68418members
359946posts
cancel
Showing results for 
Search instead for 
Did you mean: 

Bone mets - please join in

Highlighted
Member

Re: Bone mets - please join in

Hi I would just like to add my thanks too, it was a wonderful thing you ladies did to represent us.. Hopefully it will Make people realise what an awfully cruel disese secondary breast cancer is. X x
Highlighted
Member

Re: Bone mets - please join in

A late hello ladies. I must have taken my eye off the ball as there've been so many posts since I last looked, I'm struggling to keep up! I'm going to have to start making notes about who's doing what and how things are going as I don't seem to have the mental agility to remember. It's a bit of a faff having to view posts separately in the pop up.

 

But I did want to say thank you Chocolates, Moneck and Tournesol for your sterling efforts with the MPs. I've been rather shocked at myself with my own lack of knowledge and how unclear statistics are with regard to MBC and survival rates. I was previously happy to rely on the medical profession to look after me but have learnt from bitter experience that you need to be armed with as much information as possible to ensure that you get the treatment you need and deserve. Differences between hospitals has astounded me.

 

Delighted to hear of Lulu's good news with her grandson but sorry she's not been well. If you're reading this Lulu, I've been thinking of you a lot, otherwise, JulieD, please would you pass on my best wishes to her.

 

At last, I'm starting chemo tomorrow - yay! Never, ever thought I'd be pleased to have chemo again and yet I can't wait.

X

Highlighted
Member

Re: Bone mets - please join in

A bit late but happy birthday Faraway .Well done to all you ladies who went to Westminster to speak for everyone who has SBC .I agre with you when people say things without thinking,Like you all dealing with this disease is difficult and we live our life from one appointment to another,so it is very difficult to plan anything in advance.Well I'm off to bed now tired after Xmas shopping today but got quite a bit done.Best wishes to all you lovely ladies.
Kaye xx
Highlighted
Member

Re: Bone mets - please join in

A bit late but Happy Birthday Faraway! - I hope you had a lovely day and no more insensitive clods.

 

Thank you to Chocolates, Moneck and Tournesol for going to Westminster to put our point of view to MPs.  It must have felt great to get it off your chest and be listened to.

 

Thanks to BCC for putting it all together.

 

Congratulations to Lulu on her her new grandson - sorry to hear she's not well.

 

Tink x

Highlighted
Member

Re: Bone mets - please join in

A huge thank you to our lovely ladies who represented us...Let's hope there were a few sympathetic ears.
Faraway....HAPPY BIRTHDAY!! Hope you had a lovely day.
Good news about lulu...was wondering how she was lately. Sending her a big hug ((( )))
Just watched Paul o' Grady dogs...always gets me emotional. But hey..its past my bedtime as usual so will say goodnight ladies.
Love and hugz...bevlaar xxx
Highlighted
Member

Re: Bone mets - please join in

Wow chocolate you've done us proud and moneck and tournesol. Thank you soooo much for your commitment and time.
You are stars. Xxxxxxx
Lol,mr C is still in the running,I'm just keeping him on his toes with Mr H in the wings . Yes,it's me I've been Xmas shopping. Lovely aprons for mr c in the shops lol.
You go and put your feet up ,you deserve it xxxxxxxx massive hugs,Helen xxxxxx
Highlighted
Member

Re: Bone mets - please join in

Hello ladies - gosh what an active lot you've been today. Has just taken me ages to read through the thread. Happy birthday Faraway - I'm sorry people are insensitive, it seems to go with this disease but I hope you have had a fairly decent day. Sending you warm wishes xxx

Helen, how dare you pass on Mr c - you've only been married a few weeks. Just too upset - how am I meant to move on? And who said they've been Christmas shopping - oh my - I haven't even thought about it all yet. I promise I'll give it some thought in half term.

Well I went to the MP reception and can I just say that BCC did us proud. It was very informal and relaxed and there was no need to feel nervous at all. I would say about 20 MPs popped in over the course of the two hours. It was a chance to highlight the charity and also plenty of opportunity to talk about our issues and how we begin to live with this dreadful disease. Most of the MPs were just totally unaware of what we are going through and it felt good to freely express thoughts that we are not all pink and fluffy and we are forgotten - that we get caught up in all the statistics of survivors and thus marginalised. I spoke at length about this thread and how it has helped us and the fact that it's 'normal' and we are human beings who laugh, cry, scream etc but ultimately live with a huge cloud over us. I also spoke about PIP, the inconsistencies, the ds1500, lack of specialist BCN in hospitals and general inconsistencies in care for us all. I think it would be fair to say that all the MPs listened carefully and respectfully. How much difference it will make at this point I'm not sure, but it was a very good start and for some MP,s it was an eye opener.m all the BCC ladies and gentleman were fantastic and it turned out that one of them just lives up the road from me. I was very nervous beforehand and exhausted after -thus not posting till today but I would def do it again to give us ladies a voice. Mo neck was also there along with Tournesol and it was great to meet them. Another lady there knew me from the forum but has never posted. She found out yesterday morning she was NED. Was such lovely news - very uplifting. I know she's reading now so thank you for saying how much you look forward to reading the thread. We are all here together.

It just got me thinking though that I'm sure there are many ladies who never post but read about us and also sec dx so a huge hug to all of you ladies.
I felt proud to represent you all, we didn't get that long with MP,s but like I said it was a start. The hosting MP (Steve brine) I was very impressed with. He clearly had experience of our journey, perhaps through a close family member yet was very interested in our experience and what still had to be done. My MP was also decent in all fairness and recognised that there was a lot of info lacking around sec ladies and promised to look into it.
So I've rambled on enough now. It was a very well run evening and worthwhile - hopefully the start of things to come.
Stay well lovely ladies, I'm going to ring Mr c now and see how he,s coping - poor man.

Huge hugs,
Hxxx
Highlighted
Member

Re: Bone mets - please join in

Hi,Julie oh wow I'm sooo happy for lulu,that's wonderful news for her. She was worried she wouldn't get to see him. So,sorry she's still not well but as you say she's always miss smiley. Please pass on my congratulations and love to lulu. She's a wonderful lady.
Oh wow to car,oh what are you getting? Are you going miss sensible,get the shopping in or miss go fast, foot down lol.
Blah,to zometa and bloods but as you say it could be worse.
Thanks so much for update,take care ,huge hugs,Helen xxxxx
Highlighted
Community Champion

Re: Bone mets - please join in

Happy Birthday Faraway! xCat Very Happy

 

Sounds like we've all got people who don't put their brains into gear before they open thier mouths! It can be very upsetting can't it and I do try not to get upset or angry but sometimes ......arghhh!!

 

Thanks for asking about Lulu Helen, I'm sorry I forgot to update you all (though I have passed on your well wishes to Lulu). Well Lulu is now a proud Grandmother - a little boy. He was actually born a bit prematurely and both mummy and baby have had to stay in hospital, they are doing well and should be home soon if not already over the weekend. Lulu has unfortunately still not been having a good time but they do seem to be slowly getting her meds sorted and she is still miss smiley. Of course she is thrilled with her Grandson.

 

Get my new motability car next week so am looking forward to that. Bloods and Zometa tomorrow not quite so good but could be much worse.

 

Keep smiling lovely ladies, lots of love xx

 

 

Highlighted
Member

Re: Bone mets - please join in

Carol,yes,people can be insensitive. My own mother was moaning about aches and pains (74!) and said oh Helen you don't want to get old it's not good!!. Fat chance of that mother grrrr.
Oh,I feel in a right fettle tonight. I would love a glass of wine ,but best not bloods,chemo pick up and Denusomab tomorrow! Oh well!
Hugs lovely ladies xxxxx
Highlighted
Member

Re: Bone mets - please join in

Thanks everyone for your thoughts.
Faraway i know exactlly wot u mean. One colleague said..so did they tell u how long u have and she also said..well u know u will end ip in a wheelchair. She said she was just being realistic! Well i prefer to live in my own little dream world where for 3 months at a time i can pretend i am ok. Also hate talking about the future ans when people at work talk about their future pension i have to walk away for obvious reasons. I know its my problem not theirs so dont blame them for that but some people can still be insensitive. Or maybe i am just too sensitive.
Anyway..hope everyone is feeling well tonite and good luck for all of you facing scans and results in the next few days.
X
Highlighted
Member

Re: Bone mets - please join in

Hi,janette,that's good news ,your onc is on the ball and a weight of your mind. Yes,our life is sections ,I'm scared to plan anything now more than a couple of months ahead.
Huge hugs,Helen xxxx
Highlighted
Member

Re: Bone mets - please join in

Happy Birthday Faraway. I know what you mean about people moaning, people just do not have a clue what it is like having the Grim Reeper flying round your head all the time!!
I feel i live my life on 3 monthly basis as far as plans go because of the regular scans and results we have to have.
Well seen my onc today, although my TM have gone up she isnt overly concerned as all other bloods are fine, CT shown that it is still confined to bones however she has requested an urgent bone scan to see whats going on there and had TM done again, she said if they are still rising she will prob change my tamoxifen to maybe letrozole, do feel a bit better now i have seen her.
Love and hugs Janette x x
Highlighted
Member

Re: Bone mets - please join in

Nicky,I can top that when I told a friend that C had spread to liver and lungs she said have they still not given you a date you'll die on yet!!! I was so shocked I didn't know what to say. Did she want to pencil it in diary ,so it didn't class with a holiday or had she seen a black dress in sale to wear at funeral ??!! Mind same friend did say when I was first diagnosed it won't be bad losing your hair as you used to have it shorter! Also,when I saw her in street she did say oh your not wasting away yet you still look good!!
Ahhhhh I do try to avoid said friend now. The thing is she doesn't have a mean bone in body but just doesn't think before she speaks .


Anyway sorry forgot to say faraway HAPPY BIRTHDAY 🙂 and good luck next week xxxxxxx
Highlighted
Member

Re: Bone mets - please join in

Faraway,I soooo know where your coming from. When people say who are fit and healthy say oh I'm fed up with work or I'm soooo tired I want to shout well I'll swap you ahhhhh

Lol,bev, mr H is in waiting incase I get bored with mr C . Oh this juggling 4 men is getting complicated lol. I better get first hubby's dinner on lol
Glad your reflexology was good Tracy and hope you managed to get your baby out for a walk xxxx
Well ladies all shopped out until next wheel lol.
Take care and huge hugs xxxxHelen xxxx

JuileD ,have you heard any news on how lulu is doing and has her grand baby been born as I know it's due round about now xxxxxx
Highlighted
Community Champion

Re: Bone mets - please join in

Happy birthday faraway 🙂
Unfortunately friends, and family, can say things without thinking and at times I want to scream and bang their heads together as well. If only they actually knew what we had to live with on a day to day basis. The next thing you know someone will be complaining of having yet another birthday, all we want is EVERY birthday as it means we're still here! Also, if we point out what they've said you then have to deal with their looks of astonishment and I find I tend to keep quiet as I can't suffer with the 'guilt' of telling it how it is. I think once we have SBC we should wear a badge so we can get a bus seat or tube seat without asking and not made to feel we're getting extra care as we certainly bl**dy well aren't! I may get bleeped for that!
I remember a friend saying to me at the end of the summer, 'So, what are you plans for the rest of the year?' My reply was ' I'm having chemo' and she looked very put out. Well, tough luck, and I wasn't going to ask her about her plans for holidays etc whilst I'm stuck in the UK having needles poked in me week after week.
I hope however that you have had a lovely day and this is the right place to have a moan as we do all understand. Good luck also with all the appointments coming up in the next week or so, that doesn't help either.
Take care
Nicky x

Highlighted
Member

Re: Bone mets - please join in

In need if a moan about people moaning for no apparent reason! Its my birthday today and I have been having some nice birthday wishes but everyone has moaned about how bad their live is and troubles with OH or work and I want to just bang their heads together and say do you hear me moaning that I have got CT and TM on mon with results on weds expecting to be put on chemo again and back in for another op week on tues! Just because we can paint a smile on our face does not mean all is ok, we just have to get on with it aarrgghh moan over. Sorry about that I just needed to get it off my chest xxxxx
Highlighted
Member

Re: Bone mets - please join in

Oh and helen....hubby no 4?? Fed up of mr C already? I can't believe that lol! Mind you Mr Hollywood is an excellent contender 😉😉
Highlighted
Member

Re: Bone mets - please join in

Hi ladies...sounds like youre all doing well this week.
Desi - glad you enjoyed reflexology. ..mine on monday and looking forward to it!
Lynnq...putting me to shame with your xmas cake baking! I have actually bought my ingredients though so should make a start!
Kaye..nice to see another fellow South Walean on here! Enjoy the xmas shopping!
Sending good wishes to everyone else...hope you all keep well ☺☺
Love bevlaar xxx
Highlighted
Member

Re: Bone mets - please join in

Oh,wow Lynn,you must enjoy baking. Mr m and s bakes mine,shame on me! Mind mr Hollywood would be very welcome to bake mine,hmmmm hubby number 4??? Poor hubby number one ,still haven't found post it notes to let him know I'm now mrs Clooney ,shame on me again.
Enjoy your baking Lynn xxxxxxx,hugs,Helen xxxx
Highlighted
Member

Re: Bone mets - please join in

That is good news Carolsav....I see both sides if treatment is working then that is all some folks need to know. I like to know everything and my BCN asked me if I wanted to when all this started . So I feel/hope that they are telling me.
Baked another Christmas cake today.....usually bake one for each of my three (grown up but very busy) childhren and for my best friend. So only have 2 more to do now.........
..enjoy the Christmas shopping Helen and thoughts are with everyone else.....take care


Highlighted
Member

Re: Bone mets - please join in

Morning ladies well the sun is shining in the south today! Put some some washing out and gone back to bed for a read and a rest then hope to take my poor dog out later for some sunshine. Very short walks last couple of days for her. Reflexology at the hospice yesterday was great and everyone was so welcoming not a scary place really. Bumped into 2 old school friends aswell which was strange, one a nurse the other the husband of a patient, such a small world!
Have a lovely day ladies xxxx
Highlighted
Member

Re: Bone mets - please join in

Hi all hope we,re all doing ok not a very nice day her in S Wales but off out for lunch and bit of Xmas shopping today.
Helen you must have got over your jet lag if you're out Xmas shopping enjoy your spending spree I love Xmas shopping.
Janette good luck with your results today,hope you have good news the waiting is hard.
Carol save well done on your results shows treatment is working .
Can't wait to hear the news about Westminster and thanks to all ladies who attended and speaking on behalf of us SBC ladies.
Hope everyone else is doing ok
Love
Kaye xx
Highlighted
Member

Re: Bone mets - please join in

Thank you Helen x x
Highlighted
Member

Re: Bone mets - please join in

Oh wow carol,you go girl that's great news yippee!
I know what you mean about not wanting to know details but I do think how dare these docs not tell you every thing. They do get the god complex at times and forget it's our bodies.
Huge hugs and you go girl,Helen xxxxxxxxxx
Highlighted
Member

Re: Bone mets - please join in

Thats really great news Carolsav, bet you felt so much better hearing that. I understand what you mean about "the not knowing" im a bit like that, as long as i am responding to treatment i dont want to know all the gory details.
Hugs Janette x
Highlighted
Member

Re: Bone mets - please join in

Good morning lovely ladies, it's like a monsoon outside in the NE today. ( and I don't mean the shop)I'm off the do Xmas shopping with my friend today. I'm hoping m and s won't be sneaky like last year and put 3for2 on gifts after I'd bought all mine early grrrrr. Good old boots for their 3for2.
Holding your hand janette today,hoping all will go well and you'll get an answer . We all understand your anxiety and how you feel xxxx

Hi,porkie,thank you xxxxx

Chocolate ,can't wait to hear news.xxxThank you ladies who went for giving us a voice ,you all get a standing ovation and huge hugs from us all we are so proud of you xxxxxx

Sheila,thinking of you and praying you are well,massive hugs coming your way from all of us xxxxxxxx

Tracy,glad you are feeling "well" on the chemo and this cycle not as bad as last. Hoping it will be kind to you but kicking Cs butt good and hard. Xxxxxxxx

Think of you all huge hugs and stay strong ,Helen xxxxxxx
Highlighted
Member

Re: Bone mets - please join in

Had my scan results yesterday. I have lung rib spine and pelvis mets. Onc said tumour in lung reduced to 3mm fluid in lung gone bone mets reducing and bones healing nicely. I was really pleased obviously but she also mentioned that mets in my lymph nodes chest wall and shoulder were reducing. My point is...i didnt even know i had it in those areas! And i am too scared to ask where else it is. I know the important thing is that treatment is working but sometimes i feel so overwhelmed its almost like a mini panic attack!
Anyway wot can we do but carry on. And it looks like i will soon be back to work.
Good luck to everyone getting results today.
X
Highlighted
Member

Re: Bone mets - please join in

Morning Ladies, hope everyone is ok today, i can't wait to hear what went on at Westminster last night
Well i finally get to see my onc this morning, get my CT results and try and find out whats going on with my raised TM ....hardly slept AGAIN my mind feels consumed with the "C" word at the moment!!! Good luck to anyone else getting results or having scans today.
Love and hugs Janette x x
Highlighted
Member

Re: Bone mets - please join in

Just wanted to reiterate 'Good Luck' to those seeing MPs today......and agree with Helen and Porkie regarding SBC nurses in all hospitals ..... There are none in the hospital where I am treated....never hear SBC mentioned there.....did wonder at one time if I was the only person they had who'd been diagnosed with it. Felt very sidelined for a while after secondary diagnosis...... Also the PIP ..... Should not be available to some and not others depending on their medical team.
I know of one lady who was refused it by her consultant, so her BCN asked another consultant ON THE SAME TEAM to sign....and he did. Seems like it is based on personal opinion of doctors instead of patients needs!!!
Highlighted
Member

Re: Bone mets - please join in

hi all hope your all doing okay .I just want to say good luck to all the ladies who are attending Westminster for SBC .
Kaye xx
Highlighted
Member

Re: Bone mets - please join in

Hi All, I echo Tink's messgae I hope everybody is doing as well as they can be.

Its lovely to see you back posting Helen, whilst I do not post often I always read everybodys posts and the day was certainly not the same without yours.

Chocolates and the other ladies going to Westminster - good luck highlighting our cause. I would like there to be proper secondary breast cancer care nurses in all hospitals. I am lucky that my local hospital has 3 and they are a godsend but I know that not all hospitals have them.xx

 

Highlighted
Member

Re: Bone mets - please join in

Hi All,

 

Hope everyone is doing as well as they can be.

 

Just wanted to say Good Luck to the ladies (Chocolates - Monek?) who are going to Westminster today.  I'm sure you will do us all proud.

 

Tink x

Highlighted
Member

Re: Bone mets - please join in

Spud I had just the implant and I found it looks very real as long as I wear and underwired bra or bikini and no damage to other areas of my body.

Hi Helen glad you enjoyed your holiday! So nice so see you back posting too...did miss you. I'm okay really second chemo down! Didn't react so badly this time just feeling tired last couple of days but off to hospice for some reflexology this morning!
Hi Bev hope your okay and Janette hooray you will get your pip!!
Good luck chocolates and thank you on our behalf!
Great news on markers Pam! And love to Sheila if you are reading xxxx
Highlighted
Member

Re: Bone mets - please join in

Hi,pam,thank you xxx
Yippee to markers,that's fab news . Eurotunnel insured me to USA !!! Strange they wouldn't do it when I was on hormones and had bone mets in January ! But now they will with liver,lung and bones and on chemo,go figure! £71 for a year! As long as your doc says your fit to travel,stable and not going to other country for treatment and not terminal !
Huge hugs xxxxx

Sheila,I'm with chocolate ,how are you doing,please let us all know even if it's just a reply with no words.
Huge hugs to all,Helen xxxxx
Highlighted
Member

Re: Bone mets - please join in

Good morning ladies.

Helen I have really missed your daily greeting ....how lovely to have you back after a great holiday....you sound very upbeat...shows what a world of good holidays can do.

Chocolates (and the others) very best of luck tonite in Westminster getting our message accross about the importance of awareness, research, and making money available for treatments.........if any Welsh MPs turn up it would be great if you could mention the disparities in access to therapies!

Bev.....sorry to hear you are having a low spell...hope you are feeling better today......would be great to see you at secondaries group on friday if you feel up to it.....

Well Im pleased to report my markers were stable yeaterday...starting xxxcycle of capecitabine today!...and hava holiday booked in spain in 3 weeks.......off to organise insurance!

Hope everyone else has a good day today

Highlighted
Member

Re: Bone mets - please join in

I will second Helen, good luck Chocolates, i know you must be nervous but im sure once things get going you will get right in there and say your piece!!! Good luck to all the other ladies going to.
Hugs Janette x x
Highlighted
Member

Re: Bone mets - please join in

Good morning,Chocolate, good luck with your meeting you will be fab xxxx. My bit would be to have all hospitals dealing with SBC on same page regarding treatments, PIP should not be a battle with some docs saying it's okay I'll sign ,while others won't. This disease can adapt fast ( I know too well!)
Huge hugs and ding ding round one,you go girl xxxxxx huge hugs ,Helen xxxxxx
Highlighted
Member

Re: Bone mets - please join in

Morning ladies, hope all is well with everyone. Really worried about our Sheila - has anyone heard from her? Just want to know she is ok.

Spud - have no experience of what you are going through but I think it's a really positive step to have reconstruction. I have loads of tummy fat so could offer you some for free if it would help!!! Seriously, I think you should go for it - this disease is difficult as it is mentally without then the added worry of worrying about your body image. Hopefully the surgery will give you some added confidence. Whatever you decide though we will all be here for you. I'm glad the got some time to think about all the options.

Morning Helen, hope jet lag slowly improving. Just take it easy - you'll get there soon.

Well I'm off to speak to the mp's tonight as part of BCC campaign. Nervous but determined to get our point across abut what it's really like. If you want me to say anything let me know - ladies remember the naughty step on here so keep it clean.

Have a good day everyone and stay well.
Huge hugs
Hxxxx
Highlighted
Member

Re: Bone mets - please join in

Good morning lovely ladies,how are we all doing?
Spud good luck with scan tomorrow xxx I can't give you any advice about recon ,sorry as I haven't had one as wasn't offered apparently my old hospital didn't think I was worth it!! I'm 48.
I would say if you want one go for it,it's your body and your choice.
I'm sure some ladies will be along to give you some advice about what they've done /types.
Well still jet lagged but hubby is up for work so I thought I can't really lie in bed saying go away I want to sleep! He has made me a cuppa and brought it up to bed too bless.
Well lovely ladies good luck with tests,results etc.
Huge hugs,Helen xxxxxx
Highlighted
Member

Re: Bone mets - please join in

Sorry I know this isn't directly related to the last post but I am after a bit of advice. 

I saw a plastic surgeon this afternoon about reconstruction - he isn't worried about my bone met! He gave me several options. I asked him what he would do if I was his wife. The answer was a lat dorsi flap and implant with a matching implant on my "natural" side. Has anyone been through it? He has given me 6 weeks to think about it. He says the most natural boob would be with a "tummy" flap but I don't have much fat or loose skin so the scar could be a trouser level rather than bikini line! I guess I am lucky as I have nothing to have a tummy tuck with! 

I thought I just wanted a straight forward implant but that isn't that straight forward either especially as I had radiotherapy. 

Sometimes I think what is the point of reconstruction - I have a life limiting disease! Then I think I am only 47 and still go scuba diving and want to wear a non-sports bikini.

What have the rest of you done or thought? 

If I had decided today I could have had it done next month! Glad I have 6 weeks to think about it.

 

Also have scanxiety - repeat staging CT tomorrow! Need to sort out my flu jab too

 

Hope everyone is doing OK.

Highlighted
Member

Re: Bone mets - please join in

Good afternoon,lovely ladies,bit jet lagged this morning so it's an afternoon greeting today.

Yippee janette,you PIP will be through soon xxx yes,janette ,question why they take so long. Even at old Fawlty Towers TM were only two days at most and were sent to another hospital. Bloods next day.

New hospital,they take half an hour while I wait to pick up cap,other bloods she rings me in afternoon to say I'm okay to take cap.think it's liver function one,must take longer that half an hour.

Hugs Dani,new "stuff" will kick Cs butt,good look. I'm finding Denosumab much better than zometa back pain seems to have improved on it,but it's only my third on Friday,so early days

Tracy ,how are you doing?
Sheila,are you home and how are you doing?

Hello everyone,hope you are all doing okay and test results /scans are all great.
Huge hugs to everyone xxxxxHelen xxxxxx
Highlighted
Member

Re: Bone mets - please join in

Yaaaaaaaay - welcome back Helen. Hope the jet lag not too bad - you sound like you've had a fantastic time. So pleased. Xxx

Janette good news re ds1500 - hopefully now you'll get your pip soon - it will be back dated too. How exciting!!

Dani - must have been hard today. Don't think about what you might have done differently. No use going there. Look forward and concentrate on looking after yourself.

Right I'm off to join the special live chat tonight.

Go well everyone
Hxxx
Highlighted
Member

Re: Bone mets - please join in

Good luck dani. Hope the eribulin works well for you with minimal side effects. Ive heard lots of good things about the denosumab too! Will be thinking of you.
Love and good luck to everyone having scans/results this week......bev xxxxx
Highlighted
Member

Re: Bone mets - please join in

Hi Dani, good luck with your chemo, hope it all goes well and it zapps all the little blighters!!
Hugs Janette x x
Highlighted
Member

Re: Bone mets - please join in

HI girls

 

How are you all?

 

Saw my onc this morning and signed consent form for Eribulin which I start next tuesday. 

 

I also start denosumab injections but I can have that when I go for chemo appointment.  I started this nightmare in April and we're in October and seems cancer still wants to be part of me.  Well I don't like intruders and hope the chemo does what it's supposed to - have to accept it with open arms and hope every cancer cell gets zapped!  Can't help wondering whether my break in Capecitabine in August has affected spread?  Who knows. 

 

Had a reiki session this afernoon and has put me in a very relaxed mood and about to start some meditation. 

 

Wishing you all pain free times and lots of joy in your household.

 

Love and light to all

Dani XX

Highlighted
Member

Re: Bone mets - please join in

Hi Helen so glad you had a lovely time and made the most of every minute,you're right holidays should be on the nhs.
Janette so glad your doctor filled in your DS 1500 mine only took about three weeks once that form went in hope yours is as quick.
Hope all you other ladies are feeling ok
Kaye xx
Highlighted
Member

Re: Bone mets - please join in

Welcome back Helen - hope you had a fab time!

 

Glad your GP signed your form Janette.

 

Hope everyone is as well as possible.

 

Tink x

Highlighted
Member

Re: Bone mets - please join in

Hi Helen, great to have you back, glad you had a great time.
Thank you to everyone who has posted re: results, i can question why i have to wait so long for mine when i go on Thursday.
Well my GP has agreed to fill in the DS1500 form for me so theres a bit of good news for me!!
Love and hugs Janette x x
Highlighted
Member

Re: Bone mets - please join in

Hellooo helen! Nice to have you back although i bet you'd prefer to be across the pond lol! Hope you had a fab time....sounds as if it did your health a world of good ...and yes thought your dress was something else truly!
Love bev xxx