That's great news. I'll be thinking of you next Tuesday. You'll be done and dusted before you know it!
Have a great week of spoiling yourself and let others spoil you too ((((Helen)))).
Hi Helen, just want to wish you good luck for your op next week, been reading your posts and so sorry you have had such a rough ride with things, i dont really post much on the forum but i do read what you ladies write and it has really helped me as im quite new the secondary dx gang!!!
i have my first denosumab next week and have just received letter telling me to have bloods done 2 days before hand and a pathology form with "pre-chemo bloods" wrote on it?? does anyone know what that means? i thought it was a bone stregnthener??
Hope you enjoyed that cake Helen you take love Janette xxx
Great news Helen - I have been thinking of you today. Enjoy the next few days and good luck for Tuesday - heres hoping that everything will be on its way up for you from now you deserve it!x
That's great news Helen. Glad he seems a nice person too. Makes a change for you to have someone you can get on with! My onc looks really young too but if your surgeon is a nice as he is you will be OK. Not long to wait either so as chocolates says, spoil yourself this week.😊 love Sheila. Xx
Sorry things aren't good at the moment. I know how you feel as I had been running pretty smoothly until last Dec when on top of my lung and bone Mets I had progression to the liver. I have since had taxotere and am waiting for a scan in two weeks to see what things are like now. My scan halfway through treatment showed some shrinkage to the liver tumours so I am hoping they are smaller still now! I certainly feel better than I did in Dec and Jan.
Hope you have good results from eribulin without any side effects.
Take care. Love Sheila. Xx
Sorry to hear that you've not been well lately. The ladies on secondary live chat tonight will be there to support you if you can join us later.
I haven't been on for a while and I've not been too good. The MRI scan shown that there is progression to S1 and L2, I also have progression to the pleural, tumour in my lung has grown, there is a large lypnme node pressing on my neck and that I now have liver mets. Im in a sink at the moment and don't really know which way to turn.
My oncologist has arranged Radiotherapy for S1 and L2 which was a heavy dose that made me very sick for a couple of days. The pain has been pretty horrendous but I have got my doses about right now and using ibrufen and paracetamol which is helping. I start eribulin in the 16th and have had to cancel so many things which hasnt helped my mood.
Im just trying to take one day at a time and hope that when I get through the worst of the fatigue I'll start to pick up again.
Life is never easy is it? I really hope you are alll doing as well as you can be.
Hi Helen, I've also been away so have only just caught up on posts. At long last someone seems to be doing something but I can't believe they have taken this long, grrrr. Hoping you do get a surgery date asap so this part of your treatment can get going and you'll have more idea of what other treatment is needed. My secondaries have changed from being only hormone positive to now being ER, PR and HER+ so it can happen. Strangely my oncologist (when I found out from a biopsy last year) was more surprised than I was that this can happen, duh. I recommended he read this forum! Thinking of you as you wait for yet more appointments and well done for eventually getting your PIP (do we really have to fight for this all the time?) and for telling the BCN how badly you have been treated or in fact ignored.
Mileytom - don't beat yourself up for not having chemo first time around, I was exactly the same. Grade 1, no nodes, 90+% chance of a ten year survival and wham, got my secondary dx nearly 5 years afterwards. Well, I suppose they got the 90+% bit right as I'm still here, but.....
Thankfully these forums again helped so much and reading them made me realise that it would have come back anyway whether I had chemo or not for my primary. I had chemo for my bone mets in 2008 and this kept them stable for 5 years, along with follow on hormone therapy until last year when I had spread to my liver. However since starting Capecitabine (Xeloda) last Feb everything again has been stable. Just waiting (quite literally) for my next CT scan to see how things are going. I'd also add that if you are coping Ok with the chemo I would do the 18 weeks (as thats the usual amount of time for 3 weekly chemo regimes anyway) and really hit the uggers with all that you can
Hi to all other boney ladies, hope the treatments are working well and side effects minimal.
When I was diagnosed with my primary in 2008 the onc said that if I had chemo it would give me another 7% chance of the cancer not coming back. I decided to have chemo but it still came back so don't blame yourself.
As for whether to carry on with taxol, I don't know what I would do. How are you coping with the side effects?
Whatever you decide, good luck. Love Sheila xx
Well done for letting them know what you think! It doesn't sound as if your onc is listening though does it? When you see the surgeon on Wednesday she may do a biopsy then especially if it is going to be a couple of weeks or so before the surgery. When I was originally DX with my primary, I had a biopsy on the day I went for my first appointment because it looked suspicious. I hope your surgeon is more compassionate than your onc! Can you not change him? He sounds awful! Also, you should be getting a scan because of your bone mets. I can't understand why he keeps putting this off.
Good luck on Wednesday. Will be thinking of you. Love Sheila. Xx
Just posting to say wishing you all the very very best. I hope your team listen to what you want. I would have thought if they are saying that you have new tumours with new receptors wouldn't it make sense to do a double mastectomy as a precaution especially with the brac gene too.
Congratulations on getting your PIP too. I hope you have some luck with your treatments now!!
Glad that you got a few things off your chest and I hope your 'team' are now a little more on the ball. Good to see treatment moving forward; at least your onc is thinking about whether you are now TNBC or HER+, but being back to square one is annoying. When do they think your pathology report will be ready?
Are you going to have a CT scan or MRI as well?
Sorry, too many quesitons - huge (((())))) and good vibes.
Good morning ladies,
Thank you for you feedback. I will know more next wekk when I see my oncologist.
having a better day today. sending love out to you all xxxxx
I just wanted to say good luck with your appointment tomorrow Helen (It is tomorrow isn't it?). I will be thinking of you and sending good vibes your way.