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Bone mets - please join in

Stillhere
Member

Re: Bone mets - please join in

I'm so so sorry to read your lovely tribute to your Mum, you and your family are in my thoughts and prayers. You sound a wonderful daughter, wishing you strength. Xxxx
belinda
Member

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Oh Sianie, I am so sorry and shocked as well, I thought your Mum would be starting chemo this week.
There are no words to make this easier, later on you can tell your children all about their Grandma, she will live on through them, through you. So very sorry, take care, love to you all, your Dad.
Rest in peace Sianie's lovely Mum, you felt a part of here, our little group, through your daughter.
Love Belinda. XXXX
Sianie
Member

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19.45 last night I said goodnight to my best friend, the only person that knew me inside and out, the person that would say 'Sian shape up' if I was down. She was my inspiration, my shining light, the person I would think about before I went to bed at night and the one when I opened my eyes in the morning. I spoke to her about 20 times a day on the phone and went to hers at least 3 times day, we did everything together and that's no imagination. she couldn't bare to see me after Saturday when my two little ones were playing on her bed in the hospital putting the bed up and down as kids do, she knew the end was near and it would cause us both so much hurt and pain but my dad well what can I say he never left her side but we were all the for the end. Please please everyone keep battling this disease so that a cure can be found and we can say two fingers up to you cancer. Thanks to everyone for their support and advise. I wish everyone well xxx
Glo
Member

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No problem Julie.
I'm just doing bits but have thought about the wheat and lactose for a while. I just think anything to help with the digestive system can not be a bad thing, keeping everything regular. Just a bit of tweeting. Also since starting E/E then Cape I have found a decreased appetite, change in taste, total lost interest in sweet stuff ( very unlike me?) and lost weight, which I had to loose and feel good about! Hence adding in the whey protein.
Due to start weekly taxol next week with steroids added in so I hope that won't cause the weight to go back on ( especially as I've got rid of stuff that was now too big!!!! )
Good luck
Glo xxx

JulieD
Community Champion

Re: Bone mets - please join in

Glo thank you so much for taking the time to type the info for me, I am doing some but not all of that so am sure it will be useful, at least I can feel I'm doing what I can, it's very kind of you to make that effort for me. How do you get on with it? I am feeling quite a bit better so am hoping it's on the turn. Thanks again! xx

 

Glo
Member

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Hi Julie, it's basically a diet for IBS, with
avoid -
wheat or rye bread, noodles, pasta, couscous, gnocchi, wheat or grain based cereals, honey, cows or goats milk, cream cheese, yogurt, pistachios, almonds, cashew nuts, all beans, asparagus, beet root, caulk, sweet corn, peas, onions, mange tout, mushrooms, leeks, garlic, apples, pears, plums, apricots, blackberries, cherries, watermelon, figs, mango, nectarines, peaches, milk and white chocolate.
Replace with
sourdough splelt of gluten free bread, rice noodles, all rice, gluten free pasta, white, brown or palm sugar, maple syrup, porridge and rice or oat based cerealss, lactose free milk or rice milk, hard cheese, lactose free yogurt, peanuts, walnuts, pecans, pine nuts, seeds, tofu, quorn mince, aubergine, kale, green beans, peppers, broccoli, carrots, parsnips, tons, lettuce, fennel, garlic infused oil, ginger, chilli, chives, spices, bananas, oranges, blueberries, raspberries, strawberries, honeydew and cantaloupe melon, grapes, passion fruit, pineapple, dark choc.
You can have beef, chicken lamb, pork, eggs, fish, seafood, butter, olive oil, marg and mayo.
I make various smoothies and add in whey protein to keep my protein up.
Hope tests useful!! Took me a while to type up!!!!
Good luck with it!
Glo xx

JulieD
Community Champion

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Hi ladies,

 

Popped into coffee shop for a quick peppermint tea, tummy much better but still not up to yummy cakes yet. Thank you for all your kind wishes.

 

Glo I'm not on Cape but I would be interested in looking at any info you have. I've been eating a low fibre diet and nursery foods ie jelly etc the last few days, my worry now is that whilst things seem to be calming down a bit I might now get constipation again - can't win can we.

 

Pippie I have heard of the possibility of treatments affecting our eyes and sometimes even our hearing. Another double edged sword for us I'm afraid.

 

A quick reminder that it's live chat tonight, if you haven't tried it come along, we have a laugh as well as talking about issues.

 

Hope all treatments scans etc are going well and big hugs to all those struggling

belinda
Member

Re: Bone mets - please join in

Hi Pippie, I have heard of the possibility of cataracts linked to radiation. I just did a quick search on Google to check my memory on this and there are some reliable links on there, NHS etc.
Hope your treatment is working well. X
Pippie
Member

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Hi Ladies

 

I know that I haven't really posted since I joined but I have been reading your posts on and off for a while.

 

I have finally started a treatment plan after being diagnoised in January, it did seem to rather along time.  

 

I had an optician appointment to day and was told that I have the start of cataracts in both my eyes, caused by chemo and radiation (for my primary), please can anyone else tell me if they have experienced the same, this just seems odd to me.

 

Hope you are all having a nice day, and if you are having treatment that is being kind to you.

 

Must popin to the cafe, it sounds way better fun than my local.

 

Pippie x

 

JulieD
Community Champion

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Hee hee Carrot.
Carrot
Member

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Does it react to Knockers instead? !

 

Carrot

Daisy1975
Member

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Marie123
Member

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Helen it's because you use the knickers word.
Seriously don't worry it happened to me the other day.
M xx
2catlady
Member

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Marie,I've been trying to answer your pm but for some reason they won't go! Wrote it three times grrrrrr. Ithink I need your Paddington bear stare.
Hugs,Helen xxxxx
belinda
Member

Re: Bone mets - please join in

Ah Helen my TMs were a bit up and down on Paclitaxel, my Onc did say TMs could be unreliable on chemo. I did get so I stopped asking. Didn't want to know, hope you have a while yet with Eribulin.
Now I used to have a teenage crush on Bryan F and David Bowie, saw him, DB, in concert, age 14. I thought I was being OUTrageous, went to the concert with glittery eyes, used glue and huge bits of sparkly stuff. Of course he looked straight at me when he was singing. Swoon.
Carrot do apply for your badge as though you are having a bad day on treatment. My last chemo has knocked me for six. Went out with my Daughter today and there's me feeling weak and wobbly every now and then and holding onto shop shelves, shop fittings whilst trying to look "cool."
Oh a bouncy castle lovely, look forward to that. 🙂
2catlady
Member

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Good afternoon lovely ladies,
FF,I love the dress,beautiful. It's so exciting for us now ,we feel part of the brides team.xxx💍👰

Janette,I bet your soooo excited now. Can't wait for all your stories about what you do.🇺🇸✈️🗽
Glad you had a good time and strawberry gateau,yummy 🍰

Carrot,fill it out like your worst day. With this darned disease two days are never the same .one day I can walk the next I'm gasping for breath and it's too painful to make short trip to bathroom.
And blue badges are such a help. So go for it. 🚙

Marie,you can keep BF all to yourself. But my new hubby had a chocolate hand print on his bottom and all I'm saying I'll be checking fingerprints !

Well just back from chemo,TMs are on the up. So feeling a little deflated, oh here we go again.3 months and the evil squatter is adapting 💩 👹.

The coffee shop will be having a bank holiday family picnic and everyone is welcome ,pets as well.
Bouncy castle ordered ( Marie,you MUST wear knickers if using it) candy floss machine,ice cream van.
Huge hugs,Helen xxxxxx

rosie53
Member

Re: Bone mets - please join in

Afternoon lovely ladies, just got back from my first session at the Beechwood Centre, met some lovely ladies all who are in a similar position to me, really enjoyed it and I have chose to have reflexology has my therapy treatment, they demonstrated a few different kinds of therapies but that looked like the one I would probably enjoy the most. Then we had lunch which was a 3 course treat : - ) mmm strawberry gateau for dessert....very naughty!!!

Not started packing yet don't go til next week  (28th) last night we booked to go up the newly built World Trade Centre it opens on the 29th which is our anniversary so really looking forward to that.

Funnyface, I have googled your daughter's dress it's beautiful, will have a look at yours later too.

Chocolates, hope your daughter is feeling better today.

Well ladies I'm going to give the coffee shop a miss today as I have already overindulged on coffee and cake for one day!!!

 

Hugs Janette xxxxxxx 

Lynnq
Member

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Hi everyone glad to hear that the coffee shop is doing well. Marie you are very naughty, please try to stick to one man at a time..might come along and make eyes at Bryan Ferry...

Carrot, speak to your BCN, she may be sble to help/advise mine sorted out my blue badge for me. Might also make eyes at a young Cat Stevens as well......

Know what you mean Belinda and Helen, I have lost count of the number of people who have asked me if my treatment is finished now, even though I have told them I have secondaries.....I just don't bother trying to explain any more.

Janette you must be busy packing now..have a fab time.

FF my son's wedding is all planned now, just need to get my outfit, hoping to lose a littke weight and seriously considering having one made. I had a look at you daughter's gown it is fabulous....

Love and hugs to everyone else, hope you're all as well as you can be. Xxx

PS FF just looked at yours as well....love the colour.
funnyface
Community Champion

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Headed to work..but thought I thought would share my dress with you today while your sipping tea and coffee in the cafe. ..www.marysbridal.com ...go to mothers gowns...#S13-M2180...shows it in lavender but mine is a deeper purple blue called pansy...did the fittings yesterday..

 

Lyn ..how is your sons wedding plans coming along?

Janette is your bag packed?

Glo
Member

Re: Bone mets - please join in

Hi JulieD, are you on Cape?
I have had issues the same and read an article about IBS symptons. Some interesting stuff re not want to eat and what to eat. I can give you the info if you like. I know these are SE but might help! If I stay on Cape I intend to give it a go!
Glo xx

Stillhere
Member

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Morning ladies, can I drop in at your beautiful cafe too? It's cafe latte for me but no pastries, I've put on nearly a stone since cape started, boo! I'll be bringing my man of the moment, gorgeous Eddie Redmayne, no Marie, you must stay loyal to Ross and stop wearing that boob tube as a skirt!! Oh whatever, I'll sneak an apple doughnut when Eddie is not looking.....see you all there for elevensies xxx
Carrot
Member

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Hi Chocolates -

Have a mocha on me -

 

Re filling in Blue Badge form - I'm finding a bit difficult at the moment because I'm relatively well, taking puppy on slow two mile walks now on chemo break (but needing a twelve hour sleep after that!) - imagining how I am if fully chemo'd but someone told me to fill form out as if you were at your worst.  It feels like lying at the moment.  Any tips, you or other peoples?

 

I know just how you feel about the children.  At the moment I'm not saying anything about latest scan and the sympathetic hugs etc from nurses (which told me more about the scan than anytihng else!) cos DS is doing his ASs and DD is working abroad and I don't want her worrying.  But it is def the worst part.  Apart from the occasional session of pure fear in the middle of the night.  

 

OK time to order a capuccino... with brandy ... anyone?

 

Carrot

Carrot
Member

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Marie, you can keep Brian Ferry all to yourself, but could you persuade the Young Cat Stevens to drop in?
Carrot
Marie123
Member

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Julie hope you are feeling a bit better this rainy morning. I'm giving the article my best Paddington Bear stare grrrr.
Fantastic news Bryan Ferry has agreed to a soir on Saturday in our coffee shop . Prosecco and nibbles. Now before you all start I have loved him since I was 14 we are keeping our engagement secret though. Belinda could you please bring my coffee over.
Marie xxx
belinda
Member

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Hee yes good idea Helen, I will enjoy muttering bleeps, colouring all over the lines and using all the black colours...while piling up my plate with pasteries. X
2catlady
Member

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Belinda,I'll join you with more choc u pains. And my double shot of Horlicks.

Yes,I do think people think we can be cured and a survivor if we try harder and have more positivity ,my own mother told me that,I'll add a grrrrrr too !

I've just put the anti-stress colouring books on the table and we will colour and mutter rude words under our breath!

Huge hugs from our forever sunny cafe ( even though it's raining cats and dogs here) Helen xxxxx
belinda
Member

Re: Bone mets - please join in

Hope you feel better soon Julie, it's good to hear Chris is having some good times with her family.
Sitting in the grumpy corner of the cafe nursing a strong coffee. Just reading a local paper online, a race for life which had a "survivor" announce at the start how everyone could beat cancer, it's inside everyone of us to be able to do so.
Just bleeping Grrrrr. Hmm I think 2 Choc au pains are needed this morning. 🙂
2catlady
Member

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Hi,Julie ,oh,juile you have been through the ringer. I hope everything settles down for you xxxxx take care xxxx

thank you for the update on Chris. I'm sooooo happy she's seen her new granddaughter. Please send her all our love xxxxxx she is always in our thoughts .
Huge hugs,Helen xxxxxx

JulieD
Community Champion

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Sorry I've not been able to pop into the new coffee shop but have been having issues with my tummy again, was really bad on Thursday with vomitting added into the bloating, pain and dodgy bowels so being very careful with food so no cream buns for me at the moment Man Sad

 

Chocs hope your daughters rash clears sounds uncomfortable for her. Glad to hear your tests went ok and hope results come quickly and confirm all is well.

 

Funny Face, have had a look, your daughter will lokk stunning and the venue is lovely, you will be so proud and will have a wonderful day.

 

Marie, I'm sorry but I think I'm going to have to have a word with somebody to see if we can sort out this fetish you seem to have for dressing up, particularly the provocitive costumes!

 

Helen, that's a lovely gift you've made for your son.

 

Our lovely Chris has spent some time with both Grandaughters and whilst she gets very tired she is still managing to enjoy her family time.

 

Hope you've all managed to have a reasonable weekend and hope I can join in with the lovely cakes next week, I must say they look gorgeous! xx

belinda
Member

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Sounds a lovely keepsake present Helen.
Oh nice to see cream teas on the house today, love the pretty embroidered starchy tablecloths with fresh flowers. X
2catlady
Member

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Glad your daughter sorted ❤️ An anti histamine may help x

I've just been crafty this afternoon. Ive got a multi photo frame and put my sons photo of 1st day here,1st christmas,1st birthday,1st day at school in. One gap left for a 21st photo to go. Just needs a couple of finishing touches and it will be done.
Well,I better put some lippy on ready for cream tea.
FF,it would be lovely if we could all get together xxxx
Huge cream scone hugs,Helen xxxxxx
Chocolates
Member

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All sorted, she's been given steroids as its so nasty - she's not happy as its so itchy but it should settle soon. Just trying to get my jobs done so I can pop in for my 5 o clock ogle oops tea with the ladies. Xx
Marie123
Member

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It all looks amazing and wonderful . M xxx
funnyface
Community Champion

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Happy to share the some of the wedding plans with you! It sure would be a blast if we could get together and make wedding crafts. I be the lot of us could be quite creative. 

Chocolates hope your daughters rash disappears.

Have a great day!

belinda
Member

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Had another Google FF, not too long before the big day now.
Hope your daughter's rash is soon remedied Chocs.
Well I did enjoy the early dawn chorus. Have many pages of my book of British birds ticked and dated now. Mind you the raucous laughter from Bear and Marie nearly frightened any birds away. Hmm.
What a great stack of colouring books here in the cafe. Sitting peacefully, poached egg brunch, yum. X
Chocolates
Member

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The tour was wonderful and thoroughly enjoyed my cooked breakfast. Mr H is certainly the man in the kitchen. Hmmmmmm.
I'm hoping belinda'so chat with marie is going well. Belinda you have the patience of a saint!! I'll be there at 5 - just can't stop staring at our husbands in their wonderful aprons. It's not good for my heart all this - we may need to come up with another plan.
FF - just loved the dress - you must be so excited - especially as we are now in the craft corner fashioning some accessories - they certainly are unique and you'll definitely stand out as the mother of the bride!!!!!!!!! I'll check out the venue etc later - just in case we can make any thing else for you - I know you'll be so pleased we've helped out.

Daughter just up - covered in a nasty rash so need to get her to the Drs. I'll see you later ladies - a good drying day so got some washing on. See you later.

Hxxx

2catlady
Member

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Good morning lovely ladies.
You wave that badge Choc,I'm sick of old people muttering under breath about blue badge if you take a spot.they are 30 years older and in better shape than I am . So wave that badge proudly and if you want to stick your tongue out go for it (I've ehmm,only did that once,but blamed meds of course)
Glad you're okay ❤️

Belinda, we must have a word with Marie, I was behind her on coffee garden tour and all I got to see everytime she bend down in her extremely short skirt was her red sparkly thong! My eyes are still in shock. 👠👠
Bear was such a gentleman and fashioned a pair of knickers out of some leaves for her. Mind I did get angry eyes out when she asked if he could put them on her🍃🍂🌿 I'm blaming her hormones after the quads!👶👶👶👶

Well,explorers lets tuck into our breakfast ( veggie option available too) coffee smells lovely ,teapots brewed ,the freshly baked pastries delicious,Mr H you're a genius in the kitchen .🍞🍳

Ladies,cream teas at 5:00 this afternoon,see you there.

Funny face ,I'll google dress too,how exciting.👰 We can do any decorations you are missing in craft corner .

Huge hugs,Helen xxxxx


Marie123
Member

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Chocolates so pleased with your news.

Not sure if I can get my high heels on with thick black socks. Love this cafe Belgium chocolates with our coffees. Cream teas this afternoon yum yum.

Take care everyone, good luck with scans and treatments.

Got to go Bears need a massage.!

love Nurse Windsor

LemonDrizzle
Member

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It's beautiful funnyface. Had a lovely time googling everything as I love being nosey! You must be getting so excited and feeling so proud x
funnyface
Community Champion

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Ok girls....Google Maggie soterro...gown is called emma....she is adding cap sleeves and dress is changed to button back all the way down the train....and a bling belt...fiance is captain in the army..so will be wearing dress blues......the church...St Cornelius the Centrion at Valley Forge Military Academy...reception The Joseph Ambler Inn in North Wales, PA ..have fun googling! Funnyface

belinda
Member

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Hope the waiting is not too stressful Chocs.
Ladies I hope you all got the flyer from one of Helen's OH's, Bear. He will kindly be conducting a tour of the cafe garden, very early tomorrow morning. "Greet the dawn chorus with Bear Grylls." Personally I think the list of essentials is a little OTT but, thick socks, sturdy shoes, note to Marie, kitten heels are not sturdy shoes, supplies, ginger beer, lashings of it, hard boiled egg sandwiches wrapped in grease proof paper.
On returning to the cafe a full English, tea, coffee, croissants, Danish are all available to purchase. Remember to use your loyalty card every time you purchase, points mean prizes! X
Chocolates
Member

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Oh my - I'm away for a couple of days and then walk into a wonderful coffee shop with the best waiters ever - sorry and of course you wonderful ladies (I'm determined not to note marie - is that really a skirt!!!). What a fantastic way to spend the afternoon. I've just put on my Disney movie greatest hits - (didn't realise Helen was so out of tune but please don't tell her - she's having such a great time). It's so good to catch up with you all again.
Like you all my children are my trigger button - I'm finding it increasingly difficult to talk about the future with them. I usually end up going to another room after those conversations to have a good cry. It's the most difficult part I find of this horrid disease.
Lynn - fab news you've seen your grand child - so so happy for you. Here's to many more meetings and a cuddle very soon xx
Funny face - we do need to discuss every aspect of the wedding so please fill us in - if you're short of organisers I'm sure us ladies could arrange the whole thing for you - would certainly be very different!!!!

I've survived my tests - was told yesterday initial results look promising but he will confirm in two weeks. I'll take that - better than being told immediately it has spread. Now I'm hoping that just another side effect of the meds. As I was sedated yesterday I've spent the day on the sofa but I feel I'm pushing my luck now. So best get on with some chores.
And just noticed parking attendant looking at blue badge. Better get a move on (remembering to limp to look really poorly as why else would you have a blue badge??!!!!!!!!!! as some people are asked)

Thanks for your support ladies and sending all of you a very big hug. You're all so so special to me xxxx
2catlady
Member

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Lynn,I bet it was exciting seeing your grandson,the peek a boo made me smile from ear to ear😀xxxx

So glad you had a fab time. I'd get thrown out as I'd be singing at the top of voice lol🎤🎼

Janette,I'll send a hubby to do your physio !! Just choose xx

Marie,or nurse Windsor ,yes,that uniform is a bit short !!!! My hubbies can't concentrate on their job every time your napkin "falls" on the floor and you bend to pick it up!!!!

Belinda,I'm colouring in the corner ,lovely and peaceful,sun warming me and flowers smelling beautiful all different colours. The early clematis is stunning. 🌸🌸🌸The birds are all singing,oh I could stay here all day.

Just having a bite of cheese toastie and a nice cuppa while waiting for you all.

Chocolate ❤️See you soon.
Huge sunny hugs,Helen xxxxx
rosie53
Member

Re: Bone mets - please join in

Hi ladies,

Ooh a coffee shop what a fab idea, as long as there are big fat cakes to accompany my coffee I'm a happy lady!!

Hi Lynn, you still suffering with your shoulder/ arm?? Mine isn't much better either, I was hoping the cortisone injection I had would have sorted it but it hasn't, I went for my zoladex yesterday and was telling my GP and he said it can take a good week or so to take effect he also referred me for physio but god knows how long that will take! He also said these rotator cuff injuries can take up to a year to go.....oh what joy!!!

 

Chocolates, how are you??? Hope you're okay. 

Hope you all have a lovely weekend 

Hugs Janette xxxxxxx 

 

Lynnq
Member

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Hi everyone I for one will definately be visiting the coffee shop. I only have 1 cup of regular coffee a day since I am not a good sleeper, but I know the decaff will be available. Mine is a cappucino with a toasted ham and cheese panini.

Met my Gson yesterday but he was very wary, I didn't approach him he is still bonding with mum and dad.....but by the time i left we were playing peek a boo from opposite sides of the room and he gave me a smile.....
Disney on ice was brilliant with my youngest granddaughter and her mum - my daughter.

She has been for genetic investigation and they have placed her in the -moderate risk of breast cancer category - she will have a mammogram every year now - they are also going to discuss preventative Tamoxofin with her, but she has said thst she doesn't think she will go down that road.
I have asked if I can have the BRCA blood test but haven't heard yet so will have to see.

Off to see the physio today about my shoulder pain, decided to go private since NHS can't see me for a while - am now receiving PIP so thst is what it's for isn't it.

Hope everyone is well, i seem to have nattered on about me a lot lately...but only on here not to my family!!!!!

Thsnks for listening.....
Marie123
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About to go back on duty, thanks for the shawl Belinda. However must say this uniform is a bit short and tight even for me ! Will meet you later in the sbc cafe . That is the Seriously Beautiful Coffee Cafe .

Take care Nurse Windsor

edwina64
Member

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Hi everyone just to say reading your post really make me laugh! Maintaining a sense of humour  despite  everything , thanks girls xxx

belinda
Member

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Oh a crafting area, lovely! Love the outdoor garden too, the clematis covered walls are stunning.
I did wonder about the Babs Windsor outfit, with those high heels, hardly practical? Quickly knitting a homely shawl to drape over Nurse Bab's shoulders!
X
2catlady
Member

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Nicky xxxx❤️❤️

Oh,a coffee shop. That's a great idea. Yes,all my hubbies will be serving us in their starched aprons
🍰🍮🍩🍪

Mr Hollywood will be baking everything.

Belinda,ive just passed my blue badge to Chocolate (shhhh don't tell anyone)

Marie will you please cover up the Barbara uniform,hubbies are getting flustered and serving iced buns with cherries on the top instead of our orders!📈🍰

We have a lovely outdoor space we can use as it's always sunny,but not too hot and filled with flowers ☀️🌺🌻💐🌸🌷🌞

Belinda,I've set aside a space for knitting and colouring in.
Now,Marie please stop writing your phone number on my hubbies apron,tut tut. Chocolate has just made those aprons.
Huge sunny hugs, Helen xxxxx

LemonDrizzle
Member

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Good morning everyone
Nobody's upset me in the least - any comments are welcomed as we are all going through this together and can empathise so much. By sharing both good and bad news as well as our feelings, it only strengthens our cyber family friendships. If my daughter ever decides to get married you'll be the first to know - yesterday she was asked to be a bridesmaid yet again next year, so I'm ruling out 2016. Made my hubby laugh when I said I hope she'll get married before I pop off, as the chances are so slim - I've no intention of going anywhere yet, but they've no intention of getting engaged either, living in sin suits them both too well unfortunately and they've got more important things to waste their money on!
Ooh a coffee shop. As I never drink anything hot, I'm having a nice fresh orange drink with a pan au raisin and I'll look forward to being with you all. I'm going to park on the double yellow lines like Chocs and proudly flash my blue badge!!
Have as good a day as you can
Love to all
LD x