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Eyes watering constantly on Ibrance and letrozole

24 REPLIES 24
carladman
Member

Re: Eyes watering constantly on Ibrance and letrozole

 
Liz0418
Member

Re: Eyes watering constantly on Ibrance and letrozole

  • I had same issue with eyes sore and streaming last year after about 3months on treatment phoned g.p but was told to go to optician had gor drops from boots 2days previously which made it worse. Optician said like previous post some eye drops with preservative can make it worse got vit A eye cream on her recommendation preservative free it helped. Mentioned it to oncologist who said dry eyes is a little known side effect but I find it's more than dry eyes its painful too bought more its about £8  online hycosan eye cream . On palbo and letrosole which is working been on it for 2and a half years and scan shows things stable in lungs spine and pelvis so eyes are sore at times but worth it . Liz
rosie53
Member

Re: Eyes watering constantly on Ibrance and letrozole

I’m on my third cycle of Capecitabine and I’m having eye problems, sounds weird but they feel really dry tired but they are also watery too plus I have bags under my eyes you could carry your shopping home in! I’ve bought some hypromellose today to see if these help.

J x

carladman
Member

Re: Eyes watering constantly on Ibrance and letrozole

I’m experiencing the same thing...it started about 6 mos in on both drugs.  Not sure what to make of it(?)

riversidedawn
Member

Re: Eyes watering constantly on Ibrance and letrozole

Anmat, I've got incredibly dry mouth top. I hadn't linked that to drugs but may be it is.
Hannah22
Member

Re: Eyes watering constantly on Ibrance and letrozole

Hi I will survive that’s brilliant you are NED gosh amazing How many cycles did it take to get to that .I am on same combo .Watering eyes is annoying systane gel drops have helped me , they are not as bad now .Hope ‘‘this helps 😊
Iwillsurvive
Member

Re: Eyes watering constantly on Ibrance and letrozole

I’m on my 13th cycle Ibrance & Letrozole last July my PET scan NED no evidence of disease I did the Happy Dance but my Watering Eyes are getting worse.at 1st I thought my allergies, then eye Doc, antihistamines don’t work nothing I’m trying works now I’m trying 👁dropshelps for an
hour then watering again. I am so grateful the meds are working for stopping Cancer
Hannah22
Member

Re: Eyes watering constantly on Ibrance and letrozole

Ok thanks oviously all similar side effects on this medication
Annmat
Member

Re: Eyes watering constantly on Ibrance and letrozole

I don’t take the same combo but I’m on Letrozole with ribociclib. There’s no watering eyes but more dry mouth, skin and eyes. I think it’s the ribociclib but could be wrong.
Hannah22
Member

Re: Eyes watering constantly on Ibrance and letrozole

Hi Annie what make is the eye gel 😊
Anniej
Community Champion

Re: Eyes watering constantly on Ibrance and letrozole

Hi, I've been prescribed preservative free eye gel on the advice of my optometrist . Not cheap, but my GP ok'd it. Extremely soothing as a gel. The preservatives in the drops were building up a film which was exacerbating the problem. Jobs a good'un , as my ma would say! X

Ri
Member

Re: Eyes watering constantly on Ibrance and letrozole

Thanks,will ask about these eye drops x

Hannah22
Member

Re: Eyes watering constantly on Ibrance and letrozole

Hi I am fairly new to this site too . My eyes were watering constantly,and sore .I am using systane gel drops , so much improved.Its not cheap , but has really helped
Ri
Member

Re: Eyes watering constantly on Ibrance and letrozole

First time on this forum 

My eyes are very sore and constantly watering.Have just finished 6th cycle of Palbociclib and Arimidex.

Is this normal?

Hannah22
Member

Re: Eyes watering constantly on Ibrance and letrozole

Hi Stillhere gosh stable after 30 cycles that’s brilliant. I was in remission for 18 years , So was devastated, wen it returned.Its now in brachial plexus, around the nerves so inoperable..Let’s hope drugs carry on working.😊
Stillhere
Member

Re: Eyes watering constantly on Ibrance and letrozole

That's great news, Hannah, long may it continue! I've been on Ibrance for 30 cycles, along with another drug on a trial, had lots of CT scans, still stable 😀

Hannah22
Member

Re: Eyes watering constantly on Ibrance and letrozole

Have you had scans on this treatment
Hannah22
Member

Re: Eyes watering constantly on Ibrance and letrozole

Thanks for reply riverside dawn thought it was just me
Hannah22
Member

Re: Eyes watering constantly on Ibrance and letrozole

Hi still here thanks for reply ,it must be Ibrance, as I too have taken letrozole before .Am now on 4th cycle , had pet scan , and it seems to be shrinking the cancer thank goodness.How are you doing 😊
Stillhere
Member

Re: Eyes watering constantly on Ibrance and letrozole

Yes, me too....and it makes your nose run! I think it's Ibrance, never had it on Letrozole alone. I'm expecting a surge in Kleenex sales, funded by me! x

riversidedawn
Member

Re: Eyes watering constantly on Ibrance and letrozole

My eyes have been watering terribly for a couple of months. I hadn't linked it to letrazol and Ibrance. Been on them since January.
Hannah22
Member

Re: Eyes watering constantly on Ibrance and letrozole

How long have you been on these tablets, I have just finished 3rd cycle , so hopefully they will help me
Hannah22
Member

Re: Eyes watering constantly on Ibrance and letrozole

Yes same here mainly one eye , true it is a small price to pay
Millie18
Member

Re: Eyes watering constantly on Ibrance and letrozole

1 of my eyes is just the same on these tablets, small price to pay for effectiveness of them though.
Hannah22
Member

Eyes watering constantly on Ibrance and letrozole