No, No, No you are NOT a nuisance, just someone in a very vulnerable place. I am now going to get my polish out to make sure my angry eyes are A1.
Lovely ladies can I suggest that we allow ourselves this bank holiday off from our troubles, I know this is really hard, but I am really going to try enjoy family time and chocolate and not alow ****** to spoil it. Hoping the Easter bunny has remembered me (he had better or there will be trouble ).
Hugs and chocolate to you all
Helen, so glad to hear you are feeling a little better about things..its unbelievable the problems you have had. You are a very special lady. Take care.x
Sianie, please dont feel guilty for ranting on here and you never need to apologise. I know exactly how your mum feels and i have a pretty good idea of how you feel as i too have a beautiful caring daughter and it truly breaks my heart to know what i am putting her through. Everyone tells me i shouldnt feel guilty..i didnt ask for this...but you cant help it. I'm sure all your mum wants to do is crawl into a hole and not be a worry to anyone..thats certainyl how i feel a lot of the time. I'm sure she will rally soon...i know its very hard on you but all you can do is just keep loving her and coaxing her. Believe me, however bad things get she has a daughter who she loves very much and of whom she is very proud!! People who have no experience of this disease have no idea of the devastting effect it has on the whole family.
Sending love and hugs to everyone.x
Belinda, I hope the chemo doesn't knock it down on Friday. You need a little break. I'm not liking my chemo. Every time on my second dose of the cycle my white count is down, so I have to go back the next day for the neulasta. Just tired of infusions and injections. Sure miss just swallowing xeloda. I wish they had more oral chemos.
Yes I agree, I think we must be able to be honest here, in some respects it's the only place we can be, Marie xxxx
Helen I have been thinking of you lots. I met a school friend today who is a nurse , she was quite shocked by some of my experiences
eg "Madam , you have secondary breast cancer , there is no cure it can only be managed next."My husband and I were then led out the room . I wasn't even called by my name ! It still makes me cross along with where it had spread to being sent to me in a letter , not told in a consultation. I did change my onc.
Sorry if I'm sounding off again, but I think this is more to to with my anxiety than thw big C .
I think we we would all 'cope' a little better if there was a little bit mpre understanding. I apologise to all the caring good staff I know there are lots of you doing a fantastic job, just please have a word with the insensitive ones, especially Helen's onc.
love Marie xxx
Oh Helen, Your onc sounds depressing. I would check out the hospice to see what they have to offer. Then I would make my choices from there. Meanwhile you need to concentrate on what makes you happy and go for it! Hugs, Funnyface
Hi Helen, I go to a hospice to get my denosub inj every 4 weeks. My nurse is great and always lets us know of anything new coming up. It is good to get to know everyone and they really know a lot about pain relief etc . After a while its gets familiar and is lots better than hospital. I wish you luck xxx
Sianie, the chemo I was on for liver mets was vinorelbine and it worked very well. I had eight cycles but onc took me off it to give me a break as I was having low blood counts I am now on faslodex which is a hormone treatment given by monthly injection.I should find out in four weeks if it is working. I he so because it is an easy treatment! The onc has something else lined up for me if not and I feel I can always go back to vinorelbine. Different tx work for different people. Your mum could get something that works for years and if not there are lots of treatments out there. Good luck sianie. Hopefully your mum will soon get in a better place and then you can feel better too.
Lots of love. Sheila.xxx