Hope Helen soon feels much better chocolates. Thinking about her and wishing her all the best for a speedy recovery. All my love and hugs. Sheila xx
Very best wishes to Helen; hope they manage to get a handle on what is happening very soon.
Bev, thinking of you too; so sorry you had such a frightening experience - at least they are getting moving soon with the rads and I hope that they are manageable and effective, and that you can then try the next chemo. We all have such different responses to these treatments that I like to think that while there are options left there is always hope for improvement.
To Faraway and 3network3, I've just started Fulvestrant recently, along with a trial drug (something similar to everolimus). Had some nausea for a few days after the first dose but not enough to need anti-emetics. Nothing noticeable after the second dose (apart from minor discomfort at the injection sites). So will be interested to see what happens next week with the 3rd dose. Not sure if I'll actually be on it for very long because of the constraints of the trial - but my hospital does not pay for Fulvestrant normally (and neither does my second opinion hospital), so the only way to try it was on a trial and it seemed like it was worht a try as I've used up the other main hormonal treatments. Have you noticed any other side effects?
Faraway ... I'm in a similar situation as you, I'm 45 and had BC in Nov 2011 and was diagnosed with bone mets five weeks ago. I'm also on Faslodex now (was on Tamoxifen, but they took my ovaries out last year) and so I was on Letrozole. It's not that you can't try aromatase inhibitors if Faslodex shouldn't work, it' just that they might also not be effective. But like with everything else in cancer treatment, it is a matter of trial
I suffer from terrible sickness after the Faslodex, will have to ask for something against it next time. What SE's do you suffer from?
Love from Tine x
Chocolates, Please tell Helen I'm thinking of her. I'm sorry to hear she took a bad turn. Sure wish she could get a break.
Bev, You are on my mind too!
Barton here adding my best wishes, hopes and good thoughts for both Helen and Bev. So sorry to hear Helen has taken a nasty turn. Hugs, Barton.x
hello Chocolates, please give all my love to helen. i have been checking the site for updates on her and Bev. Please let her know I am thinking of her and of you Bev as well as you have both been so positive and welcoming on this site. SS
Chocolates - please send lots of positive vibes from me too. Helen has been through so much its just not fair but I will be thinking of her this Easter weekend and hoping that she soon is on the mend,xx
So sorry to hear about poor Helen.. She is very strong and I'm sure if they get this infection under control she will be much better. Please give her my love chocolates and loads of positive vibes. Lots of Sheila. Xxx
Yahoo Sheila! Now rest up and let your daughter spoil you for a bit!!
Helen, I can't believe they missed your breakfast. I'm glad your temperature is down and I hope you escape soon!
Thinking of you Bev!
Well done Sheila! Glad you've completed the course and hoping the SE's are not too bad. I know a few women who've had WBR and they felt the fatigue was the worst, so listen to your body and rest.
Thanks for update Chocolates. Poor helen! Please add my love to the list to be passed on, hopefully she will feel the love and support from here and it will give her an added strength.
Faraway, I'm sorry you are feeling low but can understand but there are still treatments out there for you and there are new drugs being developed and trialled sotry to hold on to that
Misty dull day here today. Hope all my friends here are having a reasonable day and you all have a good Easter with at least some chocolate! xx
Thanks so much chocolates. Am now home and finished with wbr. Have been wobbly but I am putting that down to calcium levels now. think we will see how I am now I am back on treatment for this.
Poor Helen! I hope they sort her out quickly. Let us know how she is getting on later won't you?
I hope you have a really nice Easter chocolates. I won't be doing much but my daughter is coming round. She only lives round the corner and she is a massive support.
Well I think another dose is called for before teatime. Take care.
Lots of love. Sheila. Xxx
Jjust a quick post a I am going for last wbr today!! I have been okay except for the tiredness. However my calcium is rising and my liver enzymes are slightly higher so onc bringing scan forward and will probably be going onto eribulin. Will have bloods done next week.
Chocolates, thanks for passing on the news about Helen. Would you pass on my love and hugsxxx
Bev, I'm sorry you had such a bad time this week. I will be finished with my radiotherapy today and apart from bad fatigue I have been okay. You are only on tables for a few minutes.
Belinda, I hope the blood transfusion helps to make you feel much better and you have a lovely Easter.
Natalie, I hope you have managed to get over your bad day and and that your scan results are good. Will have to go as it takes me so long to get ready.
I'm sorry if I have missed any one but I wish you all a lovely Easter and that you all have a trouble free time.
Lots off love.Sheila. xxxx
Janette, so with you on that one. I find that is the worst part of this ***** disease. My daughter is same age and although we have been lucky enough to see our children grow into beautiful people the tears never stopwhen we think of what we could miss....overwhelms me every time i look at her. It never leaves you does it? x
Helen feeling so bad for you. Hope they get to the bottom of this quickly!! Don't let them wave you off, you push for answers and treatment. FF