It is really interesting that we all have similar disease but have widely varying treatment plans!
I have triple receptor positive BC. Everyone was aiming for cure despite large tumour (8cm!! in an A cup!) and 11/15 nodes positive and grade III. I got breathless and a scan showed a bone met that was there previously but missed.
I completed the original plan - FEC-T and then 15 radiotherapy. I also started tamoxifen and herceptin part way through FEC-T. I have asked about denosumab but been told no need. My current plan appears to be stay on herceptin and tamoxifen. I am having 3 monthly staging CT scans. They may stop soon but because of lung 'nodule' will continue with lung scans. The nodule is not cancer apparently but has shrunk with treatment . I struggle with that as if it wasn't cancer it wouldn't change. I am not looking for problems so on a good day I just carry on as I did before diagnosis but take tablets and maybe drink more wine!
I hope everyone had a good weekend
Sorry to hear you're feeling down. You might like to join in our Secondary Live Chat service which runs every Tuesday evening between 8.30pm and 9.30pm here you can talk openly in real time about your worries/concerrns with likeminded people. The service is hosted by a nurse who is here to help answer any questions and a moderator is at hand to help on the technical side. The regular users of this service are a wonderful support to one another and often the chat becomes light hearted which I am sure helps when you are so worried about what is happening to you. I will put you the link below, have a look and see if you would like to join us - you'll be made most welcome.
Very pleased it went so well and that you feel so much more reassured....its good to know there is very logical thinking behind the plan isnt it......We are very fortunate that we are treated in a centre where there is an MDT for ladies with secondary cancer...it by no means happens everywhere even though it is one of the standards of care for treatment of secondary cancer......hope you are able to sleep more soundly tonite. hugs Pamx
So pleased that it went well today Bev and the nurse sounds wonderful. Hope you manage to get a good nights sleep.x
Bev, so so sorry dont know what to say to make anything better for you...i just want to echo everything everyone has said. I know its hard but please dont give up..easier said than done, i know. Everything crossed that the next treament works. I have has doaxetol and capecitabine (skin mets) and my next thing is Letrozole ..lets hope it works for us both. sending huge hugs,xx
So confused about when they decide anything is significant or not! Thought scans were always more reliable than TM's...the onc is always saying that.....
...yet, I saw my TM dropping slightly last two times I have seen him, BUT my CT scans show growth in the liver tumours AND new liver mets, but he has kept me on the same treatment - that I dont think is working for me. I am in a lot of pain and discomfort unless on strong pain relief....Have told him about pain, and he just said try peppermint oil.
Worried and confused....
Good luck Bev......Im off to the big shiny place today as well for MRI/CT.... results tues....maybe see you?xx