Just wanted to wish you good luck with your scan tomorrow Helen and hope you don't have to wait long for results.
Janette , well done doing the walk at Wythenshaw! My oh had his surgery there for lung cancer and they were excellent! It has stayed fine here so hopefully you kept dry. Love Sheila. Xx
Glad you are feeling better. Hope tomorrow you are better still. I'm not too bad. Waiting for a ct in the next couple of weeks and will get results on 21st Aug. I will probably go on cap then and hoping for good results.
I have felt a bit "off" last few days. I'm hoping it is the anastrozole. Very tired, and a bit queezy in the morning. Also the usual joint aches and pains that come with the treatment. Still eating though. Not long to wait now but that's the worst part isn't it?
Take care Chocolates and enjoy your children's company. Like you say, they come first. Don't know what I would do without my daughter. Xx
Hi Mavis, hope you are feeling a bit better now you have meds. I wasn't on taxol but taxotere and I also had fluid in my legs which made me feel even more tired. I also think I had some fluid on my lungs by the end of the treatment but I think this must have dispersed itself with help from a course of diuretics.
It took a while for my legs to feel normal but they do now. I'm still feeling very tired at times but I'm hoping this is due to the anastrozole I am on at the moment.
Hope the taxol does wonders. Love Sheila xx
Hi Natalie, I noticed your post has been edited so we mustn't be able to mention names. I won't say who mine is but it is not the same as you. He is very good though. Even if he only looks about 20! Well maybe a bit more than that. When I saw him the first time after my primary six years ago he looked about 17 but he as aged a bit since. Is it any wonder? Xx
Not posted for a while as a bit 'icky' from the chemo, so haven't read through all the thread, but wanted to send a huge hug to Desi. What crappy news, so sorry. (((((Desi))))).
Husbands can be a breed apart. Yours seems to need a good talking to. I don't think they realise how hurtful their selfishness can be sometimes.
Helen, Chocolates, Faraway and everyone else - hope you are all doing well and looking after yourselves.
Sorry havent posted for a while but Lurked for all these nuggets of knowledge from you all.Last time I posted I was given a weeks rest from Taxol, saw Onc last week and pain management I think sorted.Had Xray of chest and shoulder and lots of fluid on left lung( that explains the extreme breathlessness!)Meds given for anti "trots" and fluid in the legs, Allowed a session of chemo and denusamab and then crash bang wollop back into the diarhoea cycle, it is so wearing.Yesterday was week 7 and again I have been rested from Taxol till next week.I am feeling so weak and shaky, but really want to continue with my treatment, but at a loss as to how to regain some vitality. Finding it so hard to hand over the household reins to OH and son, they are so used to being "mollycoddled" so frustration plus.Deo Gratias the pain in now much diminished.Storming Heaven at the moment for some answers.Love and Light xx Mavis
Tracy, just wanted to say I'm sorry about your bad news. However I have heard they are making good progress on treatments for tn so hang on in there.
As for your other half, me and my hubby had quite a few problems for several months after my diagnosis. I just think they "don't get it". Because I was working and doing everything as normal he thought things would get better so if I was moody through worrying he would get annoyed. Things have definitely improved but he still forgets sometimes. I think some men are childish and want to be the centre of attention so don't like if someone else is getting it. My oh likes to bury his head in the sand.
Hope things improve on all fronts. Love Sheila. Xx
Does anyone get shoulder pain and stiffness associated with it? I'm finding it difficult it reach up for things etc. Due a scan next week. Just wondering if people experience this and what they take for it?
Good afternoon everyone.
Cholocate, I take a daily calcium tablets, I get them on repeat prescription from my GP. They come in a couple of flavours. They remind me of Love Heart sweets. Not that I like the chalky feeling.
They do their job, so I am not complaining.
Cherry, my symptoms were a painful rib which I thought was a pulled muscle. My GP dismissed it but as my onc had told me that they would not tolerate any pains lasting for more than 2 consecutive weeks, I contacted him directly. He organised an MRI then a CT to see if it had spread anywhere else. It was bone met on rib and hip. I am glad to say that mets have healed and I have been stable for 2 1/2 years. I understand the hypochondriac state we are all in. I am lucky that my onc take me seriously and checks everything. A coupel of times my worries were not justified.
Welcome Kimi, I hope you find the support that you need here.
Have a great evening everyone.
Reading all these posts it makes you realise what a post code lottery the treatment we get on the NHS is. I know I chose to go to our local hospital (nearest large one 150 mile round trip away) but can only see any of the cancer doctors on a Thursday it's the only day they are actually there! It is three months today since my mastectomy and apart from the brain zapping the only drugs I have had so far are steroids. Off to see the onc tomorrow so I shall be jumping up and down and demanding that something should be happening soon!!! Best of luck to everyone with their treatment! VickyXXXX
Hi - all you positive 'bony' ladies .... I've been reading all your wonderful supportive posts and looking for the one thing that could answer my question. I haven't found it so I'm asking ....
What were your first symptoms that made you go back to your GP ? Were you able to suspect there was a difference between possible arthritis and bone mets? I know I have to go back ONCE AGAIN with paranoid hypochondria for peace of mind (I hope), but I'm sure the doc will be shaking his head once more as I present yet another symptom of possible secondaries. I had BC nearly 2 years ago, mastectomy and radiotherapy, and now 2 years into 5 years of anastrozole - which, of course, causes joint pain. So far, every twinge, lump, ache and anxiety has shown nothing menacing, but now my right leg aches ...
What a lovely group of girls (with possibly the occasional guy?) you are. I'm sorry you have your problems but I welcome any info on initial symptoms - thanks!
Hi Natalie, you are at the same hospital as me although at the moment I am being seen at the local hospital where they have a Christie department. I still see the same onc though as I see at the Christie. I have always found my treatment really good.
Kimi, I must have pressed the wrong key and spelt your name wrong. Sorry. Xx
Chocolates, that is brilliant news! Treatment definitely working😀 hope you enjoyed your glass of wine. I enjoyed mine and I'm not celebrating anything.
Helen, your hospital is full of surprises isn't it? I can't get over your onc. Not only does he not inform you about the MRI scan he hasn't got the manners to see you himself with results. It shouldn't be the nurse who has to give results out. He should be there so that if necessary he can tell you his next plan of action. My onc always has the next treatment ready to explain. Hope all goes well next week. Love Sheila xx
Sorry to hear of your progression to liver. I know it is a shock when you have any new spread. Hope your new treatment sorts it out for you. Take care. Love Sheila. Xx
just joining in with you boney ladies
may take me a while to read through the posts in here !
i am boney too had sternum mets but sternum removed and rebuilt,
now have bone mets in spine,shoulder & right foot plus new spread to liver
i started kadcyla a few weeks ago, i have number 3 tomorrow
fingers crossed its doing its job
look forward to getting to know you all
Just having a quick catch up with the "bony ladies" as I have been doing abit of the "brainy" bits since getting diagnoed with that as well as the liver!!! Glad to see people feeling positive and helping each other along. Even if I don't post anything I do like to have a quick catch up reading when I can , as everyone says you learn so much and find every extra thing you learn a help. I have just finished getting my brain zapped but told instead of the four weeks to see the rads doctor have to wait until a rather a daughting date of 9/11!!! Off to see the onc on Thursday but this time going with a mountainous list of pre written out questions with space to write the answers as my brain doesn't always remember but I do now know there is a brain in there as it has been MRI'd so it is in there!! We are lucky here in North Devon weather still brilliant no rain like elsewhere sat in the garden at gone 7pm typing just making the most of being a lady of leisure at the moment. Virtual hugs to all you ladies out there!!
Hi Ladies, hope you are all feeling well, weather has turned cooler and a lttle damp here in Manchester but cant complain after the lovely week we have had.
Sara you are sounding a lot more positive now and that is great to hear because i think i am right in saying you had us all worried for a time!! just remember we are always here to sound off to, most of us have hit rock bottom from time to time and it no surprise as we have to live with horrible disease but us girls are made of strong stuff and it won't keep us down for long!!
Good luck to anyone having scans, results etc
Love and hugs to Chocolate, Helen, Shelia, Bev and all my other cyber buddies out there, take care Janette xxxx