OK, My oncologist and had been in India, and the oncologist I don't like had given me my scan results. He had said stable, some improvement in some areas and a possible growth in one area. My oncologist went to the hospital to go over it. Yes there are improvements and stable areas. There is one area in the bottom of my left lung that they started watching in Oct. I knew this bc I'm going every 3 months insstead of 6. This area was suspected of being ground glass again. Ground glass is haziness in lung. Also, this time there is a new 1 cm nodule. The radiologist and the oncologist took a closer look at the nodule and said that they aren't convinced it is cancerous bc it's make-up looks different than a cancerous one. They said the haziness could be infection, a reaction to ibrance or cancer. They think it's from infection or ibrance. I do think it's from the cancer but have agreed not to change meds. I had ground glass before in same lung, but top of lung. Ibrance made it disappear. I find it funny that now insurance could be the could cause of this ground glass. Also, I'm very leary of this new nodule. I also find it strange after all this time that ibrance is still shrinking other areas that I have a growth. I feel fine so we are going with that. I wouldn't be surprised that my ibrance journey will be over soon. Hubby and I are trying to go to Florida for our 35th anniversary. We want to leave April 26th. My appt. is March 30th. I hope I'm able to go. I spent my 30th anniversary in the hospital. I don't want to have my 35th ruined! FF
Oh Sue that tassimo coffee machine is the one that George Clooney promotes isnt it? Does he come complete with the machine to actually pour it for you as well ... if so I might get one as well !!!
My retail therapy was boring stuff really ... but flanelette duvet covers so it will be all cosy and snuggly tonight in our household .. lots of mmms and aaghs when we get in them I hope !!
Im also thinking of a new bed ... been looking online but cant decide whether to go all romantic with a white metal one with hearts and crystals or sensible oak wood .... decisions decisions !!!
FF .. hope your visit to oncologist goes ok and things are all good.
Maldives, I haven't heard of a tassimo coffee machine. Will have to goggle it so I can keep educated!
Stresshead, I eat a lot of veggies, but do you mean 10 servings! Like a 1/2 cup of each? I don't think I could eat that much! I have been eating a healthy veggie soup for lunch. It has cabbage, carrots, onion,garlic, green beans, zucchini, broccoli, diced tomatoes and broth in it. It counts as 0 points on the Weight Watchers program. Only 50 calories in one cup. I've been eating the soup instead of salad for a few days. I was bored with salad.
Carolyn, I love chocolate too!! I don't buy it bc I don't have any control if it's in the house. Although, I will say there was some here over the holidays and I did very well at saying NO every time it called out my name! I don't want to have to deal with that in a daily basis!! I also don't go down the candy isle.
OK out the door to see oncologist, she is back from India! FF
Hi sweet ladies, hope all of you are fine. Just popped in to say hello before I start work. Me have finished Chemo(for the time being) and now on Tamoxifen. Have never had my period since I started it almost 2 months ago. First scan showed some improvement so I guess that they rely on these little white pills now to make it improve more....
Life is beautiful, meanwhile, when you do not have to go that often to hospital.:) Although to be honest I feel much more tired now than when I was on chemo, perhaps due to the few kilos I put on around Christmas Holidayds.Kisses to all and have a great day.
In fits Carolyn with the image of you in your crocs on your trike weighed down with chocolate....hilarious. I went to the homeopath yesterday and we got onto diet...should be eating fruit by the bucketful and 10 veg a day as well as supplemets...no mention of chocolate thogh i'm sure wholenut must count. Has anyone ever proved that chocoalte is bad for your immune system??? seriously though, if you mean it, go ahead and get one. Ive even thought of an electric bike but if the trikes are that much god knows what an electric one would be!!! think i'll have a freddo bar while i think about it!!! x
Hello Carolyn, if you are seriously thinking cycling might help you, but don't want the expense of buying something in case you can't do it, why don't you hire something from the place down near the Quay (Saddles & Paddles?) for an hour? Or am I just being gullible again? Are you having me on? If not, good for you! You're a braver man than I am, Gunga Din!
And your little dog Toto too!! Carolyn years ago our neighbor got a DUI and drivers license is taken for a year. Her husband was so pi$$ed off he would not drive her anywhere or take over her chores like grocery shopping. She bought one if those bicycles with a motor. She rode it with her basket to the grocery store. They had a mailbox at the post office instead of home delivery. She would ride it there too. Well, one day I saw her and she was hunched over and pedaling (not using motor) hair flying, she looked like the witch from Wizard of Oz. A couple days later my other neighbor called me and told me she saw her and h w she looked like that witch. We were giggling over it for days bc w e both thought the same thing. My husband told us we were both mean. He said at least she is trying to handle her mistake. Well, the next day he came in the house laughing with tears. He said he just saw the neighbor and coukdn't help himself, that we were right she looked like the witch!!!
My daughter says it's sacrilegious to drive past Dairy Queen (soft ice cream) without stopping!!
Croc haters. Crocs are wonderful on your feet, if you have sore feet from capecitabine!
Hi Sue...yes, apparently this can happen, according to this previous thread, I'll bump the thread up for you as there was some discussion around precisely the symptoms you are describing might find it useful xx
Hi lovely Carolyn,
sorry about that...im onto those little chocs in a see thru box, wrapped in gold paper now.....they were all in my stocking...
caffiene in tea, coffee, chokky, anything...apparently can irtitate the bladder...im only aware of it becouse of my habit of collecting urine infections! This chemo is making me more prone...when n cape it was cellulitis and a dvt, now its wee infections!
its a hard life isnt it? Oh, and apparently fizzy and decaf drinks all do the same, but if you arent collecting wee infections...prob you wont find it a problem!
Hi Carolyn, what makes you think I was referring obliquely to you , haha.
now, its official...Carolyn always carefully reads up on posts before inputtingxx
actually I love kitkats, but was telling Barton that I cant have too much chokky as caffiene irritates my bladder!
so im stuck with a bounty or. Turkish delight, but we whouldnt be feeiding our bc with sugar, should we??
in the chemo suite there are always little bowls of sweeties....and I sometimes succumb, but usually I manage to avoid them. I also get a free sandwich there now and tea and biscuits...feel so well. cossetted, comfy lie back chairs, could be a spa cafe, if it wasnt for the plug ins?
Hi Gang! Welcome Chris! Chris some doctors try to make an educated guess on time others will not commit themselves to a guess. Mine told me it's not an immediate death sentence but he thought I had two years. It's 11 years now!
Carolyn my bones crack and creak worse than my peeps at the senior center where I work. I wish you could see them exercise! I could never keep up! I walk slower than most of them. Btw Friday was a great day at work. It was PJ day. I wore my PJ's with a cardigan sweater for a robe and comfy slippers. Hubby went away for the weekend so I came home and stayed in them. I had a pair of fuchsia Mary Jane crocs. Seriously, they were so light and comfy! I wasn't allowed to wear sandals when I drove school bus. My feet needed to breathe. I would where them to the creek with my dog too. Could walk in and out of the water. My feet swell in the summer and they worked well with that too. They make flip flop types too. I was thinking of trying a pair.
Waiting to hear from Pfizer for delivery of my ibrance. I was supposed to start my next cycle tomorrow. I have 3 extra pills, I could start with them if Pfizer can guarantee shipment by Thursday.
Hubby won't be home from his weekend excursion til later today, so I'm off to see what trouble I can get into. FF
I'm 70 too. They say 70 is the new 50 but i struggle to believe that now. I am on exemestane and denosumab and stable so far. My onc told me that the exemestane would only work for about 18 months but having read here that doctors' predictions are notoriously unreliable I remain optimistic till told otherwise. When it does stop working I have not decided what i shall do. Your wife is so fortunate to have such good support from you. B xx
Hi Chris, welcome to the forum, sorry you have had to join us (on behalf of your wife) we are a friendly bunch and are always on hand to offer help /advice and support......oh and we are a bit of a crazy crowd from time to time, especially the lovely Carolyn (I know you won't mind me saying that Carolyn ) 😁
I am the same treatment plan as your wife, and also be treated at The Christie hospital, different oncologist though as mine is female, she also doesn't say much, I think as long as we are stable they are quite happy with that. I asked her once about "healing mets" and "NED" (no evidence of disease) she said they don't like to use those terms at the Christie and are happy with stable results.
Morning Carolyn, no I have to hold my hand up and say I've never had a pair of crocs! I'm still rebelling and wearing heels, only at the weekend though (not really high ones )
Well a wet and miserable day here in Manchester today so lazy day eating chocolate and watching the TV for me!
Hugs J xxxx
Welcome, and love and best wishes to your wife. Its always a shock to get a bc diagnosis isnt it?
and its so scary...especially if a doctor makes a similar prediction to the one you were given.
when I was initially diagnosed in 2001 with a large tumour in my breast and 12/13 lymph
nodes...some of which had leaked into the armpit tissue...I was told it would
likely 'be back within two years'
well, it did come back - about three years ago! Like many other ladies, I have bone mets,
also liver mets and currently these are well under control.
Most of us have ups and downs, either in our cancer spread or emotionally or both....
But this forum is a lovely welcoming place where we all share support,
so that really helps xx
Doctors have to tell it like it is...but sometimes I wish they wouldnt make
' survival predictions', because actually no one knows! And of course
if a 'Doctor' makes a prediction it sounds like gospel and we often believe it.
Like many others, I am on chemotherapy and am so blessed that it has shamed the
cancer into a corner and I'm leading a fairly normal life around the hospital visits xx
Please come back and join in, let us know how things go, we are all here
for each other X
Hi Julie D,
thank you...im fine xx
how are you? I had felt the forum itself was a bit quiet....but assumed the ladies were hibernating in the cold weather, maybe with a blanket and a hot toddy. Xxx ( or some may take a pile of kitkats with them!)
I;m glad your wife is doing well on treatment and hope this continues for a long while. I have had bone mets since 2010 and am on very similar treatment to your wife (i have Zomeata rather than Denosumab but Denosumab is the newer more up to date treatment) so yes, these treatments can work well for us. x
We haven't haf a man on the threads regularly since Wayne several years back, who like you, was finding info for his wife. Welcome! There are also sections here for relatives and friends and the phone line can be used by you too so if you want any support for yourself (it is hard for partners, we know) then do please use the support here.
Carolyne I still wear Crocs but boring black ones at the mo, so handy just to slip them on when popping into the garden or onto the balcony, so light. I wear flat shoes when I go out, but have never really been a heels lady, wore those 4 inch wedges when I was a teen though!
I'm so glad you both managed to get to Ellies celebration and that it was such a lovely fitting tribute to her.
Moijan, good to see you posting, you've been a little quiet lately and was about to PM you to see how you are doing.
Have a good weekend all xx
Well done Carolyn and Barton,
Ellie was a lovely lady, tho we never met. Glad you could go, as you met her regularly didnt you?