Hello, Liz, just dipping in to this thread, but couldn't resist telling you how good the Portacath is. It is marvellous - everything is so easy with one of those. Good luck at assessment! Best wishes, Barton.x
Hi Lemon Drizzle,
He is much better, thankyou for asking!
He was very clingy all day yesterday, think it really distressed him, he didn't know what was going on!! We just have to keep an eye on him. If he has another one, we have been given Diazepam as a suppository that we are supposed to shove up his bum (while he is fitting, I hasten to add), and take a video too if we can! That should be interesting!!! Has your dog suffered with epilepsy too?
So, he and I had a duvet day yesterday watching a lot of TV, hot water bottle, copious cups of tea, and of course, the pain killers!! He aslo had a brand new bed, made of memory foam, which looked really comfortable and snug!!
Off to see Peter Gabriel in Wembley tonight -first night out this week, and I really need it...And tomorrow to Oxford for a Living with Secondary Breast Cancer conference...
Have a great rest of the week and weekend-love your pseudonym by the way!! Makes me feel like cake every time i read your posts!!
Love and hugs
I'm another with mets (bone) who hasn't had a mastectomy or lumpectomy ... just chemo.
18 months on I'm writing this from work (full time, out of the house for 12 hours per day) and on oral chemo (Capecitibine), still enjoying life ...
hi fergal - I will try and answer some of your questions.
Blood tests are always done prior to chemo to make sure that all is well, especially as treatment progresses as the chemo knocks out a lot of the good cells and it takes them a little time to bounce back. Chemo would not be given until they had. Yes some hospitals will also do tumour markers.
The steroids (dexamethasone) are given to prevent nausea and also any allergic reaction. It really is very important to take these as directed but one word of warning - the last dose of the day needs to be take early or she will be buzzing all night.
This is the first time I have heard of being offered reduced dose of the first one - personally I think it is an excellent idea. Taxotere is a very strong chemo and most people find it pretty gruelling and need dosage reduction as they go on. A lower first dose might help the body adjust or indicate if it could tolerate a full dose. I am not sure what the P one is. Herceptin as a pill is fairly new. It is normally given intravenously. I have found over many years that I never had any side effects from herceptin.
It sounds like the new drug they are talking about could be kadcyla which is currently not being offered by the NHS (too expensive) so is being funded by the Cancer Drug Fund but not for much longer as they have said they are cutting out the 25 most expensive ones. But that would only be given if there was progression on herceptin. It is in fact herceptin + a chemo - so herceptin targets the her2 on the outside of the cancer cells and carries the cancer element to release it into the cells.
I hope all of this makes sense and I am sure others will be along and fill in the gaps. So do ask if anything isnt clear. It is hard when you want to be with your mum, but she takes dad with her. Does she know how much you would like to go - maybe ask dad if you can take it in turns.
Forgive me for intruding into your friendly supportive chit chat but I am wondering if any of you lovely ladies were diagnosed with Bone Mets in the arm?
I was originally diagnosed in 2008 ( 16 LN involved ) and have been suffering with pain in my arm & elbow area for ther last 6 weeks. Waking me at night. I don't have lymphoedema.
Had an Xray through GP , which showed nothing obvious so I have now been referred back to my oncologist ( last had a bone scan in 2008).
I would really appreciate any insight anyone can give me!!
Take care Bethy xx
I am 55, and my first diagnosis was at 39!
My beautiful Working Cocker Spaniel Archie had a full on epileptic fit this morning-never had one before-my other dog Rosie was barking her head off in the kitchen,and I was waking from a zombie like sleep after Amitriptiline and sleeping tablet last night!!!
Frightened the bejezuz out of me, he was writhing around, licking his legs in the air, banging into cupboards and doors, whining, frothing at the mouth, falling down, pooing and weeing everywhere-it upset me sooo much! I am finding that I can only cope with what I am going through-the normal safety net I have in terms of coping mechanism has gone, so the slightest thing tips me over.
Off to the hospital, taken bloods, he has calmed down now, so I have something else to focus on today-looking after my baby boy. A good excuse for a hunker down under the duvet with a hot water bottle, Archie, a cup of tea, and a good film!!
Have a great day ladies, starting to get a little stressed that I haven't done anything for Christmas yet!! You all sound really frigging organised. You put me to shame!!
MRI on Spine next week to check for progress (in a good way hopefully!!) two big toes blistered, scaly, and potentially infected so have anbtibiotics to take just to make sure I am able to go again with Chemo in a weeks time. last dose of Cape tonight, then one weeks break from it. Hooray!
To all of you waiting for results, having scans or appointments, having a tough time with side effects, I send my virtual love and best hugs- we are in this together ladies, and together we are stronger!!
Morning everyone, thankyou for your lovely responses, its so nice to talk to people who understand really what your going through. Im 43 and have two boys 7 and 11 and only pray Im here to watch them grow up but after reading all your posts you have given me hope.....and I thankyou for that.xxx
Have a good day everone i'm busy studying, im working and training to become a Pharmacy Technician, i'm still off work at the moment but still carrying on with my course work.....something to take my mind off it all. Going to go back to work after Christmas.