Hi Tracy glad things went reasonably well and hope the swelling subsides.
Lisalauren I agree with nicky, if you are looking for a second opinion then the centres of excellence like Marsden and Chrisies are probably your best bet, werte you thinking of looking privately? I wish you luck.
Bev good to hear you are feeling quite good this week, hope that continues and you have a good weekend.
There is a SBC pin, I don't think it's possible to put an image on here. It is American so probably likely to be called MBC (metastatic breast cancer) pin. As far as I know they are not on sale in UK, but maybe I'll contact BCC and BBC (Breakthrough Breast Cancer) and see what the chances of getting any stock.
Very warm and humid here today so cancelled my baking plans.
Love to all you lovely ladies xx
Thank you for kind wishes today ladies all went well don't feel to bad at the moment except some swelling to hands feet and face. Have been told to monitor and if it gets worse or any breathlessness to go to hospital but it may settle fingers crossed it does.
Laura I have read of a Proffessor who is supposed to be very good, I think he is based at Royal Marsden. His first wife had BC so has good insight to it. Another is a Proffessor at a London clinic he also has good reports but a very from what I've been told a very full on approach.
Just realised this may get edited as don't think we are allowed to mention doctors names.
Spudlab hope the scan puts your mind at rest. Tinnitus must be very annoying, do you have any tricks to help you through?
Was on Live Chat earlier and it was very quiet, they say they are getting closer to being Tablet compatible so hopefully some more of you will join us.Lulu popped in right at the end. I forgot to tell you earlier that I'd 'spoken' to her on FB and passed on your best wishes and told her the boney ladies were asking after her. She said to say hi, she has been having problems with the site, tried all day to send someone a PM. Anyway, she's had more scans today and gets results Friday.
Brain not working too well as tired so won't write anymore tonight. Sleep well everyone xx
sorry everyone but need a bit of a moan!
My tinnitus is driving me mad. It is only in one ear. My oncologist looked a little stressed by it yesterday and actually had a CT brain yesterday. Part of me is looking forward to proof I have a brain but a very small part of me is worried there may be something on it!
I also so someone for my joint pain yesterday and they are concerned it may be a type of inflammatory arthritis. I had a steroid injection in my bum - glad I was wearing sensible pants!!!!! I have also started on another new medicine. My oncologist said I could stop my tamoxifen temporarily to see if that was the cause but would only have to restart it even if it was. I am pushing through the pain - I did my mile and a half in 13 mins 14 sec on Thursday but hate not being as reactive and mobile as normal. It hurt to pull the sheet up in bed.
Still I apologise if I am sounding sorry for myself - I'm not really. Things could be so much worse.
My 16 year olds girlfriend, mother and sister are coming for dinner tomorrow evening - I hope I'm not late home from work. My husband is home on Sunday for 2 weeks which will be lovely.
Hope everyone is ok
Morning ladies - thanks for asking after me JulieD, still struggling a bit in my head, but *luckily* my mastectomy wound seems to be infected again which is giving me something else to focus on for a few days.
Good morning all!
Ethel, that made me smile! I never wear make-up so if I went to one of those days I'd probably join you in the aunt Sally club!
Lorsie good luck with the scan to9day hope all goes smoothly and you haven't got too long to wait for results.
Helen, have a lovely lunch and a good catch-up with your pals, leave all your husbands at home though!!
Jingo how are you? hope you are a little less teary and a bit better frame of mind, thinking of you x
Choc how's the leg? My partner had to wear a monitor for 24 hours too, it was ok till she somehow managed to rip the thing off during the night when she went to the loo!! Hope you'll manage chat tonight. Any of you other lovely ladies are more than welcome to join us.
Have a good day everyone, xxxx
belinda thank you for the birthday wishes, it was Friday, I had a quiet and pleasant day, went out for lunch and just relaxed.
Lulu has been quiet but she did post a couple of days ago on FB, will let you know if I hear anything and will let Lulu know we're missing her.
Jingo, welcome! Sorry you are in the awful position of needing to join but glad you've found the thread. You are quite normal to be upset and tearful...... it's a hell of a thing to take on board! It's very early days for you and you've not even had the chance to talk properly to your Onc, hopefully you will get answers when you see them, I found it useful to make a written list and have someone with me if possible to jot down answers or just be another pair of ears as there's so much to take in. I had my primary in 1999 and bone mets in 2010 so a big gap for me. As the others have said, please don't Google it just frightens you and is unreliable.It's hard to believe at the beginning but you will find a way to cope and a new normal for you. It is hard when family/friends don't/won't listen but it is hard for them too, try to let it sink in to you and get stronger then you can try to explain to them again, though some will never 'get it'.
Hope any treatments ,tests etc this week go well for anyone having them. For everyone else have a good relaxed week if possible.
Hope some of you can make Live Chat tomorrow evening.
Lots of love xxxx
Thank you all so much - I have had a day off the internet today and been reading 'Radical Remissions' instead, already feeling a bit brighter and haven't cried so much today, so thank you for getting me in a better frame of mind.
wishing you all lots of love and luck xx
Hello all - I am new here. Firstly I wanted to say what a lovely thread, lots of positive-sounding ladies here so glad I found you!
I was diagnosed with primary breast cancer mid-July, had a massive 15cm invasive lobular cancer that had been hiding on mammograms for years, also had a node clearance (2/31 involved), shortly followed by a diagnosis of a second cancer in my other breast found by accident on an MRI. Last week I had a second round of surgery to remove the new cancer and take out an infected implant on my mastectomy side, but also found out that I have a bone met in my pelvis, seen on an MRI. This news was delivered to me just before surgery and since then I have not been able to ask any questions. Have now driven myself mad by sifting through the internet and working out how my little 5 year old boy is going to cope without his Mum.
I have spent all this week trying to explain to family and friends that this changes everything, but they think I am just being pessimistic and that I will 'beat' breast cancer. I am struggling to come to terms with it myself, but it feels even worse when I am trying to explain to everyone that everything has changed with this bit of news.
I would be so grateful to know if any of you had mets at primary diagnosis and how you coped with feeling so hopeless before you had even started your treatment (my chemo starts in Oct). I feel like any snippets of good news over the last three months have been wiped out and now I have no chance of seeing my little boy grow up. I am 49 and I am worried I won't even see 50, I felt I had been quite brave until now, but now I am crying all the time, can't sleep or eat so a little boost of positivity would be a great help.
Hello lovely ladies!
Yes I watched (and sang along too) the proms. This year my family had a Last night of the Proms party, I didn't go but they had fun!. Actually I have my own tradition, Last Night generally falls about my birthday so my partner cooks me chicken and homemade chips to have whilst I'm singing along!
Bev hope the meds will suit you and help with breathing, Helen hope you are healed enough to feel you can get in the pool on your holiday, Chocolates hope your leg is feeling much better and they get this heart thing sorted,looking forward to catching up on Tuesday chat and hearing more about your car. Sheila, it's about time you had a break in luck, hoping you are starting to feel a bit more like your old self.
Sun keeps popping in and out here, can't make it's mind up. I've got piles of stuff to go through and just can't be bothered but if I don't do something soon I'll be swamped by paper, perhaps I'll have a coffee and a think....
Hope you have as good a weekend as possible girls. Love to you all xxxx