i also have lung metastices. My breast cancer was not discovered until it had already spread to
liver and lung. Unfortunately the primary does not show on any type of scan as it is hiding behind my nipple I only found it by accident and my first consultant never could feel it as normal breast palpating misses it. Fortunately the specialist nurse and surgeon found it so I was able to have a biopsy. MRI showed the spread and I was started on Anastrazole, when that stopped working I was put onto Tamoxifen which worked for a year only, then onto Exemestane. In April this year one of the lung squatters doubled in size so it was all change again. I am now on Fulvestrant injections in my buttocks and Abemaciclib targeted chemo pills. I am very lucky to be on the Abemaciclib because although it is available via the National Cancer Fund for some reason I don’t qualify but Nottingham still had it on extended access until two days after my visit.
I have a two hour journey to Nottingham every month to have my see the consultant, jabs and collect my pills, I have blood tests at my GP and take the results with me. I go to Nottingham although I live north of Lincoln because I wanted to go to a centre of excellence, I would not be on my present treatment had I gone to Lincoln. They have given me 5 years for which I am grateful and hope to have a couple more. I thank God for the NHS and Eli Lily who provide the Abemaciclib foc as the treatment I am on at present costs thousands of pounds a month. I continue to be active, walking my dogs and playing with my ukulele band. The Abemaciclib does have some nasty gastro
intestinal side effects but I am learning to control them. There is life after diagnoses, maybe not as long as without the squatters but I have no complaints.
Hi Jools, I had a lovely all- inclusive 2 week nhs holiday in 2018 when one lung was occluded. On oxygen, and feeling grim, but they got me sorted . I’m on Palbociclib and Letrozole and going strong. My four mets are stable, and it’s great attending clinic every couple of months, instead of every week! Some SEs which I combat by being as physically active as possible - swimming, using gym, tai chi. All helps to keep the joints supple. Feeling very positive that I am managing the disease as best I can, and I hope you will too. Lots of hugs and best wishes. X
I have SBC in both lungs pelvis and spine been on palbociclib since April 2018 4 of 6 tumours smaller and things stable . Hope you get your breathing problems sorted I am fortunate not to have any breathing probs at moment xx sending you love and hugs and hoping you get treatment that is going to be effective. X know someone who was in this situation re breathing who is still here 15 years on with secondaries so there is hope and new treatments available xx
Jools, Keep lotion on your feet! Cap is known for foot problems. Hoping they got you fixed up with the talcing procedure. Back in the Spring of 2012 I had radiation on the tumors in my lung. I landed in the hospital. Six months later my oncologist said that he was amazed at my recovery. He said he had thought I was at the end of my road. Well it's now 7 years and I'm not dead yet!! Keep fighting! FF
Big hug! I wanted to let you know I’m on two oral chemos and my largest tumor has shrank, and the doctor is hopeful for my letrazole and Ibrance, with increased fatigue, but otherwise well. ❤️Praying that you’re doing better today.
Hi there, now I have had my lung drained again and 'talced', breathing is fine, so feeling more positive. Really could not cope with not being able to breath properly. Saw oncologist yesterday and she has put me on Capecitabine, saying side effects are pretty minimal, so finger crossed she is right... What are you on and whats it been like since December?
I feel for you and can see that more treatment may not appeal but some have fewer side effects than others. Perhaps see what you are offered and then how you feel. It’s a lot to take in. Thinking of you x
Just been told sbc in lung........really struggling to breath. Had drain last monday which helped but a week later its the same again, so waiting to see what next. Told without treatment have about 6 months but could go on chemo tabs which could give me longer......Feel so wretched, and so it seem pointless at the moment to have any treatment as after last years nightmare of 6cycles of chemo, to be told at the end you have sbc, just feel cant really face anymore treatment.
If perhaps they could sort out my breathing, i would feel more positive about further treatment. thanks for listening
I also have SBC in my lungs - only diagnosed last December so 6 months in! I'm happy to chat to you if you want to message me.
Thank you for posting. Sorry to see that you have been diagnosed with secondary breast cancer in the lung. Would you like to share how you are feeling and any questions you may have? Everyone on here is so very supportive and welcoming.
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