I thought I'd take u up on your offer of 'joining in'.
I'm one of those 3 years in from secondaries diagnosis.
Your comments on 'men' made me giggle. As I'm divorced, I do not have to worry about him anymore.
What sort of treatment will you be starting?
i hear what you're saying Lindy but in my mum's nursing home they are nearly all women. Maybe it's because we get so worn out we go running there for the luxury of not having to do all the housework any more.LOL
Carolyn, You know I'm a pajama girl! I like working M-F mornings and finished by noon, but I miss my pajama mornings. When I worked in the afternoon I had lots of pajama mornings. Now I come home from work and put my jeans on til dinner time. After dinner if we aren't going out then I'm in my pajamas. Come summer I won't be as much.
March is winding down ladies and I hope we get some warm days in April. I need to get outside! I hate the cold. FF
I'm not the best with technology either but we all run when hubby asks for help. Jobey he is a carpenter too. Built our house.
Hello Barton, Ramade, Renee, and Red Riding hood! I've seen post from all of you but currently am falling asleep and can't remember what you said. I took 50 mg of benadryl. Good night!
Carolyn we do time change here to but it was 2 weeks ago.
Hello Carolyn. You know how brave I think you are, but isn't it wonderful how everyone has rallied around to perk you up and offer such amazing support and tips, etc? This Forum is so incredibly friendly and comforting.
I too have a cleaner - I couldn't manage any more with hoovering, etc. I also take my clean washing out to be ironed as I can't do it with my back. You will wish you had succumbed to a cleaner years ago! I found out the other day that my lady is 77! She is way fitter than I am!
Love and hugs. Barton.x
Ps Jobey - I laughed when I read that about your technology knowing your preference for gin!
Mikes the same, hates technology! He's a self employed builder so has had to teach himself basics so he can raise quotes and invoices but it's very basic! He can build a house but a smart phone leaves him having a nervous break down , he says his hands are too big for all this touch screen rubbish! 💻🖐😂
Maybe it autocorrected to something more risqué! 🤔 Hubby just bought a new laptop so will be plenty of **bleeping ** going on here later when he attempts to set it up! Thank god youngest son is home tonight , always knew there was a reason we had kids! 😂
Yes Carolyn your spot on! And tubs full of old phone chargers and cables for god knows what!
Good to know we all do it though 😜 Having Chinese tonight so will be making sure those tubs get chucked out 😂
I'd come and do your cleaning Carolyn if I lived a bit closer!! I decided it would be a good idea to clear out some kitchen cupboards this morning , now half way through with a table full of junk I have no idea what to do with so I've walked away with a coffee and gone in to another room so I don't have to look at it for 10 mins! 🙈☕️
My iPad auto corrects every word I type beginning with G to Gin 😂🍸 clearly I have a problem even my technology knows about 😜
I have a cleaning lady. She's a friend She only comes for about 1 1/2 hours a week but but it keeps the crud at bay at ground level. . She has endometriosis. I feel I ought to be cleaning for her but she needs the money. She also milks cows and had done the milking before she came to me this week. I have lived a very easy life by comparison.
I dicovered I didn't have a breast care nurse any more this week. She must have left. Not that it makes much difference because they are over in the breast care unit and you never see them. There's never a nurse around at onc appointments. The best bet is talking to a nurse at the chemo unit when you go if they've got time.
hi ladies, i thought i might tell you all what i have learned so far with this tenacious disease.
One, by putting money aside each week for a really good cleaning lady, i feel so much better seeing a lovely house and don't worry that,back on chemo again, i can't pic things up so easily. Also, as we all know and has been discussed, men don't see mess and dirt in the same way we do, so now i feel totally relaxed when he lets things spill down the kitchen cupboard fronts and don't have to say anything.
Two, now and then ask for an mri scan. My ct scans go along merrily saying no change then an mri done two weeks later shows up disease not seen by ct.
Three, if your hospital don't have breasr care nurses, go straight to your local hospice, show them how upset you are by total lack of support and they will probably be very kind and helpful.
love to all
from a bald again
A cleaning lady would be wonderful. If I had one it would force me to keep my house cleaner to start with. I probably wouldn't let anything for her to do. My hubby can do a duvet cover, laundry and operate the sewing machine. He has patched his carpenter jeans before. Now when it comes to picking up and throwing junk away, he is impossible!! But he Is excellent at TCL. He would have made a good nurse!
Carolyn.......well, thank goodness you are back! The bone thread is really busy again! Well done! It has been a bit quiet of late. It is so good to see all the names and hear how you are getting on. There is so much sharing and support here.
The days are getting longer. Best wishes to everyone!
Carolyn I don't know a man alive who can change a duvet cover, shut a drawer, hang a towel up .... the list is endless! Bloody brilliant idea to get yourself a cleaner, I'm sure you will have no resistance from hubby after the duvet episode! 😜Xx
Carolyn, it's lovely to hear from you again and I am so sorry that your results were concerning, as you say we sit in a comfort zone whilst a treatment is working and feel panicked when there is change.
I just wanted to say that we are here for you, I've even come back on the forum after weeks away! You have always been so supportive and uplifting to others so sit back and take strength from us for a while.
You have a raft of treatments still available to you and the chances are that they will work well, you are still a treatment "newbie" really so take heart.I am still squeezing the last few weeks out of my trial, nearly 2 years on and Cape lasted me 2 1/2 years as well.
FF, I know what you mean about feeling anxious the longer we work through these treatments, it's emotionally exhausting isn't it but glad that you are posting. Take care everyone, some warm weather would help....a lot.....
Carolyn I am so sorry for your crappy results. Now hold our hands and let us send you so much love, it's easy to get forget after such a long time stable that the little pests do move and spread and very quickly too.
I just wanted to say that I am on Exemestane and after 3 months my onc said it wasn't working. My husband questioned was 3months long enough so the onc agreed to give me 2 more months. Had scan last week, had results 3 hours later and whilst it showed blood clots on my lungs it also showed that the everything, especially liver was shrinking. Please don't be afraid to disagree Carolyn, if I hadn't stood my ground I would be back on chemo by now. X
Hi Carolyn, I am so sorry that you received such a crappy scan result, this bloody disease has no heart does it !! I was on Exemestane from August until December and after a scan the onc said it wasn't working so he was going to change me to cape. My husband questioned whether or not 3 months was long enough for it to be effective and the onc said he would give me 2 more months. I had a scan last week, got called back to the hospital 3 hours later. Everything had either gone or shrunk, especially the liver, so Carolyn please question if 3months is long enough when you go back. Come on lovely lady take our hands and lift yourself up. Xx
so sorry to hear your news Carolyn.Try to hold on to the fact that there are a lot more possible treatments. It's always a shock and a big feeling of upheaval. Some do very well on the e/e regime.
big hugs to you
Nicky, Thanks for asking. I haven't been posting much either bc I've had So many medical appointments and new job . I felt very overwhelmed with things. Not sleeping doesn't help. Plus 12 1/2 years of this sounds great in one hand and in the other hand it's depressing. I've known So many ladies who have left us and my anxiety gets exhausting after all this time. Otherwise I'm OK. FF
Its lovely to have the chocolate teapot lady back 😉🍫 but obviously not for the reason you have said. As you have supported us and welcomed all the newbies so well in the past we will be supporting you. It’s a pain in the a*** when we learn of progression so give yourself and your family time to adjust and to get to grips with new treatment. Take each moment as it comes and once you get over the shock make sure you get out and enjoy yourself - especially with the new babies and your other grandchildren.
ps good to see you posting as well FF, have missed you as well, how are you doing?
so sorry to hear your news ,but i have not been on this forum either for quite a while ,as various problems to sort out which hopefully are coming togetehr now,so should be back shortly.
we honestly just never know from day to day or in our case scan to scan ,but you will kick those little blighters with every being in your body,i know you will as you are one strong lady and an inspiration to us all.
hope to be back soon
It's good to have you back but really sorry your news is not so good. We are all holding your hand, it's time for us to look after you. You've always downplayed your own problems and supported us all, now it's time for us to look after you.
Welcome back Carolyn! You've been missed! Ff is right.......get those babies over for bouncing and cuddles.
Carolyn, We will hold your hand and help you kick so next scan you can toot your horn! Now, get busy and schedule a nanny day with the twins. Their cute smiles and giggles will surely make you smile! DR
Oh Carolyn what an awful shock for you I really don't know what to say 😕 I know you will pick yourself up though and deal with it, you are such a tonic across the forum and so don't deserve this but as we all know there's not a damn thing we can do other than deal with it! You know you are never far from a shoulder to lean on as and when you need one Xx Jo