Thank you to all who sent me good wishes for my biopsy. I'm having a slight problem keeping up with everything that is going on, and who is who but hope to get with the programme soon enough. So apologies for no thanking you individually.
I have been reading about the awful treatment that Helen has been receiving at her hospital, and pleased to hear that she is coming home - you have given her fantastic support and advice.
I have been having lot of laughs over the quads, Rose and Marie, I hope for their sakes they are good babies and sleep alot. I feel at somepoint everyone might have to chip in and help LOL.
I went to the hospital yesterday to have a lung biopsy but had a spine biopsy instead, as it was going to be too difficult for the lung. I have to say that my care yesterday could not be faulted, everyone was so helpful. The Dr who did the biopsy was absoulutely excellent and could not be faulted. He couldn't beieve I was still smiling - but then he did make sure that I had no pain whatsoever, and still don't. This was followed up by a phone call today, and also one for my BCN who is going to make sure that I am discussed at the next MDT meeting on Wednesday. I am really pleased that finally things are starting to move.
Hope the sun is shining on you all.
Just ignore my post..julir Am going into hospital tomorrow. calcium levels up again feeling rubbish. Hoping I will feeling better after in a a few days. I will start chemo. ( eribulin ) next next week.. Hope Helen is ok
Lots of love Sheila xxx
Chocolate enjoy your shopping , don't forget to change the quads and wind them . Ross will send the odd sovereign . Thanks for the Helen update.
Give the quads a cyber kiss for me.
Hello ladies, hope you are all enjoying the weather. Well done to you all for last night and the 'Helen ' problem , a real united front. Thank you Chocolates for keeping us updated. Good luck and best wishes to Helen and Bev and all having treatment and results this week. However , there is some good news...
I went into labour last night . it only lasted 20mins. Ross was there , he was wonderful. What a surprise it was quads. all weighing in at 10 pounds. It was like shelling peas. We have named them:Billy, Willy, Dilly and Silly.
Mother and babies doing well. I am happy to say that Chocolates has agreed to foster them until they are 18. Thank you Chocs, so kind.
Well I'm back in my tightest corset , my hair is shiny and I have that twinkle in my eye. Ross and I are going to have a pasty and a pint , then ride off into the sunset...
Julie you are a star! Glad you know some useful info/contacts now we need to get Helen or her family to use them and get things sorted xx
Well done belinda! I thought it was a Julie, lets hope she sees the recent drama and can enlighten us advise Helen or maybe even be able to visit again (not trying to put any pressure on you julie if you are reading this as we know things aren't always possible)
Helen, completely agree. Nothing we can do unless wanted by Helen, but definetely sending love support and strength to dear Helen xx
Our posts must have crossed Geordie. Don't know if Helen has changed Onc r not but even if she hasn't there should be other Oncs that can see her in his absence, I really do not understand how this is happening to Helen but there is something terribly wrong somewhere
if we can find out which hospital then something can be done. Contacting the local media could be a good idea....... or wrting to the Chief Exec of the hospital. Anything done would have to be with helen's permision though. Don';t want to do anything on behalf of Helen without her authority or permision. By the way does she have a partner who can help her out? Helen when you read this: we are all concerned and angry on your behalf. I personally feel frustrated on your behalf so god alone knows how you must feel. I hope you can feel all our best, best wishes xx SS
I know there is a Julie that goes to the same hospital but not sure of her user name, I think it probably is Geordiex, I think I know the name of the hospital but don't think we are allowed to post that info on the boards.
Natalie glad there was no hunting today but the chap sounds a bit strange, have never been quized like that myself. I have a port but my hospital won't/can't use it for contrast so still have hunt the vien. It is usually more uncomfortable than painful unless the canulla is deep, maybe that's why it hurt. Keep an eye on it though as there was one ocassion when the contrast leached into my tissue and arm swelled and was red, had to go to A&E but just told to rest it drink fluids and go back if it got worse.
I am so angry about the way Helen has been treated, or not treated! Surely there must be other Oncs there who could see he if her onc is not around. PALS is a good first step but I think an official complaint shuld be made on Helens behalf, maybe her husband could write to the head of ncology or even Chief Exec of hospitsl/Trust. I think there is a Maggies at that hospital maybe they could give Helens sister some advice?
pippie hope all went well for you and not too uncomfortable.
Best wishes to everyone on the thread xx
I am so incensed with this treatment of Helen. What can we do as a group of people? Does anyone have any ideas? Bad treatment like this cannot go without anyone doing anything. Helen is far too ill to do much herself. Can BBC charity do anything. make a formal complaint... I don't know something. If anyone has any ideas I wiull sign up for it. Personally I can't think of anything.