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Diagnosed yesterday

10 REPLIES 10
Jools-50
Member

Re: Diagnosed yesterday

Hi there SecondarySister, I'm so sorry to hear about your mum's diagnosis, it's certainly a scary place to be. I hope her treatment plan is successful, I will be learning more about mine in the morning. Just want to get on with the right medication now. Take care x

SecondarySister
Member

Re: Diagnosed yesterday

Hi Jools,

My mum was also diagnosed with secondary breast cancer in her femur, sacrum, spine, one rib and her skull about 3 weeks back!! She also has one very small lesion on her liver. So it is mostly in her bones! 

I don’t want to give false hope, but when you read other people’s stories (and there are many of them) many people live many years with the disease!! It maybe incurable, but so is diabetes, HIV and epilepsy! But with the right treatment it can be controlled and  be treated as a chronic condition. 


I found reading about Olivia Newton John’s story inspiring!! 

Its a truly awful disease that no family should have to suffer. Sending positive vibes and hugs to you!! 

Jools-50
Member

Re: Diagnosed yesterday

Thank you Gillyflower that sounds like great advice. Just a lot to try and get my head around right now x

Gillyflower
Community Champion

Re: Diagnosed yesterday

You're welcome Jools.  A similar thing happened to me, they found a lesion on my spine whilst I was having primary chemo but didn't know what it was, presumed it benign and left it without monitoring.  It wasn't until I started getting awful pain months later that an MRI scan was requested and then they found the cancer had spread significantly through my spine.

Its a lot to get your head around and totally natural to feel fear and anxiety and wondering how long have you got and what's going to happen next.  Having support from other people going through it helps as we understand xxx

Hopefully once your treatment plan has been explained to you and you've started it, you'll be able to feel more confident and settled.  I found the process helped me, as once I'd adjusted to it all, I learned that life can and does go on despite the diagnosis! I have learned to live life in a different way than what I expected pre-diagnosis, but I consider myself very fortunate in that it hasn't stopped me from doing what I usually do and for that, I'm extremely grateful.  I focus on living in the now, enjoying what I can and doing my best not to worry about the future (though its easier said than done of course!)

I hope everything goes well at your appointment on Wednesday! xxx

 

 

Jools-50
Member

Re: Diagnosed yesterday

Hi Bish12 

Thanks for your reply, that's reassuring to know because at the moment I really can't think straight. I had prepared myself to have a conversation about the lung nodules so when they told me about the bones I was completely shocked. I'll find out my new treatment plan on Wednesday, hopefully I'll settle down a bit after that. Thanks again x

Jools-50
Member

Re: Diagnosed yesterday

Thanks for your reply Gillyflower, I had a bone scan in June and it didn't show the cancer in the spine or hip, the CT scan yesterday showed it up, so I'm trying to stay positive in thinking that it hasn't had much time to take hold. My chemo for primary is stopping immediately and I will find out on Wednesday my new treatment plan. It's all very frightening at the moment, just trying to process it. Thanks again for your reassuring reply x

Jools-50
Member

Re: Diagnosed yesterday

Thank you x

Bish12
Member

Re: Diagnosed yesterday

Hi Jools

Sending you hugs. I was also diagnosed during treatment for primary late last year and found it hard, initially, coming to terms with it all whilst completing treatment. As people have said there is lots of support available on this site. Your team will also be wanting to make sure your treatment is right for you.

Not sure what advice I can offer except that 6 months on I feel well and strong. I cry, feel sorry for myself when I need to, but also am learning to look after myself so much better than I ever had done. I found counselling helped me to think through how I wanted to manage my diagnosis and how best to share the news with kids, family and friends.  I am definitely living my life with cancer not being dominated by it, but it has taken time to get here.

Please keep talking to people 

xx

Gillyflower
Community Champion

Re: Diagnosed yesterday

Hi Jools,

I'm so sorry to hear of your diagnosis - right in the middle of treatment for your primary as well.  Its a traumatic shock getting the primary, let alone then dealing with a secondary on top of that and all happening at the same time.  Sending you a massive hug right now xxx

I was diagnosed with secondaries in January this year, only 10 or so months after I finished treatment for my primary.  I suffered a collapsed vertebra in my neck, which is how they found out it had spread to my bones.  I can honestly say that you do learn how to live with it and find a way of adjusting.

Its a good thing that the spread has been found sooner rather than later, as your Oncology team can adapt your treatment plan to account for this now and mitigate any damage the cancer might be trying to do to your bones.  When my Oncologist gave me my secondary diagnosis, she told me that although its obviously not good, the treatment nowadays is so good that you can live with it for a very long time and ideally still live a very good quality of life! 

As you'll hopefully see from the forum, there are quite a few people around who have been "doing this" journey with cancer for a long time, there is lots of positivity here (and a few rants!).  Ask any questions you want, we're all here to support each other xxx

Bernard_BCN
Community Manager

Re: Diagnosed yesterday

Dear Jools-50

I am sending you the warmest hugs at this time.

Even though sometimes it may feel like it, please remember you are *not* alone. There is a strong community of people here who will support you, and if you ever feel like chatting to someone on more clinical matters, you can call our breast care nurses on freephone 0808 800 6000 (Mon-Fri, 9am-4pm; Sat, 9am-1pm). Our team is friendly and everything you say is said in confidence.

Sending positive thoughts your way 💐

Bernard

Jools-50
Member

Diagnosed yesterday

I am halfway through chemo for primary breast cancer, and yesterday had a follow up CT scan to check on lung nodules which showed up on the first scan. They haven't grown however I now have cancer on my spine and left hip. I'm absolutely terrified, devastated and can't think straight. My treatment will be changing immediately. I've 2 kids and I'm really struggling. Any positivity much appreciated