Glass of wine sounds good. Last year my kids took me to a wine pairing with chocolate! Couldn't go wrong on that one!
Hi Avrelia, thanks for your message, have replied to you, hopefully I’ve done it right! x
Hi Maria Louise
When I started on exemestane my onc said that it wouldn't start working for a month. (He said that because there had been a delay with scans and biopsies and he wanted to get me started on what he thought would be the right treatment but could stop it if it wasn't the right drug). I have now been on it for 2 years. Hopefully it is just starting to work for you.
Hugs Bon xx
Hi Carolyn, parking company is legit. Does the notice say what the penalty is for? Overstaying, not displaying ticket or parking outside the limit of the bay? Unfortunately in private car parks the blue badge does not entitle you to any cancessions (though some landowners do give it). If they reject your appeal you can go to the ombudsman POPLA but as long as you've got proof that you submitted an appeal via the website and they don't reply don't pay anything till you've heard back from them.
hi carolyn ,
just a quick reply ,betty my friend and i were given a car parking ticket in a public car park about 4 years ago ,we mailed them ,wrote to them ,tried ringing but to no avail,and never heard a thing since so never paid anthing ,i just do not remember the name of the company ,but wish you luck and they can not touch you with ticket proof and blue badge .
take care reneexxxxxxxxx
Hi X Well I arrived for my onc appt yesterday to be told that he has retired and that I had a new oncologist. That destabilised me to start with. I was then told that my tumour markers had risen from 45 to 53 (I have never been told my markers before). I have to have a scan in 3 months. Also my liver function was slightly raised. I have been on Exemestane for 6 weeks after tamoxifen stopped working. Does this mean that Exemestane isn't working either ? Just a bit worried. Xx
Hi all, just thought it would be useful on this thread to say that when I had my whole spine radiated the other week they took xome pictures through the radiotheray machine because they weren't sure whether the latest chemo was working or not and I was told later that it actually showed the new bone growing over the damaged bone and sealing up. Amazing as I have loads of cancer in the spine and significant osteoporosis. Apparently it takes 18 months for new boneto totally replace old. Now that has to be good news for us "bonies"!!!!
Love to all and have a good weekend, just bought myself 2 nice presents on amazon to celebate.
ramade xx
Kate, When you click on my name another page will appear then you will see somewhere on the righ "send private message" I have just send you one
Haha Carolyn, it does not matter honey comb, cheese, as long as the denosumab is working. How is your oncologist describing them now, as hard as rocks or he will again choose some kind of food
I have been always wondering as well, they say denosumab is a bit different from the other strenghteners, may be it is smarter
Hi again, let’s hope we’re both right! It certainly struck a chord!! I would pm you, as I’m not sure what you can post on here, but I don’t know how to x
Yes, I thiink it is good news. She said that the holes are filled in, which might be a similar case as yours. However she only realized that after an MRI, not standard CT or Bone scan. I do not know how all of these differ with respect to bones, as last time sha was not happy with the bone scan but she is happy with the MRI....Kate, do you do a Wednesday as well? Is it a coincidence or we might be somewhere close
Yes, I thiink it is good news. She said that the holes are filled in, which might be a similar case as yours. However she only realized that after an MRI, not standard CT or Bone scan. I do not know how all of these differ with respect to bones, as last time sha was not happy with the bone scan but she is happy with the MRI....Kate, do you do a Wednesday as well? Is it a coincidence or we might be somewhere close
Hi Avrelia, I really don’t know the answer but it sounds to me like hard must be a good sign?? I remember my first scan after starting treatment and Onc was pleased because the affected bone area no longer looked like cheese with holes in but now looked filled in!! Can’t offer anything about liver profile I’m afraid. Lady Oncologist and Wednesday clinic, that’s very familiar too! Hope it does prove to be good news for you xx
Hi all,
Just came back from my oncologist appointemt, which this time left me speechless, as she told me that judging by the MRI my bone mets have become harder and she does not want me to have any radiotherapy at the moment unless I have pain, which I do not. Although I do not understand exactly what she means that they are becoming hard, I agreed as I do not want the rads. She thinks that the Denosumab is doing its job. However my Liver profile showed a bit up, so she was thinking it might be due to Letrozol. Anyone else on the same page?
It would be such a relief for me to have a piece of good news after all the issues I had.
Hugs to all
Thanks Nicky! Oct. is a busy month for you! Then in a blink Christmas is here! It sounds like our pancakes are better, but I'm sure it's a personal choice. I'm sure you have plenty of things that taste better than ours. FF
Belated Happy Birthday FF and good to see you are getting a bit better niughts sleep - and in your own bed. Your birthday breakfast and evening meal sounded great - I love American pancakes (our British ones are flat - as a pancake!! ha ha and not as soft and melt in the mouth as yours are) Also hubby sounds a dab hand at the evening meal - what a treat. Plus money to spend, how good was that?! We are also in buirthday mode with OH's birthday yesterday then my Dad's tomorrow and brother's the day after. We're very poor after October finishes!
Hi to everyone else, have had a quick read as it's been a bit of a busy time for me with little internet access so hope you are all doing weel on various treatments. Welcome to all newbies it's the right place to come to for support and experiences that we can share and help you with.
Nicky x
Wendy, I'm sorry you are having pain too. Between pain and extra spots I'm sure you are exhausted and overwhelmed. I know I have been. Plus these doctors are never on schedule which drags out the appointment time. Hugs!
Thanks everyone for understanding how awesome it was to get back in my bed. I can't wait til I can get in and out without pain! One step at a time. FF
Renee, Little one is a girl, but I would have been happy with either. I like your gaming weight diet! Enjoy all the extras! FF
hi ff,
so pleased to hear you are slowly recovering ,stick with it girl and you will get there in the end.
i just had to go and make myself some of your pancakes but had clotted cream on mine ,i had the fruit in as i have started to make myself fresh fruit smoothies and, juices.
my doc advised i use fresh fruit ,ice cream and double cream ,to make them as i need to try and put on weight,so have taken her advice, as normally i dont eat fresh fruit and would not have had it in my home .
i can imagine how you aree feeling about a new grandchilld ,,time will soon pass and you will be able to enjoy boy or girl,do you have a preference or not as long as fit and healthy.
take care and best wishes .
reneexxxxxx
Hi FF
So glad you managed to get back in your bed last night. There's nothing like it and your feet and ankles do suffer if you can't put them up. Hope you've beaten the pain. Like the sound of your omelettes
The trouble with eating routines is that you tend to fit in with other people to a certain extent. I wake up so early that I begin to want breakfast early too.
Flu jab for me next week, same day as onc appointment
Hugs to all Bon xx
Carolyn, I cannot t wait to meet her! First time ever I'm looking forward to January.
Thank you Carolyn for your reply to my worry. I just don't think I can cope with having to wait for another scan and results just at the minute after all these appointments. I was quite surprised to have a mammogram as I thought that anything growing back in my breasts would show up on a CT Scan !
xx
I slept in my bed last night! My feet went down some last night. Carolyn, I started getting my flu shot in August. My hubby and our friend Terry every year in late Sept or early August get these nasty colds with terrible hacking coughs. They manage to have this for weeks and both are too stubborn to go to the Dr. Then I would catch it. I often wondered if these two actually had the flu. I decided to get my flu shot in August and even though these two continue to get sick I've never had it again. This year I convinced Ross to get his shot early. Well, Terry has the cold and hacking again and Ross hasn't got it! I'm positive it's the flu and not just a cold. I usually have about 12 hours between dinner and breakfast. I had that sweet breakfast on Sat morning, then ate some of it Sunday and Monday. Some went on the trash. That was a major treat for me! Breakfast is usually a half cup of cottage cheese and whatever fruit we have. If we don't have any fruit then I eat a cup of cottage cheese. I also do veggie omelets. I love an omelet with tomato, asparagus and mushrooms and a wee bit of cheddar cheese. FF
Hi Carolyn, I do think there's something in the overnight fasting but with food in general it does seem to be that what's healthy one week is out of favour the next! I'm a bit odd in that I like reading research type stuff, probably because I had to a lot in my work, but think you do have to take some of it with a pinch of salt and moderation is probably the key, along with a bit of what you fancy does you good! 😉
Hope you escape all the viruses that are bound to come around, did hear on tv that Australia had a bad time of it this year, do we could get the same! Something else to look forward to! xx
Good morning Carolyn! I don't think it was a quack article! I've looked a lot into diet (haven't said much on here as reading through the site I get the impression that dietary info isn't always welcomed), I've read lots about this, cancer cells like sugar, and yes eventually all food is converted to glucose, but it's not as simple as that. Having an early evening meal and not so early breakfast is widely believed to be beneficial. I read these things and take the attitude if it's not going to hurt me, they are well worth a try! To me it did make sense, after all break...fast is how the word came about I believe! xx
Hi ladies! I'm very frustrated but hanging in there. I'm not having the unbearable spasms, but still have a good bit of pain when I try to get up from laying down. I'm able to lie down without the spasms. I still haven't slept in my bed. It's easier to get up off the couch. There is more places to grab and pull. I've been to the chiropractor 8x now. I have to go Wed and Fri yet. He hopes I'm fixed then. It really hurts when he works on me.I've been to the chiropractor before over the years and it never hurt. Today I was on my back and he ran his hand up my thigh and it immediately shot pains to the area in my back. I want fixed but I sure would like to know what caused this! My feet, ankles and legs are swollen. I hope it's bc of the way I've been sitting and sleeping. Tonight and tomorrow night I'm hoping to try my bed, if the swelling doesn't start going down then I might need my kidney function checked. I'm determined to see my granddaughter,but starting to worry about me. I'm off the muscle relaxer, wow did they make me feel goofy. I only take oxycodone before I go to bed. When I was taking the muscle relaxed I couldn't stay awake. Every time I turned around I was nodding out and dropping my cell phone or kindle. I did have a nice weekend. Hubby, my kids and their OH's took me out for breakfast Saturday for my birthday. I like to go out for breakfast more than I do dinner. We went to a place that goes all out on their choices. My breakfast was called "Some Gave All" It was 3 dinner plate size blueberry pancakes, with creme brulee between them. Topped with fresh strawberries and bananas, then drizzled with white chocolate and a berry syrup topped with whip cream.I definitely brought most of it home. Then hubby made my favorite chicken dinner. It is chicken marinated in honey and mustard. Then baked topped with mushrooms, bacon and two cheeses. Also had asparagus and baked potatoes. Finished off with ice cream cake. Crazy family lit 63 candles on it. They all gave me money to do some clothes shopping. Sorry, I was so chatty! It's the first I've felt like talking in days! FF
Hi Ladies,
Hope none of you are being blown away by the hurriance!
I just wondered if I could ask a question, its just something that is going around in my head. I have an onc appt on Wednesday which is my first appointment since changing treatments nearly 2 months ago. I was changed from Tamoxifen to Exemestane. What I am wondering is will they give longer than 2 months to give it a chance to work before I am scanned again ? I have monthly Zometa injections and have had a mammogram, bone scan appointment and an appointment with the breast surgeon this month and I just feel like a break from the mental torture before it starts all over again !! (sorry to moan)
Nicky huge congratulations on both the new grandchild and your scan results, just brilliant.
Funnyface I hope your back is getting better.
Carolyn I think I read you were sufferring with some aches and pain, I do hope they have gotten better.
Mojan, how are you ? and kind thoughts to all the other ladies out there bravely soldiering on.
Maria x
Hi Nanofthree, I agree, you should definitely check! Hope you enjoyed your time away. Please do let me know how you get on. Kxx
Thank you ladies for your replies about the scans. I suppose it is getting used to the difference between the intensive months of treatment when you have your primary and how I am being treated now.. You feel as if you are never away from the hospital or doctor and your whole life seems to revolve round your treatment with your primary. This time I pop a pill every day and get an infusion every three months, Life on the surface is back to normal. Don't get me wrong I want it that way and hope it stays that way for a long time. However my mind is on it all the time. When I am at work I can forget about it for a while but when I get home it all comes crashing back in. Anyway enough moaning, off to Tescos. Everybody still wants fed.xx
Hi Nanofthree, just read a post over on Complementary Therapies in the thread about diet and cancer where someone is asking about probiotics, says their hospital info says not to take probiotics if on chemo so you should definitely check first if you decide to try the Florassist. Kxx
Hi Benten
I think it varies depending on what's wrong with you, how quickly it's progressing, what your treatment is, what kind of scan you are having, in fact everyone is different and of course so are oncologists in their approach. Hope your treatment is working and your next scan result is good.
Bon xx