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Bone mets

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Member

Re: Bone mets

Hi all . i am arem from Turkey. i am new diagnosed with metastatic breast cancer with bone mets. i am er positive her positive. May i live longer up to ten or twenty years. i read someone who made ten years.
Member

Re: Bone mets

Thank you so much for replying. I think I’ll try to work for as long as possible. I’ve always been so reliable and never ill so it will be a big change. I am a teacher and my employers are very good. I’m hoping I’ll come to terms with all this eventually. This forum is a big help
Member

Re: Bone mets

Hello anne. I carried on working for 2 years then took ill health retirement from civil service but it was a difficult decision as i loved my job.
Life acualy goes on pretty normally which sounds strange but there are definite ups and downs and i would say talking with friends and family is really important and helpful. This sire is great too altjough i dont post that often and im 4 years on from secondary diag.
Feel free to rant and rave when yiu need to!
All the best x
Community Champion

Re: Bone mets

Hi Anne

I was going to suggest you find your way over to the (existing) 'Bone mets, please join in' thread, but I see you already have.  

It's always a huge shock when you are told you have mets and it does take time to adjust and get your head around it.  Many of us have been living with mets for many years (I've just clocked up my 10 year anniversary!) so we may have forgotten exactly how it feels at the beginning but definitely will all know what it's like.  Give yourself, and your family, time to adjust.  There's no reason you can't continue to live as you have done before you knew.  The times I feel I am ill is from the side effects of treatment such as chemo.  Walking etc is good for the mind and the body so there's no reason to stop doing it.

As you've started a new thread it may get a bit left behind as the other main Bone Mets thread tends to dominate - also you end up posting the same thing twice which is a faff!  Maybe continue on the main thread and you can then get lots of advice from ladies who are living through this as well.

Nicky x

Member

Re: Bone mets

Hello anne

I don't really know how to answer you honestly as obviously treatment can play a bit part of your plans some days but it's a mind over matter thing really. You say you are starting chemo so you might get a few iffy days but you can work around them maybe ..

Don't be afraid to accept help and support from you friends and family .

Hugs xxxx
Member

Re: Bone mets

Thank you for the advice. I’ll try to talk to friends and family. My partner is really good but I don’t want to wreck his life. We need to do normal things but it’s not easy. Do you mind my asking if people manage to carry on living positively and happily with this?
Member

Re: Bone mets

Anne

You are going to be fine as you are so positive ..counselling does help lots of ladies here. .it didn't for me ..felt patronised and dealt with it better my own way.

Hugs xx
Member

Re: Bone mets

That’s so encouraging. Well done you. Did you have any counselling? I am generally a positive person but am wondering whether I can get my head around all this!
Member

Re: Bone mets

Evening Anne

Welcome to the forum. It is abit of a shock when you get diagnoised with secondary breast cancer. I felt the same back in October 2009. Breast and bone mets at same time.

I was dianoised when I was 57 carried on working until I was 63 31 hours per week. I did work full time be before breast cancer.

Please feel free to ask any questions.

Linda
Member

Re: Bone mets

Sorry to bombard you all but it’s so helpful to hear from others. A month ago I didn’t even know I had breast cancer and had never felt so well!
Member

Re: Bone mets

Thank you. That’s encouraging. I’m 53 and am really fit. Do you think it’s worth continuing to exercise? Does the shock wear off?
Member

Re: Bone mets

Hello anne ...me again .

How long is a bit of string ? We are all different with bone mets. Some ladies here continue working? Swimming etc etc. .in my case I had to have a femur pin and therefore am not that mobile . The hormones can control the bone mets for many many years. .without any real pain or problems .
I'm sure u will be fine as you are an active person ..I'm older and was retired anyway ..
Take a day at a time and your body will soon tell you what is right /wrong! !

Take care xxxx
Member

Bone mets

Could anyone tell me more about life with bone mets? Is it possible to work? I am wondering what life is going to be like?