A late hello ladies. I must have taken my eye off the ball as there've been so many posts since I last looked, I'm struggling to keep up! I'm going to have to start making notes about who's doing what and how things are going as I don't seem to have the mental agility to remember. It's a bit of a faff having to view posts separately in the pop up.
But I did want to say thank you Chocolates, Moneck and Tournesol for your sterling efforts with the MPs. I've been rather shocked at myself with my own lack of knowledge and how unclear statistics are with regard to MBC and survival rates. I was previously happy to rely on the medical profession to look after me but have learnt from bitter experience that you need to be armed with as much information as possible to ensure that you get the treatment you need and deserve. Differences between hospitals has astounded me.
Delighted to hear of Lulu's good news with her grandson but sorry she's not been well. If you're reading this Lulu, I've been thinking of you a lot, otherwise, JulieD, please would you pass on my best wishes to her.
At last, I'm starting chemo tomorrow - yay! Never, ever thought I'd be pleased to have chemo again and yet I can't wait.
A bit late but Happy Birthday Faraway! - I hope you had a lovely day and no more insensitive clods.
Thank you to Chocolates, Moneck and Tournesol for going to Westminster to put our point of view to MPs. It must have felt great to get it off your chest and be listened to.
Thanks to BCC for putting it all together.
Congratulations to Lulu on her her new grandson - sorry to hear she's not well.
Happy Birthday Faraway! x
Sounds like we've all got people who don't put their brains into gear before they open thier mouths! It can be very upsetting can't it and I do try not to get upset or angry but sometimes ......arghhh!!
Thanks for asking about Lulu Helen, I'm sorry I forgot to update you all (though I have passed on your well wishes to Lulu). Well Lulu is now a proud Grandmother - a little boy. He was actually born a bit prematurely and both mummy and baby have had to stay in hospital, they are doing well and should be home soon if not already over the weekend. Lulu has unfortunately still not been having a good time but they do seem to be slowly getting her meds sorted and she is still miss smiley. Of course she is thrilled with her Grandson.
Get my new motability car next week so am looking forward to that. Bloods and Zometa tomorrow not quite so good but could be much worse.
Keep smiling lovely ladies, lots of love xx
Hi All, I echo Tink's messgae I hope everybody is doing as well as they can be.
Its lovely to see you back posting Helen, whilst I do not post often I always read everybodys posts and the day was certainly not the same without yours.
Chocolates and the other ladies going to Westminster - good luck highlighting our cause. I would like there to be proper secondary breast cancer care nurses in all hospitals. I am lucky that my local hospital has 3 and they are a godsend but I know that not all hospitals have them.xx
Hope everyone is doing as well as they can be.
Just wanted to say Good Luck to the ladies (Chocolates - Monek?) who are going to Westminster today. I'm sure you will do us all proud.
Good morning ladies.
Helen I have really missed your daily greeting ....how lovely to have you back after a great holiday....you sound very upbeat...shows what a world of good holidays can do.
Chocolates (and the others) very best of luck tonite in Westminster getting our message accross about the importance of awareness, research, and making money available for treatments.........if any Welsh MPs turn up it would be great if you could mention the disparities in access to therapies!
Bev.....sorry to hear you are having a low spell...hope you are feeling better today......would be great to see you at secondaries group on friday if you feel up to it.....
Well Im pleased to report my markers were stable yeaterday...starting xxxcycle of capecitabine today!...and hava holiday booked in spain in 3 weeks.......off to organise insurance!
Hope everyone else has a good day today
Sorry I know this isn't directly related to the last post but I am after a bit of advice.
I saw a plastic surgeon this afternoon about reconstruction - he isn't worried about my bone met! He gave me several options. I asked him what he would do if I was his wife. The answer was a lat dorsi flap and implant with a matching implant on my "natural" side. Has anyone been through it? He has given me 6 weeks to think about it. He says the most natural boob would be with a "tummy" flap but I don't have much fat or loose skin so the scar could be a trouser level rather than bikini line! I guess I am lucky as I have nothing to have a tummy tuck with!
I thought I just wanted a straight forward implant but that isn't that straight forward either especially as I had radiotherapy.
Sometimes I think what is the point of reconstruction - I have a life limiting disease! Then I think I am only 47 and still go scuba diving and want to wear a non-sports bikini.
What have the rest of you done or thought?
If I had decided today I could have had it done next month! Glad I have 6 weeks to think about it.
Also have scanxiety - repeat staging CT tomorrow! Need to sort out my flu jab too
Hope everyone is doing OK.
How are you all?
Saw my onc this morning and signed consent form for Eribulin which I start next tuesday.
I also start denosumab injections but I can have that when I go for chemo appointment. I started this nightmare in April and we're in October and seems cancer still wants to be part of me. Well I don't like intruders and hope the chemo does what it's supposed to - have to accept it with open arms and hope every cancer cell gets zapped! Can't help wondering whether my break in Capecitabine in August has affected spread? Who knows.
Had a reiki session this afernoon and has put me in a very relaxed mood and about to start some meditation.
Wishing you all pain free times and lots of joy in your household.
Love and light to all
Welcome back Helen - hope you had a fab time!
Glad your GP signed your form Janette.
Hope everyone is as well as possible.