Hi it's the type of infection they said I caught. Pretty bad apparently. I'll chat to them Wednesday as I'm pretty gutted that I only lasted 4 weeks on it!
Have missed quite a few days on the forum and was devasated to hear about our lovely Helen. It seems there are a lot of us struggling at the moment but none more than her. She is an absolute diamond and my thoughts and prayers are with her for a good response to the treatment. Thanks Chocs for the updates.
Best wishes to all.xx
HI all - I hope everyone is as well as they can be.
Chocolates - I hope they get you sorted soon; toothache is horrible. I can't offer any advice re dental treatment as before I was allowed Denosumab I had to have 5 teeth out so not enough left to give problems. I had a maxillofacial scan where you stand up and it goes around your head. Have you had this one already? You have to put your front teeth over a little mouthpiece and for hygiene purposes they put a little rubber sheath over it (like a mini condom) .
I'm sure there is mention of dental issues in one of the old threads; perhaps they might put your mind at ease a little bit.
Please could you also send my love and healing thoughts to Helen? I'm so sorry to hear that she is so poorly. I have everything crossed for her that this chemo works its magic for her
Vicky I am on e/e combo what is PCP. I have been on this treatment 12 month now and 4 stables on the CT scan it was very hard to begin with but se get easier as time goes on. There is a thread in the medical and treatment issues and you will find alot of information how other people coped with everolimus and exemestane alot find it difficult because of the se's hope you do ok. Good luck
Hi all I'm back after a4 week trip to hospital! I have been on everolimus and exestame and managed to react badly and pick up a PCP infection which they're associating with me being on the everolimus. Anyone else come across this before?
Disappointed as had only started the drugs about a month ago but they're keeping me on exestame for now. Also disappointed as I always thought my immune system was fairly robust. 😞
I'm new to the forum. My amazing mum was diagnosed only a few months ago with breast cancer, with mets to her spine and lung.
Like yourself, she had spinal compression and was given 5 daily radio therapy sessions straight away as a matter of urgency.
I am so pleased your pain and numbness has gone away - I was wondering, how long roughly after the radiotherapy did it take for you to return almost 100percent back to normal. Thanks x
thank you for the update on Helen. I am so sorry to hear the news. Please let her know my thoughts are with her and I am willing she can cope with the Taxol and be able to go on a trial
Hi everyone, sorry to hear Helen is still suffering praying the chemo will work for her xx
I went to the hosp today to see the facial team re my toothach. The xray didn't show much so he said the fact that my lip and chin have gone numb could indicate cancet spread as 70% of people with this are from breastcancer mets. Hd said he would take my wisdom tooth out but because of denosemub it might take time to heal, but then said if it is cancer it might not heal at all! I wonder if anyone has had this or any dental treatment. I feel so worried have to have a scan of my head...sounds so serious , what next.
Oh, Chocolates, thank you for the update on Helen. So sorry she is suffering at the moment - please give her all my best wishes for the taxol to work, with few or mild se's (preferably none!). Thinking of her. Hugs to Helen, and you, too. Barton.x
Thanks Chocolates for the update on Helen I don't know what we would do without you keeping us in touch with Helen's condition. We really are sending vibes for her to get a little better she has been such a strong voice on this web site and we all love her xxx
I'm sorry to hear that Helen is so poorly. She is such a fighter giving it her all! Janet best of luck with your calcium issue. Never heard if it before this. Sarn, WOW that sounded scary and a bug mess. Take care and feel better soon. My oncologist wanted to biopsy my lung again to recheck how hormone positive I was before I started letrozole because it's been almost 10 years since my cancer was biopsies. I told him NO! I already have a partial collapse of my right lung and in 2012 the rest of the lung collapsed. It did manage to reinflate on its own in a few months. I'm not taking any chances. I told him every time he gives me a new chemo it's a luck of the draw if it works or not, so I'm going to go with the same luck if this hormonal treatment works or not. My original breast cancer in 1995 was ER + and 10 years later eith nets it was the exact same, so I'm going with 10 more years probably hasn't changed. FF
Oh chocolates thank you so much for keeping us updated on our wonderful Helen, it's just not fair she has been through so much and she is such an inspiration to everyone on here. I know she will fight this bugger because she is so strong and positive. Please give her my love and best wishes and tell her that all her cyber buddies are holding her hand.
Hugs Janette xxxxxxx
Hi Red Rose
Sorry to hear you're feeling rather nervous. I am putting for you below the link to our Someone Like Me service which you might find helpful
I hope this might help too:
Thanks ladies for all your advice/info and good wishes.
Sam, what a terrible time you have had, bet your just glad to be home now.
Hugs Janette xxxxxxx
Hi Janette I was told by my previous onc that markers were inconclusive they only relied on ct for results so we don't have markers done. But brilliant news about your ct scan thats worth a drink hope your bloods will be ok love xx
Hi Sarn sorry to hear about your ordeal it sounds horrific glad you are back in your own home and I wish you all the best with your new treatment love xx
Best of luck to everyone else xx
I've just changed to Exemestane (hormone therapy) from Capecitabine (oral chemo) as tumour markers were rising but nothing shows up on a scan. I shall see my Oncologist again next Friday to see how things are going. This is the third hormone treatment I've tried and I've found them far more debilitating than oral chemo. I was feeling pretty well (and I work full time) before the change, but my bones/joints started aching with a vengeance after Day 4 of the Exemestane. I'll post if or when I know any more.
Hi ladies, well just got back from seeing my onc for results, my scan is still showing stable but TMs are still rising, she said she was not overly worried as scan is fine and all other bloods fine and it might be that she just needs to change my tamoxifen for letrazole. Got to have them re-done in 3 wks and she will decide on then depending on results. I'm not majorly stressed about it but wish they weren't rising. Any info/advice from you lovely ladies would be much appreciated.
Hugs Janette xxxxxxx
Hi Chocolates thanks for the well wishes I think you all helped in getting me the result we all like to hear everything is still stable. The lump I was worried about appears to have dissapeared and didn't show up on the scan the onc said you can get thickening tissue that can be mistaken for lumps. So last night I had a drink of my favourite tipple.
Please send my best wishes to Helen we miss her xxx
Thanks everyone and best wishes for treatments and scans. My 2yr old grandson Ben fell off a slide today and broke his little arm! Makes you forget your own troubles....not a good way to do it though bless him .
Hi everyone....well spoke to my onc on the phone about my toothache and numb lip and chin on left side. She is prescribing antibiotics but said that it could poss be a cancer spread , apparently I will have to have a scan of the brain to determine if it doesn't get better. Very scared now and wondered if anyone has had this and what happens next?
Good luck with your results today Marirose, keeping my fingers and toes crossed for you 😉 also good luck to anyone else are getting results/scans etc today.