Cuddles and kisses yesterday from my granddaughter. Today is my daughter's birthday. First time it has been on Easter. The big footed bunny left some chocolate. I must say that this 1 1/2 years of dieting has changed me. I bought the chocolates and couldn't wait for today to get them.Well, the day is here and I ate one piece and really looked at the rest of it and don't want any. Yesterday at my daughter's for dinner I had a small piece of ice cream cake. Really didn't want any of the other desserts. Loving this change! It will help me keep it off. Happy Easter all! Enjoy your families! FF
Just to say Happy Easter to everyone! Hoping you are all ok today, and enjoying a few choc eggs! I know dear carolyn will have one on her lap for sure!
Sorry to hear your treatment isn’t working. Cape didn’t work for me at all. After 5 cycles they put me on Eribulin, that was July last year. I’m now on cycle 13. It has started to heal my bones and my liver mets are not reported on scans any more. One of my liver mets was 4 cm!
i have never had sickness, it’s the fatigue that is the worst for me but only on certain days. Just had another scan and it’s still ok.
I didn’t loose my hair, it just thinned and now with special shampoo I have a full head of hair.
It is a very mild chemo compared to some I’ve had I’m hoping it keeps working.
You will be fine on it.
Great to hear from you, have been thinking about you. Hope you get to see your family at Easter.
Here is a link to the eribulin thread:
I haven't been on it myself but there are some encouraging stories to be read there. Sorry cape has stopped working for you.
Hope you have a wonderful family celebration.
Just adjusting to the news that my liver cancer has grown, so now abandoning capecitibene, after 9 months of a good quality of life. I do have pretty advanced liver mets and things were looking very bleak this time last year. 8 sessions of taxel saved my life and then I have been kept stable on capecitibene.
Now they are doing various tests to see if I'm suitable for Eribulin. If so, I will start on 10th April. Managed to get a date after next weekend when we have a big family celebration for my son and husband's birthdays!
I remember seeing some posts from other ladies on eribulin but couldn't find them today.
Is anyone else still on this and how are you finding it?
Lyndyloo, Thanks for the good wishes. No, the cataracts aren't from my treatments. They run in our family. My brothers had them in their 40's. My first cataract was done 7 years ago. This one was to the side of my eye back then and slowly worked its way across.
Crossing my fingers the E & E is still working.
Happy Easter! FF
don't worry Carolyn, 5mg should be very doable,i found i was whereas i couldn't stay on 10mg because of side effects. it seems sensible your hospital have started you on lower dose,
hugs ramade xx
Don't worry Carolyn, i found the 5mg very doable.
So glad you're back. the bone thread wasn't the same without you.
love ramade xx
Hi Carolyn, I just wanted to chip in and wish you luck for tomorrow, I think it's your first E/E? Hope it goes well. Also FF, good luck for your scan and results, you get a speedy service across the pond at least...having a CT scan next week also, I think it will be "goodbye trial" time. Have a very Happy Easter everyone and eat LOADS of chocolate!! xx
Chemo. is undeniably the pits!! Is this your 2nd. time around?
How much longer do u have?
Bonariensis, Cataracts run in my family. I had my other eye done 7 hears ago. My brothers had theirs done in their mid forties. I can't wait to get it done. Glares are driving me crazy! Glad yours is working out good already! FF
Good luck with your scan and results next week. At least you get the results quite quickly. I had a cataract op yesterday can see much better today with no glasses. Closeup vision not so good though and old glasses don't work for new eye. Thinking of taking that lens out of my glasses. All the stuff we have to take doesn't do our eyes any good.
well done for the weightloss ff. also good idea about your bag of useful goodies.
e/e worked for 9 months only for me and i felt massively let down by my body. Now back on chemo and feeling decidedly ropey. i didn't use to swear but chemo can really bring out those 4 letter words i've noticed.
love to all
LindyLoo, You did great with E &E. I have a scan next Tues. results Thurs. It will be a year in May for E & E. If it fails I know it's back to chemo. Not looking forward to scan results!
Hi Ladies, Before each drug change I always make sure my "Counteracting Bag" is full of supplies. Luckily though we have a 24hr pharmacy about 15 mins down the road. I find water ice a wonderful thing to have on hand too!
Too give you all a laugh. I've worked hard at losing this weight. I keep moving my goal. When I'm finished I will have lost 1/2 of what I started at. I went to the Dr yesterday for a pre- op approval for cataract surgery. The nurse looked at me and said, "You don't have a butt anymore!" Best words ever!
Hi Lindy, just to mention that my hospital call metastatic cancer ‘chronic cancer’ and I agree, that’s much nicer and actually it IS chronic, just like many other illnesses.
and so when travel insurance companies ask if one has ever been informed they are’terminal’ we can all say an emphatic NO.
Carolyn.....just noticed that you are starting e/e on Thursday. I know nothing about it so why am I here? Well, the range of potential ses is always wide and one thing I learnt on my recent travels with docetaxel is to try and be prepared. So ask for anything they can give you for your se box. II needed loperamide. So glad I had it in my box! But my most useful discovery.........after finishing with docetaxel because of allergic reaction returning....... was for mouth ulcers. They arrived unexpectedly and lasted for a month. Thought they would last forever! Anyway my magic discovery was Iglu gel. I tried Difflam, given by chemo unit. No good for me. Bonjela no good. Something else from the chemo unit that came in sachets burned my mouth and throat! But........everyone different. It might be worth having a little tube of Iglu, or at least know about it to send out hub. It can be bought anywhere. It makes a gluey cover over each ulcer, relieves pain almost immediately and aids recovery because it stays put. No stinging at all.
Just a thought. And perhaps others struggling with mouth ulcers might find it worth a try. I know how individual we all are, but that is why we need to know the full range of possibilities. I would try anything at all at one point!! They eventually disappeared although my mouth is still sensitive, so I avoid crisps etc.
Well, I took a long time to say very little! Take care everyone, particularly those new to the thread. I haven't adapted to the new time of day yet..........springing forward on Saturday night!
Wow!!! Bingo!!! You've summed up exactly what its like wrt family & friends. I loathe the....But you look so well. My grown up daughters have switched off the whole shebang & sometimes, I'll not see them for up to 8 weeks. My eX has told them to really 'live' their lives and they are obliging & boyo does it hurt! I've tried everything to alter this state of affairs, but to no avail.My friends say they will regret in time but I don't want that for them, either,
3 years ago, stage 4 @ initial Dx...mets in pelvis, but now I'm coasting along on Denosumab injections & daily Letrozole. Is this bit unusual i only see my oncologist once every 6 months for a CT scan chest & abdo.? I actually feel like I've just been doing exactly as I've been told....
When do you start your new treatment......sending you ooodles of bravery/whatever u need....
Are these 2 'new' drugs to be taken in tablet form?
Sending you the very best of luck.....I've found the cancer journey to be very lonely & isolating. However, I now have a Macmillan befriender & it has helped me so very much.
What are your plans for over the Easter w/end? Are your new mets. hurting you daily?
Take extra special care....
silver.......no lining needed...he,he,he....hugggs
Carolyn it's never our fault! In a moment of madness post diagnosis hubby said "whatever you want is yours" lord alone knows what he was thinking as he knows only too well I don't forget anything !! he blames the beer but I've held him to it ever since! 😜 And just for the record I have 3 hoovers... all Dysons though ... only one house so even I can't explain why 😂😜