Hi to all of you.
I'm trying to catch up with the forum. Since my chemo last Tues I have been so tired and I feel that my HB has dropped again. Have had inj for low white cell count. Have also got mouth ulcers. Thank goodness I don't have chemo this week. Hope I feel more normal!
I notice a lot of us are suffering at the moment. Helen, I hope you get that pain sorted tomorrow. You can't go on like you are.Mouser I hope you get a proper sleep pattern. I have been throughout that and it is awful being awake when everyone else is sleeping. At the moment I can sleep for England!
Natalie, I really hope all your results are good. Like me though you are at a good hospital should you have any problems.
Desi, my oh doesn't go out and get nasty but he has a quick temper and forgets sometimes that I am ill and it's very upsetting when you are feeling low to start with. As for dogs, our two are spoiled rotten! OH took them on the moors in the snow this morning. The young one loves it!
Chocolates, hope you doing OK too. Thinking about you.
Good luck with treatment everybody.
Love Sheila xx
Hi everyone, all well here, doing well on Cape am on my week off,am suffering the opposite of "trots" this time though.Helen so sorry you are in Pain,I do hope that soon subsides.Mowser I have had insomnia for many years and finally did a CBT programme online called Sleepio, Boots sell the 3 month version or you can purchase the course monthly online and can try a free trial, the forum members are very helpful.Since my secondary diagnosis,I have found it more difficult to put into practice the advice given on the Sleepio course, my mind is playing many more tricks and the pain from my "foot syndrome" doesnt help.Hope you have all had a lovely Sunday,very cold and icy here in Merseyside.Love and Light xxMavis
It is perfectly normal to worry about things progressing-you have been doing brilliantly so far, and the fact that Capecitebine has worked as long as it has, I think is a very good sign that what you have is a slow growing, unaggressive form of the disease that responds really well to chemo!
So you could carry on this for years yet!!! Even if, at some point you find that it has progressed, you do not need to be overly concerned, because even if it does,there are lots (and I mean lots) of alternative treatments to switch to, that can be just as effective as Capecitebine!!
So you keep doing what you are doing-try to put it to the back of your mind and carry on enjoying life-you are doing everything you can and as long as you are being regularly monitored you have many, many happy years ahead of you, I am sure of it!
Re blood pressure tablets, my OH has a large dose, as he suffered a massive heart attack last year, so is on all manner of different drugs including those to control cholesterol, and blood pressure and he is absolutely fine-no side effects. Blood pressure tablets are very effective, and safe!
Have a great Sunday with your family!
Love Mowser xxxxx
Had a MUCH better nights sleep, thanks everyone.
Way too cold to go outside today! Dogs would if we would!
Ellie on a health kick this month, so making her own Tomato and Basil soup as we speak....The OH has all the vegetables prepared for Sunday Roast Chicken dinner, (he makes the BEST roast dinner in the world) I have just booked a weeks holiday for us, dog walking in Pembrokeshire for early March.
Taken pain relief for my liver and back. May treat myself to a glass of wine with lunch-used to be such a party animal but am a lightweight now!!
Quiet day for us today-staying in from the cold. Helen I do hope you are feeling better and that your back pain has eased. Hope everyone else is doing OK with their Sundays...
Take care all,
Hugs Mowser xxxx
Morning ladies. Hope everybody is ok today - its lovely and sunny here in South West. Helen, I do hope you managed to get some relief overnight and are feeling better today. Big hugs xx
That would be upsetting. Dogs are part of the family. Some people are not as good with drink in them, he will probably be sorry about it this morning. Try not to worry about things-you have enough going on. You just take care of you,
Lots of love
Yes thanks, can go to bed now...Please God let me sleep tonight....
See all you lovely ladies tomorrow ...sleep well Helen xx
You tell her natalie 1!
Helen, we are on the (your) case now..Hope you have managed to get a medical opinion and some support with this today...
Helen, I am with Chocolates on this one. I don't know if you have ever had this type of back pain before, where you feel unable to support your weight, it sounds scary and painful and debilitating and you cannot just leave yourself high on pain relief for the weekend with no other support or a medical person to have a look at you.
You are so good at giving brilliant advice and support to others on here, this does seem like it would benefit from a medical opinion before Monday! At least then you will know what it is, that you are treating it in the best possible way, and you can get yourself better sooner. Please, please take care, and do call an emergency doctor for this-they will not blink about sending someone out to see you-and you are not wasting anyone's time..
Take care, I hope you get pain relief soon, please please call someone or get someone else to call someone for you. 🙂 xxxxx ❤️
Julie, I am thinking of you today-I didnt know Lesley, but by all accounts she was a wonderful strong woman with a lot of family and friends who loved her dearly, including you. Love and hugs to you.
Helen, I feel for you. I do hope the pain eases a little as the day goes on and you manage to get some relief. If it continues I woild be contacting hospital again because they should check you over if you are in that much pain. Take care,Jackie x
Hi Belinda - good to hear that first chemo went well - lets hope it continues that way. I had a port fitted in my arm before chemo last year. I pushed for one because I hate needles and it has been the best thing I did. My only downside is that because I have lymphodeama in my other arm it is difficult to have blood pressure taken as not all health care prof seem to want to take on leg. Also my port does not take the dye for scans so again have problems finding access for this so my advice woild be to try and get a power port fitted as these can take the dyes. I was terrified about the actual procedure but it was done under local and I didnt feel any pain. My understanding is that once done it can be used for chemo straight away so perhaps if it was possible to have fitted on week off when bloods at their best this woild limit infection risk. Good luck in your decision. Jackie x