Good morning,, I had spinal cord compression,I was in a lot of pain and felt awful. I had emergency 5 day course of rads. AMAZING, in such a short time I went from hardly being able to walk , or stand for long to pain free, homestly ! Good Luck Marie x
Hi everyone wading in with best wishes to Helen, I saw my onc yesterday but we are all waiting for scan results to see if the treatment I started (e&e) is working. I am on 3/4 of recommended dose for the last 4 weeks side effectds are manageable. I feel ok but a bit scared now as Bev feels well and had had a shock progression! get scan in 2 weeks and then 2 more weeks before results, Hope you are doing ok Bev and feeling more positive with the info you have had from the forum. Best wishes to everyone suppose
I will always feel like this now it's part of life with secondary cancer, feeling low x
Helen, hope today gets you the tests you need and then you can go home. I hope you are feeling much better. We are all missing you.😢 lots of love Sheila. Xxx
Morning chocolates...God i feel so angry about the way Helens being treated..,they certainly seem to be dragging their feet! Lets hope she gets her temp sorted out soon, in the meantime I'm sending double pair of angry eyes!!
I have posted an update on the Brain mets thread this morning if you can read that. Im feeling so well at the moment apart from the shock of course... it makes you wonder how and when things will take a turn for the worst?
Anyway have a lovely weekend, love and hugs and please pass on same to helen xxx
Will be nice to chat to you tonight Marie if you can get registered and make it on.
Bev hope you now have your treatment plan, still holding you tight my lovely xx
Sorry about that. If you would like to send an email to: firstname.lastname@example.org with your forum user name and a password we will make sure you are registered for tonight's session.
It's Secondary BC Live Chat tonight starting at 8.30pm and running for an hour through to 9.30pm. The session is hosted by a nurse and a moderator is also at hand. We look forward to welcoming users old and new to Secondary Live Chat - it's a great way of getting to know your fellow forum users a little better and sharing your knowledge and experience.
Here's the link to live chat http://www.breastcancercare.org.uk/community/chat
Come and join us, you'll be made most welcome.
Just wanted to pop on quickly and wish you as good an appointment as possble Bev. Hope that you will feel a little reassured once you have a treatment plan in place. Sending you strength - positive vibes and prayers are with you.
Sheila hope you don't have to wait to long for your appt and treatment start.
Helen hope you are starting to turn a corner and can get home soon.
Love to all you lovely ladies xx
Oh Bev, I just popped in here and read your dreadful news. Blast this crappy stuff! I'm glad you have an appointment tomorrow so you can get the ball rolling for answers and treatment plan. My heart and prayers are with you! (((((((((Hugs!!!!!)))))))) Funnyface
I'm sure you're not Bev. I won't be either when I get my appointment but the sooner tx starts the better. Love Sheila. Xx
Bev, i am really sorry to hear your news. I have brain mets now, found with ct scan but I had an MRI this morning and now waiting for treatment plan. Onc has asked for stereotactic treatment and I am hoping this will be possible as there are less SE. Also you can have it done several times if any mets come back or you get new ones. I have researched the different treatments and it is very positive but if you do research dont fall for the statistics. They will depress you. Treatment for brain mets has improved fantastically in the last few years and women are living for years after diagnosis. If you can get them stable and then make sure that the mets in other parts of the body are kept under control you will keep having MRI of your head and they can keep zapping any that may come back. They used to follow up stereotactic treatment with WBR just in case there were any micromets not showing up on scan but now some neurologists believe that if there are micromets there they will be found if they grow and these can then be treated with stereotactic treatment.
I don't know which tx I will be having yet until the neurologist sees the scan report but I hope it won't be long to wait.
Take care Bev, try to be positive. We can support each other through this if you like. Let me know how you get on tomorrow.
Lots of love Sheila. Xxx
Oh Bev I am so sorry to learn of your rotten news but stay strong lovely lady - your onc will have a plan for you that will work. As the others have said there are lots of treatments so one will work for you. We are all thinking of you.xx
My dear Bev, what a dreadful shock for you, you must be all over the place. I am glad you are seeing your Onc tomorrow, you need to know the plan of action as soon as possible. As has been said, the reatment will depend on where the mets are, how many and size, but there will be treatment. I know people who have had an op others who have had steriotatic radiotherapy and some who have had whole brain radiotherapy so hang in there and tomorrow you'll know what your Onc thinks is the best way forward. Holding you in my thoughts and heart and happy to send up a prayer if wanted. xx
So sorry to learn of your latest diagnosis, but I am glad to see that your fellow forum users are here quickly with support for you.
Please do give the helpline team a ring and talk to them, they're here to support you through this. Also if you haven't tried Secondary Live Chat, you will find some wonderful support there from the regular users. Live Chat runs every Tuesday evening between 8.30pm and 9.30pm and is hosted by one of our nursing team who is there to help answer any of your questions. I will put you the link below for you to have a look at. Give it a try you'll be made most welcome.
Oh Bev, I'm so sad to hear your news! It is so unfair! There are more treatments out there, so please don't give up hope! I know it's easy for me to say. All my thoughts are with you at the moment, and will be tomorrow when you see the Onc. I doubt you will need the angry eyes tomorrow, but I will have them prepared just in case. Many hugs and best wishes, Barton.x
glad to hear you are feeling better bev. Keep checking onto the thread to check up on you and catlady. Catlady - get well soon my thoughts are truly with you. This is tough - but doable. Much love
Just a quick note before I have to go out. Bev - so glad you are home safe, and beginning to feel a bit better. May the nasty cough clear up soon. Helen44 - so glad to hear of your good results and long may it continue. The others are right - it cheers up everyone to hear of someones good news. Helen - thanks to Chocolates, we all know you are improving (all be it slowly: slow and sure wins the race). Glad to hear that you, too, are feeling a little better. Take care and be kind to yourself. To everyone else - hope all scans, results, treatments, etc, go well and all se's are mild or, preferably, non-existent! Hugs to all, Barton.x