Good morning ladies...i havent been on here for a while and am abolutely devastated to read about Sianie's mum, Chris and Sheila..i cant add any more words to the wonderful things that have been said by so many but just wanted to let the families involved know my thoughts and prayers are with them. it is so difficult to keep being positive when so many lovely people are being lost to this stinking disease. I feel really bad now....i havent posted for a while because i have been on a 'downer' since my last diagnosis but at least i'm still here to try and keep fighting.
My skin mets returned after being off cape for 6 weeks, they have spread to my abdomen and the cancer is back in my reconstruction. I am now on erubillin. Since this happened i feel that the whole outlook and attitude of everyone has changed..no one sems to have any wors of encouragement or positivity. I know its bad as it came back so quickly and i have had a second opinion (one Onc backing the other one up) but dealing with the uncertainty is crippling. I go to my Onc and ask about different treatments etc but just get 'negatives'...cant have surgery becuse it could spread somewhere else, cant have targeted radiotherapy, can't try the immiquimod cream as that is for skin cancer not breast cancer,can only have 10 cycles of erubillin becaue of side effects (even tho bcn said could stay on it indefinitely)..no one mentions the next step if this doesn't work.....i know i'm probably burying my head in the sand but i'm finding it all so scary now.
Orse, seems like we are even more in the same situation now!! I have a ct scan in a few weeks and am just dreading more bad news. Finding it difficult to 'hold on'.
I'm sorry to have gone ranting on and been so negative but you ladies are really the only ones i can be truly honest with..i know you'll understand and thanks for 'listening'. Love to all.xx
I just has to reply to your post. Of course you are so scared after hearing something like that. But my experience, having been living with secondaries to my liver for 4 years and bones and lungs for the last 6 months as well, is that the 2 years prognosis is just wrong! No major organs are involved - I think the Onc who told you that was wrong and also unprofessional. Why don't you seek out a second opinion - even it is just to allay your fears. This disease is bad enough without the medical team scaring us to death! I feel fit and well at the moment and back at full time work as a teacher - I have been through some rough times though during that period. 2 years does not sound right to me. Take heart Orse. SpringSummer xx
So sorry to hear the bad news of Sheila's death I know she was one of your key members may she now R.I.P and sincere wishes to all her family and friends.
Another great lady I'm afraid I didn't "know", except through all of you lovely ladies! RIP Sheila, and I'm so sorry I didn't get to chat with you. Another who has been taken too soon. Hugs. Barton.x
So sad to hear about Sheila, thank you Anna for letting us know.
RIP Sheila, what a wonderful lady you were.
Hugs Janette xxxxxxx
Sheila was so focused on being positive about her treatments. I'm sorry to read this. RIP Sheila. FF
Thank you Anna for letting us know about Sheila. We will miss her. Thoughts and prayers are with her family. RIP dear Sheila xx
I know that you have all been concerned about Sheila (Roxy12) and I now have a sad update for you. Sheila's husband has emailed me over the weekend to let me know that Sheila passed away on 5 May. Sheila had been in Christie for 3 weeks and the cancer had spread to her liver, she then went down hill fast. Sheila went home and was there with her family when she passed away. Sheila's husband said how much support she received over the years and how she valued the friendships she made here on the forum.
I am again, so sorry to tell you all this and I know this is not the news you were hoping for. Thank you all for your support of each other, I know how much it means to many of you.
If you would like to talk to anyone please remember that our helpline is here for you all, offering support as well as information. 0808 800 6000 Monday-Friday 9-5 & Saturday 10-2.
Earlier on in the thread there was a discussion about tumour markers. We have a little information about them on our website
You may have blood tests although the type of test can depend on your symptoms and any treatment you are currently having. Your specialist team will discuss what tests they are doing and why you are having them.
Some people have a blood test for tumour markers. These are proteins found in the blood which may provide additional information about how you are responding to treatment but there is some debate about how accurate they are so they are not always used."
If you have any concerns or queries regarding your own diagnoses please call ouhelpline on 0808 800 6000, lines are open 9-5 during the week and 10-2 Saturdays.
With best wishes
Good morning ladies, hope you are all doing well. I have steam coming out of every part of me. Apparently there is a centre on my hospital site dedicated to breast cancer with therapies and t l c . I was dx in Sep 2013 and no one told me. . There isn't even a poster or a leaflet in the hospital and the bc nurses didn't tell me The lack of care I find appalling .
Sorry about this post , but I am fed up of sorting everything out. .
Even though I didn't know Chris, I'm sad to read of her passing. So tired of losing so many wonderful ladies. FF
Thank you for letting us know about Chris - it is very sad news and she will be missed by her family, friends and all of us on the forum. Rest in peace lovely lady, Helen x
Aww that is so sad to hear, thanks for letting us know Julie and please pass on my sympathy to her family.
Yes good idea Helen, I'm sure other ladies will enjoy joining us in the coffeee shop.
I am really sorry but I have sad news to share with you. Our dear Chris (Steris) passed away last night. Her husband, Steve let me know thismorning.This is of course very sad news but we must try to comfort ourselves with the knowledge that Chris is now pain and worry free, she got to see her new Grandaughter and she had the loving support of her family who made her last weeks as good as they could. I'm sure she'lk be dancing along to Strictly when it returns and will be making all the other angels laugh and smile. Bless you for your friendship Chris RIP xx