Aftenoon ladies....just thought Id post to check out with you for 10days....going to Andalucia tomorrow am.......Ive had a bit of a rough 2 weeks or so with very sore hands and feet...but finished capecitabine last tues and was seen that day cos Id be away this week......going to have 2 weeks off whilst away...they are improving as is my fatigue so hopefully all good for the holiday......markers were stable last week.....Good luck to everyone awaiting results or to start treatments....be back soon!!xx
Good morning ladies - just a quick post as I haven't caught up on how everyone's doing yet so will work through it later. After going to my home on Wednesday morning I ended up in my local hospital with neutropenic sepsis that evening and just came out yesterday afternoon after being on IV antibiotics and having a platelet transfusion. Fortunately I have felt well the whole time, it was just that I recognised early on that things weren't quite right.
Hope everyone's as well as can be expected. Will check up on you later and post again. Off to try for a PICC line again.
I have a matress cover/topper on my bed at home I also take one away with me if I'm not sure about the bed when I'm away from home! It does mean you have a litle more in your luggage but they roll up and are light and can be left in the car boot if it turns out you don't need it.
jenny29, I can't sleep on hard beds any more either - when I'm away I often end up sleeping on top of part of the duvet or I'd get no sleep. Not so easy when it's cold or if sharing the bed though. At home when I had a hard bed I bought a memory foam mattress topper which helped.
Me again. I've just remembered an issue I keep meaning to ask about. Beds! Does anyone find softer matresses suit them better? I'm finding when I go away and stay in a B&B the beds are so hard. I find them too hard for me and have had some very uncomfortable nights. I dont know if its my bad back or my bone mets.
So many posts since I posted a few days ago but I love the support that everyone offers to each other.
Cant remember if I've already said this but FYI bone mets diagnosed june 2013 and have been on denosumab and tamoxifen (with side effects) since. Take clonodine and paracetamol. I've had a 'bad back' for many years which gets uncomfortable and achy but my oncologist told me it was a seperate thing. It does mean I find it dfficult to know what aches are related to the mets.
Friday was a typical example: night a mixture of sleep, hot flushes and achy legs, woke up achy, did a couple of hours work and went into town on a few errands, by the time I got home (about quarter of an hour walk) I was tired and a bit stiff/achy, so ignored the housework again (which always aches) and had a catnap.
I have my next scans coming up, which feels a bit scary as in the back of my mind is the thought that at some time, things are going to get worse but I dont know how/what and when. Then I get that feeling that there might be something more I could be doing to help myself and in some ways there is but in other ways it seems like an illusion. Anyway, that's my rant for today and I remind myself that there are things I can do today. I can see a patch of blue sky thr my window.
Hugs to anyone who wants them
I've been using the site on and off since my primary dx back in 1999, I have been more involved since my secondary dx in 2010 and though I do use other forums I feel a real fondness for BCC as it has been there for me through all my journey.
I have met and made some really great friends on these forums, specially this bone thread, it's always been a particularly supportive thread.
For all those new members posting or just reading II'm sorry you are here but glad you found us.