well done for the weightloss ff. also good idea about your bag of useful goodies.
e/e worked for 9 months only for me and i felt massively let down by my body. Now back on chemo and feeling decidedly ropey. i didn't use to swear but chemo can really bring out those 4 letter words i've noticed.
love to all
LindyLoo, You did great with E &E. I have a scan next Tues. results Thurs. It will be a year in May for E & E. If it fails I know it's back to chemo. Not looking forward to scan results!
Hi Ladies, Before each drug change I always make sure my "Counteracting Bag" is full of supplies. Luckily though we have a 24hr pharmacy about 15 mins down the road. I find water ice a wonderful thing to have on hand too!
Too give you all a laugh. I've worked hard at losing this weight. I keep moving my goal. When I'm finished I will have lost 1/2 of what I started at. I went to the Dr yesterday for a pre- op approval for cataract surgery. The nurse looked at me and said, "You don't have a butt anymore!" Best words ever!
Hi Lindy, just to mention that my hospital call metastatic cancer ‘chronic cancer’ and I agree, that’s much nicer and actually it IS chronic, just like many other illnesses.
and so when travel insurance companies ask if one has ever been informed they are’terminal’ we can all say an emphatic NO.
Carolyn.....just noticed that you are starting e/e on Thursday. I know nothing about it so why am I here? Well, the range of potential ses is always wide and one thing I learnt on my recent travels with docetaxel is to try and be prepared. So ask for anything they can give you for your se box. II needed loperamide. So glad I had it in my box! But my most useful discovery.........after finishing with docetaxel because of allergic reaction returning....... was for mouth ulcers. They arrived unexpectedly and lasted for a month. Thought they would last forever! Anyway my magic discovery was Iglu gel. I tried Difflam, given by chemo unit. No good for me. Bonjela no good. Something else from the chemo unit that came in sachets burned my mouth and throat! But........everyone different. It might be worth having a little tube of Iglu, or at least know about it to send out hub. It can be bought anywhere. It makes a gluey cover over each ulcer, relieves pain almost immediately and aids recovery because it stays put. No stinging at all.
Just a thought. And perhaps others struggling with mouth ulcers might find it worth a try. I know how individual we all are, but that is why we need to know the full range of possibilities. I would try anything at all at one point!! They eventually disappeared although my mouth is still sensitive, so I avoid crisps etc.
Well, I took a long time to say very little! Take care everyone, particularly those new to the thread. I haven't adapted to the new time of day yet..........springing forward on Saturday night!
Wow!!! Bingo!!! You've summed up exactly what its like wrt family & friends. I loathe the....But you look so well. My grown up daughters have switched off the whole shebang & sometimes, I'll not see them for up to 8 weeks. My eX has told them to really 'live' their lives and they are obliging & boyo does it hurt! I've tried everything to alter this state of affairs, but to no avail.My friends say they will regret in time but I don't want that for them, either,
3 years ago, stage 4 @ initial Dx...mets in pelvis, but now I'm coasting along on Denosumab injections & daily Letrozole. Is this bit unusual i only see my oncologist once every 6 months for a CT scan chest & abdo.? I actually feel like I've just been doing exactly as I've been told....
When do you start your new treatment......sending you ooodles of bravery/whatever u need....
Are these 2 'new' drugs to be taken in tablet form?
Sending you the very best of luck.....I've found the cancer journey to be very lonely & isolating. However, I now have a Macmillan befriender & it has helped me so very much.
What are your plans for over the Easter w/end? Are your new mets. hurting you daily?
Take extra special care....
silver.......no lining needed...he,he,he....hugggs
Carolyn it's never our fault! In a moment of madness post diagnosis hubby said "whatever you want is yours" lord alone knows what he was thinking as he knows only too well I don't forget anything !! he blames the beer but I've held him to it ever since! 😜 And just for the record I have 3 hoovers... all Dysons though ... only one house so even I can't explain why 😂😜
I thought I'd take u up on your offer of 'joining in'.
I'm one of those 3 years in from secondaries diagnosis.
Your comments on 'men' made me giggle. As I'm divorced, I do not have to worry about him anymore.
What sort of treatment will you be starting?
i hear what you're saying Lindy but in my mum's nursing home they are nearly all women. Maybe it's because we get so worn out we go running there for the luxury of not having to do all the housework any more.LOL
Carolyn, You know I'm a pajama girl! I like working M-F mornings and finished by noon, but I miss my pajama mornings. When I worked in the afternoon I had lots of pajama mornings. Now I come home from work and put my jeans on til dinner time. After dinner if we aren't going out then I'm in my pajamas. Come summer I won't be as much.
March is winding down ladies and I hope we get some warm days in April. I need to get outside! I hate the cold. FF
Absolutely Carolyn, standards must never be allowed to slip! Hair and full make up go great with pjs! 😉Xx
Barton it's no secret I like a G&T but I had no idea my iPad was keeping tabs on my habit too!! 🍸🍸😂😂
I'm not the best with technology either but we all run when hubby asks for help. Jobey he is a carpenter too. Built our house.
Hello Barton, Ramade, Renee, and Red Riding hood! I've seen post from all of you but currently am falling asleep and can't remember what you said. I took 50 mg of benadryl. Good night!
Carolyn we do time change here to but it was 2 weeks ago.
Hello Carolyn. You know how brave I think you are, but isn't it wonderful how everyone has rallied around to perk you up and offer such amazing support and tips, etc? This Forum is so incredibly friendly and comforting.
I too have a cleaner - I couldn't manage any more with hoovering, etc. I also take my clean washing out to be ironed as I can't do it with my back. You will wish you had succumbed to a cleaner years ago! I found out the other day that my lady is 77! She is way fitter than I am!
Love and hugs. Barton.x
Ps Jobey - I laughed when I read that about your technology knowing your preference for gin!
Mikes the same, hates technology! He's a self employed builder so has had to teach himself basics so he can raise quotes and invoices but it's very basic! He can build a house but a smart phone leaves him having a nervous break down , he says his hands are too big for all this touch screen rubbish! 💻🖐😂
Maybe it autocorrected to something more risqué! 🤔 Hubby just bought a new laptop so will be plenty of **bleeping ** going on here later when he attempts to set it up! Thank god youngest son is home tonight , always knew there was a reason we had kids! 😂
Yes Carolyn your spot on! And tubs full of old phone chargers and cables for god knows what!
Good to know we all do it though 😜 Having Chinese tonight so will be making sure those tubs get chucked out 😂
I'd come and do your cleaning Carolyn if I lived a bit closer!! I decided it would be a good idea to clear out some kitchen cupboards this morning , now half way through with a table full of junk I have no idea what to do with so I've walked away with a coffee and gone in to another room so I don't have to look at it for 10 mins! 🙈☕️
My iPad auto corrects every word I type beginning with G to Gin 😂🍸 clearly I have a problem even my technology knows about 😜
I have a cleaning lady. She's a friend She only comes for about 1 1/2 hours a week but but it keeps the crud at bay at ground level. . She has endometriosis. I feel I ought to be cleaning for her but she needs the money. She also milks cows and had done the milking before she came to me this week. I have lived a very easy life by comparison.
I dicovered I didn't have a breast care nurse any more this week. She must have left. Not that it makes much difference because they are over in the breast care unit and you never see them. There's never a nurse around at onc appointments. The best bet is talking to a nurse at the chemo unit when you go if they've got time.
hi ladies, i thought i might tell you all what i have learned so far with this tenacious disease.
One, by putting money aside each week for a really good cleaning lady, i feel so much better seeing a lovely house and don't worry that,back on chemo again, i can't pic things up so easily. Also, as we all know and has been discussed, men don't see mess and dirt in the same way we do, so now i feel totally relaxed when he lets things spill down the kitchen cupboard fronts and don't have to say anything.
Two, now and then ask for an mri scan. My ct scans go along merrily saying no change then an mri done two weeks later shows up disease not seen by ct.
Three, if your hospital don't have breasr care nurses, go straight to your local hospice, show them how upset you are by total lack of support and they will probably be very kind and helpful.
love to all
from a bald again
A cleaning lady would be wonderful. If I had one it would force me to keep my house cleaner to start with. I probably wouldn't let anything for her to do. My hubby can do a duvet cover, laundry and operate the sewing machine. He has patched his carpenter jeans before. Now when it comes to picking up and throwing junk away, he is impossible!! But he Is excellent at TCL. He would have made a good nurse!
Carolyn.......well, thank goodness you are back! The bone thread is really busy again! Well done! It has been a bit quiet of late. It is so good to see all the names and hear how you are getting on. There is so much sharing and support here.
The days are getting longer. Best wishes to everyone!