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DVT in my calf

4 REPLIES 4
Gemini111
Member

Re: DVT in my calf

Thankyou so much for replying, Wow!! Your journey has been an tough one, mine has been pretty identical unfortunately it can be so mentally tough some days but I take my hat off to lots of  ladies this forum as they have been battling at lot longer than myself, many years just like your self so inspiring. 

Anyway I’m waffling 😂 why can’t you take Warfarin or Riveroxiban instead of the injections??? I’m seriously going to be black and blue, I bruise so easily.

As clexane is a blood thinner and the tablets do the same job, what was there reason for not offering them? 
Keep strong 💪 and positive and I wish you the very best with your health x

Kindensurprise
Member

Re: DVT in my calf

Hi Gemini,

very happy to share. My primary diagnosis was in 2008 aged 38, had spread to local lymph nodes only, so had lumpectomy, chemo (3 FEC and 3 taxotere) and 6 weeks of radiotherapy. ER and PR+, HER2- so, being pre-menopause, went on Tamoxifen. Suddenly had a period in 2010, so had ovaries removed then and went on Letrozole for 2 years then back to Tamoxifen until Nov 2018. 
Swollen leg in July 2019 led to diagnosis in October 2019 with secondaries in my lymph nodes throughout my torso, down to my groin, including on the tubes that go into my lungs. Also mets in sternum. Before I started treatment, I suddenly felt very breathless so went to A+E when the PE was diagnosed. I was put on Clexane injections and the onc says to stay on these not go for the tablets because we secondary girls are more susceptible to blood clots. It took a good few months for the clots to dissipate, I struggled to walk more than a few steps without getting out of breath, but slowly this has improved, and I think I have gotten better at giving my self the jabs now as bruising isn’t as bad! I use 1 side of tummy for 4 weeks, then move to top of leg for 2 weeks, the top of other leg for 2 weeks, then other side of tummy for 4, this works for me.

Hope that’s enough detail, but do come back to me if you have any queries, if I can help I will, that’s what’s good about this forum.

All the best

Kinden xx

Gemini111
Member

Re: DVT in my calf

Was tablets never a option for you ie Warfarin, Riveroxaban? Injections are fine, but your tummy ends up black and blue(well mine does). Glad to here your better though. What is your background, if you don’t mind my asking. Initial diagnosis? Mets? Thankyou for replying to my concerns really appreciate it x take care and all the best for the future x

Kindensurprise
Member

Re: DVT in my calf

Hi Gemini
I had blood clots in my lungs not leg, ie pulmonary embolisms. I have been injecting myself with Clexane every day for over a year and my onc wants me to carry on doing it for the rest of my days. It took a few months for me to be able to breathe properly again, but I can now and am even back to singing in my choir, which I love.

All the best, Kinden

Gemini111
Member

DVT in my calf

So after being diagnosed with bone mets in September I was started on Amebaciclib and letrozole, I’ve managed to control the side effects of diarrhoea with regular lomerimide but after having 5 days of leg aches I decided to get it checked out. My Doppler scan is tomorrow but my bloods today have indicated a DVT leg clot, so before I was sent home I have received a injection in the tummy of Clexane, of which I get to receive another one tomorrow after the scan. My question is has/ are anyone had the similar situation, and if so what further treatment did you receive?? Thanks for any information xx stay strong fighters x