It is so good to see your post and to know you are home! I´m sure you've lots of tales for us. At the moment just rest and enjoy being home. Welcome back! xxxxxxxxxxxxx<3 xxxxxxxxx
Thanks Chocs for update, I am so angry at Helens Onc, right back at the start of her pain I was worried about compression so why on earth wasn't her Onc!?! I hope when she is better and has the strength that she will make a complaint and definitely move to a a different Onc, Julie's Onc sounds much better. Big hug to Helen and hope she is home SOOOON!! xx
Sheils gla you haven't got long to wait, roll on Monday, the sooner you start the sooner you finish. Hopr you enjoyed your shopping trip.
Bev, have a good time in Tenby, recharge your batteries and come back renewed and strengthened for treatment.
Hope everyone is doing as well as possible
Did anyone see the eclipse? Too cloudy here on South Coast and couldn't even see the sun! |iut did get darker, colder but nothing to see.
Will you pass my love onto Helen please. I can't believe how awful she has been treated by the medical staff. I hope the Rad's sort it out. She must be in agony! Are the rads being done today? When she is feeling better she should put in a formal complaint.
Hope you are OK. I'm glad to hear all is well at the moment. I didn't know you had mets on your lung. Mine haven't gone any worse in three and a half years and I have no symptoms. Hope yours are the same.
Chocs, I saw the onc yesterday and my treatment starts Mon for 2 weeks. I've posted on the brain mets and it's quite a long "waffle". I've gone in more detail. You're right about my onc though. He is fab!
Hope everyone else in coping and I hope you all have a good weekend. I am off shopping later with my daughter before I get too tired from wbr. You know what they say? " when the going gets tough--------"
Love to everybody. Sheila xxx
Good morning,, I had spinal cord compression,I was in a lot of pain and felt awful. I had emergency 5 day course of rads. AMAZING, in such a short time I went from hardly being able to walk , or stand for long to pain free, homestly ! Good Luck Marie x
Hi everyone wading in with best wishes to Helen, I saw my onc yesterday but we are all waiting for scan results to see if the treatment I started (e&e) is working. I am on 3/4 of recommended dose for the last 4 weeks side effectds are manageable. I feel ok but a bit scared now as Bev feels well and had had a shock progression! get scan in 2 weeks and then 2 more weeks before results, Hope you are doing ok Bev and feeling more positive with the info you have had from the forum. Best wishes to everyone suppose
I will always feel like this now it's part of life with secondary cancer, feeling low x
Helen, hope today gets you the tests you need and then you can go home. I hope you are feeling much better. We are all missing you.😢 lots of love Sheila. Xxx
Morning chocolates...God i feel so angry about the way Helens being treated..,they certainly seem to be dragging their feet! Lets hope she gets her temp sorted out soon, in the meantime I'm sending double pair of angry eyes!!
I have posted an update on the Brain mets thread this morning if you can read that. Im feeling so well at the moment apart from the shock of course... it makes you wonder how and when things will take a turn for the worst?
Anyway have a lovely weekend, love and hugs and please pass on same to helen xxx
Will be nice to chat to you tonight Marie if you can get registered and make it on.
Bev hope you now have your treatment plan, still holding you tight my lovely xx
Sorry about that. If you would like to send an email to: firstname.lastname@example.org with your forum user name and a password we will make sure you are registered for tonight's session.
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Come and join us, you'll be made most welcome.
Just wanted to pop on quickly and wish you as good an appointment as possble Bev. Hope that you will feel a little reassured once you have a treatment plan in place. Sending you strength - positive vibes and prayers are with you.
Sheila hope you don't have to wait to long for your appt and treatment start.
Helen hope you are starting to turn a corner and can get home soon.
Love to all you lovely ladies xx
Oh Bev, I just popped in here and read your dreadful news. Blast this crappy stuff! I'm glad you have an appointment tomorrow so you can get the ball rolling for answers and treatment plan. My heart and prayers are with you! (((((((((Hugs!!!!!)))))))) Funnyface
I'm sure you're not Bev. I won't be either when I get my appointment but the sooner tx starts the better. Love Sheila. Xx
Bev, i am really sorry to hear your news. I have brain mets now, found with ct scan but I had an MRI this morning and now waiting for treatment plan. Onc has asked for stereotactic treatment and I am hoping this will be possible as there are less SE. Also you can have it done several times if any mets come back or you get new ones. I have researched the different treatments and it is very positive but if you do research dont fall for the statistics. They will depress you. Treatment for brain mets has improved fantastically in the last few years and women are living for years after diagnosis. If you can get them stable and then make sure that the mets in other parts of the body are kept under control you will keep having MRI of your head and they can keep zapping any that may come back. They used to follow up stereotactic treatment with WBR just in case there were any micromets not showing up on scan but now some neurologists believe that if there are micromets there they will be found if they grow and these can then be treated with stereotactic treatment.
I don't know which tx I will be having yet until the neurologist sees the scan report but I hope it won't be long to wait.
Take care Bev, try to be positive. We can support each other through this if you like. Let me know how you get on tomorrow.
Lots of love Sheila. Xxx
Oh Bev I am so sorry to learn of your rotten news but stay strong lovely lady - your onc will have a plan for you that will work. As the others have said there are lots of treatments so one will work for you. We are all thinking of you.xx
My dear Bev, what a dreadful shock for you, you must be all over the place. I am glad you are seeing your Onc tomorrow, you need to know the plan of action as soon as possible. As has been said, the reatment will depend on where the mets are, how many and size, but there will be treatment. I know people who have had an op others who have had steriotatic radiotherapy and some who have had whole brain radiotherapy so hang in there and tomorrow you'll know what your Onc thinks is the best way forward. Holding you in my thoughts and heart and happy to send up a prayer if wanted. xx