Raining here too! Curled up with a cup of coffee and blanket. Have to go out to work in a couple hours. I made lasagna yesterday, so dinner just needs reheated. I'm almost ready for Autumn, but a nice sunny one! Just hate that Winter follows it.
The butterfly thing sounds helpful Carolyn. I don't know what my nurse did on Thursday, but it really hurt when she accessed my port and lovely shades of black and blue! FF
never heard of this but will ask when phlebotomist calls next ,as i bleed under the skin so easily with blood thinning meds and my hands and arms are so bad with bruising i look like someone has abused me [i should be so lucky],
rotten day here again i think summer has been and gone .
Carolyn, It was a friend's front porch. It is what they call a colonial style house here. The porch h as a roof over it. She has a two seater porch couch, 4 rockers and two other chairs and a coffee table. That is only 1/2 of it. It's long but not very deep.
The loudest thing at my house is the bugs outside! They are very loud in August! We can't sed another house but that is going to be changing!! There is 9 acres next to us that just sold and they want to put 3 houses on it. We have always enjoyed it being empty!! I'm not sure the township will let them subdivide into 3 lots. I will be bummed to lose the privacy! Oh well life keeps changing! FF
Hi Pippin!! Good luck tomorrow. ❤️ (Watching how brave you were in Lord of the Rings 😉)
I had an appointmnet through for the radiotherapy tomorrow so will have to figure out whether it'll be a long drive or whther they are going to keep me in 😞
There is a good article on facebook by a lady whi had cancer at 35 (cancer with a smile I think it's her blog) about friends and what to do which I thought was very good.
Anyways... hope everyone had a lovely pj day today 🌧🌧🌧
JEllytot how are you feeling?
thanks for advice funny face ,but i sleep now nearly all day for about five days of my treatment of herceptin and perjeta,so hoping the radiation doesnt make it worse or i will never be awake ,yet ok during the night i can get about 5 hrs straight through.
sounds like fun ,your porch party, and why not have fun as good weather does not last forever ,hope you find the pants you need .
Waffles, That's fantastic news! Any ideas where you would like to travel too? There is so many beautiful things to see in this world! Are you a city mouse or a country mouse?
Renee, My goodness that is one heck of a work up that you need! I hope they can schedule some of those things on the same day, so you don't have to make so many arrangements to get there. I agree with Carolyn, sleep when you need it! I need more sleep, but lately I'm going through a spell of not being able too. I can't sleep more than 3 or 4 hours and I'm awake.
Carolyn, No medication is easy for everyone. Letrozole kicked my rear more than anything I've taken (except abraxane). Vinorelbine and capecitabine were my easiest.
It's been an absolutely gorgeous weekend here. It has been in the mid 70's, no rain, no humidity! Friday night we met up with some friends for a porch party. There were 8 of us! Yesterday I went shopping for some pants, but the stores I was in were between seasons. No, luck! I'm down 70 lbs. now. I don't have any pants that fit! I have 4 pair of capris. I can't wear jeans to my new job. I figure if I buy some pants now they will fit til just about Christmas. I only get a few bc I don't like to waste t he money. Then if I get some for Christmas they will last til Spring. I hope I will be finished losing. Then hubby and I went to play miniature golf! Winner has to buy an ice cream treat for all. I won by 1 point! Today, I think we are just going to hang at home. Hope you are all having a good weekend!
hi carolyn ,
good grief i dont need to be any more tired as about 5 days out of my three week treatment plan i am so tired from getting up to going to bed ,in fact sometimes in bed by 8 pm on a bad day ,
i also lost 2 kilo in 6 weeks ,but i can not eat a savoury meal at all so guess thats down to that as only eating sweet things and ice creams ,etc i did tell him and he said he could give me fortisips but he wouldnt wish them on anyone as they are vile ,,his words not mine and to try complan from chemist,so will do that tomorrow.
i agree he does seem on tha ball ,i believe he is indian but not sure ,his name is MR KITTYPER .and as said very nice .
what treatments are you on Carolyn and what exactly for ,dont answer that if you would rather not ,its just me being nosey as per usual.
Hi Carolyn ,
apologies for not been on here for a couple of days ,went to see onco on friday ,he wants me to see a gastro specialist about my stomach problem ,but first he wants me to have five sessions of radio on my breast,and still carry on with herceptin and perjeta,i dont know what to think as my first onco said hormon treatment would not help me and radio would not either ,yet this new one is doing both ,but the nurse i saw told me to look at this in a positive way as proved to her this new one will try anything ,no expence spared ,so now have to have ct scan ,heart scan ,bloods plus scan before radio therapy then start that and he wants all this in the next month and he will review me then,he is very nice and goes into everything ,but has me worried slittle aat all these treatments ,also i told him i had been taking 8 immodium per day for 8 months and he answered by saying he knows people who have been on eight per day for 10 years and not a problem.
nice day here nut bad weather to follow i understand .
take care .
FF - Great news re Stable Mabel!
I've just taken my first dose of ribociclib, am officially on the trial!
love JT xx
I am on the same meds as you and have been for 4months now. The pain I have in my right hip turned out to be arthritus, this was found after a scan. Ask your oncoligist for if you can have a scan just to put your mind at rest, I did. I have secondry bone cancer on my scull and spine.
I had a bit of a blip with my blood test 4 weeks ago as the cancer markers had gone high. Oncolygist said it could be that the med are not working, but good news the next blood test shows the markers had gone down and she said that this happens sometimes and said meds are working. What a relief.
It's not plain sailing all of this but we have to get on with our lives. Some days I feel so well and forget I have it and others, like today , I feel good for nothing. I had a great day yesterday and got quite a lot of jobs done I had out off and today I am suffering for it.
Sending Love, hugs and kisses to you all out there,
Such wonderful news funny face, what a relief. I had scan on Tues so I am now in worry land !! Enjoy your weekend and let's think positive you will have Christmas etc off from all these appointments xxx
That's fantastic news Ff. What a feeling it is as the anxiety floods away! Enjoy your new job - sounds good.
Yay. A stable Mabel 😊, We all know the strain that scanxiety gives us so I'm hoping you had a fantastic nights sleep and ready to face everything in the morning. Your new job sounds great as well. As to planning ahead around the next scans that's my type of gal - treats and celebrations 🎉🎈🍗🎄
Stable Mabel has her elbows on the table!! Trying to hold my head up. I haven't been sleeping well and I'm not allowing myself a nap! Maybe I will settle down now that my stress is getting less!! Dr thinks my post nasal drip is from whatever I'm allergic too. Lung mets were either stable or a little smaller. She did say this radiologist said that the lymph node in my clavicle had reduced in size. She said she went to look at the CT herself and do a comparison. She said she really couldn't tell any difference in size and wasn't convinced it was in it. Will be watching it. I get to go back in 3 months!! She is keeping me on the same dose. Crossing my fingers that when I go back in 3 months that I'm stable again. My appointment is Nov 9th and if I could go another 3 months I wouldn't have to come back til Feb. I would be free from appointments for Thanksgiving, Christmas, New Year, and hubby 's 60th. One can dream!! FF
Good luck Jellytot! You have been through a lot and I'm hoping things calm down for you. Hopefully this drug works as well as pablociclib has for others. I'm not sure if I have ever had a panic attack or not, but I have been frazzled and completely twisted!! I'm betting your hormone level through you into it! I will be holding your hand! Hugs!! FF
PMOL, good news! I had my ovaries and tubes removed on 17th July, so please ask if you need any information.
I'm a week into letrozole and so far, not too bad. Combined with the immediate menopause from my oophorectomy, I thought I was going to be a total wreck but I'm actually doing ok. I did have an awful panic attack on Sunday, I've never had one before, it was crushing and terrifying and lasted for about 2 hours. I'm not sure if it's a side effect from my meds or if it's just my body's way of going "holy hell you've dealt with a lot in 10 weeks", either way, it was not nice at all.
Tomorrow I'm off to see my oncologist about my trial drug Ribociclib and all being well with the scans I had last week (CT and bone), I'll be starting the treatment. When I had my bone scan, I could see the images of my skeleton. My ribs didn't look as lit up as before, so hopefully that means the radiotherapy did a good job. I could see my hips lit up though and they weren't like that before, but having not been on any systemic treatment (until last week) and knowing I've had a lot of pain there, I'm not surprised. What I saw could have been the new spread in the lumbar region my onc told me about. He said that treatment will remain the same and if the pain gets too bad, we can discuss rads there too.
Anyway, please cross fingers for me for tomorrow, I'll let you know how it goes xx
We can't tell whether we should worry about pains or not but they are not always symptoms of progression. Didn't have much pain with tamoxifen but have more with exemestane, Earlier this year I developed new hip pain, shoulder pain and in my head (the fact that my routine appointment had been postponed didn't help) but a scan showed no progression and i started to feel better. It's hard not to but don't assume the worst..
Wendy, Enjoy yourself! Then you can return relaxed and ready to get answers!
Mollymop and Carolyn, Thanks for the support. Today went well at the job. Went around and talked to a few residents and got them to engage in conversations, coloring, bingo marker painting, bean bag toss, kick ball, and a ball toss. I'm off tomorrow! I do think it is going to be a fun place to work. The more I'm there the more I realize how relaxed of a place it is! I'm ready for my results tomorrow!
PMOL That's fantastic that the cancer isn't spreading quickly! Good luck with radiotherapy! We all have So much on our plates.
Hello ladies! Some kind of good news!! Today I had a call from my onc who said that after speaking with other 3 MDT's they have decided that I am on the right path BUT the best news was that they reviewed the scans and the cancer hasnt progressed as fsast as they had originally thought 😁😁😁. So still on exemestane and zoladex, will have radiotherapy on spine and a chat with spine surgeon anyway...
also he mentioned about having the ovaries removed by surgery so will probably need more info abuot that too!!
anyway, good night 😴😴😴😴😴❤️❤️❤️❤️
Wendy, Yes we all experience new pains. Sometimes it just goes away, sometimes it's something else and sometimes it is progression. No way of knowing until it's checked out. I would call and see if they want you to come before Sept. Good luck.
Renee, That is a dreadfully long day for a two hour appointment. You are a saint being so patient!! How sweet of you to make lunch for your DIL. It's good for both of you. Wish I lived closer so I could take you for your appointments.
Carolyn and Bon, Sounds like a great setting for lunch! That's great you can get together.
I know I need answers, but not looking forward to results. I just don't
think I feel right. Feel that my breathing isn't as good. Unless my imagination is working in over drive. I will say though that my knees have calmed down a lot!
I finished two days of training! Ten hours of watching movies and signing papers. Today I actually start learning the job. I'm sure I will be fine. It is only 3 hours a day, 4 days a week. I figure I can get through 3 hours. My old job was 4 hours a day, 3 days a week. I'm going to miss my Tuesdays off! Thinking positive! I got this!!! FF
hi carolyn ,
pleased you enjoyed yesterday,and yes the weather is dreadful here as well ,terrific rain showers then hot sunshine ,very strange to say the least.
went for my treatment monday ,best said soonest mended ,i went from the house at 11am and my son brought me back at 8 30 ,this was for a two hour treatment ,just waiting around the rest of time,so i was not amused at all,as you can imagine,apparently they have amalgamated two clinics into one.?.
go to onco on friday so will mention my knee and see what he thinks and will let you know .
will depart now as have daughter in law coming here on her lunch break ,i just do her some soup and a sandwich,plus a yoghurt so she is easily pleased
take good care
thanks forr your comment ,i do try to keep cheerful ,but hard sometimes ,just waiting for the ambulance to arrive and take me for treatment .
your wedding sounds wonderful.
take care .