Good Morning ladies another sleepless night for me again! I'm still not in bed yet because my mind is doing a wee bit of overtime lol! I hope you all slept well last night and I hope you all have a great Saturday & as painfree as possible! Enjoy your weekend ladies whatever your doing! Sending you all big hugs xxxx Maxine
Happy Birthday for Monday Helen & Have a great time away and don't forget your mickey umbrella lol. Yeh I can identify with the Christmas blues I think quite a lot of people do a fair bit of crying over & after the festive season! I hope you have a brilliant time Helen & really enjoy it! Sending Hugs to you xxx Maxine
Cw11.you will be pleased to know on this occasion you are completely wrong!! A performance status of zero implies no limitations on activity and fully functioning! Sometimes you have to be fairly fit to undergo trials etc...ie a performance status of 0 or 1. ...zero being the best and 5 being the worst.....
Mowser pleased to hear you got insurance with MIA....its my favorite company to try but unfortunately my next panned hols are a cruise in feb...which MIA wont cover so have used eurotunnel.....will be interested to hear about your car!!
So Cw17, it couldnt be any better!!!
So please stop worrying now, and you go and enjoy the rest of your day you lovely lady!!!
Cw17, have no fear you have a researcher here!!!
It is a scale used to detemine your current state of health given your cancer diagnosis. It is scaled in intervals of 10's running from 0-10.
Your 0 reading is fantastic!! This is what it means......
Asymptomatic (Fully active, able to carry on all predisease activities without restriction)
Hello to all you lovely ladies. Just wanted to echo all the New Tear comments that have been posted. As i was expecting i found it all very emotional..just so hard to keep putting a brave face on everything. Its so comforting to know you are all out there knowing exactly what it feels like.
I wonder if any of you can help me.. I went to hospital on Xmas eve to get next cycle of cape and saw the oncology Dr instead of my Onc. I got a copy of the GP letter on New Years Eve (why i opened it on that day i have no idea!!)...it was headed 'palliative chemotherapy'..which really depressed me...somehow seeing it in writing makes the seriousness of it all so much more real. It also said 'Performance Status:0' and i have no idea what this means but as usual think the worst. has anyone got ny ideas?
Sending very best wishes to al. xx
Way to go Jenny!!
Its women like you that give so many of us on here so much hope and inspiration. You keep it up!!!
Have hit the ground running today, this the second day of the New Year...
My heating and hot water have been fixed!!! Having a hot bath after I finish this email!!
Have started looking at Motability cars (soo excited-mine is an absolute tin pot worth nothing, and falling to pieces). Have got confirmation of travel/medical insurance for our planned holiday end an to Mauritius-our first holiday for 18 months! Thanks to all who gave recommendations-we have had a quote of £352 from MIA for two of us for 10 days which I think is quite reasonable actually given our respective chronic conditions!! (He, heart, me sbc!) I was explaining the fact they repatriate back to the UK if we get sick over there to my partner, and he said 'Knowing my luck, I will probably die over there, and me, the half full kind of girl, said 'Yes but they will still bring you back, just in a box!!' Our humour is positively gallows these days!
We have found the Hotel we want to stay in!! Booking today. Have made appointment for doctors to get relevant jabs/malaria shizzle and letters confirming fit to travel etc. Even called the Mauritian High Commission to confirm it is acceptable to take Oromorph with me (recommended to do by insurance company).
So am on a roll today, and despite my liver pain, feeling excited!!!
Hope all you lovely ladies are having a good day, are not in too much discomfort, and are enjoying every moment. This is one hell of a roller coaster ride (I was soooo down yesterday), but I am making the most of this upturn in my mood, and am all the better for having you guys to share it with.
Its a beautiful day out there, sun is shining. I have put my daughters xmas present of a bird bath in the apple tree, and it looks lovely.
Huge hugs to all of you.
Happy new year and echoing the wish for it to be a kind one.
Spent the celebrations quietly, which was fine. It was wet here. Toasted another benchmark.
Hard to believe I've reached 2015 since getting my first diagnosis. I've just realised it's 10 years. Found a lump the xmas of 2004.
Thank you all so much for the support on here, it's been invaluable.
Good job Mavis-way to go!!
You get Stoic award of 2014!!! So so pleased you are feeling better, long may it continue
Hugs always, Mowser xxx
What have I done? My Happy new year has got mixed up with fintys post don't know what I have done.Computers and me are not good friends arghhhh .
Happy New Year Everyone
I was dx with a bone met at original dx in Oct 09. Recently I have been shamelessly picking the brains of other ladies with bone mets wherever I find them, and have found the process very helpful and often encouraging. It has enabled me to be less panicked about my prognosis, and given me a much better understanding of my condition. I now have a whole new set of questions to ask at my next consult - bet my onc can't wait!
I know I would find it very useful to have a designated thread where experiences can be shared, and advice sought - so if you agree and also have bone mets perhaps you could check in here and we could get the process started. I know it's a bit quiet at the moment, with many away on holiday - but here goes .....
So glad things are so much better for you now. You have certainly been through it these past few months. I have been through a bad patch also where they didn't think there was anything more they could do but it just shows that you have to stay positive and you will come back fighting!
We all feel so low sometimes but like you I am in a much better place now. Hope you continue to improve daily.
Lots of love and good wishes for 2015. Xxx
Happy new year ladies.........quiet night after a meal out....now enjoying the New Years day concert from Vienna....(on the TV!)...Good luck to us all for 2015!
Happy New Year to all my bone friends ans everyone else who uses this thread.
I hope 2015 will bring us stability, effective treatments and strength to cope, alongside love, laughter and support.
Lots of love to you all xxxx
Happy New Year to everyone I wish you all a very peaceful and less painful and sick 2015! Let's party lol Sending you all big hugs from me to you xxxx Maxine.
Happy New Year from me too - I don't post much but read the posts every day and it helps me to cope.
Hi lovely friends,I am now back"I Think from the Brink",I have had the most dreadful time but now much better Deo Gratias if 3 stone lighter. Everolimus after Taxol again caused Diarrrhea, low sodium, low haemaglobin the lot!! then MRI found cancer cells in the space above the brain, so Everolimus replaced by Capecitabine, very mixed results from Cape, some diarrhea but worst I got the side effects "Foot Syndrome"lots of skin peeling and an ulcer on the heel, which has meant that chemo was stopped for 4 weeks, but slowly everything is healing and today I received my next months supply of Capecitabine and good results from blood tests. So now Storming Heaven for freedom from the "trots" and "rotting feet" It is quite a relief to talk with you all,using the desktop lately has been a step too far,My spirits are now on the up having sunk so low.One happy old Bunny!! Love and Light xxMavis
Happy New Year xx
Hands up. Am not going away. Just glad to be feeling a bit better! Low HB now though due to chemo. Will have 2 units of blood on Friday and hopefully next chemo next Tuesday.
Hope you have a fabulous New Year Chocolates. All the rest of you too. And those going away have a brill time!!
Love and best wishes, from Sheila. Xxx p.s. Natalie, enjoy that new car! I will be looking out for it on the Christie car park! Xx