Hello Macie, I'm on Cap since about last July. I had 7 cycles of 4000mg per day, but found I had terrible breathlessness and tiredness that had gradually built up, so Onc gave me a 6 week break (which ended up being 8 weeks, as the 6 weeks started at the end of my rest week, and another week at the end because they didn't know if I wanted to go back on it or not ("stable" result from CT scan following break), so hadn't ordered in tablets for me. It did me a huge amount of good - and I came back on a slightly lower dose of 3600mg per day, which is working well so far (although tiredness is gradually building again). Hands and feet no-where near as bad as first 7 cycles, and am now on the last 2 days of tablets on my 10th cycle. Feel free to join us on the Xeloda/Capecitabine thread on the Treatments & Medical Issues board with any other queries, etc. Hugs, Barton.x
I'm sorry to hear of Lulu' s passing. This disease never stops breaking our hearts! Saddened, Funnyface
Lynnq, We did a big tour back in October. We did Indianapolis, Indiana..Albuquerque, New Mexico...Santa Fe New Mexico, ....Carl's Bad Caverns, Bid Bend Park, and the Alamo in Texas, then to New Orleans, Memphis, and Nashville. Hubby drove all if it. We saw a lot of beautiful country, but was glad to get home. My favorites were Carl's Bad Cavern, jeep tour of Big Bend, hot air balloon festival in Albuquerque (500 balloons), and air boat ride in the swamps of New Orleans. I hope you had a good time Lynqq! Funnyface
I am new to this group and NE caught my eye. Im going through the threads trying to make sense of what this means for me. I have only just had diagnosis and no idea what to expect but such an active forum looks positive. Guess this is a hello from me..
Hi lynnq. The tiny mets didn't show on the ct scan. That's why they thought I could have stereotactic radiotherapy but they did show on the MRI so have to go with that. Onc says he has several pts who have had wbr 4 and 5 years ago and they are still doing fine! I'll go with that! Lots of love Sheila. Xx
Hi lynnq, had my first wbr tx yesterday. Apparently a have some tiny mets as well as the ones pressing on the facial nerve so could not have stereotactic tx.
Anyway, I feel OK today. Had a nose bleed last night and a slight headache but nothing too bad...,.,...yet. Very tired though but have been for a while really.
Hope you had a lovely holiday.
Lots of love Sheila. Xxx
I have passed on the condolenceslove and support on the BCC site to Lulu's sister and family. As you can imagine there have been lots and lots of people expressing thier sadness and telling how much of a support and inspiration Lulu was. I hope that the outpouring of love will be of some comfort to her family
Hi Julie, thanks for letting us know about Lulu.would you pass on my condolences to her family? She was a very brave strong lady. R.I.P Lulu. Xx
Lynnq, good to have you back and pleased to hear you had a good holiday. Don't overdo the washing, it can wait! Where did you go, what did you do? Glad you enjoyed it and had energy.
I'm afraid I have sad news about Lulu. She died this afernoon. She was at home and had her family around her, she was comfortable and peaceful. She will be missed by many.
Do any of you know that the judge in last night's Poldark was the original Ross Poldark? I didn't know but hubby had seen it somewhere. Xxx
Good grief, Helen! That sounds absolutely disgusting (poogate, I mean). Yeugh!!! Other ladies seem to have been nice, though. Glad someone was treating you as human, not like your Onc! Glad you are home safe. Take everything easy. Chocolates and Marie, how did the pistols at dawn go? Who won Ross? Good luck to anyone having tests, results, treatments, etc. Hugs. Barton.x
Helen, Glad you're home! Gosh what a time you've had. I hope you can find a new oncologist after this mess. You deserve better treatment! Rest up and get some strength back. Gentle Hugs! Funnyface
So sorry for all having a bad time, you are in my thoughts and prayers. Good luck to all getting results this week.
However, I must say that Ross Poldark is mine, I have loved him since I was 15 . I will only share the books, they really are a good read.
Take care, I will have my angry eyes polished and ready if needed.
Just wanted to wish you all the best with treatments, thinking of us all with this horrible disease, and especially Chris, Lulu, Bev, Sheila & Helen at this time.
Pleased you had a good break away in Italy Nicky08 - catch up with you very soon.
Big ((((hugs)))) all round, love Helen xx
Hi Helen so glad to hear you are home and despite everything you still sound up beat. I had radiotherapy at the start of my treatment it was a bit painful at first but since then it is a miracle cure, no pain for 18 mths now. Are you able to change your onc? I had a registrar for a while she was nice but when I told her I was in pain she asked how long I said a few weeks and she said she wouldn't do anything unless I had been in pain for a few months. I wondered if she would like to be in pain for months! Anyway my brilliant breast care nurse sorted it out for me, but it does make you wonder!