not sure we can get a second opinion in England any more, you have to apply for funding as I understand it.
Nothing much to add as all the other ladies have said it. Im so sorry Bev that this particular treatment has stopped working, but don't give up-there will be other treatments that could work-speak to your McMillan nurse or doctor for guidance-we are all here with you lovely lady.
Hugs and lots of love,
Thinking of you Bev & sending big ((((((hugs)))))). Really sorry the docetaxol didn't work out but I'm sure there are more drugs to try & a second opinion is a good idea.
and as we learnt last night at the Welsh Assembly...north wales have agreements for treatment set up at the christie /liverpool etc because there is no tertiary level of service in north Wales....the treatment given is that agreed by the Welsh assembly...not necessarily the sameas English pts when the drug fund was available to them.
Bev, when I was an in patient in the christie a few months ago there was a lady having radiotherapy Mon to Fri. She lived in Anglesey. She would go home Fri after treatment and come back Sunday evening ready for treatment Mon. Her bed was saved over the weekend. The treatment lasted 6 weeks. I don't know how it was sorted out but she was happy with the arrangement.
It's worth a try Bev. I is a great hospital.
Love Sheila. Xx
Bev...so sorry to hear your news........just a few thoughts which may or may not be helpful.....By all means ask about a second opinion...either to reassure you you are on the right course or to make alternative suggestions. Im sure Prof would see you...but would be discussing in the same MDT meeting with access to the same trials unit so not necessarily a true seond opinion......but still maybe helpful to talk things through with.......you have been very unlucky that the first 2 treatments offerred have not worked...and that doesnt mean the next thing on offer wont. Nor does it mean the treatment has been wrong or that there is better on offer elsewhere....everywhere treatments are kind of trials and no one can be sure they are going to work until they have been tried..they are just going for best guess....Maybe other trials will be on offer elsewhere and that is why it may be worth going further afield for a second opinion....worth getting advice with regards to this from your own consultant or prof.....they wont feel offended or be trying to stop you having access...they know the score and will want you to feel you are having the best available....In the meantime its worth going with the new chemo........its bound to take a bit of time to organise a second opinion.
I didnt quite understand how you ended up on chemo and hormone treatment...did he go with your suggestion?....Is that what you wanted?
Good luck with all of this...Pamx
Oh Bev, I'm so sorry to hear your news! I can understand your devastation at the news. You have suffered so many nasty side effects from this chemo, and now this one has let you down! All my thoughts are with you, and all my hopes that the next chemo works for you. Love and hugs, Barton.x
Bev im so sorry for you and can only echo what others have said NOT TO GIVE UP. There will be a treatment that works for you and I hope and pray that it is the next treatment.x
Bev, I'm so sorry you have had this news but taxotere did not work for me last year and I ended up with worsening liver mets. I have been on a kinder chemo vinorelbine for the past few months and this has kept me stable since last august. It is just finding the right one for you. I hope carboplatin and letrozole are the ones for you. DON'T GIVE UP!
Thinking of you Bev. Lots of love Sheila. Xxx