I have been reading through some of your posts and wanted to start with how amazing this community is, you are a fantastic network of people.
My Mum has just been diagnosed with bone mets this last week. She originally had breast cancer in 1991 which was treated with a mastectomy, radiotherapy, chemo and tamoxifen. We have had a long time thinking she was cancer free and now they say she may have had the secondary for 20 years without knowing.
They are starting her on hormone treatment and looking at radiotherapy again. She will have a bone scan sometime soon.
I appreciate that in many respects she has been one of the lucky ones to have gone so long after her primary was diagnosed but this has still come as a shock and I am struggling to find answers regarding what to expect in the coming months and years. Family (except Mum) have kind of blanked out the news after the initial relief that hers is a slow progressing situation.
I'm hoping that maybe someone can identify with this situation and maybe give me some pointers as to what questions to ask and who might help me with some answers.
Thank you for reading x
I was reading the thread while I was on the phone to Eurotunnel...
If your GP writes a letter to say that you were fit to travel at the time of booking you are OK if you cancel.
If you make a claim, they will need a note of your GP to say that you were fit to travel.
The only thing you need to tell them is that if you have been given a terminal diagnosis (less than 6 months).
I hope it helps and that you have a donderful trip in NY.
Hi ladies, hope you are all okay, quick question about holiday insurance, I ended up back at the hospital yesterday with this pain in my arm/shoulder, because I was having an MRI they had to admit me although I was out the same day. Does anyone know how I stand with my holiday insurance?? I took it out with Eurotunnel in Jan when we booked our trip to New York. My pain turned out to be unrelated to the disease just a bit worried they will find a loop hole because I was admitted.
Hugs Janette xxxx
Lynn I thought it could be a trapped nerve too the doctor who saw me the other day said that wouldn't show on an x-ray but it would on a MRI, What's RSI??
Julied, Helen , Belinda and Janette, thank you for helping me feel 'normal' Early night I think is best.
Sending you lots of friendship hugs M xxxx
Oh Marie sending you a big fat hug, people really don't get this disease do they, They see that you "look fine" and really haven't got a clue what we are going through.
Lynn, My primary was on the right side this pain is the left, am still undecided on whether or not to go to A&E in the morning, when it eases I think oh it will be fine but then when it comes really painful I think I will go!! Just seems a silly waste of A&E time to get an MRI.
Hugs Janette xxxx
Oh Marie my love I really feel for you and your pain and frustration come across in your post. I'm sorry there's nothing I can actually 'do' to help, but just know we are here and we understand. This disease is hard enough to deal with without feeling you are having to carry everyone else or that people don't want to face up to the reality when we have no choice but face it head on. Take time off if you need it, be gentle with yourself and keep talking to us xx
I am very sorry about this , but I just want to scream. Everyone around me seems to be in denial about what is going on. I feel like I am carrying this burden around on my own. I thought the 'C' word may have helped for a better understanding , but it appears not. I know I should be staying positive , but it's tricky. I feel like I've been turned inside out, didn't go to work yesterday and cried most of the day. Thank you for reading this, I just needed to shout this. I honestly don't know where I'd be without you lot. Marie xxx
Hi Lynn, yes my bcn rang me to say that my onc said it would have probably been best for me to have stayed in so I would have got the MRI as even if she requested an urgent scan it could be at least 2 wk til I got it!!
My bcn has suggested I go through the A&E again although inconvenient at least it would get it done quickly.
Going to have a chat with my hubby later and see what he thinks, just concerned as it is only 3 wk til I go to New York so need it sorting really, the annoying thing is that otherwise I feel totally fine.
Hi to everyone hope you are all okay it has been quite on here lately :-(
Off into town now for lunch with my son, it's his birthday today really looking forward to seeing him.
Hugs Janette xxxxxxx
Hi Chocolate, my mets are in my hips, ribs and spine, I'm going to speak to my bcn in the morning I know she has already emailed my onc to tell her about this pain so she knows what is going on, if she says I should have an MRI then I will but I just did not see the point of spending a night (prob on a noisy assessment ward) all night when I really don't think it is scc. Would rather see what my onc suggests as I have every faith in her. I only had a bone and CT scan about 5 wk ago and both were stable so I am hoping it is totally C related!!! I go to New York in 3 wk so just want it sorting.
Hugs Janette xxxx
So sorry for what you have been through. Hope its good news tomorrow. I had sponal compression. Rads were amazing for pain relief. Take care Marie xxxx
Hi everyone didn't watch the c word yet, plucking up courage! Booked a holiday to Crete but getting the insuranxe was a bit of a trauma ! You have to go through everything and at the end I felt really depressed! Specialist insurers Pink said as my cancer spread to the bones was that two cancers breast and bone. I think she was new, anyway felt really down afterwards,. Anyway went with insurancewith...cheaper and you could do it all online...feeling better now holiday yay!
Good morning ladies, feeling a little fragile after the programme last night and the There has been no where to hide this weekend.
My attempt at a short bank holiday story
Somewhere in a town most of us have never heard of is a research centre. In the medical field it is minor. It is under funded and under resourced. However, within its walls is a dedicated researcher. She has read every report ever written . she has emailed every leading cancer researcher in the world.
But this day was different . It was a total mistake. It was not what she had planned to do. The results were not what she had expected. She had been distracted and then it had happened. Just like the discovery of penicilian a total mistake. Now few remember that it was the rule breaking of eating a sandwich in a laboratory that had led to its discovery, a total accident.
She tidies the lab , locks the findings away . It will take time , tests, trials, papers. But this is a compleltely different way of dealing with it.
It is very late as she she starts her car and drives home. Her head is pounding with ideas , the next steps, who she should contact.
She walks into her apartment , open the fridge and pours herself a glass of wine. Walking over to the window she seees the sun has just come up. The start of a new day. Raising her galss she mouths the words,
'Breast Cancer I 'm coming to get you! '
I am not triivializing this horrible illness. i don't want to upset anyone. but the answer is out there. One day the extraordinary cure will be discovered.
Sending positive vibes for those with treatments and results this week . Take care everyone and be kind to yourselves.
Love Marie xxxxx
Morning ladies, feeling so sad today, just been reading about Rebecca Ferdinand, just want to scream and cry!!! :-(
Hate this horrible, nasty, ugly disease, that poor woman leaves behind a husband and young family it's so unfair.....RIP Rebecca.
Sorry for the rant ladies it's just at times like this it brings reality home and scares the **bleep** out of me!!!
Hugs Janette xxxxxxx