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Bone mets - please join in

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Re: Bone mets - please join in

FF
Your weather and ours sound the same ..it's gorgeous but phew its a struggle ..I'm like you I have to be covered at night even with just a sheet ...
Up at silly o clock this morning and went boot sale ..stupid as its on concrete and was too hot so didn't stay ...
I expect we have Brazilian restaurants but I'm so dull and common with boring food ..the local pubs roast dinner suits us. We have McDonalds nearby and our local Sainsburys do a nice lunch ..gosh I'm sounding like a hilly Billy with my food ....
Renee
Hope u find red riding hoods post as you will probably find some good advice there ..actually I will flip over and have a read too.
Well ladies ..here's hoping to the luxury of some sleep tonight ..
Xxxx
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Re: Bone mets - please join in

Renee......just to say I have posted on the skinnie thread about skin mets. Info. I thought I'd post it there so any other skinnies visiting could see it. It is hard enough trying to find out about skin mets s they are not common! Yours may not be of course...........

 

Take care, and keep cool!

 

mo      x

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Renee, If you go to the bottom of your screen and click on secondary  breast cancer a screen will pop up with areas to go. One will say treatment and medical issues. Then there will be a thread that says Metastatic breast cancer and cutaneous mets. This is a thread on skin mets. You might want to post your question there. 

 

FF

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Good morning ladies!! Add me to the hot, humid sticky, no sleep club!!!!! We have gone from a monsoon and cold spring to fry and egg on the hood of your car weather! There was hardly any nice Spring days. The AC in my bedroom broke the night before. We were woke up by a big bang and then squealing and a burning smell. I yelled to hubby to hurry and shut off the AC. He looks at me and said what was the noise that woke me? I'm now yelling it's the AC and it smells like it's burning!! The man is not good at responding quickly from his sleep. I'm very surprised it even woke him. GRRR to this breaking. Back at the end of summer last year the unit in that window gave out. This unit was an older one that we had in our basement and had used before in our bedroom. Then someone gave us the one that broke in the fall. We had used it for a few years. Last Wednesday we had our son take out the broken one and put this one in. We are buying a new one today. I can't take the heat and humidity with these night sweats. I also need my blanket! I can't sleep without it. Even with the AC plus a fan on, that blanket comes on and off all night long. 

We are going to a Brazilian restaurant for Father's day! Do you have a Brazillian restaurant? They usually have a salad bar and they give you a coaster that is red on one side green on the other. You turn it to green and about 6 gauchos show up within seconds. They start bringing you meat. If I remember correctly there is about 14 selections of meat cooked different ways. They just keep coming unless you want a break and turn that card to red. Eight of us are going so it should be a grand time. Friday night we went to a comedy beef and beer night at a senior center, not the one I work at. I needed the laughter!  Yesterday it was just to miserable out to even move, so we sat around and played cribbage.

 

Renee, Your father's day celebration at a quaint pub sounds fun. I love to try different little places. I like pubs and old fashion type diners. Our kids are into all these micro brewery restaurants. I don't like beer and hubby doesn't like all these new fangled flavored beers, so we don't go to many of those kind of restaurants.

 

Chocolate doesn't taste right since I started these meds a few weeks ago, but I used to love it.

 

I don't know much about skin mets, but I can say I would be freaked out too!! I hope you hear from Red Riding Hood soon. Enjoy your day! FF

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hi carolyn,

thanks for posting i will look out for a reply from red riding hood ,i am so worried about these spots or whatever they are ,maybe bites ,but not itchy or sore ,just there ,and i want to google them but dare not as will frighten myself to death,so try not to go down that road 

 

sleep ,,what sleep?i laid on top of the duvet all night plus had the fan going full blast but it was dreadful and going to carry on by what the forecaster is saying so something to look forward to.

mia my dog hates it but has found a spot between my front gate and the back garden which is shaded until the afternoon son works around ,plus i buy herr rock salt which is supposedd to help and now the pet shop does doggy ice cream,but my granddaughter found a recipe for it so we make it now as expensive to buy .

 

going out today for fathers day ,have lunch at a qauint old country pub then a ride around the outlying villages ,looking forward to that .

 

take care 

renee

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Hello Renee
Happy Sunday to you ..hopefully lovely red riding hood will be reading your posting and reply as she's the expert on skin ....

Well own up ..did anyone actually get any sleep last night? Very hot ...my legs were in and out duvet doing the okey cokey, I had an annoying fly buzzing around and was in and out loo after drinking so much water ...so can feel a afternoon nap coming on later ....
Enjoy the weather though
Xxx
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hi there ,

ff has a brilliant idea ,chocolate and alcohol ,only thing is since starting my treatment i can not even look at chocolate ,the treatment has put me right off ,such a shame really.

 

i wonder if anyone out there can tell me if they know of skin mets when having B C treatment ,i have small red spots appeared on my breasts and not a clue what they are ,do not hurt at all just there to be annoying,for some reason i take everything in my stride but these are worrying me,

i see my oncologist friday after having c t scan tomorrow so will mention it to him ,i just dont wish to sound stupid and be wasting his time.

 

well another red hot morning ,you would burn even at 7 am in the morning ,the sun is so powerful at the moment,but nice to try and enjoy so wishing you all really pleasant lazy days ,we deserve them.

take care

Renee 

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Well FF that sounds a brilliant idea ..chocolate and alcohol instead of the meds!
Well it's been a scorcher here today ..not good with the heat lately.
Well I've had a very exciting Saturday night ..did the ironing, patio doors open , cold drink and Coldplay blarring loud on stereo!!
But ..it's all done so easy lazy day tomorrow.
Hope everyone has had a good day ...
Hugs xxx
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Renee, Your pots sound gorgeous! You are doing an amazing job staying active. Your leg experience broke my heart.Then to be blasted with BC after that. Life truly is unfair sometimes and totaling amazing other times. I guess we need to try and concentrate on the good!

 

Babsy, I do believe children need taught the basics and feel comfortable talking. I just sometimes feel it's constantly in their faces. I know it's part of life, but still feel there should be some privacy. I taught my children early and used correct terms. I also taught the. there was a place and time to talk.

 

Carolyn, I found a new diabetic plan. I was doing some research on blood glucose and found out why it's always suggested for diabetics to not consume alcohol. It said alcohol lowers your blood glucose and you could have a low blood sugar reaction with your medications lowering it too. Well why can't I use alcohol to lower my blood glucose instead of medications! It would be more fun! If it got too low I could self medicate with chocolate then!

 

Enjoy your weekend! FF

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Hi Liz

thanks for reply, I've just had my 11th injection of faslodex and denosumab. This is my first SBC treatment and so far doing the job. I feel ok on it and manage to work around 30 hours a week. I do get very tired about a week after jabs, and suffer from horrendous hot flushes which keep me awake at night. It's good to hear from someone else have faslodex, I spoke to the nurse and I'm the only one at my hospital having it! Most probably I'm having because have had all the oral hormone therapy as my primary was 12 years ago with a recurrence after 6 years then SBC after another 5 years. I'm hoping this works for years! It's very doable and I feel ok, so far so good, my hip / groin area worries me but hopefully will hear back from onc, next week.

hope your results on faslodex are good, it's certainly easier than a lot of the treatments. Keep in touch. Bel x

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Hi BJR,

I have secondary bone mets in pelvis, spine and right shoulder. I get odd aches and pains. I have been on Faslodex for 4 months after Capecitabine didn't work. Also have liver and lung mets. Before Christmas I had pain in left leg and hip, was worse when I sat down. Turned out I had a trapped nerve due to mets in spine. I had a large boost of radiotherapy which got rid of pain and am now ok although get an odd twinge now and again. Shoulder is problem at moment. II had a scan 3weeks ago, get results in a couple of weeks. I really hope faslodex is working as I feel more 'normal' on this. How do you feel on faslodex? I have denosumab as well.

 

 

Liz x

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Hello BJR
Welcome ..sorry you are having pain ..I have bone Mets to hips femur pelvis etc and get some funny pains which I can't explain either.
As everyone knows I'm useless with medical stuff but it sounds like a nerve or something which catches when you move ..I get a lot of trapped cramp in legs sometimes ..
Oh this disease certainly keeps us on our toes ...
Sorry not much help.
Xxxc
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Good Morning All

Up early this morning as worrying, haven't posted for a while, but like many others read this thread on a daily basis, so informative and laughs too.

After my SBC diagnosis a nearly a year ago I have remained stable on faslodex and denosumab, with a scan just a couple of weeks ago, however, I have a lot of pain in my right hip, bone mets are in spine and sternum, the pain is weird, I'm ok walking but when I sit or lie down it feels like something gets hooked up! The pain when I move makes me really jump up as it's so sharp and then remains as a dull ache.

Spoke to chemo nurse last week who said she would email oncologist to review my CT, but heard nothing back! Now weekend and worrying what it is! Any ideas or advice would help. X

 

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Great! redridinghood....yes, im always aware we have many silent readers and thats great! So pleased you are posting tho...so relevant stuff.

 

have just realised we need some hedgehogs in our garden to eat slugs! Like hedgehogs, but we live on a main road....some years back 

I saw one walking across a main road and turned the car round to rescue him, but someone had squashed him! Was so upset!...bit dangerous near us for them!

 

Mx

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Suze
When my grandkids were young ..play doh was banned at theirs ..so I had the job of scrapping it off the carpet and table ...and Lego as the mum said it got stuck up her vacuum cleaner or she stood on little bits in barefoot !!
I remember my own son aged about 2 ..stuck a bit of Lego up his nose ( why?) Anyway caused a blockage and we ended up a and e and do u know what the doc said to him...."what colour was the Lego u stuck up yr nose "? As if it was important when he is choking !!
For any of you still reading ......it was blue !!
Hugs xxxx
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Jellytot
Phew so many appointments but at least u r getting the very best treatment ...
I always wandered the difference between pet and ct scans too ..think they are very similar ..contrast and cannula .
I laugh when I think.of pet scan ..imagine everyone taking in their dog or cat in the scan room !!
Hugs xxxx
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So I have a PET scan tomorrow to get the baseline data for my trial. This week I've had 5 rads at a hospital 45 mins drive away, and 2 oncology appointments at two other hospitals. So in a week (inc tomorrow) I will have had 8 appointments at 3 hospitals. I really wanted to rest tomorrow and now I have to go to yet another appointment ☹️ I'm sorry for moaning and I know how lucky I am that we have the wonderful NHS, I'm just so tired, emotional and overwhelmed. It's only a month since diagnosis and still so much to process. I haven't had a PET scan before, can anyone reassure me that they're not too horrid? Sorry for spewing! xx

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Maybe, I've given the wrong impression. I agree our children are exposed to too much, but not at school. We teach them about changes to their bodies in puberty, personal hygiene and the correct names for body parts. Sadly, the correct names is needed because it enables children to talk about abuse. When this was introduced, most of the staff were unhappy but now realise that there is a need. We have had at least two disclosures following these lessons. As for gays and other minorities, we have different families, same love. Again, this is because we have children with two mummies or two daddies and whatever your beliefs, nobody wants a child to be treated badly because they don't belong to a standard family. 

Carolyn, our grandchildren seem to have far too much, although they don't seem to be as spoiled as others. They are very sporty and the two boys are going to America in the summer to represent England in ice hockey. What I feel they do miss is messy stuff. Their mum doesn't like mess so baking and creative art is done at ours. I suppose that's the grandma role.

 

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Hello Renee
Glad u are settling in with us here on the bone Mets thread ...it's busy but it means you should never feel isolated.
As for the hospital transport ..that is terrible but thinking about it ..when I was having my bone juice at hospital a few weeks ago ..there was a gent sat in his wheelchair waiting for his lift home too but he was being spoilt with cups of tea and sticky buns so maybe he didn't mind the waiting around so much!!
Xxxx
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hi funny face and all you lovely people,

when i logged on today i had 17 messgaes from this site ,but when logging on to all seperate i found they were mostly repeats of the same messages so have no idea what has happened there ,whether i have set up wrong or its the gremlins hidden behind the machine.

 

to get back to you ladies ,firstly funny face ,i am no experienced gardener i can assure you ,have just learnt as have gone along ,also since losing my hubby and also my leg i have had to resort to doing away with lawn and laid a gravel garden with lots of pots ,not expensive pots just all black plastic in various sizes and shapes ,i have filled them with all kinds of plants and flowers ,at the moment i have flowering azaleas,day lily's,the large white lilys which are usually associated with funerals,and black cala lilies,i also have daffodils earlier in the year and dahlias ,hydrangeas ,plus roses to flower yet,i do have some trees also in pots ,being a dwarf lilac,a red robin,2 oliander ,one peach and one red ,plus some fuschias that come every year ,

now in my baskets i have fuschias of many colours ,plus geraniums and begonias ,with ivy of various shades added ,then when the baskets are finished i replace the fuschias and begonias with pansies ,and a small conifer for over winter,i like you love hostas ,but being in my wheelchair i can not keep up with the slugs and snails that eat them so do not bother with them now,but i do miss the plants as they are loely to look at and beautiful when not eaten alive,i think most of the plants i have mentioned would grow for you especially the hydrangeas and hardy fuschias as these two appear to grow in any soil .so best of luck .

i am so sorry about your hubby and his foot ,i lost my leg due to vascular problems ,but previousely had been treat for athletes foot for six weeks by my doctor and district nurses,until a new doctor spotted what was really wrong and here i am now,i ended up in hospital for ten weeks as caught sepsis ,and various other infections in the process as they removed my foot first ,that did not work so had it taken from below the knee ,but ended up by having it removed above the knee to allow blood flow etc to work correctly ,quite a traumatic time i can tell you.then had the cancer diagnosis in the same year so 2016 a bad year for me.x

 

carolyn,many thanks for thread to private site ,i will think on that one as i am quite enjoying the bone site you reccommended and thank  you for that ,as such a lot of great people answering on there ,in fact i sometimes find it hard to keep up with who has answered me so sorry ladies if i have ignored you i honestly dont mean to.

 

had a dreadful day  at my treatment centre yesterday as i had to use hospital transport ,and my appointment was for 2 30 ,they came for me at 1pm and i then had my treatment ,was finished at 4 30  and transport did not pick me up until 7 10 so sat for over three hours waiting to go home ,i did query the time and was told by driver ,he was not a taxi so i am going to report him for his attitude to patients ,as just not on ,i dont usually use them as family can usually work around my appointments but one son is on holiday and other one could not get his shift changed so no choice 

 

kind wishes i send to you all on site .

Renee

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I agree FF ..kids get far too much now ..my grandkids have designer clothes ..everything technical possible ..back to grass roots send them down the mines or up the chimneys again to earn their pocket money !! I've got to give grandson money tonight to get his father's day pressy but also bus fare and McDonalds money as he will be hungry whilst shopping !! Ha ha.
Well hope everyone has got some nice plans for weekend ..
Xxx
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Moijan, My blind stories were real! Nice to hear from you. Hope you are enjoying some fun days!!

 

Ladies, I feel like we need to go back and be a little more old fashion. I think our children are exposed to too much to early! 

 

FF

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Moijan..........thanks for saying hello! I visit here every day, reading. This is a busy and friendly thread, with plenty to laugh about!  I don't usually have anything useful to add but today I thought I would give Renee a nudge over getting registered for the private group as ff mentioned it, but I think I might have made it a bit complicated! I think this is the busiest and livliest thread and it's good to have a daily giggle! I also learn a lot. There are so many regular visitors here, all sharing and supporting. Wonderful. I'm off to bed.....not so hot tonight.....but first out into the garden where I sometimes have a hedgehog visitor. He puffs and snuffles, and waddles past me and round me quite happily, and eating all my slugs I hope! Then bed.........goodnight everyone,

 

mo                   x

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Hi Suze,

 

do you think we are overdoing the politically correctness with kids these days...? I know gay is absolutely fine and have gay friends etc, also they need to know that adding bits to someone elses jigsaw produces an extra peice ( if you are unlucky) but kids have a right to be kids, enjoy being kids...and there...ive said it...and I havent any!

 

And I know that teachers have to do what they are told teaching wise......same as doctors have to ply us with the standard treatment/chemo but for my money..,the world has spun slightly off its axis xx

 

and the thing is....all the different factions feel they are right!

 

yes, the world is on an unforseeable journey. Thats for sure!

 

mx

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Hi Mo, where have you been?

 

nice to see your red cape xx

 

Mx

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Babsy, yes! Good for you go girl...and enjoy. Just make sure you ar fully covered insurance wise...chat to Macmillan....they know exactly who and where...tho they only list some good companies.

 

love Moijanxx

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Ff. Was just reading that tale, was funny, then hought...IS It a joke? Hope your mets are behaving a bit better these days? And that your joy is brimming..realised i havent bern responding yo you much lately!

 Was also wondering if USA ducks eggs are same as UK ducks eggs and if different breeds of Ducks produce different types of eggs..,then everything go a bit too much.

 

i know we arent supposed to discuss the C word on here but noted that C is becoming legalised in some states and feelng realky envious as warched some seminars on C this week and realise how beneficial it is for lots of things..,not just cancer...as it reduces inflammation.

 

moijanxx😎 (Note my disguise)

 

am desperately trying to sleep nowxx

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Jellytot. You definitely sound more positive and your onc is doing a fantastic job. Those nine more rads will fly by. Did you get given a trendy little tunic number? At the Christie, they give you a fancy top with press studs to keep for the four weeks. It was much nicer than some of the hospital robes I've endured. It's hard to keep dignity intact when the back of your gown is gaping open! 

FF. The nurse didn't show up in the end so has been rescheduled. We've had some very strong views from some parents. We're trying to make their kids gay and teenage pregnancy is a government conspiracy. It's all good fun being a teacher.

Didn't get my biopsy. Got to see the scan pictures and specialist said it will be a struggle to get a biopsy but referring me to another department to have a try. My pain can be treated three ways. I can have a new drug that has side effects of making you tired and loopy (doctors word). So not having them. I can have an op with six weeks recovery, which would mess up my holiday and first ever music festival. So I plumped for steroid injection and if that doesn't work, ill have the op. Should be about three weeks as a day patient. 

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Hello Girls,

Just been to the ballet with my mummy, Alice in Wonderland, weird but great!

Meeting with oncologist about the ribociclib went well. Got to finish rads first (9 left), then an oophorectomy and complete 28 days (from now) of trial assessment. So scans and blood work starting with a PET scan on Saturday and as long as I satisfy the trial criteria then I'll be starting it in July sometime.

All overwhelming but good! xx

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Renee.........I agree with ff that it would be a good idea for you to access the private group. You will see it in the list on this first Living with Secondary Breast Cancer page: https://forum.breastcancercare.org.uk/t5/Living-with-secondary-breast/ct-p/secondary_breast_cancer  

 

Until you are accepted it will show as zero threads, and if you click on it you won't be able to get in! If you know how to login/sign in......there is a button at the top right........ then login. Then when  you click on the private group in the list you should get to a page with a question 'Ask to join the group'.

 

If that doesn't work then you can contact the moderators direct by email: Moderator@breastcancercare.org.uk. Tell them you want to join the group. They will ask a few questions in reply like your password etc. Then once accepted.....they will tell you when that has happened.......you will find you can enter the private threads, after logging in. Magic!

 

There are a lot of different threads in the private group to try out. I think ff will be checking the gardening thread!

 

Take care. I hope the above doesn't sound too complicated! It is simple really, and once you are accepted you can go into the private threads any time, after logging top right. I think you will then be able to send private messages too, to individuals, that don't go on the public thread, using a little envelope that should appear at top right. I can do it, and I think it began when I was accepted for the private group.

 

Take care and I'm glad you gave the bone threads a go! It's a friendly, chatty and supportive group. And knowledgeable too!

 

mo               xx

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Hi everyone had a lovely day out with husband, girls, their babies and one son in law today. We went to a beach that we've taken our daughters to since they were tiny. Got a bit emotional at one point, but it was brilliant. We've decided that, unless I deteriorate, which I won't, that we will fly to Majorca. It's not a long flight so fingers crossed. I love gardening too and always make my own hanging baskets and tubs etc.  I also grow veggies which I get a kick out of growing and then eating. It's great looking out in a pretty garden, lifts my spirits. My hubby also has diabetes and it can be a bit frustrating as he can't necessarily now do what I can't, which sometimes does mean I push myself too far but I have got a lot more sensible. We also have a blow up hot tub in the garden which is great when the weather is hot. Bubbles ha ha. 

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Renee, I wish I had your flower expertise here! I live out in the woods on the North side of a hill. We get some sun, but not in the areas I need it! I would love to have someone knowledgeable guide me. I have a lot of natural ferns. Hosta love it here. Unfortunately I can't put hosta in the front of my house bc the deer think it's their gourmet salad and invite friends over too. I had a bank that I wanted to cover in hosta, I bought some planted them and in the spring when they came up my husband said wow, did you sed how big your host a got in just a couple days. I went out to look and they were completely gone. They ate all of my neighbors the same night. The next spring they came back up and I moved them behind my house. They are gigantic. They weren't supposed to be but they are. They share about 7 ft  across and 3 ft high. One buck found them at the end of last summer, but that was the first time. I hope he can read bc I'm putting out a warning sign. I have one perennial bed that I'm working on. It's a constant mess. I think I'm going to pull the plants this weekend . Hit the weeds with the weed eater, put down black plastic, put plants back and mulch. My daughter thinks that would be easier than pulling the weeds. I'm going to plant two bushes too. In other areas, I've decided I'm going to start to do pot gardening!  Lol,  that's flower pots! I'm going to relocate some ferns and try to encourage them to spread. My property has a lot of rock. Just when you think your planting this nice evenly spaced row you hit a huge rock. One rock took my husband and both my boys with pry bars. Then we had to go buy dirt to fill it. I love our property but it is getting to be a bit much for us. Unfortunately, paying for help isn't in the budget. Hubby isn't able to do as much either. He has lost 4 toes on one foot, and has what they call charcot foot. Its when diabetes does nerve damage, it then effects the muscles and his arch dropped. This then makes your ankle turn over wear you are walking almost in the side if our foot, plus the bottom of your foot curves the wrong way like the rockers on a rocking chair. He is at great jeopardy of ulcers and losing it, and has come close many times. Last year he had an ulcer on his good foot and it took 14 skin graphs to fix it ! I don't want him doing gardening!! I know you understand all this. If you have any wonderful planter ideas, please share them. If you ask our moderators, you can join our private forum .  There is a gardening thread. By the way, I live across the pond in the US. I live in Pennsylvania about an hour west (30) miles of Philadelphia. Enjoy your day. FF

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hi carolyn

thanks for reply ,i have always done hanging baskets ,one year i did 48 but not as clever these days and must admit it took me some days to deecide as never know from one day to next how i am feeling ,the same as all ladies on here ,but we take every day as it comes and try to stay cheerful and positive which is the main thing,

going for my treatment to day so will mention breast leaking to my nurse ,and see oncologist next week after ct scan so should get some answers from one or the other

must admit i feel lots more positive since being on this site so thanks again

take care everyone

renee

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Long day today at work. Our boss was fired a few weeks ago and we got a new one on Monday. A lot of adjusting to do and for some reason the seniors are quite needy, nasty and entitled!! Exhausted, cranky, and very impatient after today. 

 

Babsy, I'm sorry for this bad news. Hoping your onc has some plans up his sleeves. I don't know why f l y ing might be a problem, but will the ferry ride be too much for you? You need this family time to relax, but need to be strong to come back and ready to fight! Hugs!

 

Jellytot, I hope you got through everything today without being too exhausted. Keep us updated when you can. 

 

Carolyn, I had duck eggs once, but didn't notice any difference. I know nothing about the allergy part. If your chicken egg allergy is life threatening then I would be checking out allergy facts on duck eggs before I ate them. Just eat chocolate it's easier.

 

 

Renee, Your story cracked me up. Our son had a friend who was blind and oh the stories he has. 

#1 Someone in the laundry room at his apartment complex asked him how he did wash? He told them like any other man! Stuff it in and pray it comes out.

#2 He went to the barber shop with his white red tipped cane. Sat down when barber was finished he held the mirror up and asked Shane how he liked it. Shane said I don't kniw I can't see it. Barber said I have you perfectly lined up to see, but adjusted the mirror. Then asked Shane if he could now see and how did he like it. Shane finally said I'm blind!

#3 Shane and his wife were swimming she is blind too. A lady came running out screaming blind people, blind people that's the deep end. Shane responded with blind people can swim!

 

OK, I'm falling asleep. I know I wanted to say something to someone else, but can't remember who. I will take another look tomorrow. Night ladies! FF

 

Quickly editing! 

Suze, It was you I missed. In our public schools in our town the boys and girls aren't separated for sex-ed. Wow was there a lot if opposition when this first came about!!

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Yes, Carolyn...I had some without realising till afterwards..they are quite nice xx

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Silly that I am these days but son gave me some duck eggs as i!m allergic to chicken ones  but I keep looking at them and can't get interested ...think its because they have come out of a ducks b u m ....its putting me off.

 

Has anyone found them OK if they are allergic to normal ones? Apparently twice as much omega oils etc so a lot more healthy.

Xxx

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Silly that I am these days but son gave me some duck eggs as i!m allergic to chicken ones  but I keep looking at them and can't get interested ...think its because they have come out of a ducks b u m ....its putting me off.

 

Has anyone found them OK if they are allergic to normal ones? Apparently twice as much omega oils etc so a lot more healthy.

Xxx🌝🌝

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Renee
What an inspiration you are ..I couldn't do one basket even as I would ruin my nails!
Maybe you should ask Monty Don for a job as his assistant !!
Xxx
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Suze
Don't envy your job at all ..my grandchildren are 12 and 13 ..between mobile phones and kindles etc the only conversion is "don't know" or "fine" at best !!
Well countdown to end of term so it's about 40 sleeps !!!!
Hugs
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Carolyn. Our babies were found under a mulberry Bush when I was growing up, which is a little confusing in inner city Manchester in the early 69s. There weren't many bushes and trees! The sex ed is delivered by the school nurse but I have to keep the boys occupied whilst the nurse talks to the girls. My bit starts next week in science. These boys are the worst we've seen, so much so that the head says we're all going to Manchester to celebrate next year when we pass them on to high school. 

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hi all,

its been a lovely day and have had my son grandson and granddaughter,it gave me a boost ,plus the sunshine so managed to sit in my chair with a small card table beside me ,plus compost ,plants and baskets and believe it or not i have managed to make up 25 hanging baskets,i am so pleased with myself and feel great for managing the same.

i have always done them but last year because of the situation i was in ,i didnt even manage one,i do 6 each  for both sons ,9 for myself ,and one each for the four grandchildren,given me a boost before my treatment tomorrow.

to the rest of the lovely people on this site ,i wish you all well and the best you can feel,we all have ups and downs yet you ladies appear to bring yourselves out of each others pain,which is great and so pleased i found this site and will always thank you as i know i am going to be able to talk to you ladies where sometimes can not talk to family.

love Reneexxxxxxxxxxx

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Babsy, sorry to your results weren't too good, hopefully your onc will get you on the right treatment plan soon and blast the little blitters away! Please try to not let it spoil your much looked forward to trip away with your family, family time is so precious!
Hugs Janette xxx
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Oh suze
Hope u get some answers with your appointment ..wow sex education ..bet they could give you a few tips ..they know everything these days ...well they know babies don't arrive from a stork in a basket !!
Let us know how u get on.
Xxx
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Babsy, sorry to hear your news. Chin up and look forward to your holiday. I've never smoked but was quite ill once from just being in a room full of wacky bacci smokers so probably not for me. I'll stick to G and T. Hugs x

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Just got home from work so leg being rested on settee. Hope all went well today Jellytot, though I expect you'll be too tired to let us know yet. That's a long day and its very hot. 

I've looked at appointment letter for neurologist and I get the feeling the biopsy won't be done tomorrow because there's no suggestion of it on the letter. No number to ring. Waited four weeks now for this and want to know what we're dealing with. I did have bloods done for tumour markers on Monday so I suppose that might show something. Feeling hot, pained and grumpy and tomorrow morning, I've got the year 5 boys for sex education. Think I drew the short straw. 

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Babsy
So sorry to hear of your latest results ..I don't know what to say really but you just have to trust your oncologist to prescribe the best treatment plan.
Hopefully you will be able to enjoy your holiday by travelling by ferry but its a long trip for you ...could you not switch to maybe Cornwall or something that wouldn't include such a stressful trip and of course you have to think travel insurance etc etc.
Xxx
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Hi all

Just want to add my welcome to you Renee and best of luck to you jellytot and babsy. About to head off home now and looking forward to the sweaty train as our office air con is appalling. Sad thing is I have to walk via London Bridge which makes me tearful but makes me realise how lucky I am to be here .

Wendy
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Hope it all went well JT.  

I've had the results from my brain CT and MRI scans showing that the lining of my brain has cancer which has pressed on my frontal lobe hence the stroke like symptoms.  Whole brain radiation was initially suggested but now my oncologist is saying to continue with one more round of Cape and if that's not working there's another possible chemo. I'm also going to try some of the " sacred" plant. Throwing everything at it. She initially said  I couldn't fly, we booked a luxury villa in Majorca for all of our family to have a week's holiday to celebrate my 60 th but she's now said that I can but there will be a small risk. We had already decided we would drive and ferry if we had to because it's important to all of us to have this special time together. Hugs to you all xx 

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Good luck JT, you may have already been now though, been working today so only just looking at the posts!
Hugs Janette xx
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Hello JT, good luck! You certainly do have a busy day today. I hope it doesn't take too much out of you, but rest when you get home if you can - sometimes the fatigue can hit you afterwards. I hope the trial meeting goes OK.

 

Renee, loved your story about your Onc! Poor chap! It's a shame they all seem to move on though, isn't it? You spend time getting to know one, then sometimes never see them again. It can be distressing, to constantly explain things again and again to new Registrars - some of whom never read your notes properly. I think consistency in treatment would go a long way towards helping us.

 

Hugs. Barton.x