Hello Anne, I don't have secondary's but just wanted to add that my mammogram was clear at diagnosis too, my breast cancer was found via ultrasound and I was told it could have been 5 years before it was detectable on a mammogram which means 3 years on I could still be walking around none the wiser as I'm only 49 and not in the screening program yet.
I see you have lots of support from our lovely ladies here and I hope once you are over the shock of your diagnosis you will find the strength with their help to move forward. Xx Jo
Anne, it is very early days for you and it’s natural that you feel like you do. Believe me I was in a right mess when I first found out! What I was trying to say was even if you’d had your mammogram those years ago, it doesn’t mean it definitely would’ve been found, tumours have to be a certain size to be detected, same goes on CT scans. Stay strong, Kxx
I’m another who was diagnosed straight to stage 4. I had been going to my GP practice for around 4 years saying I could feel something, not every day, but things didn’t feel right. I was already having mammograms which were clear, and they still are! Eventually after I insisted something else was done, I was sent for an ultrasound scan, that showed a small cyst, which I queried but was assured there wasn’t any blood supply and it was just a cyst...I will now never know if that was right...as I still wasn’t convinced I booked to see a different GP at the practice, she again couldn’t feel what I could but said she could see I wasn’t happy so sent me to breast clinic, and I finally got my diagnosis!
I’m just saying that sometimes even tests are inconclusive, my mammogram was still clear on the day I was seen in breast clinic because of that I think the Radiologist only did the biopsy because I was there but again, he was sure it wasn’t anything to worry about! Thank goodness he listened to me and did it!
I’m often asked if I’m angry about it because 4 years is a long time to be told there’s nothing wrong with you, when there clearly was, but what good would that do? Yes, I have moments of what if’s but.....My Onc tells me that clear mammograms, when you have bc, are not as infrequent as you might think. My GP practice is also a very good one, it was just bad luck!
I did all the examining and testing, so please try not to beat yourselves up and stay positive! Kxx
NO ONE ASOLUTELY NO ONE could have been angrier at themselves than I was at first diagnosis of primary in 2013. I hated myself for not noticing a huge lump literally right under my nose. I threw my energy into putting my affairs in order (even then!). Even that huge degree of anger does pass. I know this may be no consolation to you but I can honestly say I understand your feeling of anger completely although we all deal with it differently.
I agree Ann don’t blame yourself...it won’t change anything and upsetting yourself could make things worse....so leave the past as the past, draw a line and step forward into your new care plan ....l.things can only improve once that’s under way.,,,,,
‘’I have always been a worrier, but not once did a worry help me!
come and chat to us about how things go
A very challenging day at Christies yesterday. Due to start my eribulin, but a series of errors meant the proper paperwork had not been completed so the drug could not be issued. We were at the hospital all day while they tried to sort everything out, but were then sent home.
I gather its very expensive and only given after 2 failed chemos, so there are tight controls. We have a 4 hour round trip to the hospital, so waiting for the call today to say the drug has arrived and we can go ahead!
Hoping and praying for a result today!!
Had my first "bone juice" today. If you all remember I had broke my back from hiccups due to osteoporosis. The osteoporosis they feel was damage from all the years of treatments for cancer. The good news of all this is they had told me at one point that I had cancer in T-11 vertebrae, which they then proved there was no cancer in it. My surgeon wanted me on "bone juice" to strengthen my back. He said I could use my oncologist or go to a rheumatologist. I talked with my oncologist and she said bc there,was no cancer that I sho u k d have a bone density test. I did and the bone density said I was in the normal ranges. The oncologist said I didn't need the "bone juice" bc I wasn't at great risk of fractures. I was like WHAT?? She said insurance would only pay if I was at risk! I about lost it with her!!! I'm like do you remember that the reason for all of this is the MRI said I have osteoporosis and 2 fractures. Which I had to have cemented and pinned to stableize them. She said she would approach the insurance company. The very next day I got a phone call that I was approved for an injection called Prolia. It is given once every 6 months. It is new in the US. It was approved last June. It is a form of denosumab. It was given in back of my arm. My arm got sore and up into my shoulder about 15 mins after getting it. We will see how this goes. FF
Tatyana, Sometimes it does take a bit for the drugs to kick in. One of my treatments the scans weren't what they were hoping for after 3 months. The next scan at the 6 month mark was the best results I ever had from any treatment. Also my very first treatment they tried didn't work at all. Keep your feet lathered up in lotion. Udderly smooth is one of the best creams. Comes in a black and white cow print container. Suggested to me by lady who was on this forum. She took capecitibine (xeloda) for like 6 years. You can get it on Amazon. Hang in there. FF
So pleased for you too Linda!,!!😃😃 It was a long wait but at least they told you over the phone, my hospital won't do that but they are quick to get answers (not a private patient but you are well monitored on a trial).
My CT scan is also stable! So I'm still on my trial for now, phew! Good wishes to everyone, it does feel like spring may be here?! x
Linda, really pleased for you, now you can enjoy yourself and give yourself a lovely treat,
lots of love and hugs