What is wrong with people? Where does all this evilness come from?!?!? Why would you hurt people you don't even know? This horrendous acts in all countries are upsetting!! FF
Carolyn, Oh my gosh! I have 1 pair of boots,1 pair hiking boot, and 1 pair snow boot, 1 pair of sneakers, 1 pair black shoes. I have big feet so hate shoe shopping. I don't like to change pocketbooks, so I have 1 black and 1 brown. I thought when I had 8 jeans that I had a lot. I do have a lot of sweaters (jumpers). Jumpers in the US is a certain kind of dress. FF
Babsy, Sorry the pain meds sent you to the hospital. Sounds like you have a quick acting hubby! Our OH's go through a lot with us. Hope you are sorted out now. FF
PMOL, Hope you enjoyed your company and get some rest before your op! If you're like me you will go on a cleaning frenzy before the op! Don't forget to get yourself some treats.New jammies, robe, chocolates, etc. Good luck! FF
I am still hanging onto my summer shoes, I don't like the bunged up feeling of shoes and boots .... but 12 pairs of boots, where do you keep them all ha ha.
I'm on comcodamol for my pain which works well. I changed to morphine at the weekend but the dose was all wrong so collapsed with terrible pain. Hubby called ambulance and I've gone back onto my original tablets. However, three days after taking magic ingredient my pain has completely dissipated, appetite is greater as well as energy. So, it's true what they say.
Ramade, You were a trooper with that amount of rads! I agree with Carolyn to the couch with you!! Spoil yourself! Hoping in a few weeks your pain level will have improved! I always wonder how the cancer chooses where it's going to rear it's ugly head??? Yours is strictly bones and mine was strictly lungs and lymph nodes in chest until a few years ago when I got the one spot in the spine. I wonder if certain kinds of breast cancer hit the organs more frequently and others the bones? FF
Hello, much love to all of you and thanks for all your lovely comments. Every day this week I have had what they call a heavy load of radiation down the spine, and area from the neck 14 inches down abd 5 inches wide. I feel blitzed now but have good pain meds and feel very calm. They said that there is a lot of cancer in every bone in my body but that the organs are at the moment free. As soon as the inflammation goes down I will be back on a chemo to try to solve the smaller pieces of cancer. The good news is that they did x rays through the radiatiin machine and saw that the bone is desperately trying to rebuild itself. Will update in a few days.
love again to all of you very very brave troopers.
Hi funnyface and all ,
i am not doing so well this week ,have had terrible pain through shoulder and collar bone so going to have to try and sort this out now ,i saw oncologist yesterday and he is seeing me again friday for bloods etc ,its just strange as never had any pain previous to having this radio therapy ,which i have had five sessions so only one to go,many one out there any ideas please,the rads were on my outer breast .
take care all
Hi! I had radio for spine and hip and it hsa helped pain. What they said was that it could be felt either straight away or take a bit of time. For me it made me realise that I got used to living with the pain 😞 - And remember everyone is different so do what feels right for you xxx
Hi Ramade and Renee! You two are doing great with all these treatments. Sending big hugs!
You and Renee are troopers! FF
Welcome TNMTNGAL, I'm sorry I only have 1 bone met and have never had a PET scan. I always thought when the PET scan lit up it was cancer. Ask a lot of questions. Get a second opinion. Don't stop until you are satisfied!! You could have it biopsies. Best of luck. FF
Hi ff, carolyn, all you bone mets ladies. This week I amm having radiation to my spine all week.
the reason is that I have bone mets all down the spine and around hips and around breast bone. However for months I have been having bad pain in my shoulder that radiates down my arm and the side of my body, it was terrible. Anyway the onc sent me for radiation in one in the neck and one in the high back because these were infiltrating spinal nerves, tingling and pain moving around all the time. They said they hoped the radiation would kill this cancer because there was a danger as it was about in infiltrate the spine itself which would not have been good.
The less invasive cancer down the rest will hopefully be tackled by a change in meds. Day 3 tomorrow, pain is expected to get worse next week after it is finshed and them get better. I will report back to let you all know what happens and hope that might help you make a decision.
love to all
Thanks girls. It shows up when they do the CT of my chest. Due the beginning of Nov. for that. Little over a month away. FF
My bone mets first felt like a flutter or a soft pulse, this before I was diagnosed, so naturally I didn't think anything of it. Then I had a pain for a day but this went away and only comes back infrequently mostly when I've been doing too much gardening. So it seems that mets make themselves known in any number of ways. Hope your stinging goes away and you are feeling OK otherwise.
I'm glad that your treatment is coming to an end. Hope you can enjoy a bit of peace and rest now. Wish I could send you a cream tea. I live a bit further down the road from Carolyn. Sometimes Carolyn, Barton and i meet up for lunch or tea. Unfortunately last time i managed to find the place with the worst cream teas in Devon.
Found a garden spider dangling in my bedroom the other day. (Just noticed it's there again this morning). Wrapped my hand around it to put it out the window without hurting it and it bit me so i let go. Will try a different tactic this morning.
love Bon xx
Bone Mets Ladies, I've had one none met in my spine for a few years at T-11. It's never given me a problem. A couple of weeks ago I had a little soreness in the area and some stinging. It went away. Today it started again. It's not really a problem, it's just there. I was just wondering if maybe it's going to start acting up. Has anyone with bone mets in the spine had stinging? FF
i can tell you i am completely shattered with it all and pleased it is coming to an end i hope ,as dont think i can take much more ,serousely i put a brave face on it all ,but drowning in all the treatments at the moment ,i know the onco is doing his best but sometimes wonder is it all going to be worth it in the end and who can answer that NO ONE just hope for the best.
we were coming down to ilfracombe once and and broke down on side of road ,i dont remember exactly what happened or why we ended up in exeter to have it fixed but the rac sorted it all out at this exeter garage so we spent all afternoon looking around exeter and really enjoyed it .
also my mum had a friend from exeter ,moved up to the lake district ,she was a fantastic cook and made all her own cream scones and also pasties ,but never ever lost her accent all the years she was in the north.
i can not eat very much at present but can keep scones with strawberry jam and rodders clotted cream down,also remember the times we have spent on various harbours down there munching on large cornish pasties ,those were the days carolyn.
i have noot seen a daddy long legs as yet this year ,but lots of spiders with tiny bodies and great long stringy legs ,all over and like you had one visited me in bed
finished my first two weeks of cape and feel ok ,but is feeling ok good or bad sign ,will soon know as seeonco friday for bloods etc ,plus only have two R T left tomorrow and next week ,i do have pains in my collar bone and shoulder but putting that down to RT i hope thats it anyway.
i keep meaning to ask where abouts do you live exactly carolyn ?,just curious no other reason ,but i am nosey and always have been
slinging it down here so horrible
Hi xxamandaxx and welcome to the forum. There are a lot of informed and supportive ladies on here, most of whom have bone mets so you have come to the right place for information.
It is quite likely that you oncologist will suggest a chemotherapy treatment if your scan results show that letrozole is no longer working. However this can be a tablet form, Capecitabine, which is generally kinder, less harsh and has less side effects that IV chemo. It will depend on what your oncologist orefers to be honest as there doesn't always seem a set pattern to these things. I went onto Capecitabine after anastrozole had stopped being effective and got a good 18 months from it, other ladies have been on it for much longer than that so its not a chemo that has a defined number of cycles.
Although it is difficult not to worry, as we all know, I've found over the years that I've often been thrown a curve ball and something has been suggested that I hadn't even thought about and therefore I have stressed about something that I didn't need to. So try to carry on until your appointment, after that you will know a bit more and can prepare yourself for what you know you will be having, it may also stay the same with no changes.
Thank you to any ladies who have posted since my original Thank you about my girl, Maggie. I'm doing good. I've made if through the weekend without any tears. I miss her, but know she us in a better place. FF
Babsy, Are you strong enough to repeat treatments. You can try "revisiting" some treatments! Also, if I had no treatments left and felt strong enough I would try something non traditional.Good luck!
Thank you for your kind words on my doggie! It's hard letting go! FF
It's so sad when you lose a member of the family. We had two dogs and one of them just became ill really quickly and she was the same age as her sister and we had to put her to sleep, so sad.
On a personal note, I've now come to the end of the treatment road so am now struggling to find my positivity. I am going to a two day conference at Birmingham on Saturday and Sunday called , I Can Do it, look it up on internet. It is all hayhouse authors, including Anita Moorjani. I'm sure I will leave there much more positive. I have got a spare ticket cos my husband refuses to see the " quacks" so I have a spare ticket if anyone is interested