Hello Helen - so sorry to hear you are in such awful pain - please take care and glad (lazy) Onc has finally got off his @rse and is doing something! Lets hope he actually acts on the results of the scan! Hello Chocolates - sorry to hear you are worried and fretting -miserabke, I know. I'm hoping you find it's all in your head (meant in the nicest possible way!). Hugs and best wishes to everyone else. Those going on holiday - have a good and restful time. Those having tests or results- good luck and try not to worry too much (stupid me - I know you will - we all do!). I have my next CT scan this coming Wednesday to check how things are going now I am coming to the end of the specified Cap rest period. The actual scans don't worry me at all - it's the results that cause the panic. Love, Barton.x
Hi Helen, good to hear from you sorry to hear that you are suffering though, pain can be so draining....don't like to think of our lovely catlady being in pain 😞 you take care and you are officially excluded from the naughty step until you are feeling better.
Hi LD, hope your having a fab time in the Lakes you lucky thing, I love it up there its one of my favourite places.
Hugs Janette xxxxxxx
Chocolate, sorry to hear you've not been too good, hope the tests put your mind at rest, hopefully it will be something and nothing and unrelated to the disease like it was with me, but as you have said when we live with this illness every new ache or pain sets our minds racing!!
I have had the results of my MRI it turned out to be a rotator cuff injury...Thank god, they gave me a cortisone injection and it is starting to feel a lot better now, glad I went to the hospital though because at least my mind as been put at rest now and I can go to New York and not be worrying.
Helen, hope you are okay??? you have been very quiet lately, I miss reading your regular posts.
Hope everyone is else is doing okay, hello to the newbies sorry you have had to join us but we are a friendly bunch and are always on hand to give advice, support and to just listen.
Hugs Janette xxxx
I have been reading through some of your posts and wanted to start with how amazing this community is, you are a fantastic network of people.
My Mum has just been diagnosed with bone mets this last week. She originally had breast cancer in 1991 which was treated with a mastectomy, radiotherapy, chemo and tamoxifen. We have had a long time thinking she was cancer free and now they say she may have had the secondary for 20 years without knowing.
They are starting her on hormone treatment and looking at radiotherapy again. She will have a bone scan sometime soon.
I appreciate that in many respects she has been one of the lucky ones to have gone so long after her primary was diagnosed but this has still come as a shock and I am struggling to find answers regarding what to expect in the coming months and years. Family (except Mum) have kind of blanked out the news after the initial relief that hers is a slow progressing situation.
I'm hoping that maybe someone can identify with this situation and maybe give me some pointers as to what questions to ask and who might help me with some answers.
Thank you for reading x
I was reading the thread while I was on the phone to Eurotunnel...
If your GP writes a letter to say that you were fit to travel at the time of booking you are OK if you cancel.
If you make a claim, they will need a note of your GP to say that you were fit to travel.
The only thing you need to tell them is that if you have been given a terminal diagnosis (less than 6 months).
I hope it helps and that you have a donderful trip in NY.
Hi ladies, hope you are all okay, quick question about holiday insurance, I ended up back at the hospital yesterday with this pain in my arm/shoulder, because I was having an MRI they had to admit me although I was out the same day. Does anyone know how I stand with my holiday insurance?? I took it out with Eurotunnel in Jan when we booked our trip to New York. My pain turned out to be unrelated to the disease just a bit worried they will find a loop hole because I was admitted.
Hugs Janette xxxx
Lynn I thought it could be a trapped nerve too the doctor who saw me the other day said that wouldn't show on an x-ray but it would on a MRI, What's RSI??
Julied, Helen , Belinda and Janette, thank you for helping me feel 'normal' Early night I think is best.
Sending you lots of friendship hugs M xxxx
Oh Marie sending you a big fat hug, people really don't get this disease do they, They see that you "look fine" and really haven't got a clue what we are going through.
Lynn, My primary was on the right side this pain is the left, am still undecided on whether or not to go to A&E in the morning, when it eases I think oh it will be fine but then when it comes really painful I think I will go!! Just seems a silly waste of A&E time to get an MRI.
Hugs Janette xxxx
Oh Marie my love I really feel for you and your pain and frustration come across in your post. I'm sorry there's nothing I can actually 'do' to help, but just know we are here and we understand. This disease is hard enough to deal with without feeling you are having to carry everyone else or that people don't want to face up to the reality when we have no choice but face it head on. Take time off if you need it, be gentle with yourself and keep talking to us xx
I am very sorry about this , but I just want to scream. Everyone around me seems to be in denial about what is going on. I feel like I am carrying this burden around on my own. I thought the 'C' word may have helped for a better understanding , but it appears not. I know I should be staying positive , but it's tricky. I feel like I've been turned inside out, didn't go to work yesterday and cried most of the day. Thank you for reading this, I just needed to shout this. I honestly don't know where I'd be without you lot. Marie xxx
Hi Lynn, yes my bcn rang me to say that my onc said it would have probably been best for me to have stayed in so I would have got the MRI as even if she requested an urgent scan it could be at least 2 wk til I got it!!
My bcn has suggested I go through the A&E again although inconvenient at least it would get it done quickly.
Going to have a chat with my hubby later and see what he thinks, just concerned as it is only 3 wk til I go to New York so need it sorting really, the annoying thing is that otherwise I feel totally fine.
Hi to everyone hope you are all okay it has been quite on here lately 😞
Off into town now for lunch with my son, it's his birthday today really looking forward to seeing him.
Hugs Janette xxxxxxx
Hi Chocolate, my mets are in my hips, ribs and spine, I'm going to speak to my bcn in the morning I know she has already emailed my onc to tell her about this pain so she knows what is going on, if she says I should have an MRI then I will but I just did not see the point of spending a night (prob on a noisy assessment ward) all night when I really don't think it is scc. Would rather see what my onc suggests as I have every faith in her. I only had a bone and CT scan about 5 wk ago and both were stable so I am hoping it is totally C related!!! I go to New York in 3 wk so just want it sorting.
Hugs Janette xxxx
So sorry for what you have been through. Hope its good news tomorrow. I had sponal compression. Rads were amazing for pain relief. Take care Marie xxxx