Hello everyone. Can I give you a tip regarding backscratchers? Instead of using a spaghetti server, why not get a telescopic backscratcher from EBay? It goes down to about 5" long, and cost me 99p, postage free! I was amazed, but it is absolutely brilliant. I keep mine at work but am wishing I had bought 2! Hugs, Barton.x
Good morning to everyone.
I hope everything was okay Porky with your scans. There is always something to worry about with this disease but I am sure they will sort things out for you. I have only just found out that they were thinking of palliative care back in October but my daughter asked them not to give up on me. ( I was too lll to realise what was going on) they said they would not give up and here I am feeling much better and chemo is keeping me stable. Keep positive Porky.
I hope everyone else going through scans and appointments have good news.
Have you had your appointment yet Belinda? I hope you are OK.
Glad you had a good break Helen despite the insensitivity!
Chocolates, I hope you are well over the virus and back to normal. You deserve a break now!
Lots of love Sheila xx
Hi dear friends, dont want to be on the naughty step either, I am doing quite well still, now that I have some strength.7 days into Capecitabine and so far no "trots" feet are playing up again and district nurse is still dressing heel ulcer, which I believe Cape plays a major role.Am being lined up for a CT scan next week, slightly worried because the rib and scull pain is worse, managing with Paracetamol, had a bad reaction with Oramorph "eugh".Hope you had a lovely time Helen.Love,Light and Laughter xxMavis
Ps Do nay of you follow the American forum "inspiration"?I find it quite informative.
Thanks so much Bevlaar!!
I will ask the docs for a precription tomorrow, you are a star! Keep warm, hugs
I have resorted to lots of strategies like that-bringing my breakfast up the night before as I cant drag myself out of bed...Even sometimes the trusted pottie by the bed because I am too tired/feet have hurt too much to get to the loo-my Welsh nan would be proud!!
As I was having a wee the other week, squatted over the pottie/bucket with toilet paper in one hand and steadying myself on the bed with the other, I turned to my partner and said 'Who said romance is dead?' We laughed so much I nearly fell off!!
One question to all you ladies-I have terrible dry mouth in the nights. So much so that it feels as though my tongue has swollen and sticks to the sides of my mouth. I have a pint of water by the bed, But it does nothing-the dry mouth returns within minutes. Any suggestions about how you deal with this? It really is quite uncomfortable and disturbs my sleep which is fragile enough at the moment!!
Thanks Mowser xxx
Post code lottery again. I have read on here about tumour markers but the hospital had never mentioned anything about them to me. Last time I saw the onc I queried this. I was told the hospital doesn't use them as they find them unreliable and prefer to use scans which are more reliable. It's just a bit thought prevoking when you read some people are getting this that or whatever and you are not but I suppose we are all different so treatments will vary. I am on bone strengtheners the one that starts with Den something or other (the same as geordiex) I cann't look back to see how to spell it! I get itchy especially at night so have to slap on more moisturiser than I've ever used before. I even keep a spagetti server beside my bed to scratch the unreachable parts!!!
Good morning ladies
Very quiet on this thread kast few days so hope everybody is doing well as can be expected.
I have not been well for last few weeks with swollen abdomen so emergency ultrasound and appointment today. Am really worried - usually take things in my stride but havent been able or feel like eating since Sunday so there is obviously something very wrong. But enough about me - hopefully Helen is having a whale of a time with Micky and best wishes to evetybody else having scans and results in the coming weeks. Jackie xx
Hang in there Kenni,
Even if they need to switch treatments, there are plenty more of them to try.
Something will work, and then something else will work after that. It is just about keeping one step ahead of the disease-they are getting quite expert at it. I am in the same boat-waiting to see if my new treatment is doing anything to halt/stabilise the liver and bone mets...
You keep the faith and try not to worry,
Thanks Lynn q and Belinda.
I am going into get blood tests done so he can see TM results when I see him on Tuesday. Thing is, my tumour markers had dropped again slightly the last time I saw him, yet my CT scans showed new lesions and the original liver mets starting to grow again, so I am not confident now in reading into the TM results as I had been before.
Even he was a little bemused about why the TM results had dropped, yet my liver was showing signs of kicking off again-I had pushed for the scans earlier as I had not been feeling great, and I am glad that I did because if he had just relied on the TM results, as he had been doing in between three monthyl CT scans, we would have been none the wiser over Xmas and the New Year and it would have delayed going onto a new treatment.....
Can you help please? I have mutliple bone and liver mets, bone mets mainly in two places on my spine-where two of my vertebrae are completely replaced by cancer..
I had been on Cape for 9 months and four weekly Denosumab injections, but last consult showed progression of liver mets so now have been switched from Cape to Letrozole. Dont know how this is working for me-will find out a week on Tuesday when i go back for my blood tumour marker results. Can you tell me what are Zometa injections and Adcal for? I only have Letrozole and Denosumab?
Also how long did it take for the Letrozole to kick in and start working? I am still getting liver and back pain, so am obviously a bit anxious that the Letrozole is not doing what it should? Can you get pain even when it is working?
Helen, just wanted to add birthday and happy holiday wishes for you before you go, have a fab time!
I think the virus might be coming to an end , yipee! Not coughing as much and feeling more human, it's been a nasty one but thankful it's on it's way out.
Not much to report on really as not been out of the house since 23rd! Have been reading all your posts though and hoping for a good start to the New Year for us all xx
Thank you Mowser and Pam 01....you have certainly put my mind at rest. However, i have no idea why the Dr has put this as i certainly cannot do all pre disease activities...indeed finding it hard to function properly on most fronts, can only think he may mean there are no symptoms which are bad enough to prevent me having my next cycle??? xx
Morning everyone. Bev good luck with treatment and aftermath! Helen happy birthday...have a great trip......ive taken off my engagement ring nad wedding ring because my hands became sore and itchy esp under rings and I couldnt get to it.....also easier for constant moisturizing!......great for trips to eg eurodisney when you can keep hubby on his toes!!
Chocolates hope your cold resolves over the weekend...a pain when it ruins your hols!!
Best wishes to all....
Bev, good luck today take it easy, and get a lot of rest. 🙂
Helen have a wonderful holiday-I have never been to Disneyland in Europe or USA-think I may need to plan a trip-it sounds so fun, we are all big kids at heart!
Am off to walk my beloved spaniels today for the first time in four days-slap wrists-I hate it when they miss their walks, but I just have not felt up to it with everything else that is going on. They do get the run of the garden when they are not walked, and I at least try to throw the ball for them a bit out there to compensate!
Tonight am off to see cats at the London Palladium-an Xmas present for my daughter who has a girl crush on Nicole Scherzinger. My son and partner coming too so am really looking forward to it-its a great musical!
To everyone else, have a good day, good luck with your treatments or results, be as pain free as possible, and enjoy as much as you can!
Helen have a lovely break and a fab birthday! Give us the details when you get back won't you.
Love Sheila. Xxx