bad, do not take me wrong but I am worried of the long term side effects. Hope that letrozole will work. And if needed I may opt for taking ovaries out. Love you ladies
hi everyone scan was ok but needle hurt going in. so now the wait begins 1 month. carolyn really pleased for you .
Carolyn, Happy you are stable! Thankful that we don't all get bad results at the same time. We can hold each other together better. FF
Avrelia, I'm sorry your treatment has failed. We go for our scan results with such hopes that all will be OK! When it's not there is fear all over again! This is such an unfair road we travel! Hopefully your next treatment will kick butt! I'm ER + and had always done chemo. The last couple years was my first hormonal. Wondering if you might need chemo for a while. Hugs!!
carolyn that is great and great encouragement for those of us on Letrozole. 😉
Avrelia, I'm on zoladex (ovary suppresant) with letrozole and zometa (bone strenghtener). It is do-able, the worse side effects for me have been the back spasms which have left me in bed BUT they happened after the first dose and sinc then it seems to have been better (3 zoladex and 2 zometa). The other side effect is the hot flushes which have me playing hoke koke with the duvet at 3am 😴 But other than that it's been fine.
hope it's a good week and you aer all enjoying the few rays of sunshine we are having! (At least in Pembrokeshire!!) xxxxx
Thanks everyone, no i think I have finished my post Carolyn, it is just a bit chaotic though...Anyway, Daisty, I know what you mean about forgetting I am in such a situation, I do not post and read coz i am forgetting, and luckily I do not have any major syptoms, it is just not encouraging at all. A friend of mine has sugessted weed oil. I think I will give it a try as well, but I am not 100% sure. She will be doing a charity walk in order to raise money for me and for another friend of hers who has got cervical cancer. Bless her. My bestie is coming on Friday to visit me, and I am thinking of taking her to a streepteeze bar:) Shortly speaking that is all about me, after two glasses of JB:) God Bless you all
I just came onto the forum tonight after not being on for quite a while (think I've gone into denial about the whole situation and haven't wanted to read much about anything).
Anyway, enough of that. I just wanted to tell you that I have been on the ovarian suppression injections (zoladex) since May 2016 when I was diagnosed with primary and secondary cancer to the bones from the outset. The injections are bearable believe me and although the side effects can be a little annoying they are most definitely do-able. I am also on Tamoxifen as I am oestrogen positive and Ibandronic acid (bisphosphonate) to strengthen the bones.
Just wanted to let you know. I hope all goes OK for you and will keep you in my prayers. Debbie x
Carolyn that's great news! Have been wondering about you all day.
Avrelia. Hope your new treatment will be an improvement on what you have been having. It must feel like a a big step to take.
Hi there, have just been back from the appointment with the oncologist. Had my scan last week, and things are not as supposed to obviously, as they are changing treatment. The doctor says that I do not have new metds, exept one new lyph node on my neck, which she would need to biopsy, and as a whole the lump in my breast has not shrunk more,on the contrary it might have got bigger with a milimeter or two, and she was not happy with the bones response. That is why she decided to cahnge Zometa to Denosumab, she would add an ovary supression injection every month,change Tamoxifen to Letrozole and send me to a Gynecology team to check my ovaries. She said that they might decide to have them removed, but I do not know yet. I went there alone and luckily she presented me the news very openly and humanly, but I called my husband and I cried over the phone for several minutes before I could go back and take the first ovaries supression ijection. I feel like starting the batlle AGAIN. Hope that this time it is going to work more. Anyone in the same situation? Did anyone have her ovaries removed. My cancer is Estrogen positive. I am sorry but my English today is not the best one. I shall try and keep my head above water
Corey, I hope your scan went OK? And the trip to Plymouth. Do let us know how you get on when you get the results.
So pleased for you, Carolyn (or should I call you Mabel?)- excellent news! Long,may it continue! Good old Letrozole. Actually - I take it your teeth have drastically improved, Carolyn, if you had the Denosumab jab? I do hope it is good news there, too.
Carolyn, Good luck tomorrow!! Wishing you the best!
Girls, I agree, we were just unlucky FF!!!
Will be thinking about you tomorrow, hope it's good news. Big hug B xx
Corey, hope it's not too unpleasant, keep your mind on the coffee and cake xx
Hi everyone its lovely and sunny again here nr bude. im getting myself into a state as im off to have my pet/ct scan tomorrow and i still hate needles.i will be thinking of the cake and coffee after as i am not allowed to eat anything 6 hours before.i am confused as before i had radiotherapy to my sacrum for the bone met i didnt have any pain now i do . has anybody else had this ? hi to srilata am i right that you live in somerset . i lived there nr yeovil until we moved to devon 11years ago.
Hello Nicky and ff, I read an article a couple of weeks ago that said they have found that breast cancer cells travel around the body much earlier than first thought - even before you know you have breast cancer, or is detectable, in the first place! I have come to the conclusion that it is just bad luck.
Hi all, funnyface, I just want to say that I never had tamoxifen either, I was very young when I had the primary but I now know young women are put on it, I don't know why we weren't. Anyway maybe that's one that could be added to the list now. I'll ask next time I'm in.
Sorry to hear about your results FF but it looks like you have a plan A! I'm also changing treatments soon and just jumping through all the hoops here to get on a targeted trial at one of our main cancer hospitals. As to whether your BC would have come back if you had been given tamoxifen after your primary, who knows? I was grade 2 (nearer grade 1), no node involvement, early detection etc etc and put on Tamoxifen but it still came back. It may have been protocol in general (to go onto tamoxifen), and possibly delayed the onset of secondaries, but this is such a clever disease it finds its way around all obstacles when it wants to! I'm only saying this as we'll never know the 'what if's and it's tough enough anyway without wondering if we should have taken or been given a different route. Sorry if I'm saying something out of line but I respect your positivity about all of this cr@p but know how progression, especially if not expecting it, can knock us back. Been here, done that, several times! Hope you get on well with the new regime when it starts and it's easier on the aches and pains than letrozole has been.
Hi to all other mets ladies, hope treatments are going well and side effects kept to a minimum. Although I've not been posting so much lately (due to trying to sort out my own situation and change of treatment) I do read every day so am with you all in spirit 😊
Glad to hear these other hormonal sound easier than letrozole. Truly having hope to get rid of some pain. Will be on it til May 8th. Then the new drugs.
Girls, I wasn't offered tamoxifen after my primary. I went in for one of my yearly check-ups (7 years out) and asked why I wasn't getting it. Oncologist said it wasn't protocol for my age, at the time and no node involvement and I had done chemo and a bilatelal mastectomy. He said, since it had been 7 years no sense in starting it then. He said with the knew knowledge of 7 years later if I was just going through this he would have probably given it to me, but felt it wouldn't do anything for me to start it after the fact!! I think he screwed up!!! I went to my surgeon to have my port placed and she was going over my records and said I shouldn't be in her office!! She said with no nodes involved and my type of cancer and the use of tamoxifen it shouldn't have come back! When I told her I hadn't been given tamoxiifen she slammed her fist on the table! I told her what the oncologist said and she rolled her eyes!! She said, "Well there is no use in crying over spilt milk!" This then made me know I should have had it, nd maybe I wouldn't be in these shoes! FF