It is perfectly normal to worry about things progressing-you have been doing brilliantly so far, and the fact that Capecitebine has worked as long as it has, I think is a very good sign that what you have is a slow growing, unaggressive form of the disease that responds really well to chemo!
So you could carry on this for years yet!!! Even if, at some point you find that it has progressed, you do not need to be overly concerned, because even if it does,there are lots (and I mean lots) of alternative treatments to switch to, that can be just as effective as Capecitebine!!
So you keep doing what you are doing-try to put it to the back of your mind and carry on enjoying life-you are doing everything you can and as long as you are being regularly monitored you have many, many happy years ahead of you, I am sure of it!
Re blood pressure tablets, my OH has a large dose, as he suffered a massive heart attack last year, so is on all manner of different drugs including those to control cholesterol, and blood pressure and he is absolutely fine-no side effects. Blood pressure tablets are very effective, and safe!
Have a great Sunday with your family!
Love Mowser xxxxx
Had a MUCH better nights sleep, thanks everyone.
Way too cold to go outside today! Dogs would if we would!
Ellie on a health kick this month, so making her own Tomato and Basil soup as we speak....The OH has all the vegetables prepared for Sunday Roast Chicken dinner, (he makes the BEST roast dinner in the world) I have just booked a weeks holiday for us, dog walking in Pembrokeshire for early March.
Taken pain relief for my liver and back. May treat myself to a glass of wine with lunch-used to be such a party animal but am a lightweight now!!
Quiet day for us today-staying in from the cold. Helen I do hope you are feeling better and that your back pain has eased. Hope everyone else is doing OK with their Sundays...
Take care all,
Hugs Mowser xxxx
Morning ladies. Hope everybody is ok today - its lovely and sunny here in South West. Helen, I do hope you managed to get some relief overnight and are feeling better today. Big hugs xx
That would be upsetting. Dogs are part of the family. Some people are not as good with drink in them, he will probably be sorry about it this morning. Try not to worry about things-you have enough going on. You just take care of you,
Lots of love
Yes thanks, can go to bed now...Please God let me sleep tonight....
See all you lovely ladies tomorrow ...sleep well Helen xx
You tell her natalie 1!
Helen, we are on the (your) case now..Hope you have managed to get a medical opinion and some support with this today...
Helen, I am with Chocolates on this one. I don't know if you have ever had this type of back pain before, where you feel unable to support your weight, it sounds scary and painful and debilitating and you cannot just leave yourself high on pain relief for the weekend with no other support or a medical person to have a look at you.
You are so good at giving brilliant advice and support to others on here, this does seem like it would benefit from a medical opinion before Monday! At least then you will know what it is, that you are treating it in the best possible way, and you can get yourself better sooner. Please, please take care, and do call an emergency doctor for this-they will not blink about sending someone out to see you-and you are not wasting anyone's time..
Take care, I hope you get pain relief soon, please please call someone or get someone else to call someone for you. 🙂 xxxxx ❤️
Julie, I am thinking of you today-I didnt know Lesley, but by all accounts she was a wonderful strong woman with a lot of family and friends who loved her dearly, including you. Love and hugs to you.
Helen, I feel for you. I do hope the pain eases a little as the day goes on and you manage to get some relief. If it continues I woild be contacting hospital again because they should check you over if you are in that much pain. Take care,Jackie x
Hi Belinda - good to hear that first chemo went well - lets hope it continues that way. I had a port fitted in my arm before chemo last year. I pushed for one because I hate needles and it has been the best thing I did. My only downside is that because I have lymphodeama in my other arm it is difficult to have blood pressure taken as not all health care prof seem to want to take on leg. Also my port does not take the dye for scans so again have problems finding access for this so my advice woild be to try and get a power port fitted as these can take the dyes. I was terrified about the actual procedure but it was done under local and I didnt feel any pain. My understanding is that once done it can be used for chemo straight away so perhaps if it was possible to have fitted on week off when bloods at their best this woild limit infection risk. Good luck in your decision. Jackie x
Still awake, tea and hot water bottle cold, Pint of lime cordial and water drunk...*twiddles thumbs*
Taking the sleeping tablet now. Wish me luck...
A very nauseous, achey, bored out of my brains Mowser xxx
Well lovely ladies, looks like I am in for (another) sleepless night. 😞 I am beginning to pick up the signs.
This time I haven't bothered with the usual denial and 'giving myself the benefit of the doubt' lying in bed tossing and turning for hours until the gremlins arrive to mess with my head in the dark while the OH snores peacefully (for him) loudly (for me) beside me..
So I have sent him to bed in the advance party, made a cup of tea, a hot water bottle, a pint of lime and water (with ice), got two books, my laptop open, Plex on my wide screen TV, remote control at the ready. Even popped a sleeping tablet in my dressing gown pocket to ease myself into sleep when the time feels right.
I HATE these nights. I need to have as much stimulus around me until I am confident I can relax into sleep.
Jury is still out on my hair. I have fondly nicknamed myself Period Head.
Night night everyone. Hope you are all managing a lovely sleep. Very jealous.
Hugs and all
Bev so glad your nurse was on the ball, I have asthmaand so most colds etc go to my chest, the inhalers do help and you should start to feel mire comfortable with breathing.
Helen,I had a similar problem last week. When I was treated in London they used rtrospective blood tests for my Zometa, at the Sussex hospital I had to have bloods done the day before treatment, the Sussex hospital changed this several months ago and so back to retrospective bloods BUT different nuse this week, wouldn't do it, phoned pharmacy they were doubtful..... in the end managed to get her to ring the Onc who'd ok'd it. Eventually said she would do it, then we had problems with my port, nurse wouldn't listen to how we usually overcome problems...... not a good day but done eventually.
Am going to my friends (Lesley/Lemongrove) funeral tomorrow and am feeling so sad and angry. I'm glad that Lesley has now finished this journey and is at peace but I hurt for her lovely husband and her family and I wil miss her.It is a buriel so I hope it is a dry day.
On a more cheerful note I'm looking forward to next week as I will be meeting up with several other SBC women for lunch in London. It will be good to see some people again and to meet others for the first time.
Hope you all have a good weekend xx
Oh dear Helen - it could only happen to you. I do hope you manage to get the pills later. Strange isnt it that we are now wanting all the horrible drugs we can get whereas before my diagnosis you wouldnt even get me to take a paracetomol! Bev - so pleased that you are getting some relief at last, I hope you feel lots better soon.xx