Yes. Pleased about your good news Carolyn, everolemus has dizzyness listed asa s/e, and I agree about the oncs not knowing about all the side effects...I think they also play them down too! I remember being told I’d likely get none on Cape...and the first month I got every one..AND a dvt to boot.!
i was told Paclitaxel likely wouldn’t give me half the listed side effects, but iv had most of the comm9n ones now..today it’s constant nausea and muscle/bone pain, other days it’s rashes-or sore dry eyes
Also get a load of nasty ideas running through my head but we all get those don’t we at times.
much love to you Moijanx😘
Carolyn.........after reading ff and ramade I had a look at everolimus on Macmillan and sure enough a swollen face is a possible se. And it is not one of the least common ses. Perhaps onc will find this out and take it into account when deciding if you should have an even lower dose, or stop altogether. You could certainly point it out next time. We have to cope with ses as well as the disease!
Lovely day, but what a night! Lightning, thunder, lashing rain here. Thought it would never stop! It was like a firework display!
Carolyn, That is what I had read when I googled it. It came from a reliable site. The oncologist can't remember all these side effects. Also, who says your body can't come up with its own different set of side effects. The list of side effects is composed from people reporting them.
We are rare birds sometimes! FF
hi Carolyn, pleased to hear your good news. i found everolimus made my whole face swollen so had to lower dose. it can be quite a nasty one but if it works and you can take it that's good.
So pleased for you, Carolyn! Your new Onc sounds very thorough which is reassuring. Have a lovely relaxing weekend x
Carolyn it must be a relief to have those results after a long wait. Hope they can do something for you and you can stay on e and e if it's working for you. You never know what you are going to pull out of the s/e lottery..
love Bon x
Ah Carolyn I'm sorry to hear what you have been going though, must be so scary but brilliant to hear it's nothing nasty 😊 Xx
Carolyn so glad you liked the oncologist and had a thorough appointment. Now to get through the next 4 weeks. Are you still on a low dose? Maybe they will have to change it. You will need to decide if it's worth it. Maybe it will seem more tolerable since you know it's nothing sinister now. These drugs are crazy. It's amazing how some of tolerate them and others can't. You had letrolzole and did so well. Letrozole was a tough one for me. Hang in there! Hugs! FF
Carolyn...so very pleased nothing sinister going on....you have been having a tough time...hope this new oncologist is for keeps?
Sorry about the strange symptoms.....mine are less unusual, but achy wrists, sore eyes, irritated gut etc...oh and of course sore fingers, but these are all typical on taxol......
(I hadnt realised but exermestane does have dizzyness listed as a side effect.)
‘’loads of love and hugsxx
Hello Briony, welcome to our group. Definitely tell your doctor, always. i have pins and needles because of cancer pressing on nerves. For this i am treated with Pregabalin which is brilliant.
Hope this helps
Welcome Briony! It could be the drugs causing this. Maybe a change in treatment would help. I have had a lot of different treatments, but not this one bc I'm HER2-. If anyone else had this treatment I'm hoping they jump in and answer you.
Hi Anne, glad you have good support. Funny you should say about not thinking about cancer every minute, as I’ve thought that the last couple of days. Nice feeling isn’t it?
Hope your blood count is good to go tomorrow.
My secondary is also in my bones, it was on my sternum that a lesion reacted to the chemo to show up on a repeat ct scan. I’m hoping that as I’m HER2+ they will agree to keep me on Herceptin and Pertuzumab for as long as it is working - I see the Doctors at the end of the month when I hope to be given the 👍 Also having Zometa every 6m for 2 years initially. Had the first one in March. And have Letrozole daily.
Had a lovely day thank you, and the sun was shining which makes the countryside look so beautiful. Xx
Victoria Beckham.apparently is miserable!! Someone's commented that she doesn't need to smile, just look at her. Well I don't know what they see. Oh, she has a nice figure but her miserable expression takes all her beauty away. The drab outfit also added to the miserable look! I googled her and she looks miserable most the time. Very unattractive pouting!
Hi Anne, fab wedding yesterday they so made it their own, and seemed to enjoy it all as did the rest of us!
I am doing ok, general aches but manageable and fatigue but again I’m working out what i can and can’t do, so still learning!
Got another 10 days until I see the doctors, when I hope to have my treatment plan agreed, so for the momemt I’m feeling calm and even have times when I don’t think about cancer at all. That’s certainly progress! Still waiting for my first counselling appointment.
I hope you are doing ok and managing the side effects of your treatment. Do you have good support?
I am off to see my daughter today, can’t wait!
Have a lovely day everyone. Xx
Meghan looked stunning! Elegant gown and gorgeous vail. The groom looked handsome. They both were shining with love. Wish I could have tasted cake. FF
We have a moth infestation...so creepy, keep finding pure all over things and even under my quilt!
so I think stink bugs and huge ferocious bees would really creep me outxxx
Carolyn, That's what I've heard too! We also have these bugs called stink bugs. You can smell them when you squish them. They have a shield which makes them hard to squish. They came from one of the Asian countries and are spreading over here. If you have a couple of them in one spot you can smell them too. We drown them in a bottle of soapy water. Before I get in bed I do a search. Ceiling, walls, windows, shake my sheets, etc. Especially the ceiling. I don't want one to lose its grip and land on me. We usually get one stink bug a day. They say an exterminator can't do much for them.
My daughter can't stand spiders. She didn't get it from me, and it was apparent from a very early age. it seems to be a deeply embedded primal instinct.
AAaaargh. I would not have been able to get back to sleep unless I had done the same thing Carolyn. I really hate spiders and I can feel awful for days if I see a big one. I even hate the emojis of them and keep meaning to write to the developers to take them off the animals page!
Hipe you got back to sleep and you have seen the last of them.