Hi Maldives and PMOL I'm sorry you have been in so much pain. Hope things are improving. It puts my own problems into perspective.
Hi Mrs Goggins I have sent you a personal message because we can't mention doctors' names on here.
love to all B xx
I understand... had another muscle spasm last week after my first zomets, they said it was my tumors flaring and that it might caus this. Ended up with stronger painkillers but that can lead up to addiction so to stop taking them as soon as pain was under control. They hadn't told me how to get off the pain killers from the first bout about z5wks ago! Anyway, decided to go cold turkey over the weekend and all I did was cry. Cry because of the **bleep** (excuse me!) situatuion, cry because I don't want to feel like my falling apart, cry because I don't want to be ill, cry because I want to be ok to take our girls (11&10) to a surprise holiday in May half term and just cry because sometimes aI feel like I cannot go on. This would happen at 4am as for some reason I'm waking up and at normal morning hours too.... the worse/best part wsa when my youngest came whilst I was bawling my eyes, gave me a hug and said that we'll get through this, just like we did last time... (not sure if there are any spelling mistakes as I'm crying as I type!!!)
i'm feeling a bit more normal now... so I understand the pits of being in a fiercely down spiral and then better... as I'm sure lots of other do too.
will pray that you don't have to have chemo and they will,find something else that could do the trick.
lots of hugs xxxxxx
ps. Have you guys been watching the Lethal weapon series? It's sad/dark humour involved but makes me lol. (Itv on the uk) xxxxxx any other series that you can recommend?
not been on for a while, had a few problems recently. had radiotherapy on Friday as the base of my back was in two. I had a MRI scan on Tuesday which caused me so much pain in my back nothing could ease it.
Have any of you ladies experienced this??? I have early on in my dx before the painkillers but the onc said it wouldnt cause pain???
Well it lead to radiotherapy as the pain was uncontrolable. Im on my third round of cape so mouth is very sore and had my zometa earlier in the week which gave me flu like symptoms. Along with sickness from radiotherapy I was in a bit of a state to say the least.
On the good side I woke up this morning and all was well. Felt like a human being again.
Its mad how one minute you feel like your on deaths door and the next your like a spring chicken???
I've got my scans at the end of the month bt onc is already talking about IV chemo, a bit nerve wracking.
Well no point in worrying it wont change the outcome.
I hope all you ladies are well and coping with various treatments your on. sending one big hug out to you all.
Hi, I am under Torbay and just received a letter postponing my next onc appt by a month. Who has/is leaving? I guess I am just generally glad to be seen xxxx
Got a letter from my onc today. Had written to him because of my appointment being postponed for 7 weeks and there being things I wanted to discuss with him. Turns out that he thinks the onc i should have seen has retired and another one has left. Neither are being replaced so he says the clinics are going to be very busy. Well, I read the papers so no surprises there. At least he is going to arrange a scan.
love to all B xx
So the snow storm was a bust! We had about an inch of snow. Then warm air above turned it to sleet. We have about 8 Inches of sleet piled up. I've never seen this much sleet come down.Thankful it wasn't freezing rain. That would have stuck to the trees. This stuff is like a snow cone!
It got quite hot here today and was able to sit out on decking having coffee.I have also done loads of washing and even washed throws and mattress covers etc.
Don't envy you ff with snow ..ugh ..hope u have those safety chains u can put on your shoes so u don't slip.
Hubby has footy on TV as he's a man united fan ...boring ! Just off to watch broad church in my bedroom like a naughty child .
We are prepared and waiting for Winter Storm Stella! They increased the amounts and we are expecting 18 to 24 inches in our area. Supposed to be a heavy wet snow. Generator is ready!!! FF
Hi Funnyface. Sounds like you and the weather have a lot in common right now. Spring is trying here but can only manage the odd day. I have been snuggling down cosily in bed only to wake up later throwing off the duvet for the last 25 to 30 years but have only had BC for 8 years.
love to all B xx
Crazy weather continues here! February had more warm days tha I've ever seen. March is also strange. We are having February weather. Thursday was in the mid 60's. Friday low 30'sand we got 3 inches of snow.Supposed to be cold Saturday and Sunday. Then starting Monday night and all day Tuesday we are getting a major snow storm. Charts are already coming out! Our area is in a section they have labeled crippling!! Never saw that word used before. All I can say is Oh wonderful!!! FF
So glad i'm not the only one!!! mine is more being constantly hot even when others are freezing. I still maintain that its the chemo that toatally wipes out or internal regultion system. I only have a 4 tog quilt and that is on and off all night!!.x
Pippin, My body temperature works light someone keeps turning a switch! Hot then Cold, Cold then Hot 24/ 7! FF
Reading through the recent postings regarding tiredness, I can totally relate to this, although at the moment I am sleeping reasonably well during the night, apart from a couple of trips to the loo. So why I ask myself do I feel so tired during the day and have to motivate myself to get on with day to day tasks. By early afternoon I am yawning away but not able to sleep. I positively look forward to when I can crawl back into my bed around 10ish but sometimes earlier.
I am on 4 weekly Denosumab and Tamoxifen so can't blame it on chemo. that some of you are having to deal with. My husband who is 7 years older has got more energy than me which is very frustrating, although he is understanding, I'm sure he doesn't fully appreciate the tiredness or general fatigue that I feel.
Well the sun was glorious yesterday and I manage a few hours tidying the garden which was therapeutic, although I ache a bit this morning, so I must learn to pace myself in future. Ann xx
Trivial, I know for a Friday night, but, does anyone else ever feel too hot and too cold both at the same time? Weird. Is it just me? (The temp thing I mean - cos already know I'm weird and unique). Even with stage 4 BC and limping arround on crutches it's the little things that bug you. Central heating on, off, on, - discarded cardigans everywhere except when you suddenly want one, ice cream and ice-lollies' store depleted.
No sign of tiredness yet but then did have two naps during the day.
Panicked a bit last Friday, could hardly walk at all so got X-rayed and reviewed by onc. It was Friday afternoon and everyone clearly wanted to get home, my pathetic struggles at walking quickly led everyone to put me in a wheel chair and it seemed they pushed me round so fast I had to cling on and have felt less fearful at the fun fair. All very efficient though like when you go to the supermarket just before closing
and you get served super-quick.
Kirky, fantastic news....not only stable but shrinkage as well...you lucky lucky girl, lets hope it continues that way.
I have noticed lately that i too cant seem to stay awake which worries me because i remember my mum towards the end just wanting to sleep all the time. I seem to go through phases when i cant sleep at night at all, then i sleep fitfully then i seem to sleep well but am still kn****ered. I have never really slept in the day but find i can drop off at any time. I am hoping that as the better weather comes i will feel like doing more and the tiredness will go....just wish it would hurry up!!. x
Hoot, hoot to my night owl friends! Why oh why can I not hold my head up when I'm down stairs watching TV. Get up go to bed and play the ho hum when am I going to go to sleep game! Then just as I'm getting sleepy I have to go to the loo! Now, time to try sleeping again. Finally asleep but never sleep more than 4 hours at the most if I'm lucky. Usually more like 2 hours! Ok wide awake I might as well do my morning exercises. Hubby wakes up to use loo. He wants to know wth am I doing exercising at 2 in the morning? Thinks I've lost it! Time to try and sleep again. Can't tell you how many times a night I wake up and hit the snooze button on the radio to play another hour. Hubby says hat do you do turn the radio on all night it never shuts off. I said no it's just me waking up and turning it back on.Alarm goes off for work! I'm ready to sleep, now! Grrrrrrr! Hope you all sleep tight tonight! FF
Janette, My doctor bag has a little bottle in it for medicinal purpose! Possibly a heating pad too! Feel better soon! FF
The bone mets thread,
it makes me shake ---
i have to laugh, I have to quake,
crammed with 'knickers', jokes and 'chocs'
the conversation always rocks...
Barton comes up with the cuddles -
whilst Carolyn has us all in 'puddles' xx
Sorry to read about your extra pain, Janette - Nurse Barton's second opinion is the same as Nurse Carolyn's! Chocolate and lots of rest!
Oh well done, Kirky! Excellent news - it cheers us all up, not just you! At least you can relax a bit now for a while! It's the most worrying thing, isn't it, waiting for the results! Anyway, long may it continue.
Ps - even shrinkage! Brilliant!
Well, all good on my scan thank goodness, mainly stable Mabel with a few bits of shrinkage. PJs back on and a long snooze after a few wakeful nights worrying. Then round 14 of Cape! Going to book my hols as well now I've got my results.
Hope everyone is OK and lots of hugs to anyone waiting test results (and everyone else too of course).
Yes it's lonely in the middle of the night and things keep going round and round and getting worse. Advice seems to be not to lie there fretting but to do something like reading. But I usually feel too tired to do this. I find listening to music can be comforting and you don't need to turn the light on. I usually crash out at bedtime but it doesn't last long. Tonight think of all the people who will be sharing your wakefulness. We will be there with you. Hugs B xx
Hi all so glad it's not just me. I have been having long afternoon naps but feeling no better for them. ONC just keeps saying excercise which is easy for her to say. Piling on the pounds as the only time I seem to go out is to meet up for lunch or coffee and cake!!
Get my latest scan results this morning and am absolutely bricking it - convinced myself the cape has stopped working which has certainly added to my sleepless or nightmare filled nights and lazy days.
Ah well, best get out of these pjs and make a shape.
Can't seem to get through most days without a long nap, then not tired at bedtime hence the middle of the night post. Can't blame steroids or painkillers as not taking any. It's lonely here!
Hi ladies, I found my tumor while in Disney World on vacation. My breast started to leak blood and I was in the shower and found the lump. I was there with my two youngest at the time. Hubby was in the keys with oldest son and boy scouts sailing. They had dropped me off and were coming back for me. I got home went through all my treatment and surgery. No nodes involved! Oncologist said I didn't need radiation or tamoxifen. I didn't know much about BC and so I figured oncologist knew what he was doing. Fast forward 10 years and I'm coughing up phlegm like crazy, so bad I'm vomiting from it. Cancr set up camp in lungs. I asked oncologist what my original breast cancer was? His reply was he didn't know it wasn't in my notes he would have to research it. Next visit he tells me I was ER +! I said shouldn't I have been in tamoxifen? His reply was that protocol at the time of my cancer and my age said you could give it or not give it, but at the time my mets were discovered if I had presented with primary he would have given it to me. I then went to surgeon for port placement and told her the story. She was furious! She said BS! She hit her fist on the table! She said I should have been given it and at the very least I should have been given the choice. Then she said, but no use in crying over spilt milk we can't change it now! FF
Yes, everyone, like Lucy, I ended up changing hospitals after my bc was missed, the year before I found a huge lump!
I had gone to them with a crease in my boob which I knew wasnt normal. However, I. Learned later that my bc was invisible on mammos...lobular is quite hard to find. The reason I changed was because when I decided to ask my cons. Why my bc had been missed the previous year....he lost his temper with me!......
this was about 17 years ago........by the time I found the large lump....most of my armpit lymph nodes were cancerous and it had spread outside them into the armpit.
like you ladies,I was angry with myself for not going back, or checking more...I was just glad to be sent the letter that I still have ' dear ms x you will be pleased. To hear that no cancer was found, etc etc'
we have to go forward, no choice, otherwise we waste the time we do have. Not one second of agonising or self punishment will change the past. I have been where you are...its tough,xxx
but make the very best of today
today is really all that any one of us have. Xxx