Ramade, You're halfway! Yahoo! Sorry it is rough on you. It is so strange how the drugs effect each of us!
We had some snow again yesterday evening. No accumulation. It either rains or snows! Tomorrow it kid supposed to get warmer and be beautiful through the weekend. Can't wait!
yes Carolyn please do your sun dance.
Anne welcome to our group. They seem to manage bone mets pretty well these days. Mine are extensive. i also have soft tissue spread which they are hitting hard with chemo. 2 down 4 to go. Bald and feeling pretty rough, hope it works
love and hugs
Thanks Ramade! I wish it had worked better for you! Hope you are feeling fairly well and maybe get some nice weather to get out and enjoy. When the weather breaks I'm going to push myself into a walking routine. I need it! FF
Hello again Anne, thankfully my bone mets are under control and have been since my first scan after diagnosis, over two years ago now. I went onto Letrozole and Denosumab but also made some lifestyle changes, we are all different in how we approach and deal with our diagnosis, I would say make your own decisions on what feels right for you, Kxx
Sorry that you are having to join us but you have come to the right place. Googling is not good but there are sites that give you sound advice - this one, MacMillan, Cancer Research UK and Inspire are some of them. Everyone is different and the types of cancer they have are different so statisics aren't a lot of use for you as an individual except for the fact that treatments and survival times are improving all the time.
Waiting for results is one of the most difficult things we have to do and they don't always come as promptly as we might like. Scans can give a lot of information but it's usually a biopsy that gives the definative diagnosis and there are only certain bones where that can be done.
Hoping you get some firm results and a treatment plan soon and then you will have something to focus on and adjust your life to. There are so many encouraging and inspiring people and their stories on this forum that can give you hope.
At the right side of the box that you type your text in is a box to click about email alerts. You may want to turn it off eventually as I think it will alert you every time someone adds any post on that thread rather than ones specifically meant for you. I haven’t used it in all my years on here so can’t speak from experience but I’m sure that’s the way it works.
It is always an anxious time waiting for scans, and even more for the results! Obviously we all hope it’s not mets and turns out to be other aches and pains but if you do get a diagnosis of bone mets you have come to the right place for support, advice and general sharing of our experiences. We are not experts but are living with this type of condition (some, like me for many years, in my case 10 plus) and therefore understand completely what it is like. If it does turn out to be bone mets you will not be alone either with that diagnosis or the fact that you have been diagnosed with primary and secondary at the same time, it’s not as unusual as you think. Oh, and the main advice is Do not Google! Statistics and information is so out of date, I don’t think any survival stats have been updated since my diagnosis of bone mets 10 years ago. Treatments have moved on from when those figures were even put on the internet and survival rates for SBC were never actually logged in the UK until a few years back.
Hello Anne, sorry you’re having such an anxious time waiting for your results. I had a similar experience when I was diagnosed, biopsy and scans confirmed lymph nodes were involved but there was some confusion about areas in my upper spine, even the Oncologist wasn’t convinced by the Radiologists report. I see my Onc at an outreach clinic so she took the scans to the hospital she works at to get a second Radiologist report there. Sadly the mets were confirmed but I had been getting a lot of pain in that area which had been put down to the whiplash injury I had after someone had gone into the back of my car many years ago, I believe it’s typical for mets to go to an area of weakness. Hopefully as your pain has subsided it will be a different outcome for you, I just wanted to reassure you that every effort was made to make sure they got my diagnosis right. Please let us know how you get on, Kxx
Undies were found hanging from trees too! Too big to be mine!
The snow forecast has gone back and forth! It will be what it will be!
Still here, The "grandma gig" is awesome!!
Thanks everyone for the support. Happy to l ast longer on this treatment! This takes me to mid July for next scan. Hoping to make it through summer without needing chemo. FF
Hi Stillhere, what wonderful news, you're a soon-to-be stepgrandma! I've got two step-grandkids, ages 3 and 6, they are a delight, especially as I can enjoy them without feeling any responsibility whatsoever -- hey, there's none of MY genes in there! It's not my fault! Have a great time celebrating, and thanks for sharing -- the more good news we hear, the better!
That's great news FF! Came out of hiding to congratulate you! Don't envy your weather though....today in Sussex a big yellow round thing appeared??? What is it?? We saw our first swallow flying back as well....could spring be here.....for a day or two.
I had my CT scan yesterday, result next Wednesday 😳😳 I've just found out I'm going to be a step granny in the autumn...we'll be celebrating this weekend as its a first so focussing on that news x
Yay, a stable Mabel - great news FF. Now you just need to hunker down and get through the next snow storm ☃️☃️ We’re being washed away in the UK, well the South at least, but a welcome day of sun today and tomorrow, then back to clouds ☁️🌨 Presume Spring will happen sooner or later for all of us. Enjoy the good news.
Ladies, Thank you for the hand holding! Stable Mabel! Plus a little improvement in one lung! Toot toot!
Tatyana, I'm holding your hand and hoping for excellent results. Then you can toot your horn too!
Lyndyloo, We do get a cold winter and I few snow storms. We don't get it as bad as some areas. We have had back to back 24 inch storms. That 4 ft was the most I remember. No need for it to happen again!
Headed out to get some coal. Looks like we will still be needing the coal stove for most of the month.
hi funny face,
i wish you all the best with your scan results,it's always a worrying time but do hope it is good news for you,the weather is very very strange this year and appears to be all over the world ,so not just us ,we have a glorious sun shiny day here ,but bythe forecast back to rain etc tomorrow so very short lived spring.
all my best wishes
Ladies, I might need more support getting through the next snow storm than my scan results. Now saying 8 inches!!
Carolyn, Please dance away! They are calling for 5 inches of snow on Saturday! This is craziness!