Thanks girls I will ring on Monday , I am not due to see Onc until end of January and I don't want to wait that long, Had an MRI to check for spinal compression and all was ok , but things can change quickly, I will let you know what happens next xx Jean xx
Hi Tillybob........If you are getting increased pain in the area of your previous treatment I would go back to your onc and seek his advice....he may want to repeat the MRI scan to have a look at what the bones are doing...and in particular to check they are not touching or likely to touch or damage your spinal cord.....I had a similar experience to you...my secondary disease presented with some pain and throbbing in my back....An MRI showed a collapsed T4 in contact with spinal cord...I had emergency radiotherapy to the area over 5 days...that was nearly 4 years ago....I asked re repeated radiotherapy if necessary.......I was told that the concern is the total dose of radiotherapy given to your spinal cord.......too much can cause damage similar to the cancer.....so they would have to think about it....plan the direction very carefully,and consider how long since the last radiotherapy dose............personally if I started to get pain in the same area I would be straight back to the onc........better for him to review everything than for the GP to do it second hand........good luck...Pamx
Hi Ladies, I wonder if any of you could give me some advise, to cut a long story short, dx Feb 2011 with inflammatory Bc , secs found in lungs and T4 of spine, after usual treatments lungs now clear and spine was showing damage due to cancer but no evidence of active cancer, In April of this year i started with increasing pain around the area in spine, eventually after bone scans it was shown that the bone in spine had crumbled onto nerves so i had 5 rads to the area in July, although the pain never went away it was much improved , however the pain is returning , at the moment i am managing the pain through my GP , my issue is, do I go back to my Onc or carry on with pain meds ? My onc said the damage in the bone would probably never heal , can i have more rads or is it as I suspect a one off treatment, Really don't want to experience the terrible pain i had before. I had a CT scan after Rads and Onc was happy nothing sinister there, but it is always a worry.Thanks ladies.xx
Hi Bev,,,,sorry to hear your news...glad you are feeling a little better and well cared for......Im just back from BCC meeting where you were missed and everyone sends best wishes.....Everyone spoke about the inequalities in access to treatments accross Wales let aone between Wales and England....and although there was a lot of words they did appear to listen a little and have promised to return to feed back any progress in 6 months or so.........so we will be expecting your input then!...in the meantime hope you are feeling better soon. (((hugs Pamx))
Morning Ladies, just want to say a quick Hello to all of you, especially those of us who are so unwell at the moment.
Bev, I don't think you should suffer like that for so long? Sounds like you are having an extreme reaction to chemo and/or injection?
Can you contact chemo ward for advice again?
My hospital gives me a chemo record book, with a traffic light system for all possible side effects. You are in the red in my book, with is classed as contact hospital immediately for advice?
I think the thing is, we all have different pain thresholds, but obviously nurses and doctors can't assess if we are 'wimps' or not? Without seeing you, they could be making general assumption on expected discomfort level?
If you are the kind who can tolerate a high degree of pain without complaint then let them know.
Sometimes being brave and just bearing it just makes it harder for ourselves?
Stay strong everyone
(The other one. haha)