Ive just been to get bloods done this am.....for clinic tomorrow afternoon. I always get the tumour marker results back at that appt(I go especially the day before to be sure tumour markers are back for clinic).
Hi, I'm also going to the Westminster event. Looking forward to meeting you Chocolates. And will try and cover all the issues I'm aware of from the forums as well as my own experiences.
Thanks JulieD - I think if I'd got some treatment as soon as possible after surgeries I'd be feeling a bit more optimistic but I know how much it's visibly been progressing so I fear what's been going on that isn't visible. I'm clinging to the hope that I respond well to Gem Carbo, as I know some TNs have.
Hi everyone. Yes final salary pension schemes are based on your your final salary multiplied by the number of years worked (so half time work counts half a year for each year worked.) Most public sector public schemes have enhanced pensions for those retiring on ill health grounds. Infact you can sometimes take it all as a lump sum...in the NHS worth about 6 or 7 years pension cos its tax free. One situation where it is important not to reduce your hours prior to claiming is if you have an income protection policy cos this is based on your income at retirement.
Certainly is a minefield. You are right Lynnq it's not all pensions it depends what sort you are on, but thought it worth bringing to people's attention so the right questions can be asked when seeking advice about going part-time etc.
Flori, it really does pee you off sometimes doesn't it. Don't pay too much attention to the timeline given as no-one really knows how you will react to treatments and how long you've got, I know women who were expected to last only months and are years and years down the line.
Chocolates good luck with scan, maybe a full house can distract you a bit?!
When is Helen back? Hope she's had a great time - I bet she has!
Have a good weekend girls xx
I've been feeling really peeved that I've paid into a pension all these years but haven't a chance of getting to use it. Not yet 50 and been told probably have 2 to 3 years. The only comfort I can draw from it is that my niece will get a death grant of 3 times my wage, which should see her through university. Like you, Chocolates, I don't want to spend all my life working. I have nice things I'd like to do before I pop off. I can't afford not to work because my mortgage is too high, although I have been wondering if it's worth changing it to interest only. I'll have to look into whether my niece would still get the money if I stopped work beforehand. I'm also miffed that my retirement plan was to get a dog but now I'll struggle to outlive a hamster!
Half an hour of gardening and the tumours are hurting so much I've had to give up. Miffed, peeved, p*ssed and so on. Roll on chemo next week.....never thought I'd say that again.
Bev - i had the effusion back in April of this year at a pre op assessment to finish reconstruction. I had a dry irritating cough for nearly 3 weeks so told the surgeon and he promptly sent me for an x-ray. Following drainage of fluid I had a procedure called pleuredeses which is a chemical talc inserted into the pleural lining of lung to stick them together. It was supposed to be 90% success rate but 2 weeks ago it came back in left lung again. Whilst in hospital an x-ray showed progression to right lung with small effusion so had that drained too. I didn't bother with pleuredeses as there wasn't much fluid and I knew I'd be starting a new chemo.
Nicky - thank you for your words of encouragement in fact to all the ladies on here that are going through the same kind of highs and lows, I hope you are all doing well and keeping strong.
Gorgeous weather here in Solihull, the sunshine always makes things look better...
Love and light
Just a qick update and hope all are feeling well this evening?
I saw my ONC and she gave me the option of 2 chemos and I have opted for Ebirulin which is IV chemo. I did ask for some time to think about it and she responded by saying that I shouldn't take too long as there is proression. At least she's frank and up front...
I see her again on Monday to sign the consent form but have been told that the chemo regime might not start until the end of next week possibily following week. How is it that now I've made my mind up it's ok for them to keep me waiting? I don't get it.
I see another onc next tuesday to see whether she has any other options for me or maybe not....
My partner took me for a little gentle walk this evening as the weather improved dramatically. When I got back I couldn't get over how fatigued and ill I felt! It's just not fair as I have always been very active all my life into all kinds of sports including running! I've been robbed of the very things I love doing and it's just not effin fair! My partner tells me to be a little kinder to myself but that's easy for him to say and I know he's being very caring also doing a very good job of looking after me! God only knows what I'd do without him..
Sorry for the rant but after spending nearly 2 weeks in hospital getting left lung drained only to find out there was a small effusion in right lung, i feel pretty miffed. So as well as the bone mets to sternum and pelvic joints I have to put up with fatigue and feeling generally ill.
This weekend is the start of my non conventional treatment and will keep everyone updated with it.
Love and light
Re TMs -
Lynnq - Yay! Great news!
Janette - drat. sorry to hear yours have gone up.
Hugs to all.((()))