67362members
354905posts
cancel
Showing results for 
Search instead for 
Did you mean: 

Bone mets - please join in

Highlighted
Member

Re: Bone mets - please join in

Hiya marirose
Firstly all the best for your scan this week ..it's a really busy time for so many this week.
The knickers are m and s of course and Im Sure they would stretch around big Ben if they had to. I always wear a tee shirt bra with no metal too for scans. But x rays and bone scans ...if I avoid metal ..can keep my dignity and not wear a silly gown. I suppose hospitals all vary. Bone injections easy ..just unflop a big bit of belly fat !!!
Xxx
Highlighted
Member

Re: Bone mets - please join in

Carolyn your right I should just get the real stuff massive bar of dairy milk my mouth is watering now haha x x
Highlighted
Member

Re: Bone mets - please join in

Hi all

bonariensis I didn't know you could get your scan results through the post. Not sure if I like that idea ok if good but if results bad I would want to see onc as soon as possible but at least you get a report to study it and ask questions.

 

Carolyn where are the hospital knickers from I can't imagine what they must look like. I always dress with clothes that do not have metal on not even bras. They let me go in without undressing and putting a gown on. I hate them you always feel your bum is on show for all to see. What does annoy me is waiting ages because you always get there early and then a patient gets wheeled in from A+E and they get seen first. I also look at the faces as I am leaving some they seem to look at you with pity one even said good luck made me wonder if they saw something bad.

 

Well I've got it all to go through on Thursday not as late as it usually is 6.10p.m normally get one for 8.pm or Sunday at a hospital a few miles away.

 

Good luck to julzd and anyone els having scan results.

 

Love and (((hugs)))  xxx

 

 

Highlighted
Member

Re: Bone mets - please join in

Oh Jultz 

Go for it properly .. run to the corner shop and get a bar of Cadburys .. rather than that pretend stuff !!!!

 

Note to self .... stop posting such rubbsh here as I notice some of the postings get 400 views !! and I must be labeled as some sort of idiot !!

 

xxxx 

Highlighted
Member

Re: Bone mets - please join in

Hi jannette and carolyn I've had my fix too bought a box of the new chocolate coconut macaroon from slimming world this morning ate three already so that was pointless but they taste lovely x x
Highlighted
Member

Re: Bone mets - please join in

Nice to hear you haven't let the side down Carolyn! I've just had my fix too, just a little KitKat though as I'm "trying" to be good for my hols!
Hugs Janette xx
Highlighted
Member

Re: Bone mets - please join in

When I go hospital for bone inj, scan or to see oncologist ...I get out the car and find the nearest loo ..then go to the waiting room and try to look normal by reading a magazine ...but really I'm just pretending to read. Isn't it embarrassing for scans ..u put on the hospital gown ..which doesn't do up properly and hence the reason for " hospital knickers"they r usually black, thicker and enormous and if its winter u are wearing ugg boots which compliment the outfit ...call the fashion police !!!
Hugs xx
Highlighted
Member

Re: Bone mets - please join in

Hello ladies
Well haven't let the chocoholics down today ..had a large daily fix ..yum ....oink oink 🐷
Best of luck to everyone with their scans this week ..sending loads of fairy dust and cyber hugs .
Xxx
Highlighted
Community Champion

Re: Bone mets - please join in

 Moijan, When I lay down to get my CT, I always think get up and run NOW! Run now you can run free and just say I quit I'm done! Then I say or you can be brave go thru with it and it will be what it will be! Maybe if you go through with it you will be stable and enjoy more life. So far I haven't run free!

Highlighted
Member

Re: Bone mets - please join in

Hi moijan I'm exactly the same at scans and appointments I try to read their faces and always come up with something bad it's rediculous to them it's just a job we go there so anxious every thing they say or do we think means something ❤❤
Highlighted
Member

Re: Bone mets - please join in

Hello everyone, thank you for your good wishes.

 

Funny things scans, I lay in the mri scanner thinking, these pauses between being told to 'Breath in...blah blah'  .....are very long today, whats happening? Have they just seen everything has GONE!  Are they worried because they think theyve lost it?

 

then I thought 'oh no, theyve found the opposite, they are pondering how to tackle this!....'

 

Lastly.. the voice of reason said' they must be teaching, I heard lots of chatter in there last time they said...'breathe normally.'..

 

when I got out, I asked 'are you teaching today? And they said 'Yes, we were showing X how to...'

 

so that just goes to show how the thought demon can take over!

 

Boneariensis , getting scan results by post must be a bit scary? If you were worried who would you chat to?

on the other hand maybe you live a way from the hosp?

 

Good luck to you too jultz xx

Carolyn, I think chocolate is a good option( my bum and tum thrive/grow really well on it!) it has a lot of antioxidants and love hugs in it!  Much love, hairless hattiexx

Highlighted
Member

Re: Bone mets - please join in

julzd, moijan  Good luck with your scan results. These appointments are so scary. It can be hard to ask or say all the things you have been planning for weeks before hand. My last 2 results have come by post though, if they had been bad, I don't know what would have happened, I usually wait at least an hour having got there at the appointed time which doesn't help.

Highlighted
Member

Re: Bone mets - please join in

Hello Jeanette
No i didn't give into choc yesterday but there was a reason ..I pinched a haribo off my grandson ..got a bit of sugar in a iffy tooth and had tooth ache ..fine today so got some catching up to do now as have two bars in fridge all ready !!!
Hope headache problem is ok .
Hugs xx
Highlighted
Member

Re: Bone mets - please join in

Morning ladies. 

Carolyn, hold your head up high my fellow choco-ohlic, I too cannot go 1 day without a chocolate fix, even if it is just a chocolate biscuit some form of the yummy stuff has to pass these lips!.....by the way did you break last night? 

Good luck to those having scans / results this week. 

Hugs Janette xxxx 

Highlighted
Member

Re: Bone mets - please join in

Thanks funnyface hope you're ok x x x
Highlighted
Member

Re: Bone mets - please join in

Moijan
I'm getting a bit paranoid about my reputation of being a chocoholic !!! I've been all day today without any ..how about that ?
Hugs xxx
Highlighted
Community Champion

Re: Bone mets - please join in

Good luck with scans and appointments, so nerve racking!

Highlighted
Member

Re: Bone mets - please join in

Hi moijan good luck for Wed ❤❤❤
Highlighted
Member

Re: Bone mets - please join in

Carolyn you've did better than me I could never jump in the deep end lol. I am exactly the same at appointments I ask no questions can't get out quick enough x x x
Highlighted
Member

Re: Bone mets - please join in

Hi Jultz,

 

me too, am waiting for results of my mri on Wed. I'm right there along with you and  Carolyn, I often feel like running away,( tho my onc is a lovely guy) maybe we should try a bar of chocolate? Carolyn?

Highlighted
Member

Re: Bone mets - please join in

Hiya jultz
Good to hear from you ...it's awful the fear factor with oncologists and scans and I almost run out after my appointments !!
Well u r into fitness ...never quite got the hang of riding a bike or roller skating as my mum wouldn't let us do anything dangerous like that as kids!! Did jump in the deep end of pool holding my nose when I was five and got a brownie badge though !!!
Hugs xxx
Highlighted
Member

Re: Bone mets - please join in

Hi ladies hope you've had a good weekend just thought I'd check in I'm getting a bit anxious I'm seeing oncologist Friday no doubt he will be booking my ct scan in. I'm feeling ok went on a bike ride today and fell off felt a right idiot as I had an audience ! My knee and elbow are all scratched and bruised what an idiot haha hope you're all well ❤❤❤ julie ❤❤
Highlighted
Member

Re: Bone mets - please join in

Hiya . Bet the new ceiling is to cover up an old artex one...it's the only way to get rid.
I have mobility probs as well and diy jobs I was doing last year ...are long since gone.
Having yr daughter / grandkids around will be a good focus away from this dreadful blimp in our lives !!!!
Take care xx
Highlighted
Member

Re: Bone mets - please join in

We have had a new ceiling in our living room, the house is a tip. Redecorating today. Haven't done any of that for some time, the skirting boards have got further away and sitting on the floor isn't an option. Furniture should be back by the end of the week. Grandchildren and daughter came for tea. My latest bone scan showed stable which is good as my son-in-law (in the RAF) is going away for 6 months soon and I will hopefuly be able to help my daughter retain her sanity.

Highlighted
Community Champion

Re: Bone mets - please join in

Hot, nasty humidity! It's been like this for about 3 weeks! You don't even want to go outside. I hate being inside. I would prefer to be out grilling, pina colada in hand, tiki torches lit, playing some games. Haven't had a dinner outside in weeks. Had a couple events we wanted to go too, but just to scorching. Oh well, maybe next year. Supposed to get storms today and be cooler this week.Hoping they are right! 

Highlighted
Member

Re: Bone mets - please join in

Hiya ff.
Very interesting ..I've been on letrozole for eleven months and have a dodgy right knee too which is the other side to problem hip.
I have had this for maybe 30 years on and off as I used to seriously jog in my 30 s !! Yes me jog ! And I used to do Jane Fonda aerobics every day .
My knee for several months feels like I've twisted it too or the knee cap has moved or something.I remember seeing my bone scan and there were suspicious areas on it but not necessary Mets. I sort of shuffle sideways on it but it won't turn !!
Anyway less of my ailments ..hope u have nice weather there ..we've got baked beans weather here ...wet and windy !!
Hugs across the pond.
Xxx
Highlighted
Community Champion

Re: Bone mets - please join in

Carolyn, I know it's the metropolis because this all started 2 weeks after I started it. I just didn't realize it at first. I thought I must have twisted my knees. Til I realized it started right after starting this. I also need new knees. I'm sure that's why it has hit them so hard. It also hit my shoulders and hands too. I stopped the prednisone in case, but also to help me lose some of this weight. I wish I could get off this one heart drug bc one of the SE is rapid weight gain. I started gaining right after I started it. Hoping exercise and some weight loss might make it possible to get rid of it.

Highlighted
Member

Re: Bone mets - please join in

Hiya ff
That's strange as you say you have been taking prednisone ....my hubs has been having that off and on since xmas for a chest infection that won't clear up. He has been having hair loss and his knees ..well they creak so much and give out on him. He says there's healthier knees in the graveyard!!
Maybe you are blaming the wrong thing ..i.e. letrozole / ibrance and it could be prednisone ..hope yr new fitness regime works and who knows you might match Mo Farah in the next Olympics !!Ha ha.
I'm hoping with winter coming to eat healthy and give up choc and McDonalds ..in my dreams !!
Hugs xxx

Highlighted
Community Champion

Re: Bone mets - please join in

PS....No shopping here, too many car repairs!!! Grrrrrrrrrrrrrrrr!!!!!!!

Highlighted
Community Champion

Re: Bone mets - please join in

Good Morning ladies! I'm going to try and do some cleaning today. I haven't done much housework lately and it shows.I've been trying to adjust to know prednisone! I've taken it for a long time and my energy level is at the bottom of a pit. I have been doing some exercises that my friend gave me. She is a physical therapists. I've been doing them every day for 2 weeks. I even added a few more. I did find 2 that totally kill my knees. It puts the pressure on them. She said not to do them for now. Might be able to do them if my muscles get stronger or some day when and if I get my knees replaced. I'm trying to make a new change in my life every week. This week I'm adding a 5 minute walk 2x a day. I noticed when I go shopping that I always grab a cart. I realized the last few times that I'm not just pushing that cart, I'm heavily leaning on it. I was leaning on it so hard that my arms were sore. I was in the store for about 45 mins and a few other errands. My knees and legs were screaming obscene words at me. I decided I need to start and walk and build up. All of these physical changes in me have been since I took this letrozole/ibrance combo. Also, have been working very hard on my weight. I am diwn 10 lbs. I'm fighting back! You girls having alot of fun shopping and visiting with grandchildren and puppies. No, grandchildren here! I do have 5 grandpuppies.They usually end up visiting for a, bit every week.I have one dog, Maggie. She is a yellow lab. She enjoys all the dogs visiting. FF

Highlighted
Member

Re: Bone mets - please join in

Hiya Jeanette
Fingers crossed ..no more headaches today. Enjoy having Heidi and spoiling her ..all the cuddle benefits but no responsibilities of vets and walkie!
It's my last week with grandson ..he goes back bank holiday Monday so he gets a week to settle into routine ready for school. Can't belueve he's been here five weeks already.
Hugs xx
Highlighted
Member

Re: Bone mets - please join in

Hiya Barton
Sshh ..but I have been dipping into the craft channels too and qvc and pavers shoes but only when I can surgically remove the remotes from hubby and the Olympics !!
No pain or aches from denosumab this time ..it's day 12 and been fine !! Long may it last.
Yes ..it's all about the comfort and a nice chair will b good for you.
C u Thursday
Hugs xx
Highlighted
Member

Re: Bone mets - please join in

Morning ladies. 

Carolyn, no white sandy beach for me either........well not for 20 days anyway (not that I'm counting 😆😎)

Got my little girl Heidi for the day today, love having her she really is like having a grandchild, we spoil her something silly for the day then when she goes home a quick tidy round then relax and wind down! 

Hope everyone is doing okay and having a nice lazy Sunday.

Hugs Janette xxxx 

Highlighted
Member

Re: Bone mets - please join in

Hello Carolyn, no white sandy beach for me! I'm sitting at home watching crafty channels on TV. I was shopping from one of them yesterday - you would be proud of me! Also, the other day, bought a comfy chair for my bedroom as I sometimes like to sit and read there (the pink antique chair is too low, and not that comfy really).

 

Hope the bone aches have subsided.

 

Hugs. Barton.x

Highlighted
Member

Re: Bone mets - please join in

Hello
Just posting here as the thread is so quiet ..it's slipping down the list!.
Sounds like a lot of our regulars are away on hols ..sunning themselves on white sand, Palm trees and being served cocktails by hunky eye candy in shorts !! Ha ha.
Hope everyone is well .
Hugs xxx
Highlighted
Member

Re: Bone mets - please join in

Good morning ladies
Well it's wet here and guess what ..forgot to take the cushions in from patio furniture last night and so all soggy.
And ..for some reason overnight my phone won't link to my e mail's this morning ..been visited by a little gremlin in the night !!
Hope you all have nice plans for weekend .
Xxxxx
Highlighted
Member

Re: Bone mets - please join in

Hiya Jeanette
Glad u have heard from bcn and she is now on your case.
You have the option to have a mr i if u need one. Don't think ct scans do the brain ?
Hopefully the headaches have passed and maybe just a wobble !!
Hugs xxx
Highlighted
Community Champion

Re: Bone mets - please join in

Natalie/Janette,

So pleased your bcn got back to you and that your Onc is prepared to scan to give you peace of mind. I  think it's a good idea to see how things go over the next few weeks i the knowledge that should the headaches come back and you get concerned action will be taken,

Hope the headaches stay away.

Have a good weekend xx

 

Highlighted
Member

Re: Bone mets - please join in

Hi Carolyn, my bcn rang me this afternoon with regards to my headaches, my onc has said if I'm concerned about them she is happy to arrange a CT or MRI, as they haven't been too bad I have said I'll see how I go on over the next month or so and get back to her they persist.

Hugs Janette xxxx 

Highlighted
Community Champion

Re: Bone mets - please join in

Marirose I'm so pleased the info was useful for you, yes definitely mention it to your MS   nurse, with MS  and SBC you sound like an ideal candidate to me. Fingers crossed xx

Highlighted
Member

Re: Bone mets - please join in

Julie thankyou for the information for the cannabis oil I found it interesting especially as I also have MS I shall be asking my MS nurse next month. I am suffering with pains that are linked to both I was unaware that there is a spray that contains cannabis for MS.Lets hope the N.H.S get their finger out and legalise it.

xxx

Highlighted
Member

Re: Bone mets - please join in

Hiya ladies
Short notice but a lady from Facebook secondaries is going to be on itv news at 1.30 and 6pm tonight to be interviewed about afinator ( evorumus) being withdrawn by NICE due to the high cost.
I think maybe a few of you will have had it in times gone by.
Highlighted
Member

Re: Bone mets - please join in

Julie
Thanks for that link ..it's very interesting .
Avrelia
Glad you are coping well with the chemo ..it will soon go by ..assume you are having six sessions of chemo.
I seem to be ok (ish) with the aches and pains so haven't needed painkillers or heat pads but haven't overdone things this week as saving energy for weekend when grandkids all here !!
Moijan
Thanks for the advice 're letrozole and great info for the eribulin ladies Sharon and Helen ..I'm sure they will appreciate it ..can't beat info from real people rather than bits of paper !!
Well just going to enjoy a coffee and custard cream biscuit in the real world but will b popping in to the cyber cafe soon ..no calories there !!
Hugs xx
Highlighted
Member

Re: Bone mets - please join in

Thank you so much. I pray too that it continues. Xx
Highlighted
Member

Re: Bone mets - please join in

Hello, hello, just before going to my second chemo, had to tell you that I was with my oncologist yesterday for the regular meetings before chemo, blood results are fine, and she thinks that the lumps have become smaller and softer (which i presume is a good sign, only after one cycle of chemo). She will book me an ultrasound in 3 weeks time to confirm though. I asked her if she does not mind me going on holiday, she said that it is not recommened for anyone on chemo, but after all we agreed that I may go. Why is that so, because of possible SE?!! I am not that type of person to lie on my back and wait for them to happen... Anyway, I have to by compressive stockings above the knee as she told me, and walk around during the flight, before and after...(3 hours) and drink lots of water. May be that is sensible. Has anyone had a flight between the chemos? How was it if so? Sorry if my questions sound stupid:) 

Carolyn, I am sending to you some positive energy and airlike pain killers, breathe deeply and hope you will drive them away!!!

Highlighted
Member

Re: Bone mets - please join in

Re Letrozole

ladies, if its working, think seriously before coming  off it...I was told to come off it after about seven years and the cancer came back-Letrozole no longer works.  To be honest Letrozole was so much easier..could go on holiday, leave the country etc, now im tied to a cannula two weeks out of three, and my veins are hard to find!

 

honestly, weigh up your own pros and cons before stopping, as the bc will get resistant. I also found that Novartis original version had far less side effects than all the other versions.

 

love and Hugs

 

Moijanxx

Highlighted
Community Champion

Re: Bone mets - please join in

For those interested in the cannabis oil I cam accross this article (if I  can get the link to paste here)

 

http://www.independent.co.uk/news/uk/medipen-the-nhs-are-testing-a-cannabis-product-vaporiser-for-th...

 

There is hope yet that the NHS  might one day provide access

Highlighted
Member

Re: Bone mets - please join in

Jeanette
Glad yr headaches have been better and its a nightmare having to chase all the time.
It's been nice here but we have rain and thunder forecast for later.
Well it's day 8 since denosumab jab and I'm not aching too bad despite stocking up on heat pads, deep heat ( well it's the one beginning with v but cant spell it) and ibruprufen. .fingers crossed ...maybe its all the choc and McDonalds helping ...ha ha.
Xxx
Highlighted
Member

Re: Bone mets - please join in

Hi Carolyn, still not heard back from bcn! Which doesn't surprise me to be honest as she has an habit of that. She usually sees her in clinic on a Thursday so will see if I hear from her tomorrow, as it happens head has been okay since Friday so hoping it's just something and nothing. 

Well it is glorious here in the usually rainy manchester 😎 Hope everyone is enjoying the sunshine and keeping well. 

Hugs Janette xxxx 

Highlighted
Member

Re: Bone mets - please join in

Hello Sharon
Nice to hear from you ..I get all the c hemos muddled but I think moijan that posts here regularly is on that one too. Hopefully she will give you some info.
Sounds like a good one if you have to get approval for the expense.
Fingers crossed ..isn't it a pity that ibrance isn't available as in the us ..it's getting very good results ..
Hugs ..nice to hear from you.
Xx